Information needs of people with spinal cord injuries

Journal of Spinal Cord Medicine

Volumn 32, Issue 5, 2009, Pages 545-554

  Matter, Becky ^a   Feinberg, Melanie ^a   Schomer, Katherine ^a   Harniss, Mark ^b   Brown, Pat ^b   Johnson, Kurt ^b  

^a UNIVERSITY OF WASHINGTON   (United States)

^b UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

Author keywords

Disability; Information needs; Information seeking preferences; Model spinal cord injuries system; Patient education; Prevention; Rehabilitation, physical; Spinal cord injuries

Indexed keywords

ADULT; ARTICLE; CONTROLLED STUDY; FEMALE; HEALTH SURVEY; HUMAN; INTERNET; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; QUALITY OF LIFE; SELF CARE; SPINAL CORD INJURY; INFORMATION SERVICE; METHODOLOGY; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT EDUCATION; PATIENT PARTICIPATION; PATIENT SATISFACTION; PSYCHOLOGICAL ASPECT; TEACHING; UTILIZATION REVIEW;

ADULT; COMPUTER-ASSISTED INSTRUCTION; FEMALE; HUMANS; INFORMATION SERVICES; INTERNET; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; PATIENT SATISFACTION; QUALITY OF LIFE; SELF CARE; SPINAL CORD INJURIES;

EID: 74949142293     PISSN: 10790268     EISSN: None     Source Type: Journal    
DOI: 10.1080/10790268.2009.11754556     Document Type: Article

References (20)

1. National Spinal Cord Injury Statistical Center. Spinal Cord Injury: Facts and Figures at a Glance. Available at: http://images.main.uab.edu/spinalcord/ pdffiles/Facts08.pdf. Accessed July 10, 2008.
2. Burkell JA, Dalton LW, Potter PJ, Jutai JW. Information needs and information sources of individuals living with spinal cord injury. Health Inf Libr J. 2006;23(4):257-265.
3. McKinley WO, Jackson AB, Cardenas DD, DeVivo MJ. Long-term medical complications after traumatic spinal cord injury: a regional model systems analysis. Arch Phys Med Rehabil. 1999;80(11):1402-1410.
4. Chen Y, DeVivo MJ, Jackson AB. Pressure ulcer prevalence in people with spinal cord injury: age-period-duration effects. Arch Phys Med Rehabil. 2005;86(6):1208-1213.
5. Davidoff G, Roth EJ, Richards JS. Cognitive deficits in spinal cord injury: epidemiology and outcome. Arch Phys Med Rehabil. 1992;73(3):275-284.
6. Bombardier CH, Richards JS, Krause JS, Tulsky D, Tate DG. Symptoms of major depression in people with spinal cord injury: implications for screening. Arch Phys Med Rehabil. 2004;85(11):1749-1756.
7. Cardenas DD, Hoffman JM, Kirshblum S, McKinley W. Etiology and incidence of rehospitalization after traumatic spinal cord injury: a multicenter analysis. Arch Phys Med Rehabil. 2004;85(11):1757-1763.
8. Byrne DW, Salzberg CA. Major risk factors for pressure ulcers in the spinal cord disabled: a literature review. Spinal Cord. 1996;34(5):255-263.
9. Barker RN, Kendall MD, Amsters DI, Pershouse KJ, Haines TP, Kuipers P. The relationship between quality of life and disability across the lifespan for people with spinal cord injury. Spinal Cord. 2008;47(2):149-155.
10. Kroll T, Neri M, Ho P. Secondary conditions in spinal cord injury: results from a prospective survey. Disabil Rehabil. 2007;29(15):1229- 1237.
11. Zemper ED, Tate DG, Roller S, et al. Assessment of a holistic wellness program for person with spinal cord injury. Am J Phys Med Rehabil. 2003;82(12):957-968.
12. May L, Day R, Warren S. Perceptions of patient education in spinal cord injury rehabilitation. Disabil Rehabil. 2006;28(17):1041-1049.
13. Hart KA, Rintala DH, Fuhrer MJ. Educational Interests of individuals with spinal cord injury living in community: medical, sexuality, and wellness. Top Rehabil Nurs. 1996;21(2):82-90.
14. Gontkovsky ST, Russum P, Stokic DS. Perceived information needs of community-dwelling persons with spinal cord injury: findings of a survey and impact of race. Disabil Rehabil. 2007;29(16):1305-1312.
15. Hauber R, Vesmarovich S, Dufour L. The use of computers and the Internet as a source of health information for people with disabilities. Rehabil Nurs. 2002;27(4):142-145.
16. Drainoni ML, Houlihan B, Williams S, et al. Patterns of Internet use by persons with spinal cord injuries and relationship to health-related quality of life. Arch Phys Med Rehabil. 2004;85(11):1872-1879.
17. Edwards L, Krassioukov A, Fehlings MG. Importance of access to research information among individuals with spinal cord injury: results of an evidenced-based questionnaire. Spinal Cord. 2002;40(10):529-535.
18. Jensen MP, Hoffman AJ, Cardenas DD. Chronic pain in individuals with spinal cord injury: a survey and longitudinal study. Spinal Cord. 2005;43(12):704-712.
19. Peng C, Lee K, Ingersoll G. An introduction to logistic regression analysis and reporting. J Educ Res. 2002;96(1):3-14.
20. Goodman N, Jette AM, Houlihan B, Williams S. Computer and internet use by persons after traumatic spinal cord injury. Arch Phys Med Rehabil. 2008;89(8):1492-1498.