Shared learning for chronic conditions: A methodology for developing the Royal College of Paediatrics and Child Health (RCPCH) care pathways for children with allergies

Archives of Disease in Childhood

Volumn 96, Issue SUPPL. 2, 2011, Pages

  Warner, John O ^a   Lloyd, Kate ^b  

^a ST MARY S HOSPITAL   (United Kingdom)

^b ROYAL COLLEGE OF PAEDIATRICS AND CHILD HEALTH   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ALGORITHM; ALLERGIC RHINITIS; ALLERGIC URTICARIA; ALLERGY; ANAPHYLAXIS; ANGIONEUROTIC EDEMA; ARTICLE; ASTHMA; CHILD; CHILD HEALTH CARE; CHILDHOOD DISEASE; COMPETENCE; DRUG HYPERSENSITIVITY; ECZEMA; EVIDENCE BASED PRACTICE; FOOD ALLERGY; HEALTH CARE DELIVERY; HEALTH SERVICE; HUMAN; MASTOCYTOSIS; METHODOLOGY; PRESCHOOL CHILD; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; SCHOOL CHILD; SELF CARE; TERTIARY HEALTH CARE;

ALGORITHMS; CHILD; CHILD HEALTH SERVICES; COOPERATIVE BEHAVIOR; CRITICAL PATHWAYS; DELIVERY OF HEALTH CARE; EVIDENCE-BASED MEDICINE; GREAT BRITAIN; HUMANS; HYPERSENSITIVITY; PEDIATRICS; QUALITY ASSURANCE, HEALTH CARE; REVIEW LITERATURE AS TOPIC; SOCIETIES, MEDICAL;

EID: 80755126159     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/adc.2011.212654     Document Type: Article

References (67)

1. Anandan C, Gupta R, Simpson CR, et al. Epidemiology and disease burden from allergic disease in Scotland: analyses of national databases. J R Soc Med 2009;102:431-42.
2. Punekar YS, Sheikh A. Establishing the sequential progression of multiple allergic diagnoses in a UK birth cohort using the General Practice Research Database. Clin Exp Allergy 2009;39:1889-95.
3. Kaur B, Anderson HR, Austin J, et al. Prevalence of asthma symptoms, diagnosis, and treatment in 12-14 year old children across Great Britain (international study of asthma and allergies in childhood, ISAAC UK). BMJ 1998;316:118-24. (Pubitemid 28121112)
4. Burr ML, Wat D, Evans C, et al. A sthma prevalence in 1973, 1988 and 2003. Thorax 2006;61:296-9.
5. Asher MI, Montefort S, Björkstén B, et al.; I SAAC Phase Three Study Group. Worldwide time trends in the prevalence of symptoms of asthma, allergic rhinoconjunctivitis, and eczema in childhood: ISAAC Phases One and Three repeat multicountry cross-sectional surveys. Lancet 2006;368:733-43. (Pubitemid 44279052)
6. Gupta R, Sheikh A, Strachan D, et al. Increasing hospital admissions for systemic allergic disorders in England: analysis of national admissions data. BMJ 2003;327:1142-3. (Pubitemid 37421810)
7. Punekar YS, Sheikh A. Establishing the incidence and prevalence of clinician-diagnosed allergic conditions in children and adolescents using routinely collected data from general practices. Clin Exp Allergy 2009;39:1209-16.
8. Austin JB, Kaur B, Anderson HR, et al. Hay fever, eczema, and wheeze: a nationwide UK study (ISAAC, international study of asthma and allergies in childhood). Arch Dis Child 1999;81:225-30. (Pubitemid 29398383)
9. Hazeldine M, Worth A, Levy ML, et al. Follow-up survey of general practitioners'perceptions of UK allergy services. Prim Care Respir J 2010;19:84-6.
10. Bisht S, Barry W. Demand for paediatric allergy services is high. Arch Dis Child 2011;96:113-14.
11. Royal College of Physicians. Allergy: The Unmet Need. London:RCP, 2003.
12. House of Lords Science and Technology Committee. 6th Report of Session 2006-07: Allergy. London:The Stationery Office, 2007.
13. House of Commons Health Committee. The Provision of Allergy Services: Sixth Report of Session 2003-04. London:The Stationery Office, 2004.
14. Department of Health. A Review of Services for Allergy: The Epidemiology, Demand for and Provision of Treatment and Effectiveness of Clinical Interventions. Washington, DC:Department of Health, 2006.
15. Royal College of Physicians. Allergy Care: Still Not Meeting the Unmet Need. London:RCP, 2010.
16. National Institute for Health and Clinical Excellence. Atopic Eczema in Children. London:NICE, 2007.
17. Ewan PW, Dugué P, Mirakian R, et al.; BSACI. BSACI guidelines for the investigation of suspected anaphylaxis during general anaesthesia. Clin Exp Allergy 2010;40:15-31.
18. Scadding GK, Durham SR, Mirakian R, et al.; British Society for Allergy and Clinical Immunology. BSACI guidelines for the management of allergic and non-allergic rhinitis. Clin Exp Allergy 2008;38:19-42. (Pubitemid 350233401)
19. Powell RJ, Du Toit GL, Siddique N, et al.; British Society for Allergy and Clinical Immunology (BSACI). BSACI guidelines for the management of chronic urticaria and angio-oedema. Clin Exp Allergy 2007;37:631-50. (Pubitemid 46643051)
20. Mirakian R, Ewan PW, Durham SR, et al.; BSACI. BSACI guidelines for the management of drug allergy. Clin Exp Allergy 2009;39:43-61.
21. Scadding GK, Durham SR, Mirakian R, et al.; British Society for Allergy and Clinical Immunology. BSACI guidelines for the management of rhinosinusitis and nasal polyposis. Clin Exp Allergy 2008;38:260-75.
22. Shields MD, Bush A, Everard ML, et al. BTS guidelines: recommendations for the assessment and management of cough in children. Thorax 2008;63 (Suppl 3): iii1-15.
23. British Thoracic Society Scottish Intercollegiate Guidelines Network. British Guideline on the Management of Asthma. Thorax 2008;63 (Suppl 4): iv1-121.
24. Konstantinou GN, Asero R, Maurer M, et al. EAACI/GA(2)LEN task force consensus report: the autologous serum skin test in urticaria. Allergy 2009;64:1256-68.
25. Zuberbier T, Bindslev-Jensen C, Canonica W, et al.; EAACI/GA2LEN/EDF. EAACI/ GA2LEN/EDF guideline: management of urticaria. Allergy 2006;61:321-31.
26. Zuberbier T, Bindslev-Jensen C, Canonica W, et al.; EAACI/GA2LEN/EDF. EAACI/ GA2LEN/EDF guideline: definition, classification and diagnosis of urticaria. Allergy 2006;61:316-20.
27. Muraro A, Clark A, Beyer K, et al. T he management of the allergic child at school: EAACI/GA2LEN Task Force on the allergic child at school. Allergy 2010;65:681-9.
28. Muraro A, Roberts G, Clark A, et al.; EAACI Task Force on Anaphylaxis in Children. The management of anaphylaxis in childhood: position paper of the European academy of allergology and clinical immunology. Allergy 2007;62:857-71. (Pubitemid 47037857)
29. Romano A, Blanca M, Torres MJ, et al.; ENDA; EAACI. Diagnosis of nonimmediate reactions to beta-lactam antibiotics. Allergy 2004;59:1153-60. (Pubitemid 39389467)
30. Torres MJ, Blanca M, Fernandez J, et al.; ENDA; EAACI Interest Group on Drug Hypersensitivity. Diagnosis of immediate allergic reactions to beta-lactam antibiotics. Allergy 2003;58:961-72. (Pubitemid 37260337)
31. Werfel T, Ballmer-Weber B, Eigenmann PA, et al. Eczematous reactions to food in atopic eczema: position paper of the EAACI and GA2LEN. Allergy 2007;62:723-8. (Pubitemid 46934379)
32. Allergen immunotherapy: a practice parameter second update. J Allergy Clin Immunol 2007;120 (3 Suppl): S25-85.
33. Akdis CA, Akdis M, Bieber T, et al.; European Academy of Allergology and Clinical Immunology/American Academy of Allergy, Asthma and Immunology. Diagnosis and treatment of atopic dermatitis in children and adults: European Academy of Allergology and Clinical Immunology/American Academy of Allergy, Asthma and Immunology/PRACTALL Consensus Report. J Allergy Clin Immunol 2006;118:152-69. (Pubitemid 43946480)
34. Bacharier LB, Boner A, Carlsen KH, et al.; European Pediatric Asthma Group. Diagnosis and treatment of asthma in childhood: a PRACTALL consensus report. Allergy 2008;63:5-34. (Pubitemid 350198248)
35. Bernstein IL, Li JT, Bernstein DI, et al.; American Academy of Allergy, Asthma and Immunology;American College of Allergy, Asthma and Immunology. Allergy diagnostic testing: an updated practice parameter. Ann Allergy Asthma Immunol 2008;100:S1-148.
36. Bukutu C, Deol J, Shamseer L, et al.; American Academy of Pediatrics Provisional Section on Complementary, Holistic, and Integrative Medicine. Complementary, holistic, and integrative medicine: atopic dermatitis. Pediatr Rev 2007;28:e87-94.
37. Darsow U, Lübbe J, Taïeb A, et al.; European Task Force on Atopic Dermatitis. Position paper on diagnosis and treatment of atopic dermatitis. J Eur Acad Dermatol Venereol 2005;19:286-95. (Pubitemid 40691704)
38. Darsow U, Wollenberg A, Simon D, et al.; European Task Force on Atopic Dermatitis/EADV Eczema Task Force. ETFAD/EADV eczema task force 2009 position paper on diagnosis and treatment of atopic dermatitis. J Eur Acad Dermatol Venereol 2010;24:317-28.
39. Wallace DV, Dykewicz MS, Bernstein DI, et al.; Joint Task Force on Practice; American Academy of Allergy; Asthma & Immunology; American College of Allergy; Asthma and Immunology; Joint Council of Allergy, Asthma and Immunology. The diagnosis and management of rhinitis: an updated practice parameter. J Allergy Clin Immunol 2008;122:S1-84.
40. Watts B. Outpatient management of asthma in children age 5-11 years: guidelines for practice. J Am Acad Nurse Pract 2009;21:261-9.
41. Department of Health. National Service Framework for Children, Young People and Maternity Services. 2004. http://www.dh.gov.uk/en/ Publicationsandstatistics/ Publications/PublicationsPolicyAndGuidance/DH - 4089100 (accessed Apr 2011).
42. De Bleser L, Depreitere R, De Waele K, et al. Defining pathways. J Nurs Manag 2006;14:553-63. (Pubitemid 44494774)
43. Pearson SD, Goulart-Fisher D, Lee TH. Critical pathways as a strategy for improving care: problems and potential. Ann Intern Med 1995;123:941-8.
44. Middleton S, Barnett J, Reeves D. What is an integrated care pathway? Bandolier J 2001;3:1-8. http://www.medicine.ox.ac.uk/bandolier/painres/download/ whatis/What-is-an-ICP.pdf (accessed 18 Apr 2011) .
45. European Pathways Association. Homepage. 2010. http://www.e-p-a.org/ index2. html (accessed 1 Jan 2010) .
46. Jones DE, Sutcliffe K, Pairman J, et al. An integrated care pathway improves quality of life in Primary Biliary Cirrhosis. QJM 2008;101:535-43. (Pubitemid 351911996)
47. Lhussier M, Carr SM, Wilcockson J. The evaluation of an end-of-life integrated care pathway. Int J Palliat Nurs 2007;13:74-81.
48. Olsson LE, Hansson E, Ekman I, et al. A cost-effectiveness study of a patient-centred integrated care pathway. J Adv Nurs 2009;65:1626-35.
49. Rotter T, Kinsman L, James E, et al. Clinical pathways: effects on professional practice, patient outcomes, length of stay and hospital costs. Cochrane Database Syst Rev 2010;3:CD006632.
50. Mould G, Bowers J, Ghattas M. The evolution of the pathway and its role in improving patient care. Qual Saf Health Care 2010;19:e14.
51. National Institute for Health and Clinical Excellence. The Guidelines Manual. London: NICE, 2009. http://www.nice.org.uk (accessed 7 Jan 2011).
52. Campbell H, Hotchkiss R, Bradshaw N, et al. Integrated care pathways. BMJ 1998;316:133-7. (Pubitemid 28121114)
53. Public Health Resource Unit. Critical Appraisal Skills Programme. Oxford: PHRU, 2009. http://www.phru.nhs.uk/pages/PHD/CASP.htm (accessed 26 Sep 2009) .
54. AGREE Collaboration. Agree Instrument. 2001. http://www. agreecollaboration. org/instrument (accessed 26 Sep 2009) .
55. Scottish Intercollegiate Guidelines Network. Annex B: Key to Evidence Statements and Grades of Recommendations. Edinburgh: SIGN, 2009. http://www.sign.ac.uk/guidelines/fulltext/50/annexb.html (accessed 7 Jan 2011).
56. Royal College of Paediatrics and Child Health. A Framework of Competences for Level 3 Training in Paediatric Immunology, Infectious Diseases and Allergy. RCPCH, 2010. http://www.rcpch.ac.uk/sites/default/files/Framework%20 of%20Competences%20Level%203%20-%20Allergy,%20Immunology%20&%20 Infectious%20Diseases.pdf (accessed 7 Jan 2011).
57. Royal College of Paediatrics and Child Health. A Framework of Competences for Training General Paediatricians with an Interest in Allergy. RCPCH, 2010.
58. Skills for Health. Competence Application Tools. Bristol: Skills for Health, 2009. https://tools.skillsforhealth.org.uk/competence/searchResults? keywords=allergy&lev el%5B%5D=1&level%5B%5D=2&level%5B%5D= 3&level%5B%5D=4&adv-search. x=4&adv-search.y=8 (accessed 7 Jan 2011) .
59. Clark A, Lloyd K, Sheikh A, et al. The RCPCH care pathway for children at risk of anaphylaxis: an evidence and consensus based national approach to caring for children with life-threatening allergies. Arch Dis Child 2011;96(Suppl 2):i6-i9.
60. G Vance, K Lloyd, G Scadding, et al. The 'unified airway': the RCPCH care pathway for children with asthma and/or rhinitis. Arch Dis Child 2011;96(Suppl 2):i10-i14.
61. du Toit C, Lloyd K, Sinnott, et al. The RCPCH care pathway for children with drug allergies: an evidence and consensus based national approach. Arch Dis Child 2011;96(Suppl 2):i15-i18.
62. Cox H, Lloyd K, Williams H, et al. Emollients, education and quality of life: the RCPCH care pathway for children with eczema. Arch Dis Child 2011;96(Suppl 2):i19-i24.
63. Fox AT, Lloyd K, Arkwright PD, et al. The RCPCH care pathway for food allergy in children: an evidence and consensus based national approach. Arch Dis Child 2011;96(Suppl 2):i25-i29.
64. Lucas JS, du Toit C, Lloyd K, et al. The RCPCH care pathway for children with latex allergies: an evidence- and consensus-based national approach. Arch Dis Child 2011;96(Suppl 2):i30-i33.
65. Leech S, Grattan C, Lloyd K, et al. The RCPCH care pathway for children with Urticaria, Angio-oedema or Mastocytosis: an evidence and consensus based national approach. Arch Dis Child 2011;96(Suppl 2):i34-i37.
66. Brathwaite N, du Toit C, Lloydhope K, et al. The RCPCH care pathway for children with venom allergies: an evidence and consensus based national approach to caring for children with allergies. Arch Dis Child 2011;96(Suppl 2):i38-i40.
67. Kennedy I. Getting It Right for Children and Young People: Overcoming Cultural Barriers in the NHS So as to Meet Their Needs. London, Department of Health, 2010.