Need for and use of family leave among parents of children with special health care needs

Pediatrics

Volumn 119, Issue 5, 2007, Pages

  Chung, Paul J ^a,b,f   Garfield, Craig F ^c   Elliott, Marc N ^b   Carey, Colleen ^b   Eriksson, Carl ^d   Schuster, Mark A ^a,b,e  

^a MATTEL CHILDREN S HOSPITAL   (United States)

^b RAND CORPORATION   (United States)

^c NORTHWESTERN UNIVERSITY   (United States)

^d BOSTON CHILDREN S HOSPITAL   (United States)

^e UNIVERSITY OF CALIFORNIA   (United States)

^f UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Chronic disease; Family leave; Parents

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD CARE; CHILD HEALTH; CHILD PARENT RELATION; CHILDHOOD DISEASE; CONTROLLED STUDY; DEMOGRAPHY; EMERGENCY WARD; EMPLOYMENT STATUS; FAMILY LEAVE; FEMALE; HEALTH CARE NEED; HEALTH SURVEY; HOSPITALIZATION; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; MEDICAL LEAVE; MULTIVARIATE ANALYSIS; PRIORITY JOURNAL; SCHOOL CHILD; UNITED STATES;

ADULT; CHILD; DATABASES, FACTUAL; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERVIEWS; MALE; MIDDLE AGED; PARENTAL LEAVE;

EID: 34248196529     PISSN: 00314005     EISSN: 02105721     Source Type: Journal    
DOI: 10.1542/peds.2006-2337     Document Type: Article

References (37)

1. Newacheck PW, Kim SE. A national profile of health care utilization and expenditures for children with special health care needs. Arch Pediatr Adolesc Med. 2005;159:10-17
2. Stein RE, Silver EJ. Comparing different definitions of chronic conditions in a national data set. Ambul Pediatr. 2002;2:63-70
3. Ireys HT, Anderson GF, Shaffer TJ, Neff JM. Expenditures for care of children with chronic illnesses enrolled in the Washington State Medicaid program, fiscal year 1993. Pediatrics. 1997;100:197-204
4. Neff JM, Sharp VL, Muldoon J, Graham J, Myers K. Profile of medical charges for children by health status group and severity level in a Washington State Health Plan. Health Serv Res. 2004;39:73-89
5. Davidoff AJ. Insurance for children with special health care needs: patterns of coverage and burden on families to provide adequate insurance. Pediatrics. 2004;114:394-403
6. Newacheck PW, Strickland B, Shonkoff JP, et al. An epidemiologic profile of children with special health care needs. Pediatrics. 1998;102:117-123
7. American Academy of Pediatrics, Committee on Hospital Care. Family-centered care and the pediatrician's role. Pediatrics. 2003;112:691-697
8. Johnson CP, Kastner TA; American Academy of Pediatrics, Committee Section on Children With Disabilities. Helping families raise children with special health care needs at home. Pediatrics. 2005;115:507-511
9. Thyen U, Kuhlthau K, Perrin JM. Employment, child care, and mental health of mothers caring for children assisted by technology. Pediatrics. 1999;103:1235-1242
10. Smith LA, Romero D, Wood PR, Wampler NS, Chavkin W, Wise PH. Employment barriers among welfare recipients and applicants with chronically ill children. Am J Public Health. 2002;92:1453-1457
11. Heymann SJ, Earle A, Egleston B. Parental availability for the care of sick children. Pediatrics. 1996;98:226-230
12. Watkins M. Building winnable strategies for paid family leave in the states. 2002. Available at: www.econop.org/FLIBuildingWinnableStrategies.pdf. Accessed July 20, 2006
13. Westat Research Group. Balancing the Needs of Families and Employers: Family and Medical Leave Surveys. Washington, DC: US Department of Labor; 2001
14. Heymann SJ, Toomey S, Furstenberg F. Working parents: what factors are involved in their ability to take time off from work when their children are sick? Arch Pediatr Adolesc Med. 1999;153:870-874
15. Han WJ, Waldfogel J. Parental leave: the impact of recent legislation on parents' leave taking. Demography. 2003;40:191-200
16. Kingsbury K. Time off, with pay? Massachusetts leads a push across the U.S. to give paid family leave to every worker. Time. 2006;167:51
17. Division of Services for Children With Special Health Care Needs, Maternal and Child Health Bureau. Division of Services for Children With Special Health Care Needs fact sheet. Rockville, MD: Health Resources and Services Administration; 2000. Available at: ftp://ftp.hrsa.gov/mchb/factsheets/dschsn. pdf. Accessed July 20, 2006
18. Kuhlthau KA, Beal AC, Ferris TG, Perrin JM. Comparing a diagnosis list with a survey method to identify children with chronic conditions in an urban health center. Ambul Pediatr. 2002;2:58-62
19. Perrin JM, Kuhlthau K, McLaughlin TJ, Ettner SL, Gortmaker SL. Changing patterns of conditions among children receiving Supplemental Security Income disability benefits. Arch Pediatr Adolesc Med. 1999;153:80-84
20. Ferris TG, Perrin JM, Manganello JA, Chang Y, Causino N, Blumenthal D. Switching to gatekeeping: changes in expenditures and utilization for children. Pediatrics. 2001;108:283-290
21. Hwang W, Ireys HT, Anderson GF. Comparison of risk adjusters for Medicaid-enrolled children with and without chronic health conditions. Ambul Pediatr. 2001;1:217-224
22. Muldoon JH, Neff JM, Gay JC. Profiling the health service needs of populations using diagnosis-based classification systems. J Ambul Care Manage. 1997;20:1-18
23. Neff JM, Sharp VL, Muldoon J, Graham J, Popalisky J, Gay JC. Identifying and classifying children with chronic conditions using administrative data with the clinical risk group classification system. Ambul Pediatr. 2002;2:71-79
24. Gay JC, Muldoon JH, Neff JM, Wing LJ. Profiling the health service needs of populations: description and uses of the NACHRI classification of congenital and chronic health conditions. Pediatr Ann. 1997;26:655-663
25. Agency for Healthcare Research and Quality. Medical Expenditure Panel Survey MEPSNet Household Component. Available at: www.meps.ahrq.gov/mepsweb/ data_stats/MEPSnetHC.jsp. Accessed February 16, 2007
26. Chan KS, Mangione-Smith R, Burwinkle TM, Rosen M, Varni JW. The PedsQL: reliability and validity of the short-form generic core scales and Asthma Module. Med Care. 2005;43:256-265
27. Berwick DM, Murphy JM, Goldman PA, Ware JE Jr, Barsky AJ, Weinstein MC. Performance of a five-item mental health screening test. Med Care. 1991;29:169-176
28. Little R, Rubin D. Statistical Analysis With Missing Data. New York, NY: John Wiley & Sons; 1987
29. Royston P. Multiple imputation of missing values. Stata J. 2004;4:227-241
30. Rubin D. Multiple Imputation for Nonresponse in Surveys. New York, NY: John Wiley & Sons; 1987
31. Hosmer DW, Hosmer T, Le Cessie S, Lemeshow S. A comparison of goodness-of-fit tests for the logistic regression model. Stat Med. 1997;16:965-980
32. Ware J, Snow K, Kosinski M, Gandek B. SF-36 Health Survey Manual & Interpretation Guide. Boston, MA: New England Medical Center; 1993
33. Ehrle J, Moore KA. 1997 NSAF Benchmarking Measures of Child and Family Well-being. Washington, DC: Urban Institute; 1999
34. Williams J, Wake M, Hesketh K, Maher E, Waters E. Health-related quality of life of overweight and obese children. JAMA. 2005;293:70-76
35. Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer. 2002;94:2090-2106
36. US Department of Health and Human Services. The National Survey of Children With Special Health Care Needs Chartbook 2001. Rockville, MD: Health Resources and Services Administration, Maternal and Child Health Bureau, US Department of Health and Human Services; 2004
37. Chevarley FM. Utilization and Expenditures for Children With Special Health Care Needs. Rockville, MD: Agency for Healthcare Research and Quality; 2006. Research Findings 24