Chronic condition self management: Working in partnership toward appropriate models for age and culturally diverse clients

Contemporary Nurse

Volumn 40, Issue 2, 2012, Pages 169-178

  Paterson, Georgina ^a   Nayda, Robin ^b   Paterson, Jenna A ^b  

^a DEPARTMENT OF HUMAN SERVICES   (Australia)

^b UNIVERSITY OF SOUTH AUSTRALIA   (Australia)

Author keywords

Asthma; Children and adolescents; Chronic condition; Chronic condition self management

Indexed keywords

EID: 84855458321     PISSN: 10376178     EISSN: None     Source Type: Journal    
DOI: 10.5172/conu.2012.40.2.169     Document Type: Article

References (74)

1. Abbott, P., Gordon, E., & Davison, J. (2007). Expanding roles of Indigenous Health Workers in the primary care setting: seeking recognition. Contemporary Nurse Journal, 26(1), 66-73.
2. Asthma Foundation SA 2010. Asthma Foundation SA Annual Report 2010. [Online] Available at: http://www.asthmasa.org.au/index.php/selectedContent/1001589974
3. Australian Medical Association. (2001). Position Statement: Preventable Chronic Disease Strategies in Indigenous and Torres Strait Islander Peoples, accessed at http://www.-ama.com.au/web.nsf/doc/SHED-5HY4YA on 13 May 2009.
4. Aroni, R., Sawyer, S.M., Abramson, M.J., Stewart, K., Thein, F.C.K., & Goeman, I.J.A. (2003). Asthma self management: what do we really mean?' Australian Journal of Primary Health, 9(2), 10-17.
5. Australian Bureau of Statistics (2006). 4233.0 - Health Literacy. Australia. Australian Bureau of Statistics. [Online]. Available from: http://www.abs.gov.au
6. Bateman, E.D., Hurd, S.S., Barnes, P.J., Bousquet, J., Drazen, J.M., Fitzgerald, M., Battersby, M.W., Ah Kit, J, Prideaux, C, Harvey, P.W., Collins, J.P., Mills, P.D., (2008). Implementing the Flinders Model of self-management support with Aboriginal people who have diabetes: findings from a pilot study. Australian Journal of Primary Health. 14(1), 66-74.
7. Bird, M., & Henderson, C. (2005). Recognising and enhancing the role of Indigenous and Torres Strait Islander health workers in general practice. Indigenous and Islander Journal, 28(3), 19-23.
8. Bodenheimer, T., Lorig, K.R., Holman, H., & Grumbach, K. (2002). Client self management of chronic disease in primary care. Journal of American Medical Association, 288(19), 2469-2475.
9. Bracken, M., Fleming, L., Hall, P., Van Stiphout, W., Bossley, C., Bush, A. (2009). The importance of nurse-led home visits in the assessment of children with problematic asthma. Archives of Disease in Childhood. 94(10), 780-784.
10. Buchbinder, R. (2008). Self management education en masse: effectiveness of the back pain: don't take it lying down mass media campaign. Medical Journal of Australia, 189, S29 -S32.
11. Buckner, E.B., Simmons, S., Brakefield, J.A., Hawkins, A.K., Feeley, C., Frizzell Kilgore, L.A., Holmes, S., Bibb, M., & Gibson, L. (2007). Maturing responsibility in teens participating in an asthma camp: adaptive mechanisms and outcomes. Journal for Specialists in Pediatric Nursing, vol. 12, no. 1, pp. 24 -36.
12. Cass, A., Lowell, A., Christie, M., Snelling, P.L., Flack, M., Marrnganyin, B., & Brown, I. (2002). Sharing true stories: improving communication between indigenous clients and healthcare workers. Medical Journal of Australia, 176(10), 466-470.
13. Cicak, B., Verona, E., & Mihatov-Stefanović, I. (2008). An individualized approach in the education of asthmatic children. Acta Clinica Croatia, 47(4), 231-238.
14. Couzos, S., & Davis, S. (2005). Inequities in indigenous health. Australian Family Physician, 34(10), 837-840.
15. Cunningham, S., Logan, C., Lockerbie, L., Dunn, M.J.G., McMurray, A., & Prescott, R.J. (2008). Effect of an integrated care pathway on acute asthma/wheeze in children attending hospital: cluster randomized trial. The Journal of Paediatrics, 152(3), 315-320.
16. D'Alessandro, D.M., Kingsley, P., & Johnson-West, J. (2001). The readability of paediatric client education materials on the world wide web. Archives of Paediatrics and Adolescent Medicine, 155(7), 807-812.
17. Davis, T.C., & Wolf, M.S. (2004). Health literacy: implications for family medicine. Family Medicine, 36(8), 595-598.
18. De Benedictis, D., Bush, A. (2007). The challenge of asthma in adolescence. Pediatric Pulmonology. 42(8), 683-692.
19. Department of Health South Australia. (2007). Public Health Directorate Strategic Plan 2007, SA Health's Strategic Plan 2007-2009, accessed at https://www.library.health.-sa.gov.au/Portals/-0/south-australias-health-care-plan-2007-2016.pdf on 28 April 2009.
20. DeWalt DA, Dilling MH, Rosenthal MS, Pignone MP (2007). Low parental literacy is associated with worse asthma care measures in children. Ambulatory Pediatrics. 7(1), 25-31.
21. Ducharme, F.M., Noya, F., McGillivray, D., Resendes, S., Ducharme-Bènard, S., Zemek, R., Bhogal, S.K., & Rouleau, R. (2008). Two for one: self management plan coupled with a prescription sheet for children with asthma. Canadian Respiratory Journal: journal of the Canadian Thoracic Society, 15(7), 347-354.
22. Eyre Peninsula Division of General Practice (2007). Supporting chronic disease self-management: experience from South Australia's Eyre Peninsula. Australian Government Department of Health and Aging. [Online]. Available from: http://www.epdgp.org.au/resources.htm
23. Fereday, J., MacDougall, C., Spizzo, M., Darbyshire, P., & Schiller, W. (2009). There's nothing I can't do - I just put my mind to anything and I can do it. BioMedCentral Pediatrics, 9(1), 1-22.
24. Gibson, P., Ohta, K., O'Byrne, P., Pedersen, S.E., Pizzichini, E., Sullivan, S.D., Wenzel, S.E., & Zar, H.J. (2008). Global strategy for asthma management and prevention: GINA executive summary. European Respiratory Journal, 31(1), 143-178.
25. Gibson, P.G., Powell, H., Coughlan, J., Wilson, A.J., Abramson, M., Haywood, P., Bauman, A., Hensley, M.J., & Walters, E.H. (2002). Self management education and regular practitioner review for adults with asthma. Cochrane Database of Systematic Reviews, 3, Art. No.: CD001117.
26. Goeman, D.P., Hogan, C.D., Aroni, R.A., Abramson, M.J., Sawyer, S.M., Stewart, K., Sanci, L., & Douglass, J.A. (2005). Barriers to delivering asthma care: a qualitative study of general practitioners. Medical Journal of Australia, 183(9), 457-460.
27. Government of South Australia. (2003). Final Report of the South Australian Generational Health Review, accessed at https://www.library.health.sa.gov.au/-Portals/0/GHR-final-report-better-choices-better-health.pdf on 13 May 2009.
28. Guevara, J.P., Wolf, F.M., Grum, C.M., Clark, N.M. (2003). Learning about asthma: education programmes improve the ability of children and teenagers to manage their asthma. British Medical Journal, 326(7402), 1308-1310.
29. Harris, M.F., Williams, A.M., Dennis, S.M., Zwar, N.A. & Davies, G.P. (2008). Chronic disease self-management: implementation with and within Australian general practice. Medical Journal of Australia, 189(10), S17-S20.
30. Harris, M.F., Zwar, N.A. (2007). Care of patients with chronic disease: the challenge for general practice. Medical Journal of Australia. 187(2), 104-107.
31. Harvey, P. (2009). Science, research and social change in Indigenous health - evolving ways of knowing." Australian Health Review. 33(4), 628.
32. Holsey, C.N., & Cummings, L. (2008). Evaluating a residential asthma camp program and ways to increase physical activity. Pediatric Nursing Journal, 34(6), 459-492.
33. Horrocks, S., Anderson, E., & Salisbury, C. (2002). Systematic review of whether nurse practitioners working in primary care can provide equal care to doctors. British Medical Journal, 324(7341), 819-823.
34. Jones, B.L., & Kelly, K.J. (2008). The adolescent with asthma: fostering adherence to optimize therapy. Clinical Pharmacology & Therapeutics, 84(6), 749-753.
35. Jones, A., Pill, R., & Adams, S. (2000). Qualitative study of views of health professionals and clients on guided self management plans for asthma. British Medical Journal, 321(7275), 1507-1510.
36. Jordan, J.E., Briggs, A.M., Brand, C.A., & Osborne, R.H. (2008). Enhancing patient engagement in chronic disease self-management support initiatives in Australia: the need for an integrated approach. Medical Journal of Australia, 189(10), S9-S11.
37. Jordon, J.E., & Osborne, R.H. (2007). Chronic disease self management education programs: challenges ahead. Medical Journal of Australia, 186(2), 84-87.
38. Keehner Enggelke, M., Guttu, M., Warren, M.B., & Swanson, M. (2008). School nurse case-management for children with chronic illness: health, academic, and quality of life outcomes. The Journal of School Nursing, 24(4), 205-214.
39. Kessler, K.R. (2011). Relationship between the use of asthma action plans and asthma exacerbations in children with asthma: a systematic review. Journal of Asthma & Allergy Educators, 2(1), 11-21.
40. Kumar, D.D., & Altschuld, J.W. (2003). The need for comprehensive evaluation in science. Review of Policy Research, 20(4), 603-615.
41. th edn. Elsevier Saunders, Philadelphia, USA.
42. Lugasi T, Achille M, Stevenson M (2011). Patient's perspective on factors that facilitate transition from child-centred to adult-centred health care: a theory integrated metasummary of quantitative and qualitative studies. Journal of Adolescent Health. 41(5), 429-440.
43. Masinda, M.T. (2007). Health literacy and health education: what do these terms mean in the francophone context. Promotion and Education, 14(1) 44-47.
44. Matheson, M.C., Abeysena, C., Raven, M.J., Skoric, B., Johns, D.P., Abramson, M.J., & Walters, E.H. (2006). How have we been managing chronic obstructive pulmonary disease in Australia. Internal Medicine Journal, 36(2), 92-99.
45. McQuaid, E.L., Penza-Clyve, S.M., Nassau, J.H., Fritz, G.K., Klien, R., O'Connor, S., Wamboldt, F., & Gavin, L. (2001). The asthma responsibility questionnaire: patterns of family responsibility for asthma management. Children's Health Care, 30(3), 183-199.
46. Morgan M (2009). Use of chronic disease management plans in rural practice. Australian Journal of Rural Health. 17, 173-174.
47. Newman, S.P. (2008). Chronic disease self management approaches within the complex organizational structure of a health care system. Medical Journal of Australia, 189(10), S7-S8.
48. Newland, J., & Zwar, N. (2006). General practice and the management of chronic conditions. Australian Family Physician, 35(1/2), 16-19.
49. Orrell-Valente, J.K., Jarlsberg, L.G., Hill, L.G., Cabana, M.D. (2008). At what age do children start taking daily asthma medications on their own? Journal of Pediatrics, 122(6), 1186-1192.
50. Osborne, R.H. (2008). Foreword. Medical Journal of Australia, 189(10), S5.
51. Panaretto, K.S. & Wenitong, M. (2006). The general practitioner. Medical Journal of Australia, 184(10), 527-528.
52. Poureslami, I.M., Rootman, I., Balka, E., Devarakonda, R., Hatch, J., & Fitzgerald, J.M. (2007). A systematic review of asthma and health literacy: a cultural-ethnic perspective in Canada. Medscape General Medicine, 9(3), 40.
53. nd edn. Allen & Unwin, London, U.K.
54. Rose, M., & Jackson Pulver, L.R. (2004). Indigenous health workers: professional qualifications to match their health promotion roles. Health Promotion Journal of Australia, 15(3), 240-244.
55. Rowley, K.G., Daniel, M., Skinner, K., Skinner, M., White, G.A., & O'Dea, K. (2000). Effectiveness of a community-directed 'healthy lifestyle' program in a remote Australian indigenous community. Australian and New Zealand Journal of Public Health, 24(2), 136-144.
56. Safeer, R.S., & Keenan, J. (2005). Health literacy: the gap between physicians and clients. American Family Physician, 72(3), 463-468.
57. Saini, B., Filipovaska, J., Bosnic-Anticevich, S., Taylor, S., Krass, I., & Armour, C. (2008). An evaluation of a community pharmacy-based rural asthma management service. Australian Journal Rural Health, 16, 100-108.
58. Sanders, L.M., Thompson, V.T., & Wilkinson, J.D. (2007). Caregiver health literacy and the child health services. Journal of Pediatrics, 119(1), 86 -92.
59. Sanders, L.M., Federico, S., Klass, P., Abrams, M.A., & Dreyer, B. (2009). Literacy and child health: a systematic review. Archives of Paediatrics and Adolescent Medicine, 163(2), 131-140.
60. Sawyer, S.M. (2007). Adolescents with chronic disease. Australian Family Physician, 36(9), 622-627.
61. Sawyer, S.M., & Aroni, R.A. (2005). Self-management in adolescents with chronic illness. What does it mean and how can it be achieved? Medical Journal of Australia, 183(10), 405-409.
62. Si, D., Bailie, R.S., Togni, S.J., d'Abbs, P.H., & Robinson, G.W. (2006). Indigenous health workers and diabetes care in remote community health centres: a mixed method analysis. Medical Journal of Australia, 185(1), 40-45.
63. Silva, D.T., Lehmann, D., Tennant, M.T., Jacoby, P., Wright, H., & Stanley, F. (2008). Effect of swimming pools on antibiotic use and clinical attendance for infections in two Indigenous communities in Western Australia. Medical Journal of Australia, 188(10), 594-598.
64. Smith, B.A., & Shuchman, M. (2005). Problem of non adherence in chronically ill adolescents: strategies for assessment and intervention. Current Opinion in Paediatrics, 17(5), 613-618.
65. Stevens, C.A., Wesseldine, L.J., Couriel, J.M., Dyer, A.J., Osman, L.M., & Silverman, M. (2002). Parental education and guided self-management of asthma or wheeze in the preschool child: a randomised controlled trial. Thorax, 57(1), 39-44.
66. Sulaiman N, Aroni R, Thien F, Schattner R, Simpson P, Del Colle E, Wolfe R, Abramson M (2011). Written asthma action plans (WAAPs) in Melbourne general practices: a sequential mixed methods study. Primary Care Respiratory Journal, 20(2), 161-169.
67. Tolomeo, C. (2009). Group asthma education in a pediatric in-client setting. Journal of Pediatric Nursing, 24(6), 468-473.
68. Villaire, M., & Mayer, G. (2007). Low health literacy: the impact on chronic illness management. Professional Case Management Journal, 12(4), 213-218.
69. Walker, D.A., & Pearman, D. (2009). Therapeutic recreation camps: an effective intervention for children and young people with chronic illness? Archives of Disease in Childhood, 94, 401-406.
70. Weng, H.C., Yuan, B.C., Su, Y.T., Perng, D.S., Chen, W.H., Lin, L.J., Chi, S.C., & Chou, C.H. (2007). Effectiveness of a nurse-led management programme for paediatric asthma in Taiwan. Journal of Paediatrics and Child Health, 43, 134-138.
71. Wilson, D.H., Tucker, G., Frith, P., Appleton, S., Ruffin, R.E., & Adams, R.J. (2007). Trends in hospital admissions and mortality from asthma and chronic obstructive pulmonary disease in Australia, 1993-2003. Medical Journal of Australia, 186(8), 408- 411.
72. World Health Organization (1998) Health Promotion Glossary. WHO, Geneva
73. Wood MR, Bolyard D (2010). Making education count: the nurse's role in asthma education using a medical home model of care. Journal of Pediatric Nursing.
74. Zemek, R.L., Bhogal, S.K., & Ducharme, F.M. (2008). Systematic review of randomized controlled trials examining written action plans in children: what is the plan? Archives of Paediatrics and Adolescent Medicine, 162(2), 157-163.