Adverse childhood experiences of persons at risk for Huntington's disease or BRCA1/2 hereditary breast/ovarian cancer

Clinical Genetics

Volumn 81, Issue 1, 2012, Pages 18-23

  van der Meer, L B ^a   van Duijn, E ^a,b   Wolterbeek, R ^a   Tibben, A ^a,c  

^a LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

^b GGZ Delfland   (Netherlands)

^c ERASMUS MEDICAL CENTER   (Netherlands)

Author keywords

Adverse childhood experiences; BRCA1 2; Huntington's disease; Offspring

Indexed keywords

BRCA1 PROTEIN; BRCA2 PROTEIN;

ADULT; AGED; ARTICLE; BREAST CANCER; CHILDHOOD; CONTROLLED STUDY; COUNSELING; EXPERIENCE; FAMILIAL CANCER; FEMALE; HUMAN; HUNTINGTON CHOREA; LIFE EVENTS SCALE; MAJOR CLINICAL STUDY; MALE; OVARY CANCER; PARENTAL DEPRIVATION; PRIORITY JOURNAL; PROGENY; PSYCHOLOGICAL ASPECT;

ADOLESCENT; ADULT; AGED; BRCA1 PROTEIN; BRCA2 PROTEIN; CASE-CONTROL STUDIES; CHILD OF IMPAIRED PARENTS; FEMALE; GENETIC PREDISPOSITION TO DISEASE; HEREDITARY BREAST AND OVARIAN CANCER SYNDROME; HUMANS; HUNTINGTON DISEASE; LIFE CHANGE EVENTS; LOGISTIC MODELS; MALE; MIDDLE AGED; PARENT-CHILD RELATIONS; RISK FACTORS; YOUNG ADULT;

EID: 83355169597     PISSN: 00099163     EISSN: 13990004     Source Type: Journal    
DOI: 10.1111/j.1399-0004.2011.01778.x     Document Type: Article

References (25)

1. Heim C, Shugart M, Craighead WE, Nemeroff CB. Neurobiological and psychiatric consequences of child abuse and neglect. Dev Psychobiol 2010: 52 (7): 671-690.
2. Hovens JG, Wiersma JE, Giltay EJ et al. Childhood life events and childhood trauma in adult patients with depressive, anxiety and comorbid disorders vs. controls. Acta Psychiatr Scand 2010: 122 (1): 66-74.
3. Van der Meer L, Timman R, Trijsburg W et al. Attachment in families with Huntington's disease: a paradigm in clinical genetics. Patient Educ Couns 2006: 63 (1-2): 246-254.
4. Bates G, Harper P, Jones L. Huntington's disease. Oxford: Oxford University Press, 2002.
5. Roos RA. Huntington's disease: a clinical review. Orphanet J Rare Dis 2010: 5 (1): 40.
6. Van Duijn E, Kingma EM, van der Mast RC. Psychopathology in verified Huntington's disease gene carriers. J Neuropsychiatry Clin Neurosci 2007: 19 (4): 441-448.
7. Hamilton JM, Salmon DP, Corey-Bloom J et al. Behavioural abnormalities contribute to functional decline in Huntington's disease. J Neurol Neurosurg Psychiatry 2003: 74 (1): 120-122.
8. Wheelock VL, Tempkin T, Marder K et al. Predictors of nursing home placement in Huntington disease. Neurology 2003: 60 (6): 998-1001.
9. Forrest Keenan K, Miedzybrodzka Z, van Teijlingen E, McKee L, Simpson SA. Young people's experiences of growing up in a family affected by Huntington's disease. Clin Genet 2007: 71 (2): 120-129.
10. Sparbel KJ, Driessnack M, Williams JK et al. Experiences of teens living in the shadow of Huntington Disease. J Genet Couns 2008: 17 (4): 327-335.
11. Tibben A. Predictive testing for Huntington's disease. Brain Res Bull 2007: 72 (2-3): 165-171.
12. Vamos M, Hambridge J, Edwards M, Conaghan J. The impact of Huntington's disease on family life. Psychosomatics 2007: 48 (5): 400-404.
13. Trapolini T, Ungerer JA, McMahon CA. Maternal depression: relations with maternal caregiving representations and emotional availability during the preschool years. Attach Hum Dev 2008: 10 (1): 73-90.
14. Ramchandani P, Psychogiou L. Paternal psychiatric disorders and children's psychosocial development. Lancet 2009: 374 (9690): 646-653.
15. King MC, Marks JH, Mandell JB. Breast and ovarian cancer risks due to inherited mutations in BRCA1 and BRCA2. Science 2003: 302 (5645): 643-646.
16. Mohamad HB, Apffelstaedt JP. Counseling for male BRCA mutation carriers: a review. Breast 2008: 17 (5): 441-450.
17. Dufrasne S, Roy M, Galvez M, Rosenblatt DS. Experience over fifteen years with a protocol for predictive testing for Huntington disease. Mol Genet Metab 2011: 102 (4): 494-504.
18. McLaughlin KA, Conron KJ, Koenen KC, Gilman SE. Childhood adversity, adult stressful life events, and risk of past-year psychiatric disorder: a test of the stress sensitization hypothesis in a population-based sample of adults. Psychol Med 2010: 40 (10): 1647-1658.
19. Garnefski N, Kraaij V. Negative Life Events Scale (Levensgebeurtenissen Vragenlijst), 2001, from. Accessed on September 16, 2011.
20. Mai PL, Chatterjee N, Hartge P et al. Potential excess mortality in BRCA1/2 mutation carriers beyond breast, ovarian, prostate, and pancreatic cancers, and melanoma. PLoS One 2009: 4 (3): e4812.
21. Hardt J, Vellaisamy P, Schoon I. Sequelae of prospective versus retrospective reports of adverse childhood experiences. Psychol Rep 2010: 107 (2): 425-440.
22. Rots-de Vries C, van de Goor I, Stronks K, Garretsen H. Evaluation of an assertive outreach intervention for problem families: intervention methods and early outcomes. Scand J Caring Sci 2011: 25 (2): 211-219.
23. Timman R, Roos R, Maat-Kievit A, Tibben A. Adverse effects of predictive testing for Huntington disease underestimated: long-term effects 7-10 years after the test. Health Psychol 2004: 23 (2): 189-197.
24. van der Steenstraten IM, Tibben A, Roos RA, van de Kamp JJ, Niermeijer MF. Predictive testing for Huntington disease: nonparticipants compared with participants in the Dutch program. Am J Hum Genet 1994: 55 (4): 618-625.
25. Luo S, Klohnen EC. Assortative mating and marital quality in newlyweds: a couple-centered approach. J Pers Soc Psychol 2005: 88 (2): 304-326.