Working in collaboration with young people and health professionals. a staged approach to the implementation of a randomised controlled trial

Journal of Research in Nursing

Volumn 16, Issue 6, 2011, Pages 561-576

  Aldiss, S ^a   Taylor, R M ^a   Soanes, L ^b   Maguire, R ^c   Sage, M ^d   Kearney, N ^c   Gibson, F ^a  

^a LONDON SOUTH BANK UNIVERSITY   (United Kingdom)

^b INSTITUTE OF CANCER RESEARCH   (United Kingdom)

^c UNIVERSITY OF DUNDEE   (United Kingdom)

^d Kelvin Connect Ltd   (United Kingdom)

Author keywords

Chemotherapy; information technology; self care; symptom management; young people

Indexed keywords

EID: 83255161935     PISSN: 17449871     EISSN: 1744988X     Source Type: Journal    
DOI: 10.1177/1744987110380803     Document Type: Article

References (25)

1. Campbell M,Fitzpatrick R,Haines A,Kinmouth A,Sandercock P,Speilgelhalter D, et al. Framework for design and evaluation of complex interventions to improve health.British Medical Journal. 2000;321:694-696.
2. Campbell M,Murray E,Darbyshire J,Emery J,Farmer A,Griffiths F, et al.Designing and evaluating complex interventions to improve health care.British Medical Journal. 2007;334:455-459.
3. CraigPDieppePMacintyreSMichieSNazarethIPetticrewM (2008) Developing and Evaluating Complex Interventions: New Guidance. http://www.mrc.ac.uk/Utilities/Documentrecord/index.htm?d=MRC004871(accessed on 11 January 2010).
4. Department of Health (2005) Research Governance Framework for Health and Social Care: Second edition. http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4108962(accessed on 28 January 2010).
5. Department of Health (2006) Supporting People with Long-Term Conditions to Self-Care: A Guide to Developing Local Strategies and Good Practice. http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4130725(accessed on 15 March 2007).
6. Drotar D,Greenley R,Hoff A,Johnson C,Lewandowski A,Moore M, et al.Summary of issues and challenges in the use of new technologies in clinical care and with children and adolescents with chronic illness.Children's Health Care. 2006;35:91-102.
7. Enskar K,Carlsson M,Golsater M,Hamrin E.Symptom distress and life situation in adolescents with cancer.Cancer Nursing. 1997;20:23-33.
8. Franklin V,Waller A,Pagliari C,Greene S.A randomized controlled trial of Sweet Talk, a text-messaging system to support young people with diabetes.Diabetic Medicine. 2006;23:1332-1338.
9. Gibson F,Aldiss S,Taylor RM,Maguire R,Kearney N.Involving health professionals in the development of an advanced symptom management system for young people: The ASyMS©-YG Study.European Journal of Oncology Nursing. 2009;13:187-192.
10. Gibson F,Aldiss S,Taylor RM,Maguire R,McCann L,Sage M, et al.Utilization of the Medical Research Council Evaluation Framework in the development of technology for symptom management. The ASyMS-YG Study.Cancer Nursing. 2010;33:343-352.
11. Gibson F,Soanes L.The development of clinical competencies for use on a paediatric oncology nursing course using a nominal group technique.Journal of Clinical Nursing. 2000;9:459-469.
12. HasteH (2005) Joined-up Texting. Report for the Nestle Social Research Programme/MORI. http://www.spreckley.co.uk/nestle/NSRP-4-TEXTING.pdf(accessed on 19 January 2010).
13. Kearney N,Kidd L,Miller M,Sage M,Khorrami J,McGee M, et al.Utilising handheld computers to monitor and support patients receiving chemotherapy: results of a UK-based feasibility study.Supportive Care in Cancer. 2006;14:742-752.
14. Kearney N,McCann L,Norrie J,Taylor L,Phil Gray,McGee-Lennon M, et al.Evaluation of a mobile phone-based Advanced Symptom Management System (ASyMS©) in the management of chemotherapy-related toxicity.Supportive Care in Cancer. 2009;17:437-444.
15. Kumar V,Wentzell K,Mikkelsen T,Pentland A,Laffel L.The DAILY (Daily Automated Intensive Log for Youth) trial: a wireless, portable system to improve adherence and glycemic control in youth with diabetes.Diabetes Technology and Therapuetics. 2004;6:445-453.
16. McCann L,Maguire R,Miller M,Kearney N.Patients' perceptions and experiences of using a mobile phone-based advanced symptom management system (ASyMS©) to monitor and manage chemotherapy-related toxicity.European Journal of Cancer Care. 2009;18:156-164.
17. Maguire R,McCann L,Miller M,Kearney N.Nurse's perceptions and experiences of using a mobile-phone-based Advanced Symptom Management System (ASyMS©) to monitor and manage chemotherapy-related toxicity.European Journal of Oncology Nursing. 2008;12:380-386.
18. Maguire R,Miller M,Sage M,Norrie J,McCann L,Taylor L, et al.Results of a mobile phone-based advanced symptom management system (ASyMS) in the remote monitoring of chemotherapy-related toxicity.Clinical Effectiveness in Nursing. 2005;9:202-210.
19. Neville R,Greene A,McLeod J,Tracy A,Surie J.Mobile phone text messaging can help young people manage asthma.British Medical Journal. 2002;325:600-600.
20. Rami B,Popow C,Werner H,Walhoer T,Scober E.Telemedical support to improve glycemic control in adolescents with type 1 diabetes mellitus.European Journal of Pediatrics. 2006;165:701-705.
21. Spielberger CManual for the State-Trait Anxiety Inventory (STAI). Palo Alto, CA: Consulting Psychologists Press; 1983:.
22. Suzuki L,Beale I.Personal Web home pages of adolescents with cancer: self-presentation, information dissemination, and interpersonal connection.Journal of Pediatric Oncology Nursing. 2006;23:152-161.
23. Suzuki L,Calzo J.The search for peer advice in cyberspace: An examination of online teen bulletin boards about health and sexuality.Journal of Applied Developmental Psychology. 2004;25:685-698.
24. The National Cancer Institute (2003) The Common Toxicity Adverse Events Criteria. Bethesda, USA: National Cancer Institute.
25. Varni J,Burwinkle T,Katz E,Meeske K,Dickinson P.The PedsQL™ in Pediatric Cancer: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module.Cancer. 2002;94:2090-2106.