Are consumer-directed home care beneficiaries satisfied? Evidence from Washington State

Gerontologist

Volumn 47, Issue 6, 2007, Pages 763-774

  Wiener, Joshua M ^a   Anderson, Wayne L ^a   Khatutsky, Galina ^a  

^a RTI INTERNATIONAL   (United States)

Author keywords

Consumer direction; Home and community based services; Medicaid

Indexed keywords

ARTICLE; COMMUNITY CARE; CONSUMER; HEALTH CARE QUALITY; HEALTH INSURANCE; HEALTH SERVICE; HEALTH SURVEY; HOME CARE; HUMAN; MEDICAID; PREDICTION; RATING SCALE; SATISFACTION; UNITED STATES;

EID: 38649102168     PISSN: 00169013     EISSN: None     Source Type: Journal    
DOI: 10.1093/geront/47.6.763     Document Type: Article

References (43)

1. Aharony, L., & Strasser, S. (1993). Patient satisfaction: What we know about and what we still need to explore. Medical Care Review, 50(1), 49-79.
2. Aragaon, S. J., & Gesell, S. B. (2003). A patient satisfaction theory and its robustness across gender in emergency departments: A multigroup structural equation modeling investigation. American Journal of Medical Quality, 18, 229-241.
3. Batavia, A. I. (1998). Prospects for a national personal assistance services program: Enhancing choice for people with disabilities. Retrieved September 17, 2005, from http://www.independentliving.org/docs6/batavia1998.html
4. Batavia, A. I. (2001). A right to personal assistance services: Most integrated setting appropriate requirements and the independent living model of long-term care. American Journal of Law and Medicine, 27(1), 17-43.
5. Batavia, A. I. (2003). Independent living: A viable option for long-term care. Clearwater, FL: ABI Professional.
6. Beatty, P. W., Richman, G. W., Tepper, S., & DeJong, G. (1998). Personal assistance for persons with physical disabilities: Consumer direction and satisfaction with services. Archives of Physical and Medical Rehabilitation, 79, 674-677.
7. Benjamin, A. E. (2001). Consumer-directed services at home: A new model for persons with disabilities. Health Affairs, 20(6), 80-95.
8. Benjamin, A. E., & Matthias, R. E. (2001). Age, consumer direction, and outcomes of supportive services at home. The Gerontologist, 41, 632-642.
9. Benjamin, A. E., Matthias, R. E., & Franke, T. M. (1998). Comparing client-directed and agency models for providing supportive services at home. Los Angeles: University of California, Los Angeles, School of Public Policy.
10. Carlson, B. L., Foster, L., Dale, S. B., & Brown, R. S. (2007). Effects of Cash and Counseling on personal care and well-being. Health Services Research, 42, 467-487.
11. Cuellar, A. E., & Wiener, J. M. (2000). Can social insurance for long-term care work? The case of Germany. Health Affairs, 19(3), 8-25.
12. Dale, S., Brown, R., Phillips, B., Schore, J., & Carlson, B. L. (2003, November 19). The effects of Cash and Counseling on personal care services and Medicaid costs in Arkansas. Health Affairs, Article W3-568. Retrieved September 17, 2005, from http://content.healthaffairs.org/cgi/reprint/ hlthaff.w3.566v1?maxtoshow=&HITS=10&hits=10&RESULTFORMAT= &fulltext=dale&andorexactfulltext=and&searchid= 1126992003982_1448&stored_search=&FIRSTINDEX=0&resourcetype= 1&journalcode=healthaff
13. DeJong, G., Batavia, A. I., & McKnew, L. B. (1992, Winter). The independent living model of personal assistance in national long-term care policy. Generations, 16, 89-95.
14. Desmond, S. M., Mahoney, K. J., Simon-Rusinowitz, L., Shoop, D. M., Squillace, M. R., & Fay, R. A. (2001). Consumer preferences for a consumer-directed cash oprion versus traditional services: Telephone survey findings of Florida elders and adults wirh physical disabilities. Elder's Advisor, 3(1), 1-22.
15. Doty, P. J. (1998). The Cash and Counseling demonstration: An experiment in consumer-directed personal assistance services. American Rehabilitation, 24(3), 27-30.
16. Dory, P. J., Benjamin, A. E., Matthias, R. E., & Franke, T. M. (1999, April). In-home supportive services for the elderly and disabled: A comparison of client-directed and professional management models of service delivery: Non-technical summary report. Retrieved September 13, 2005, from http://aspe.hhs.gov/dalrcp/reports/ihss.htm
17. Foster, L., Brown, R., Phillips, B., Schore, J., & Carlson, B. L. (2003, March 26). Improving the quality of Medicaid personal assistance through consumer direction. Health Affairs, Article W3-162. Retrieved September 17, 2005, from http://content.healthaffairs.org/cgi/reprint/hlthaff.w3.162v1? maxtoshow=&HITS=10&hits=10&RESULTFORMAT=&author1= foster&andorexactfulltext=and&searchid=1126992550988_1464& stored_search=&FIRSTINDEX=0&resourcetype=1&journalcode=healthaff
18. Geron, S. M., Smith, K., Tennstedt, S., Jette, A., Chassler, D., & Kasten, L. (2000). The Home Care Satisfaction Measure: A client-centered approach to assessing the satisfaction of frail older adults with home care services. Journal of Gerontology: Social Sciences, 55B, S259-S270.
19. Glickman, L. L., Stocker, K. B., & Caro, F. G. (1997). Self direction in home care for older people: A consumer's perspective. Home Health Care Services Quarterly, 16(1/2), 41-54.
20. Infeld, D. L. (2005). States' experiences implementing consumer-directed home and community services: Results of the 2004 survey of state administrators, opinion survey and telephone interviews. Retrieved September 17, 2005, from http://www.nasua.org/pdf/20026_text.pdf
21. Kane, R. (1999, October). Barriers to self-determination, consumer-direction and control for older people needing care: Policy and regulatory perspectives. Paper presented at the National Leadership Summit on self-determination, consumer direction, and consumer conrrol among people with disabilities, Bethesda, MD.
22. Khatutsky, G., Anderson, W. L., & Wiener, J. M. (2006). Personal care satisfaction among aged and physically disabled Medicaid beneficiaries. Health Care Financing Review, 28(1), 69-86.
23. Linder-Peltz, S. (1982). Toward a theory of patient satisfaction. Social Science & Medicine, 16, 577-582.
24. Mahoney, K. J., Desmond, S. M., Simon-Rusinowitz, L., Loughlin, D. M., & Squillace, M. R. (2002). Consumer preferences for a case option versus traditional services: Telephone survey results for New Jersey elders and adults. Journal of Disability Policy Studies, 13(2), 75-87.
25. Mahoney, K. J., Simon-Rusinowitz, L., Desmond, S. M., Shoop, D. M., Squillace, M. R., & Fay, R. A. (1998). Determining consumers' preferences for a cash option: New York telephone survey findings. American Rehabilitation, 24(4), 24-36.
26. Office of the Inspector General. (1995). Medicare beneficiary satisfaction with and understanding of home health services. Washington, DC: U.S. Department of Health and Human Services.
27. O'Keeffe, J., Wiener, J. M., & Greene, A. (2005). Consumer direction initiatives of the FY 2001 and FY 2002 systems change grantees: Progress and challenges. Research Triangle Park, NC: RTI International.
28. Parsons, T. (1951). The social system. Glencoe, IL: Free Press.
29. Phillips, B., & Schneider, B. (2007). Commonalities and variations in the Cash and Counseling programs across the three demonsrration sires. Health Services Research, 42, 397-413.
30. Schore, J., Foster, L., & Phillips, B. (2007). Consumer enrollment and experiences in the Cash and Counseling program. Health Services Research, 42, 446-466.
31. Sciegaj, M., Capitman, J. A., & Kyriacou, C. K. (2004). Consumer-directed community care: Race/ethnicity and individual differences in preferences for control. The Gerontologist, 44, 489-499.
32. Simon-Rusinowitz, L., & Hofland, B. F. (1993). Adopting a disability approach to home care services for older adults. The Gerontologist, 33, 159-167.
33. Simon-Rusinowitz, L., Mahoney, K. J., Desmond, S. M., Shoop, D. M., Squillace, M. R., & Fay, R. A. (1997). Determining consumer preferences for a cash option: Atkansas survey results. Health Care Financing Review, 19, 73-96.
34. Smith, D. G. (2002, May). Letter to Medicaid directors on Independence Plus: A demonstration for family or individual directed community services. Baltimore, MD: Centers for Medicare & Medicaid Services.
35. Snell, L. P., Zhao, Z., Lu, C., Pottet, F., & Ciemnecki, A. B. (2005). Evaluation of home and community-based waiver program: Survey methodology. Princeton, NJ: Mathematica Policy Research.
36. Taylor, H., Leitman, R., & Barnett, S. (1991). The importance of choice in Medicaid home care programs: Maryland, Michigan, and Texas. New York: Louis Harris and Associates.
37. Tilly, J., & Wiener, J. M. (2001). Consumer-directed home and community services programs in eight states: Policy issues for older people and government. Journal of Aging and Social Policy, 12(4), 1-26.
38. Tilly, J., Wiener, J. M., & Cuellar, A. E. (2000, Spring). Consumer-direcred home and community-based services programs in five countries: Policy issues for older people and government. Generations, 24, 74-84.
39. Wiener, J., & Sullivan, C. (1995). Long-term dare for the younger population: A policy synthesis. In J. Wiener, S. Clauser, & D. Kennell (Eds.), Persons with disabilities: Issues in health care financing and service delivery (pp. 291-324). Washington, DC: Brookings Institution.
40. Wiener, J. M., Gage, B., Brown, D., Kramer, C., Maier, J., Moore, A., et al. (2004). Redirecting public long-term care resources. Washington, DC: RTI International.
41. Wiener, J. M., & Lutzky, S. M. (2001). Home and community-based services for older people and younger adults with physical disabilities in Washington. Washington, DC: Urban Institute.
42. Wiener, J. M., Tilly, J., & Alecxih, L. M. B. (2002). Home and community-based services for older people and younger adults with physical disabilities in seven states. Health Care Financing Review, 23, 89-114.
43. Wiener, J. M., Tilly, J., & Cuellar, A. (2003). Consumer-directed home care in The Netherlands, England, and Germany. Washington, DC: AARP.