Personal Web home pages of adolescents with cancer: Self-presentation, information dissemination, and interpersonal connection

Journal of Pediatric Oncology Nursing

Volumn 23, Issue 3, 2006, Pages 152-161

  Suzuki, Lalita K ^a   Beale, Ivan L ^b  

^a HopeLab   (United States)

^b UNIVERSITY OF NEW SOUTH WALES   (Australia)

Author keywords

Adolescent; Cancer; Internet; Pediatric; Web site

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; BODY IMAGE; CHILD BEHAVIOR; CHILD PSYCHOLOGY; COOPERATION; FEMALE; HUMAN; HUMAN RELATION; INFORMATION DISSEMINATION; INTERNET; INTERPERSONAL COMMUNICATION; LIFE EVENT; LITERATURE; MALE; NEOPLASM; NURSING METHODOLOGY RESEARCH; PEER GROUP; PSYCHOLOGICAL ASPECT; SELF CONCEPT; SOCIAL SUPPORT; UTILIZATION REVIEW; VERBAL COMMUNICATION;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADOLESCENT BEHAVIOR; ADOLESCENT PSYCHOLOGY; ADULT; ATTITUDE TO HEALTH; AUTOBIOGRAPHY; BODY IMAGE; COMMUNICATION; FEMALE; HELPING BEHAVIOR; HUMANS; INFORMATION DISSEMINATION; INTERNET; INTERPERSONAL RELATIONS; LIFE CHANGE EVENTS; MALE; NARRATION; NEOPLASMS; NURSING METHODOLOGY RESEARCH; PEER GROUP; SELF CONCEPT; SOCIAL SUPPORT;

EID: 33645995751     PISSN: 10434542     EISSN: 15328457     Source Type: Journal    
DOI: 10.1177/1043454206287301     Document Type: Article

References (43)

1. Bessel, A. G. (2001). Children surviving cancer: Psychosocial adjustment, quality of life, and school experiences. Exceptional Children, 67(3), 345-359.
2. Bluebond-Langner, M., Perkel, D., & Goertzel, T. (1991). Pediatric cancer patients' peer relationships: The impact of an oncology camp experience. Journal of Psychosocial Oncology, 9(2), 67-80.
3. Carlson, C., Reilly, M., & Hitchens, A. (2005). An innovative approach to the care of patients on Phase I and Phase II clinical trials: The role of the experimental therapeutics nurse. Journal of Pediatric Oncology Nursing, 22, 353-364.
4. Chan, S. Y. M. (2000). Wired selves: From artifact to performance. Cyberpsychology & Behavior, 3(2), 271-284.
5. Claflin, C. J., & Barbarin, O. A. (1991). Does "telling" less protect more? Relationships among age, information disclosure, and what children with cancer see and feel. Journal of Pediatric Psychology, 16(2), 169-191.
6. Cooper, D. C., & Anderson-Inman, L. (1988). Language and socialization. In M. A. Nippold (Ed.), Later language development: Ages nine through nineteen (pp. 225-245). Austin, TX: Pro-Ed.
7. Decker, C., Phillips, C. R., & Haase, J. E. (2004). Information needs of adolescents with cancer. Journal of Pediatric Oncology Nursing, 21, 327-334.
8. Doring, N. (2002). Personal home pages on the Web: A review of research [online document]. Retrieved November 2002 from http://www.ascusc.org/jcmc/vol7/issue3/doering.html
9. Dunsmore, J., & Quine, S. (1995). Information, support, and decision-making needs and preferences of adolescents with cancer: Implications for health professionals. Journal of Psychosocial Oncology, 13(4), 39-56.
10. Enskar, K., Carlsson, M., Golsater, M., & Hamrin, E. (1997). Symptom distress and life situation in adolescents with cancer. Cancer Nursing, 20(1), 23-33.
11. Fleiss, J. L. (1981). Statistical methods for rates and proportions (2nd ed.). New York: John Wiley.
12. Fritz, G. K., & Williams, J. R. (1990). Issues of adolescent development for survivors of childhood cancer. In M. E. Hertzig (Ed.), Annual progress of child psychiatry and child development (pp. 208-218). Philadelphia: Brunner/Mazel.
13. Fritz, G. K., Williams, J. R., & Amylon, M. (1988). After treatment ends: Psychosocial sequelae in pediatric cancer survivors. American Journal of Orthopsychiatry, 58(4), 552-561.
14. Hockenberry-Eaton, M., & Minick, P. (1994). Living with cancer: Children with extraordinary courage. Oncology Nursing Forum, 21(6), 1025-1031.
15. Jamison, R. N., Lewis, S., & Burish, T. G. (1986). Psychological impact of cancer on adolescents: Self-image, locus of control, perception of illness and knowledge of cancer. Journal of Chronic Diseases, 39(8), 609-617.
16. Jenkins, R. A., & Pargament, K. I. (1995). Religion and spirituality as resources for coping with cancer. Journal of Psychosocial Oncology, 13(1-2), 51-74.
17. Karian, V. E., Jankowski, S. M., & Beal, J. A. (1998). Exploring the lived-experience of childhood cancer survivors. Journal of Pediatric Oncology Nursing, 15(3), 153-162.
18. Kelly, K. P., & Porock, D. (2005). A survey of pediatric oncology nurses' perceptions of parent educational needs. Journal of Pediatric Oncology Nursing, 22, 58-66.
19. Kleinman, A. (1988). The illness narratives: Suffering, healing, and the human condition. New York: Basic Books.
20. Koocher, G. P., & O'Malley, J. E. (1981). The Damocles syndrome: Psychological consequences of surviving childhood cancer. New York: McGraw-Hill.
21. Kvist, S. B., Rajantie, J., Kvist, M., & Siimes, M. A. (1991). Aggression: The dominant psychological response in children with malignant disease. Psychological Reports, 68(3, Pt. 2), 1139-1150.
22. Kyngas, H., Mikkonen, R., Nousiainen, E. M., Rytilahti, M., Seppanen, P., Vaattovaara, R., et al. (2001). Coping with the onset of cancer: Coping strategies and resources of young people with cancer. European Journal of Cancer Care, 10(1), 6-11.
23. Last, B. F., & van Veldhuizen, A. M. H. (1996). Information about diagnosis and prognosis related to anxiety and depression in children with cancer aged 8-16 years. European Journal of Cancer Care, 32A(2), 290-294.
24. Lyons, E. J., Mehl, M. R., & Pennebaker, J. W. (in press). Linguistic self-presentation in anorexia: Differences in proanorexia and recovering anorexia internet language use. Journal of Psychosomatic Research.
25. Miller, H. (1995). The presentation of self in electronic life: Goffman on the Internet. Retrieved September 3, 2002, from http://ess.ntu.ac.uk/miller/cyberpsych/goffman.htm
26. Nichols, M. L. (1995). Social support and coping in young adolescents with cancer. Pediatric Nursing, 21(3), 235-240.
27. Noll, R. B., Gartstein, M. A., Vannatta, K., Correll, J., Bukowski, W. M., & Davies, W. H. (1999). Social, emotional, and behavioral functioning of children with cancer. Pediatrics, 103(1), 71-78.
28. Novakovic, B., Fears, T. R., Wexler, L. H., McClure, L. L., Wilson, D. L., McCalla, J. L., et al. (1996). Experiences of cancer in children and adolescents. Cancer Nursing, 19(1), 205-221.
29. Pennebaker, J. W., & Beall, S. K. (1986). Confronting a traumatic event: Toward and understanding of inhibition and disease. Journal of Abnormal Psychology, 95(3), 274-281.
30. Pennebaker, J. W., & Francis, M. E. (1996). Cognitive, emotional, and language processes in disclosure. Cognition and Emotion, 10(6), 601-626.
31. Pennebaker, J. W., Kiecolt-Glaser, J. K., & Glaser, R. (1988). Disclosure of traumas and immune function: Health implications for psychotherapy. Journal of Consulting and Clinical Psychology, 56(2), 239-245.
32. Ries, L. A. G., Eisner, M. P., Kosary, C. L., Hankey, B. F., Miller, B. A., Clegg, L., et al. (2002). SEER cancer statistics review, 1973-1999, National Cancer Institute. Bethesda, MD: National Cancer Institute. Retrieved from http://seer.cancer.gov/csr/1973-1999/
33. Saillant, F. (1990). Discourse, knowledge, and experience of cancer: a life story. Culture, Medicine, and Psychiatry, 14(1), 81-104.
34. Seale, J. K. (2001). The same but different: The use of the personal home page by adults with Down syndrome as a tool for self-presentation. British Journal of Educational Technology, 32(3), 343-352.
35. Seepersad, S. (2004). Coping with loneliness: adolescent online and offline behavior. Cyberpsychology and Behavior, 7(1), 35-39.
36. Skott, C. (2002). Expressive metaphors in cancer narratives. Cancer Nursing, 25(3), 230-235.
37. Smith, M. A., Gurney, J. G., & Ries, L. A. G. (1999). Cancer among adolescents 15-19 years old (99-4649). Bethesda, MD: National Cancer Institute, SEER Program.
38. Suzuki, L. K. & Kato, P. M. (2003). Psychosocial support for patients in pediatric oncology: The influences of parents, schools, peers, and technology. Journal of Pediatric Oncology Nursing, 20, 159-174.
39. Tebbi, C. K., Mallon, J. C., Richards, M. E., & Bigler, L. R. (1987). Religiosity and locus of control of adolescent cancer patients. Psychological Reports, 61, 683-696.
40. Thornton, A. A. (2002). Perceiving benefits in the cancer experience. Journal of Clinical Psychology in Medical Settings, 9(2), 153-165.
41. Tichon, J., & Yellowlees, P. (2003). Internet social support for children and adolescents. Journal of Telemedicine and Telecare, 9(4), 238-240.
42. Tichon, J. G., & Shapiro, M. (2003). The process of sharing social support in cyberspace. Cyberpsychology and Behavior, 6(2), 161-170.
43. Waxler-Morrison, N., Doll, R., & Hislop, T. G. (1995). The use of qualitative methods to strengthen psychosocial research on cancer. Journal of Psychosocial Oncology, 13(1-2), 177-191.