-
2
-
-
0029829583
-
Huntington's disease predictive testing: The case for an assessment approach to requests from adolescents
-
11
-
J. Binedell J. R. Soldan J. Scourfield P. S. Harper 1996 Huntington's disease predictive testing: The case for an assessment approach to requests from adolescents Journal of Medical Genetics 33 11 912 918
-
(1996)
Journal of Medical Genetics
, vol.33
, pp. 912-918
-
-
Binedell, J.1
Soldan, J.R.2
Scourfield, J.3
Harper, P.S.4
-
3
-
-
0034485063
-
(Im)maturity of judgment in adolescence: Why adolescents may be less culpable than adults
-
6
-
E. Cauffman L. Steinberg 2000 (Im)maturity of judgment in adolescence: Why adolescents may be less culpable than adults Behavioral Sciences & the Law 18 6 741 760
-
(2000)
Behavioral Sciences & the Law
, vol.18
, pp. 741-760
-
-
Cauffman, E.1
Steinberg, L.2
-
4
-
-
3943063596
-
Stories in decisions: How at-risk individuals decide to request predictive testing for Huntington Disease
-
2
-
S. M. Cox 2003 Stories in decisions: How at-risk individuals decide to request predictive testing for Huntington Disease Qualitative Sociology 26 2 257 280
-
(2003)
Qualitative Sociology
, vol.26
, pp. 257-280
-
-
Cox, S.M.1
-
7
-
-
33644850253
-
Predictive genetic testing in young people for adult-onset conditions: Where is the empirical evidence?
-
1
-
R. E. Duncan M. B. Delatycki 2006 Predictive genetic testing in young people for adult-onset conditions: Where is the empirical evidence? Clinical Genetics 69 1 8 16
-
(2006)
Clinical Genetics
, vol.69
, pp. 8-16
-
-
Duncan, R.E.1
Delatycki, M.B.2
-
10
-
-
0033803705
-
Inappropriate genetic testing of children
-
4
-
A. Fryer 2000 Inappropriate genetic testing of children Archives of Disease in Childhood 83 4 283 285
-
(2000)
Archives of Disease in Childhood
, vol.83
, pp. 283-285
-
-
Fryer, A.1
-
11
-
-
33747399460
-
Predictive testing of eighteen year olds: Counseling challenges
-
4
-
C. L. Gaff E. Lynch L. Spencer 2006 Predictive testing of eighteen year olds: Counseling challenges Journal of Genetic Counseling 15 4 245 251
-
(2006)
Journal of Genetic Counseling
, vol.15
, pp. 245-251
-
-
Gaff, C.L.1
Lynch, E.2
Spencer, L.3
-
12
-
-
77952151862
-
Engaging adolescents and building on their strengths
-
2
-
K. R. Ginsburg 2007 Engaging adolescents and building on their strengths Adolescent Health Update 19 2 1 8
-
(2007)
Adolescent Health Update
, vol.19
, pp. 1-8
-
-
Ginsburg, K.R.1
-
13
-
-
0036308956
-
A developmental perspective on adolescent health and illness
-
5
-
G. N. Holmbeck 2002 A developmental perspective on adolescent health and illness Journal of Pediatric Psychology 27 5 409 415
-
(2002)
Journal of Pediatric Psychology
, vol.27
, pp. 409-415
-
-
Holmbeck, G.N.1
-
15
-
-
33747390872
-
What do we tell the children? Contrasting the disclosure choices of two HD families regarding risk status and predictive genetic testing
-
4
-
K. Holt 2006 What do we tell the children? Contrasting the disclosure choices of two HD families regarding risk status and predictive genetic testing Journal of Genetic Counseling 15 4 253 265
-
(2006)
Journal of Genetic Counseling
, vol.15
, pp. 253-265
-
-
Holt, K.1
-
16
-
-
0023989494
-
Managing and analyzing qualitative data: A description of tasks, techniques, and materials
-
K. A. Knafl D. C. Webster 1988 Managing and analyzing qualitative data: A description of tasks, techniques, and materials Western Journal of Nursing Research 10 195 218
-
(1988)
Western Journal of Nursing Research
, vol.10
, pp. 195-218
-
-
Knafl, K.A.1
Webster, D.C.2
-
17
-
-
0035344189
-
Adults' recollections of their experiences as young caregivers of family members with chronic physical illnesses
-
3
-
N. R. Lackey M. F. Gates 2001 Adults' recollections of their experiences as young caregivers of family members with chronic physical illnesses Journal of Advanced Nursing 34 3 320 328
-
(2001)
Journal of Advanced Nursing
, vol.34
, pp. 320-328
-
-
Lackey, N.R.1
Gates, M.F.2
-
20
-
-
33847009365
-
Genetic service providers' practices and attitudes regarding adolescent genetic testing for carrier status
-
2
-
T. J. Multhaupt-Buell A. Lovell L. Mills K. E. Stanford R. J. Hopkin 2007 Genetic service providers' practices and attitudes regarding adolescent genetic testing for carrier status Genetics in Medicine 9 2 101 107
-
(2007)
Genetics in Medicine
, vol.9
, pp. 101-107
-
-
Multhaupt-Buell, T.J.1
Lovell, A.2
Mills, L.3
Stanford, K.E.4
Hopkin, R.J.5
-
21
-
-
34548532791
-
-
National Alliance for Caregiving. National Alliance for Caregiving Bethesda, MD
-
National Alliance for Caregiving (2005). Young caregivers in the US. Bethesda, MD: National Alliance for Caregiving.
-
(2005)
Young Caregivers in the US
-
-
-
23
-
-
48449097659
-
-
QSR. QSR International Doncaster, VIC, Australia
-
QSR (2000). NVivo. Doncaster, VIC, Australia: QSR International.
-
(2000)
NVivo
-
-
-
25
-
-
33749495220
-
Maturity of judgment in decision making for predictive testing for nontreatable adult-onset neurogenetic conditions: A case against predictive testing of minors
-
F. H. Richards 2006 Maturity of judgment in decision making for predictive testing for nontreatable adult-onset neurogenetic conditions: A case against predictive testing of minors Clinical Genetics 70 396 401
-
(2006)
Clinical Genetics
, vol.70
, pp. 396-401
-
-
Richards, F.H.1
-
26
-
-
16244422307
-
Toward a biopsychosocial model for 21st-century genetics
-
1
-
J. S. Rolland J. K. Williams 2005 Toward a biopsychosocial model for 21st-century genetics Family Process 44 1 3 24
-
(2005)
Family Process
, vol.44
, pp. 3-24
-
-
Rolland, J.S.1
Williams, J.K.2
-
27
-
-
0003839810
-
-
2 Huntington's Disease Society of America New York
-
Rosenblatt, A., Ranene, N., Nance, M., & Paulsen, J. (1999). A physician's guide to the management of Huntington's disease (2nd ed.). New York: Huntington's Disease Society of America.
-
(1999)
A Physician's Guide to the Management of Huntington's Disease
-
-
Rosenblatt, A.1
Ranene, N.2
Nance, M.3
Paulsen, J.4
-
28
-
-
0034241415
-
Whatever happened to qualitative description?
-
4
-
M. Sandelowski 2000 Whatever happened to qualitative description? Research in Nursing & Health 23 4 334 340
-
(2000)
Research in Nursing & Health
, vol.23
, pp. 334-340
-
-
Sandelowski, M.1
-
29
-
-
0042825264
-
Preempting genetic discrimination and assaults on privacy: Report of a symposium
-
A. Shinaman L. J. Bain I. Shoulson 2003 Preempting genetic discrimination and assaults on privacy: Report of a symposium American Journal of Medical Genetics 120A 589 593
-
(2003)
American Journal of Medical Genetics
, vol.120
, pp. 589-593
-
-
Shinaman, A.1
Bain, L.J.2
Shoulson, I.3
-
31
-
-
0033989352
-
Impact of genetic testing for Huntington disease on the family system
-
S. K. Sobel D. B. Cowen 2000 Impact of genetic testing for Huntington disease on the family system American Journal of Medical Genetics 90 49 59
-
(2000)
American Journal of Medical Genetics
, vol.90
, pp. 49-59
-
-
Sobel, S.K.1
Cowen, D.B.2
-
32
-
-
0142186776
-
Predictive genetic test decisions for Huntington's disease: Context appraisal, and new moral imperatives
-
S. D. Taylor 2004 Predictive genetic test decisions for Huntington's disease: Context appraisal, and new moral imperatives Social Science & Medicine 58 137 149
-
(2004)
Social Science & Medicine
, vol.58
, pp. 137-149
-
-
Taylor, S.D.1
-
33
-
-
1642329097
-
Adverse effect of predictive testing for Huntington disease underestimated: Long-term effects 7-10 years after the test
-
2
-
R. Timman R. Roos A. Maat-Kievit A. Tibben 2004 Adverse effect of predictive testing for Huntington disease underestimated: Long-term effects 7-10 years after the test Health Psychology 23 2 189 197
-
(2004)
Health Psychology
, vol.23
, pp. 189-197
-
-
Timman, R.1
Roos, R.2
Maat-Kievit, A.3
Tibben, A.4
-
36
-
-
77952504204
-
-
Retrieved 19 November 2007 from GeneReviews at
-
Warby, S. C., Graham, R. K., & Hayden, M. R. (2007). Huntington disease. Retrieved 19 November 2007 from GeneReviews at http://www.genetests. org/servlet/access?db=geneclinics&site=gt&id=8888891&key= pibbn9eKgaEuy&gry=&fcn=y&fw=ojaX&filename=/profiles/huntington/ index.html.
-
(2007)
Huntington Disease
-
-
Warby, S.C.1
Graham, R.K.2
Hayden, M.R.3
-
37
-
-
46249104711
-
I'm like you: Establishing and protecting a common ground in focus groups with Huntington disease caregivers
-
6
-
J. K. Williams L. Ayres 2007 I'm like you: Establishing and protecting a common ground in focus groups with Huntington disease caregivers Journal of Research in Nursing 12 6 655 664
-
(2007)
Journal of Research in Nursing
, vol.12
, pp. 655-664
-
-
Williams, J.K.1
Ayres, L.2
-
38
-
-
34447562912
-
No one else sees the difference: Family members' descriptions of symptoms in persons with preclinical HD and attempts to manage these symptoms
-
5
-
J. K. Williams R. J. Hamilton C. Nehl M. McGonigal-Kenney D. L. Schutte K. J. H. Sparbel 2007 No one else sees the difference: Family members' descriptions of symptoms in persons with preclinical HD and attempts to manage these symptoms American Journal of Medical Genetics, Part B 144B 5 636 641
-
(2007)
American Journal of Medical Genetics, Part B
, vol.144
, pp. 636-641
-
-
Williams, J.K.1
Hamilton, R.J.2
Nehl, C.3
McGonigal-Kenney, M.4
Schutte, D.L.5
Sparbel, K.J.H.6
-
39
-
-
48449095470
-
-
Retrieved from
-
Williams, J. K., Paulsen, J. S., Schutte, D. L., & Tripp-Reimer, T. (2001). Family health after predictive HD testing. Retrieved from http://crisp.cit.nih.gov.
-
(2001)
Family Health after Predictive HD Testing
-
-
Williams, J.K.1
Paulsen, J.S.2
Schutte, D.L.3
Tripp-Reimer, T.4
|