Children with complex chronic conditions in inpatient hospital settings in the United States

Pediatrics

Volumn 126, Issue 4, 2010, Pages 647-655

  Simon, Tamara D ^a   Berry, Jay ^b,c   Feudtner, Chris ^d   Stone, Bryan L ^a   Sheng, Xiaoming ^a   Bratton, Susan L ^a   Dean, J Michael ^a   Srivastava, Rajendu ^a  

^a UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^b BOSTON CHILDREN S HOSPITAL   (United States)

^c HARVARD MEDICAL SCHOOL   (United States)

^d CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

Author keywords

Child health services; Children with special needs; Health care delivery access; Health services research; Hospitalization

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILD CARE; CHRONIC DISEASE; COMPLEX CHRONIC CONDITION; FEMALE; HOSPITAL ADMISSION; HOSPITAL CARE; HOSPITAL CHARGE; HOSPITAL PATIENT; HOSPITALIZATION; HUMAN; INFANT; LENGTH OF STAY; MAJOR CLINICAL STUDY; MALE; MEDICAL TECHNOLOGY; MORBIDITY; MORTALITY; NEWBORN; PRESCHOOL CHILD; PRIORITY JOURNAL; RISK ASSESSMENT; SCHOOL CHILD; UNITED STATES; ECONOMICS; HANDICAPPED CHILD; HOSPITAL; STATISTICS AND NUMERICAL DATA; UTILIZATION;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; DISABLED CHILDREN; FEMALE; HOSPITAL CHARGES; HOSPITALIZATION; HOSPITALS, PEDIATRIC; HUMANS; INFANT; INFANT, NEWBORN; LENGTH OF STAY; MALE; UNITED STATES;

EID: 77957707493     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2009-3266     Document Type: Article

References (38)

1. Newacheck PW, Strickland B, Shonkoff JP, et al. An epidemiologic profile of children with special health care needs. Pediatrics. 1998;102(1 pt 1):117-123
2. Clancy CM, Andresen EM. Meeting the health care needs of persons with disabilities. Milbank Q. 2002;80(2):381-391
3. Elixhauser A, Machlin SR, Zodet MW, et al. Health care for children and youth in the United States: 2001 annual report on access, utilization, quality, and expenditures. Ambul Pediatr. 2002;2(6):419-437
4. Wise PH. The transformation of child health in the United States. Health Aff (Millwood). 2004;23(5):9-25
5. Srivastava R, Stone BL, Murphy NA. Hospitalist care of the medically complex child. Pediatr Clin North Am. 2005;52(4):1165-1187, x
6. Bethell C, Read D. Approaches to Identifying Children and Adults with Special Health Care Needs: A Resource Manual for State Medicaid Agencies and Managed Care Organizations. Portland, OR: Child and Adolescent Health Measurement Initiative on behalf of Centers for Medicare and Medicaid Services at FACCT-The Foundation for Accountability; 2002
7. van der Lee JH, Mokkink LB, Grootenhuis MA, Heymans HS, Offringa M. Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA. 2007;297(24):2741-2751
8. Newacheck PW, Inkelas M, Kim SE. Health services use and health care expenditures for children with disabilities. Pediatrics. 2004;114(1):79-85
9. Newacheck PW, Halfon N. Prevalence and impact of disabling chronic conditions in childhood. Am J Public Health. 1998;88(4):610-617
10. Newacheck PW, Stoddard JJ. Prevalence and impact of multiple childhood chronic illnesses. J Pediatr. 1994;124(1):40-48
11. Feudtner C, Christakis DA, Connell FA. Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington State, 1980-1997. Pediatrics. 2000;106(1 pt 2):205-209
12. Feudtner C, Hays RM, Haynes G, Geyer JR, Neff JM, Koepsell TD. Deaths attributed to pediatric complex chronic conditions: national trends and implications for supportive care services. Pediatrics. 2001;107(6). Available at: www.pediatrics.org/cgi/content/full/107/6/e99
13. Feudtner C, Silveira MJ, Christakis DA. Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998. Pediatrics. 2002;109(4):656-660
14. Feudtner C, Christakis DA, Zimmerman FJ, Muldoon JH, Neff JM, Koepsell TD. Characteristics of deaths occurring in children's hospitals: implications for supportive care services. Pediatrics. 2002;109(5):887-893
15. Feudtner C, DiGiuseppe DL, Neff JM. Hospital care for children and young adults in the last year of life: a population-based study. BMC Med. 2003;1:3
16. Chu B, Houchens R, Elixhauser A, Ross D. Using the KIDS' Inpatient Database (KID) to estimate trends. HCUP Methods Series Report 2007-02; 2007. Available at: www.hcupus.ahrq.gov/reports/2007-02.pdf. Accessed July 30, 2009
17. Teoh DL. Tricks of the trade: assessment of high-tech gear in special needs children. Clin Pediatr Emerg Med. 2002. Available at: www. clinpedemergencymed.com/article/S1522-8401(02)90018-2/abstract. Accessed July 30, 2010
18. Simon TD, Riva-Cambrin J, Srivastava R, Bratton SL, Dean JM, Kestle JR. Hospital care for children with hydrocephalus in the United States: utilization, charges, comorbidities, and deaths. J Neurosurg Pediatr. 2008;1(2):131-137
19. National Center for Health Statistics. ICD-9 code changes; 2010. Available at: www.cdc.gov/nchs/icd/icd9cm-addenda-guidelines.htm#conversion- table. Accessed July 29, 2010
20. Feudtner C, Levin JE, Srivastava R, et al. How well can hospital readmission be predicted in a cohort of hospitalized children? A retrospective, multicenter study. Pediatrics. 2009;123(1):286-293
21. Srivastava R, Berry J, Hall M, et al. Reflux related hospital admissions after fundoplication in children with neurological impairment: retrospective cohort study. BMJ. 2009;339:doi: 10.1136/bmj.b4411
22. Hain R, Wallace A. Progress in palliative care for children in the UK. Paediatr Child Health. 2008;18(3):141-146
23. Knapp CA, Shenkman EA, Marcu MI, Madden VL, Terza JV. Pediatric palliative care: describing hospice users and identifying factors that affect hospice expenditures. J Palliat Med. 2009;12(3):223-229
24. Bazzani LG, Marcin JP. Case volume and mortality in pediatric cardiac surgery patients in California, 1998-2003. Circulation. 2007;115(20):2652-2659
25. Tweddell JS, Nersesian M, Mussatto KA, et al. Fontan palliation in the modern era: factors impacting mortality and morbidity. Ann Thorac Surg. 2009;88(4):1291-1299
26. Stille CJ, Antonelli RC. Coordination of care for children with special health care needs. Curr Opin Pediatr. 2004;16(6):700-705 (Pubitemid 39552222)
27. Antonelli RC, Stille CJ, Antonelli DM. Care coordination for children and youth with special health care needs: a descriptive, multisite study of activities, personnel costs, and outcomes. Pediatrics. 2008;122(1). Available at: www.pediatrics.org/cgi/content/full/122/1/e209
28. Cooley WC. Redefining primary pediatric care for children with special health care needs: the primary care medical home. Curr Opin Pediatr. 2004;16(6):689-692
29. Cooley WC, McAllister JW, Sherrieb K, Kuhlthau K. Improved outcomes associated with medical home implementation in pediatric primary care. Pediatrics. 2009;124(1):358-364
30. Sedman A, Harris JM 2nd, Schulz K, et al. Relevance of the Agency for Healthcare Research and Quality Patient Safety Indicators for children's hospitals. Pediatrics. 2005;115(1):135-145 (Pubitemid 43046292)
31. Coffey M, Mack L, Streitenberger K, Bishara T, De Faveri L, Matlow A. Prevalence and clinical significance of medication discrepancies at pediatric hospital admission. Acad Pediatr. 2009;9(5):360.e1-365.e1
32. Stone BL, Murphy NA, Mundorff MB, Parker HB, Peterson PR, Srivastava R. Children with chronic complex medical illnesses: is inpatient care family-centered? J Pediatr Rehabil Med. 2008;1(3):237-243
33. Gordon JB, Colby HH, Bartelt T, Jablonski D, Krauthoefer ML, Havens P. A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007;161(10):937-944
34. Simon TD, Eilert R, Dickinson LM, Kempe A, Benefield E, Berman S. Pediatric hospitalist comanagement of spinal fusion surgery patients. J Hosp Med. 2007;2(1):23-30 (Pubitemid 46738762)
35. Tulu B, Horan TA. The electronic disability record: purpose, parameters, and model use case. J Am Med Inform Assoc. 2009;16(1):7-13
36. Srivastava R, Downey EC, O'Gorman M, et al. Impact of fundoplication versus gastrojejunal feeding tubes on mortality and in preventing aspiration pneumonia in young children with neurologic impairment who have gastroesophageal reflux disease. Pediatrics. 2009;123(1):338-345
37. Berry JG, Lieu TA, Forbes PW, Goldmann DA. Hospital volumes for common pediatric specialty operations. Arch Pediatr Adolesc Med. 2007;161(1):38-43
38. Berry JG, Hall MA, Sharma V, Goumnerova L, Slonim AD, Shah SS. A multi-institutional, 5-year analysis of initial and multiple ventricular shunt revisions in children. Neurosurgery. 2008;62(2):445-453, discussion 453-444