Finally heard, believed and accepted - Peer support in the narratives of women with fibromyalgia

Patient Education and Counseling

Volumn 85, Issue 2, 2011, Pages

  Sallinen, Merja ^a   Kukkurainen, Marja Leena ^b   Peltokallio, Liisa ^c  

^a SATAKUNTA UNIVERSITY OF APPLIED SCIENCES   (Finland)

^b RHEUMATISM FOUNDATION HOSPITAL   (Finland)

^c UNIVERSITY OF JYVÄSKYLÄ   (Finland)

Author keywords

Fibromyalgia; Narrative research; Peer support; Rehabilitation

Indexed keywords

ADULT; AGED; ARTICLE; FEAR; FEMALE; FIBROMYALGIA; HEALTH BEHAVIOR; HOPELESSNESS; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MEDICAL INFORMATION; MENTAL HEALTH; NARRATIVE; PATIENT ATTITUDE; PEER GROUP; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SELF EVALUATION;

ADULT; FEMALE; FIBROMYALGIA; FINLAND; HUMANS; INTERVIEWS AS TOPIC; MIDDLE AGED; NARRATION; PEER GROUP; SOCIAL SUPPORT;

EID: 80053946178     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2011.02.011     Document Type: Article

References (40)

1. Branco J.C., Bannwarth B., Failde I., Carbonell J.U., Blotman F., Spaeth M., et al. Prevalence of fibromyalgia: a survey in five European countries. Semin Arthritis Rheum 2010, 39:448-453.
2. Yunus M.B. Fibromyalgia in men: comparison of clinical features with women. J Rheumatol 2000, 27:485-490.
3. Carville S., Arendt-Nielsen S., Bliddal H., Boltman F., Branco J.C., Buskila D., et al. EULAR recommendations for the management of fibromyalgia syndrome. Ann Rheum Dis 2008, 67:536-541.
4. Häuser W., Thieme K., Turk D.C. Guidelines on the management of fibromyalgia syndrome - a systematic review. Eur J Pain 2010, 14:5-10.
5. Arnold L., Crofford L., Mease P., Burgess S., Palmer S., Abetz L., et al. Patient perspectives on the impact of fibromyalgia. Patient Educ Couns 2008, 73:114-120.
6. Bliddal H., Danneskiold-Samsøe B. Chronic widespread pain in the spectrum of rheumatological diseases. Best Pract Res Clin Rheumatol 2008, 21:391-402.
7. Aaron L.A., Buchwald D. Chronic diffuse musculoskeletal pain, fibromyalgia and co-morbid unexplained conditions. Best Pract Res Clin Rheumatol 2003, 17:563-574.
8. Sim J., Madden S. Illness experience in fibromyalgia syndrome: a metasynthesis of qualitative studies. Soc Sci Med 2008, 67:57-67.
9. Mannerkorpi K., Kroksmark T., Ekdahl C. How patients with fibromyalgia experience their symptoms in everyday life. Phys Ther Res Int 1999, 4:110-122.
10. Bury M., Chronic illness as biographical disruption Sociol Health Ill 1982, 4:167-182.
11. Bury M. Illness narratives: fact or fiction?. Sociol Health Ill 2001, 32:263-285.
12. Madden S., Sim J. Creating meaning in fibromyalgia syndrome. Soc Sci Med 2006, 63:2962-2973.
13. Sim J., Smith M.V. The sociology of pain. Physiotherapy: a psychosocial approach 2004, 117-139. Edinburgh, Butterworth-Heinemann. S. French, J. Sim (Eds.).
14. Crooks V., Understanding embracing, rejecting: women's negotiations of disability and categorizations after becoming chronically ill. Soc Sci Med 2008, 67:1837-1846.
15. Ussher J., Kirsten L., Butow P., Sandoval M. What do cancer support groups provide, which other supportive relationships do not? The experience of peer support groups for people with cancer. Soc Sci Med 2006, 62:2565-2576.
16. van Uden-Kraan C., Drossaert C., Taal E., Seydel E., van der Laar M. Participation in online patient support groups endorses patients' empowerment. Patient Educ Couns 2009, 74:61-69.
17. LaChapelle D., Lavoie S., Boudreau A. The meanings and process of pain acceptance. Perceptions of women with arthritis and fibromyalgia. Pain Res Manage 2008, 13:201-210.
18. Colella T., King K. Peer support. An under-recognized resource in cardiac recovery. Eur J Cardiosvasc Nurs 2004, 3:211-217.
19. Mead S., Hilton D., Curtis L. Peer support: a theoretical perspective. Psychiatr Rehabil J 2001, 25:134-141.
20. Dennis C.-L. Peer support within a health care context: a concept analysis. Int J Nurs Stud 2003, 40:321-332.
21. Kukkurainen ML. Fibromyalgia patients' sense of coherence, social support and quality of life. Dissertation. University of Oulu; 2008 [English abstract].
22. Franks H., Cronan T., Oliver K. Social support in women with fibromyalgia: is quality more important than quantity?. J Commun Psychol 2004, 32:425-438.
23. Lopez-Martinez A., Esteve-Zarazaga R., Ramirez-Maestre C. Perceived social support and coping responses are independent variables explaining pain adjustment among chronic pain patients. J Pain 2008, 9:373-379.
24. Evers A., Kraaimaat F., Geenen R., Jacobs J., Bijlsma J. Pain coping and social support as predictors of long-term functional disability in early rheumatoid arthritis. Behav Res Ther 2003, 41:1295-1310.
25. Corbett M., Foster N., Ong B.N. Living with low back pain - stories of hope and despair. Soc Sci Med 2007, 65:1584-1594.
26. Larun L., Malterud K. Identity and coping experiences in Chronic Fatigue Syndrome: a synthesis of qualitative studies. Patient Educ Couns 2007, 69:20-28.
27. McGowan L., Luker K., Creed F., Chew-Graham C. 'How do you explain a pain that can't be seen?': the narratives of women with chronic pelvic pain and their disengagement with the diagnostic cycle. Brit J Health Psychol 2007, 12:261-274.
28. Nettleton S. 'I just want permission to be ill': towards a sociology of medically unexplained symptoms. Soc Sci Med 2006, 62:1167-1178.
29. Bruner J Life as narrative. Soc Res 2004, 71:691-710.
30. Curtis S., Gesler W., Smith G., Washburn S. Approaches to sampling and case selection in qualitative research: examples in the geography of health. Soc Sci Med 2000, 50(7-8):1001-1014.
31. Sallinen M., Kukkurainen M.L., Peltokallio L., Mikkelsson M. Women's narratives on experiences of work ability and functioning in fibromyalgia. Musculoskelet Care 2010, 8:18-26.
32. Rosenthal G. The healing effects of storytelling: on the conditions of curative storytelling in the context of research and counselling. Qual Inq 2003, 9:915-933.
33. Wengraf T Qualitative research interviewing: biographic narrative and semi-structured methods 2001, Sage, London.
34. Polkinghorne D. Narrative knowing and the study of lives. Aging and biography: explorations in adult development 1996, 77-100. Springer, New York. J. Birren (Ed.).
35. Labov W., Waletzky J. Narrative analysis: oral versions of personal experiences [reprint from 1967]. Sociolinguistic: the essential readings 2003, 74-104. Blackwell, Oxford. C. Bratt Paulston, G. Tucker (Eds.).
36. Riessman C. Analysis of personal narratives. Handbook of interview research: Context & Method 2001, 695-707. Thousand Oaks, Sage. J. Gubrium, J. Holstein (Eds.).
37. Aldrich S., Eccleston C. Making sense of everyday pain. Soc Sci Med 2000, 50:1631-1641.
38. Werner A., Widding-Isaksen L., Malterud K. 'I am not the kind of woman who complains of everything': illness stories on self and shame in women with chronic pain. Soc Sci Med 2004, 59:1035-1045.
39. McCracken L., Zhao-O'Brien J. General psychological acceptance and chronic pain: there is more to accept than the pain itself. Eur J Pain 2009, doi:10.1016/j.ej.pain.2009.03.004.
40. Malterud K. Qualitative research: standards, challenges and guidelines. Lancet 2001, 358:483-488.