Unmet needs for home and community-based services among persons with disabilities in Massachusetts

Disability and Health Journal

Volumn 4, Issue 4, 2011, Pages 219-228

  Mitra, Monika ^a   Bogen, Karen ^b   Long Bellil, Linda M ^a   Heaphy, Dennis ^c  

^a UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL   (United States)

^b MATHEMATICA POLICY RESEARCH   (United States)

^c Disability Policy Consortium   (United States)

Author keywords

Disabilities; Home and community based services; Unmet needs

Indexed keywords

PRESCRIPTION DRUG;

ACCESS TO INFORMATION; ADULT; ARTICLE; ASSISTIVE TECHNOLOGY; COMMUNITY BASED REHABILITATION; CONTROLLED STUDY; DAILY LIFE ACTIVITY; DISABILITY; FEMALE; HEALTH CARE ACCESS; HEALTH CARE NEED; HEALTH SERVICE; HEALTH SURVEY; HOME CARE; HUMAN; MAJOR CLINICAL STUDY; MALE; MEAL; MEDICAL CARE; MENTAL HEALTH CARE; OCCUPATIONAL THERAPY; PATIENT TRANSPORT; PHYSIOTHERAPY; PREVALENCE; PRIORITY JOURNAL; UNITED STATES;

EID: 83455266615     PISSN: None     EISSN: 19366574     Source Type: Journal    
DOI: 10.1016/j.dhjo.2011.08.003     Document Type: Article

References (43)

1. Alkema GE, Reyes JY, Wilber KH. Characteristics associated with home- and community-based service utilization for Medicare managed care consumers. Gerontologist. 2006;46(2):173-182.
2. Casado BL, van Vulpen KS, Davis SL. Unmet needs for home and community-based service among frail older Americans and their caregivers. J Aging Health. 2011;23(3):529-553.
3. Komisar HL, Feder J, Kasper J. Unmet long-term care needs: an analysis of Medicare-Medicaid dual eligibles. Inquiry. 2005;42(2): 171-182. (Pubitemid 41608307)
4. Desai MM, Lentzner HR, Weeks JD. Unmet need for personal assistance with activities of daily living among older adults. Gerontologist. 2001;41(1):82-88. (Pubitemid 32146162)
5. Williams J, Lyons B, Rowland D. Unmet long-term care needs of elderly people in the community: a review of the literature. Home Health Serv Q. 1997;16:93-119.
6. Manton KG. Epidemiological, demographic, and social correlates of disability among the elderly. Milbank Q. 1989;57(suppl 2, pt 1): 13-58. (Pubitemid 20080641)
7. Allen SM, Mor V. The prevalence and consequences of unmet need: contrasts between older and younger adults with disability. Med Care. 1997;35(11):1132-1148. (Pubitemid 127453466)
8. Lima JC, Allen SM. Targeting risk for unmet need: not enough versus no help at all. J Gerontol B Psychol Sci Soc Sci. 2001;56(5):S302-S310. (Pubitemid 32824072)
9. Wiener JM, Anderson WL, Khatutsky G. Are consumer-directed home care beneficiaries satisfied? Evidence from Washington State. Gerontologist. 2007;47(6):763-774. (Pubitemid 351171898)
10. Gibson MJ, Verma SK. Just Getting By: Unmet Need for Personal Assistance Services Among Persons 50 or Older with Disabilities. Washington, DC: AARP Public Policy Institute; 2006.
11. Newcomer R, Kang T, Laplante M, et al. Living quarters and unmet need for personal care assistance among adults with disabilities. J Gerontol B Psychol Sci Soc Sci. 2005;60(4):S205-S213. (Pubitemid 40885207)
12. LaPlante MP, Kang T, Kaye HS, et al. Unmet need for personal assistance services: estimating the shortfall in hours of help and adverse consequences. J Gerontol B Psychol Sci Soc Sci. 2004;59(2):S98-S108. (Pubitemid 38326343)
13. Pickelsimer EE, Selassie AW, Sample PL. Unmet service needs of persons with traumatic brain injury. J Head Trauma Rehabil. 2007;22(1):1-13. (Pubitemid 46145466)
14. Mudrick N, Schwartz M. Health care under the ADA: a vision or a mirage? Disabil Health J. 2010;3(4):233-239.
15. Story MF, Schwier E, Kailes JI. Perspectives of patients with disabilities on the accessibility of medical equipment: examination tables, imaging equipment, medical chairs, and weight scales. Disabil Health J. 2009;2(4):169-179.
16. Scheer J, Kroll T, Neri MT, et al. Access barriers for persons with disabilities. J Disabil Pol Stud. 2003;13(4):221-230.
17. Iezzoni LI, Davis RB, Soukup J, et al. Satisfaction with quality and access to health care among people with disabling conditions. Int J Qual Health Care. 2002;14(5):369-381. (Pubitemid 35174888)
18. Iezzoni LI, McCarthy EP, Davis RB, et al. Mobility impairments and use of screening and preventive services. Am J Public Health. 2000;90(6):955-961. (Pubitemid 30366982)
19. Meyers AM, Mitra D, Walker DK, et al. Predictors of Secondary conditions in a sample of independently-living adults with spinal cord injury. Top Spinal Cord Inj Rehabil. 2000;6(1):1-8.
20. Office of the Surgeon General. Call to Action to Improve the Health and Wellness of Persons with Disabilities. Rockville, MD: Office of the Surgeon General; 2005.
21. Montoya ID, Carlson JW, Richard AJ, et al. Managed care, costeffectiveness, and rehabilitation: the case of HIV. Rehabil Nurs. 1997;22(1):7-13.
22. Matter B, Feinberg M, Schomer K, et al. Information needs of people with spinal cord injuries. J Spinal Cord Med. 2009;32:545-554.
23. Iezzoni LI, Killen MB, O'Day BL. Rural residents with disabilities confront barriers in obtaining primary care. Health Serv Res. 2006;41(4 pt 1):1258-1275. (Pubitemid 44114596)
24. Drainoni M, Lee-Hood E, Tobias C, et al. Cross-disability experiences of barriers to health-care access. J Disabil Pol Stud. 2006;17: 101-115. (Pubitemid 44599518)
25. Bingham SC, Beatty PW. Rates of access to assistive equipment and medical rehabilitation services among people with disabilities. Disabil Rehabil. 2003;25(9):487-490. (Pubitemid 36656605)
26. Massachusetts Department of Public Health. Study of the Unmet Needs of Adults with Disabilities in Massachusetts. Boston, MA: Massachusetts Department of Public Health; 2007. July 2008.
27. Kennedy J. Unmet and undermet need for activities of living and instrumental activities of daily living assistance among adults with disabilities. Med Care. 2001;39(12):1305-1312.
28. Portney L,Watkins M. Foundations of Clinical Research: Applications to Practice. Upper Saddle River, NJ: Pearson Prentice Hall; 2009.
29. Katz MH, Cunningham WE, Fleishman A, et al. Effect of case management on unmet needs and utilization of medical care and medications among HIV-infected persons. Ann Intern Med. 2001;135(8):557-565. (Pubitemid 33010191)
30. Desai MM, Rosenheck RA. Unmet need for medical care among homeless adults with serious mental illness. Gen Hosp Psychiatry. 2005;27:418-425. (Pubitemid 41566068)
31. Okin RL, Boccellari A, Azocar F, et al. The effects of clinical case management on hospital service use among ED frequent users. Am J Emerg Med. 2000;18(5):603-608.
32. Tamara Konetzka R, Werner RM. Review: Disparities in long-term care: building equity into market-based reform. Med Care Res and Rev. 2009;66:491.
33. Mann WC, Ottenbacher KJ, Fraas L, et al. Effectiveness of assistive technology and environmental interventions in maintaining independence and reducing home care costs for the frail elderly. Arch Fam Med. 1999;8:210-217.
34. Allen S, Resnik L, Roy J. Promoting independence for wheelchair users: the role of home accommodations. Gerontologist. 2006;46(1):115-123. (Pubitemid 43214422)
35. Agree EM, Freedman VA, Cornman JC, et al. Reconsidering substitution in long-term care: when does assistive technology take the place of personal care? J Gerontol B Psychol Sci Soc Sci. 2005;60B:S272-S280. (Pubitemid 41242573)
36. Lansley P, McCreadie C, Tinker A. Can adapting the homes of older people and providing assistive technology pay its way? Age Ageing. 2004;33(6):571-576. (Pubitemid 39504289)
37. Goodacre K, McCreadie C, Flanagan S, et al. Enabling older people to stay at home: the costs of substituting and supplementing care with assistive technology. Br J Occup Ther. 2008;71(4):130-140.
38. Noel-Miller C. Longitudinal changes in disabled husbands' and wives' receipt of care. Gerontologist. 2010;50(5):681-693.
39. Allen SM. Gender differences in spousal caregiving and unmet need for care. J Gerontol. 1994;49(4):S187-S195. (Pubitemid 24215007)
40. Centers for Medicare and Medicaid Services. Letter to State Medicaid Directors Re: Improving Access to Home and Community-Based Services. August 6, 2010. Available at: http://healthreform.kff.org/~/media/Files/KHS/docfinder/cms- moe-letter-2282011.pdf
41. Centers for Medicare and Medicaid Services. Letter to State Medicaid Directors Re: Improving Access to Home and Community-Based Services. May 20, 2010. Available at: https://www.cms.gov/smdl/downloads/smd10008.pdf
42. Engquist G, Johnson C, Lind A, et al. Medicaid-Funded Long-Term Care: Toward More Home-and Community-Based Options e Policy Brief: Center for Health Care Strategies. Available at: http://www.hcbs.org/files/189/9445/ LTSSPolicyBrief.pdf
43. World Health Organization. Towards a Common Language for Functioning, Disability and Health: ICF. Geneva, Switzerland: World Health Organization; 2002.