Health inequalities experienced by children and young people with intellectual disabilities: A review of literature from the United Kingdom

Journal of Intellectual Disabilities

Volumn 15, Issue 4, 2011, Pages 269-278

  Allerton, Lindsay A ^a   Welch, Vicki ^b   Emerson, Eric ^b,c  

^a UNIVERSITY OF MICHIGAN   (United States)

^b LANCASTER UNIVERSITY   (United Kingdom)

^c UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Adolescents; Children; Health; Health inequalities; Intellectual disability

Indexed keywords

ARTICLE; BEHAVIOR DISORDER; CHILD HEALTH; CHILD HEALTH CARE; COMORBIDITY; DEPRESSION; EVIDENCE BASED MEDICINE; HEALTH CARE ACCESS; HEALTH CARE AVAILABILITY; HUMAN; INTELLECTUAL IMPAIRMENT; MENTAL DISEASE; PREVALENCE; PRIORITY JOURNAL; SYSTEMATIC REVIEW; UNITED KINGDOM;

ADOLESCENT; CHILD; DISABLED CHILDREN; EVIDENCE-BASED MEDICINE; GREAT BRITAIN; HEALTH STATUS DISPARITIES; HUMANS; INTELLECTUAL DISABILITY; PREVALENCE;

EID: 84856172932     PISSN: 17446295     EISSN: 17446309     Source Type: Journal    
DOI: 10.1177/1744629511430772     Document Type: Article

References (65)

1. Abdullah N, Drummond P, Gray N, Al-Khalidi O, Barry R and Cheetham T (2009) Short stature: increased in children with severe learning disability. Child: Care, Health and Development 35: 266-270.
2. Annaz D, Hill CM, Ashworth A, Holley S and Karmiloff-Smith A (2011) Characterisation of sleep problems in children with Williams syndrome. Research in Developmental Disabilities 32: 164-169.
3. Beresford B and Rhodes D (2008) Housing and Disabled Children. York: Joseph Rowntree Foundation.
4. Boyle A, Melville CA, Morrison J, Allan L, Smiley E, Espie CA and Cooper SA (2010) A cohort study of the prevalence of sleep problems in adults with intellectual disabilities. Journal of Sleep Research 19: 42-53.
5. Campbell M and Martin M (2010) Reducing health inequalities in Scotland: the involvement of people with learning disabilities as national health service reviewers. British Journal of Learning Disabilities 38: 49-58.
6. Carter M, McCaughey E, Annaz D and Hill CM (2009) Sleep problems in a Down syndrome population. Archives of Disease in Childhood 94: 308-310.
7. Chan S, Baldeweg T and Cross JH (2011) A role for sleep disruption in cognitive impairment in children with epilepsy. Epilepsy and Behavior 20: 435-440.
8. Chapman M, Iddon P, Atkinson K, Brodie C, Mitchell D, Parvin G and Willis S (2010) The misdiagnosis of epilepsy in people with intellectual disabilities: a systematic review. Seizure 20: 101-106.
9. Charman T, Pickles A, Simonoff E, Chandler S, Loucas, T and Baird G (2011) IQ in children with autism spectrum disorders: data from the Special Needs and Autism Project (SNAP). Psychological Medicine 41: 619-627.
10. Daley D and Birchwood J (2010) ADHD and academic performance: why does ADHD impact on academic performance and what can be done to support ADHD children in the classroom? Child: Care, Health and Development 36: 455-464.
11. Danckaerts M, Sonuga-Barke EJS, Banaschewski T, Buitelaar J, Döpfner M, Hollis C, Santosh P, Rothenberger A, Sergeant J, Steinhausen HC, Taylor E, Zuddas A and Coghill D (2010) The quality of life of children with attention deficit/hyperactivity disorder: a systematic review. European Child and Adolescent Psychiatry 19: 83-105.
12. Department for Education (2010) Children with Special Educational Needs 2010: An Analysis. London: Department for Education.
13. Dickinson H, Parkinson K, Ravens-Sieberer U, Schirripa G, Thyen U, Arnaud C, Beckung E, Fauconnier J, McManus V, Michelsen S, Parkes J and Colver A (2007) Self-reported quality of life of 8-12-year-old children with cerebral palsy: a crosssectional European study. Lancet 369: 2171-2178. (Pubitemid 46992753)
14. Disability Rights Commission (2006) Equal Treatment: Closing the Gap. London Disability Rights Commission.
15. Elliott J, Hatton C and Emerson E (2003) The health of people with learning disabilities in the UK: evidence and implications for the NHS. Journal of Integrated Care 11: 9-17.
16. Ells L, Shield J, Lidstone J, Tregonning D, Whittaker V, Batterham A, Wilkinson J and Summerbell C (2008) Teesside Schools Health Study: body mass index surveillance in special needs and mainstream school children. Public Health 122: 251-254. (Pubitemid 351265138)
17. Emerson E (2003) Prevalence of psychiatric disorders in children and adolescents with and without intellectual disability. Journal of Intellectual Disability Research 47: 51-58. (Pubitemid 36367492)
18. Emerson E (2009) Overweight and obesity in 3 and 5 year old children with and without developmental delay. Public Health 123: 130-133.
19. Emerson E (2010a) Deprivation, ethnicity and the prevalence of intellectual and developmental disabilities. Journal of Epidemiology and Community Health.
20. Emerson E (2010b) Self-reported exposure to disablism is associated with poorer self-reported health and well-being among adults with intellectual disabilities in England: cross sectional survey. Public Health 124: 682-689.
21. Emerson E (2011) Health status and health risks of the 'hidden majority' of adults with intellectual disability. Intellectual and Developmental Disabilities 49: 155-165.
22. Emerson E and Baines S (2010a) The estimated prevalence of autism among adults with learning disabilities in England. Improving Health and Lives: Learning Disabilities Observatory. http://www.improvinghealthandlives.org.uk/ publications.
23. Emerson E and Baines S (2010b) Health inequalities and people with learning disabilities in the UK: 2010. Improving Health and Lives: Learning Disabilities Observatory. http://www.improvinghealthandlives.org.uk/ publications.
24. Emerson E and Baines S (2011) Health inequalities and people with learning disabilities in the UK. Tizard Learning Disability Review 16: 42-48.
25. Emerson E and Einfeld S (2010) Emotional and behavioural difficulties in young children with and without developmental delay: a bi-national perspective. Journal of Child Psychology and Psychiatry 55: 583-593.
26. Emerson E and Hatton C (2007a) The contribution of socio-economic position to the health inequalities faced by children and adolescents with intellectual disabilities in Britain. American Journal on Mental Retardation 112: 140-150. (Pubitemid 46493437)
27. Emerson E and Hatton C (2007b) The mental health of children and adolescents with intellectual disabilities in Britain. British Journal of Psychiatry 191: 493-499. (Pubitemid 350273209)
28. Emerson E and Hatton C (2007c) Poverty, socio-economic position, social capital and the health of children and adolescents with intellectual disabilities in Britain: a replication. Journal of Intellectual Disability Research 51: 866-874. (Pubitemid 47506390)
29. Emerson E and Hatton C (2010) Socio-economic position, poverty and family research. In: Glidden LM and Seltzer MM (eds) On Families: International Review of Research on Mental Retardation. New York: Academic.
30. Emerson E and Turnbull L (2005) Self-reported smoking and alcohol use by adolescents with and without intellectual disabilities. Journal of Intellectual Disabilities 9: 58-69. (Pubitemid 40521184)
31. Emerson E, Baines S, Allerton L and Welch V (2011a) Health inequalities and people with learning disabilities in the UK: 2011. Improving Health and Lives: Learning Disabilities Observatory. http://www.improvinghealthandlives. org.uk/publications.
32. Emerson E, Hatton C and Robertson J (2011b) Prevention and social care for adults with learning disabilities. School for Social Care Research.
33. Emerson E, Madden R, Robertson J, Graham H, Hatton C and Llewellyn G (2009) Intellectual and physical disability, social mobility, social inclusion and health: background paper for the Marmot Review. Lancaster: Centre for Disability Research, Lancaster University.
34. Emerson E, Malam S, Davies I and Spencer K (2005) Adults with Learning Difficulties in England 2003/4. Leeds, Health and Social Care Information Centre.
35. Emerson E, Shahtahmasebi S, Lancaster G and Berridge D (2010) Poverty transitions among families supporting a child with intellectual disability. Journal of Intellectual and Developmental Disability 35: 224-234.
36. Gibson PA, Newton RW, Selby K, Price DA, Leyland K and Addison GM (2005) Longitudinal study of thyroid function in Down's syndrome in the first two decades. Archive of Diseases of Childhood 90: 574-578. (Pubitemid 40780715)
37. Graham H (2005) Intellectual disabilities and socioeconomic inequalities in health: an overview of research. Journal of Applied Research in Intellectual Disabilities 18: 101-111. (Pubitemid 40801746)
38. Hastings RP, Beck A, Daley D and Hill C (2005) ADHD and their correlates in children with intellectual disability. Research in Developmental Disabilities 26: 456-468. (Pubitemid 41317192)
39. Hertzman C and Boyce T (2010) How experience gets under the skin to create gradients in developmental health. Annual Review of Public Health 31: 329-347.
40. Howe D (2010) ADHD and its comorbidity: an example of gene-environment interaction and its implications for child and family social work. Child and Family Social Work 15: 265-275.
41. Irwin LG, Siddiqi A and Hertzman C (2007) Early Child Development: A Powerful Equalizer. Geneva: World Health Organization.
42. Johnson S, Hollis C, Kochhar P, Hennessy E, Wolke D and Marlow N (2010) Psychiatric disorders in extremely preterm children: longitudinal finding at age 11 years in the EPICure Study. Journal of the American Academy of Child and Adolescent Psychiatry 49: 453-463.
43. Kiddle HAD (2011) Vulnerability to depression in adolescents with intellectual disabilities. Advances in Mental Health and Intellectual Disabilities 5: 3-8.
44. Kochhar P, Batty MJ, Liddle EB, Groom MJ, Scerif G, Liddle PF and Hollis CP (2011) Autistic spectrum disorder traits in children with attention deficit hyperactivity disorder. Child: Care, Health and Development 37: 103-110.
45. Krahn GL, Hammond L and Turner A (2006) A cascade of disparities: health and health care access for people with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews 12: 70-82. (Pubitemid 43238126)
46. Mencap (2007) Death by Indifference. London: Mencap.
47. Michael J (2008) Healthcare for All: Report of the Independent Inquiry into Access to Healthcare for People with Learning Disabilities. London: Independent Inquiry into Access to Healthcare for People with Learning Disabilities.
48. Noble SE, Leyland K, Findlay CA, Clark CE, Redfern J, Mackenzie JM, Girdwood RWA and Donaldson MDC (2000) School based screening for hypothyroidism in Down's syndrome by dried blood spot TSH measurement. Archive of Diseases of Childhood, 82: 27-31. (Pubitemid 30305727)
49. O'Hara J, McCarthy J and Bouras N (2010) Intellectual Disability and Ill Health. Cambridge: Cambridge University Press.
50. Ouellette-Kuntz H (2005) Understanding health disparities and inequities faced by individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 18: 113-121. (Pubitemid 40801747)
51. Pueschel SM, Jackson IMD and Giesswein P (1991) Thyroid function in Down's syndrome. Research in Developmental Disabilities 12: 287-296.
52. Reilly CJ (2011) Attention deficit hyperactivity disorder (ADHD) in childhood epilepsy. Research in Developmental Disabilities 32: 883-893.
53. Shonkoff JP (2010) Building a new biodevelopmental framework to guide the future of early childhood policy. Child Development 81: 357-367.
54. Sloneem J, Oliver C, Udwin O and Woodcock KA (2011) Prevalence, phenomenology, aetiology and predictors of challenging behaviour in Smith-Magenis syndrome. Journal of Intellectual Disability Research 55: 138-151.
55. Swiderska N, Gondwe J, Joseph J and Gibbs J (2011) The prevalence and management of epilepsy in secondary school pupils with and without special educational needs. Child: Care, Health and Development 37: 96-102.
56. The Marmot Review (2010) Fair Society, Healthy Lives: Strategic Review of Health Inequalities in England Post-2010. London: The Marmot Review.
57. Totsika V, Hastings RP, Emerson E, Berridge DM and Lancaster GA (2011) Behavior problems at 5 years of age and maternal mental health in autism and intellectual disability. Journal of Abnormal Child Psychology 1-11.
58. Tunnicliffe P and Oliver C (2011) Phenotype-environment interactions in genetic syndromes associated with severe or profound intellectual disability. Research in Developmental Disabilities 32: 404-418.
59. USDHHS (2002) Closing the Gap: A National Blueprint to Improve the Health of Persons with Mental Retardation. Rockville, MD: US Department of Health and Human Services.
60. USDHHS (2005) The Surgeon General's call to action to improve the health and wellness of persons with disabilities. Washington, DC: US Department of Health and Human Services, Office of the Surgeon General.
61. USDHHS (2010) Health People 2020. Rockville, MD: US Department of Health and Human Services.
62. Whitehead M (1992) The concepts and principles of equity and health. International Journal of Health Services 22: 429-445. (Pubitemid 23364255)
63. World Health Organization (2008) Closing the Gap in a Generation: Health Equity through Action on the Social Determinants of Health. Final Report of the Commission on the Social Determinants of Health. Geneva: WHO.
64. World Health Organization and the World Bank (2011) World Report on Disability. Geneva: WHO.
65. World Health Organization Regional Office for Europe (2010) Interim First Report on Social Determinants of Health and the Health Divide in the WHO European Region. Copenhagen: WHO ROE.