Being concerned: Caregiving for Taiwanese mothers of a child with cerebral palsy

Journal of Clinical Nursing

Volumn 21, Issue 1-2, 2012, Pages 189-197

  Huang, Yu Ping ^a   Kellett, Ursula ^b   St John, Winsome ^b  

^a HUNGKUANG UNIVERSITY   (Taiwan)

^b GRIFFITH UNIVERSITY   (Australia)

Author keywords

Cerebral palsy; Family caregiving; Mother; Nurses; Nursing; Phenomenology; Taiwan

Indexed keywords

ADOLESCENT; ARTICLE; CAREGIVER; CEREBRAL PALSY; CHILD; FEMALE; HUMAN; INFANT; MOTHER; NEWBORN; NURSING; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; TAIWAN;

ADOLESCENT; CAREGIVERS; CEREBRAL PALSY; CHILD; CHILD, PRESCHOOL; FEMALE; HUMANS; INFANT; INFANT, NEWBORN; MOTHERS; TAIWAN;

EID: 83355173992     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2011.03741.x     Document Type: Article

References (38)

1. Baker HDR (1979) Chinese Family and Kinship. Columbia University Press, New York.
2. Barr J, McLeod S & Daniel G (2008) Siblings of children with speech impairment: cavalry on the hill. Language, Speech, and Hearing Services in School 39, 21-31.
3. Cole BA (2005) 'Good faith and effort?' Perspectives on educational inclusion. Disability & Society 20, 331-344.
4. Denboba D, McPherson MG, Kenney MK, Strickland B & Newacheck PW (2006) Achieving family and provider partnerships for children with special health care needs. Pediatrics 118, 1607-1616.
5. Fleitas J (2000) When Jack fell down... Jill came tumbling after: siblings in the web of illness and disability. The American Journal of Maternal/Child Nursing 25, 267-273.
6. Fossey E, Harvey C, McDermott F & Davidson L (2002) Understanding and evaluating qualitative research. Australian and New Zealand Journal of Psychiatry 36, 717-732.
7. Gadamer HG (1975) Truth and Method. (Barden G. & Cumming J., Trans), Seabury Press, New York.
8. Glasscock R (2000) A phenomenological study of the experience of being a mother of a child with cerebral palsy. Pediatric Nursing 26, 407-410.
9. Harden J (2005) Parenting a young person with mental health problems: temporal disruption and reconstruction. Sociology of Health Illness 27, 351-371.
10. Hartley S, Ojwant P, Baguwemu A, Ddamulira M & Chavuta A (2005) How do carers of disabled children cope? The Ugandan perspective. Child: Care, Health & Development 31, 167-180.
11. Hatton C, Akram Y, Robertson J, Shah R & Emerson E (2003) The disclosure process and its impact on south Asian families with a child with severe intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 16, 177-188.
12. Hayes DK, Lukacs SL & Schoendorf KC (2008) Heterogeneity within Asian subgroups: a comparison of birthweight between infants of US and non-US born Asian Indian and Chinese mothers. Maternal and Child Health Journal 12, 549-556.
13. Heidegger M (1962) Being and Time. (Macquarie J & Robinson E, Trans), Harper & Row, New York.
14. Hinojosa J & Anderson J (1991) Mother's perceptions of home treatment programs for their preschool children with cerebral palsy. The American Journal of Occupational Therapy 45, 273-279.
15. Holroyd EE (2003) Chinese cultural influences on parental caregiving obligations toward children with disabilities. Qualitative Health Research 13, 4-19.
16. Hsu C-Y, O'Connor M & Lee S (2005) Issues affecting access to palliative care services for older Chinese people in Australia. Journal of Community Nurses 10, 9-11.
17. Huang YP, Kellett U & St John W (2008) The Experience of being a Taiwanese Mother of a Child with Cerebral Palsy. Unpublished PhD Thesis, Griffith University, Australia.
18. Huang YP, Kellett U & St John W (2010) Cerebral palsy: experience of mothers after learning their child's diagnosis. Journal of Advanced Nursing 66, 1213-1221.
19. Hui E (2008) Parental refusal of life-saving treatments for adolescents: Chinese familism in medical decision-making re-visited. Bioethics 22, 286-295.
20. Hwang KK (1987) Face and favor: the Chinese power game. American Journal of Sociology 92, 944-974.
21. Kellett UM (1997) Heideggerian phenomenology: an approach to understanding family caring for an older relative. Nursing Inquiry 4, 57-65.
22. Larson E (1998) Reframing the meaning of disability to families: the embrace of paradox. Social Science & Medicine 47, 865-875.
23. Lee E (1999) Asian American families: an overview. In Ethnicity Family Therapy, 2nd edn (McGoldrick M, Giordano J & Pearce JK eds). The Guilford, New York, pp. 227-248, chapter 16.
24. Leiter V (2004) Dilemmas in sharing care: maternal provision of professionally driven therapy for children with disabilities. Social Science & Medicine 58, 837-849.
25. Liao HF (1995) Needs of Children with Cerebral Palsy for Medical Care and Rehabilitation for Past 12years in Northern Taiwan: A Report on a Special Topic. National Science Council, Taipei.
26. Lindblad BM, Holritz-Rasmusen B & Sandman PO (2007) A life enriching togetherness-meanings of informal support when being a parent of a child with disability. Scandinavian Journal of Caring Science 21, 238-246.
27. McCabe H (2007) Parent advocacy in the face of adversity: autism and families in the people's Republic of China. Focus on Autism and Other Developmental Disabilities 22, 39-50.
28. Neubert A (2003) Some of Peter Newmark's translation categories revisited. In Translation Today: Trends and Perspectives (Anderman G & Rogers M eds). Multilingual Matters, Buffalo, New York, pp. 68-75.
29. Palmer RE (1969) Hermeneutics: Interpretation Theory in Schleiermacher, Dilthey, Heidegger, and Gadamer. Northwestern University Press, Evanston.
30. Pascall G & Hendey N (2004) Disability and transition to adulthood: the politics of parenting. Critical Social Policy 24, 165-186.
31. Pun SH, Ma JLC & Lai LCC (2004) In search of perfect motherhood for imperfect childhood-experiences of 22 Chinese mothers. Chinese and Family Social Work 9, 285-293.
32. Rubin HJ & Rubin IS (2005) Preparing follow-up questions. In Qualitative Interviewing: The Art of Hearing Data. Sage Publications, Thousand Oaks, pp. 172-200.
33. Sallfors C & Hallberg L (2003) A parental perspective of living with a chronically ill child: a qualitative study. Families, Systems & Health 21, 193-204.
34. Sawin KJ, Bellin MH, Roux G, Buran C, Brei TJ & Fastenau PS (2003) The experience of parenting an adolescent with spina bifida. Rehabilitation Nursing 28, 173-185.
35. Smythe EA, Ironside PM, Sims SL, Swenson MM & Spence DG (2008) Doing Heideggerian hermeneutic research: a discussion paper. International Journal of Nursing Studies 45, 1389-1397.
36. Tsai DFC (2001) How should doctors approach patients? A confucian reflection on personhood. Journal of Medical Ethics 27, 44-50.
37. Twinn S (1997) An exploratory study examining the influence of translation on the validity and reliability of qualitative data in nursing. Journal of Advanced Nursing 26, 418-423.
38. Young M & Klingle RS (1996) Silent partners in medical care: a cross-cultural study of patient participation. Health Communication 8, 29-53.