Creating meaning in fibromyalgia syndrome

Social Science and Medicine

Volumn 63, Issue 11, 2006, Pages 2962-2973

  Madden, Sue ^a,b   Sim, Julius ^b  

^a OXFORD BROOKES UNIVERSITY   (United Kingdom)

^b KEELE UNIVERSITY   (United Kingdom)

Author keywords

Diagnosis; Fibromyalgia syndrome; Illness experience; UK

Indexed keywords

DISEASE; HEALTH BELIEF; PUBLIC ATTITUDE;

ACCESS TO INFORMATION; ADULT; AMBIGUITY; ARTICLE; CLINICAL ARTICLE; CONTROLLED STUDY; DATA BASE; DISEASE COURSE; EXPERIENCE; FEMALE; FIBROMYALGIA; HEALTH PRACTITIONER; HUMAN; MALE; MEDICAL DOCUMENTATION; MEDICAL RECORD REVIEW; SEMI STRUCTURED INTERVIEW; SUPPORT GROUP; UNCERTAINTY; UNITED KINGDOM;

ADULT; FEMALE; FIBROMYALGIA; GREAT BRITAIN; HUMANS; INTERVIEWS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE;

EURASIA; EUROPE; UNITED KINGDOM; WESTERN EUROPE;

EID: 33750042929     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2006.06.020     Document Type: Article

References (56)

1. Ablon J. Dwarfism and social identity: Self-help group participation. Social Science & Medicine 15B 1 (1981) 25-30
2. Adams S., Pill R., and Jones A. Medication, chronic illness and identity: The perspective of people with asthma. Social Science & Medicine 45 2 (1997) 189-201
3. Adamson C. Existential and clinical uncertainty in the medical encounter: An idiographic account of an illness trajectory defined by inflammatory bowel disease and avascular necrosis. Sociology of Health and Illness 19 2 (1997) 133-159
4. Araujo L. Designing and refining hierarchical coding frames. In: Kelle U. (Ed). Computer-aided qualitative data analysis: Theory, methods and practices (1995), Sage, London 96-104
5. Arksey H., and Sloper P. Disputed diagnoses: The cases of RSI and childhood cancer. Social Science & Medicine 49 4 (1999) 483-497
6. Åsbring P., and Närvänen A.-L. Ideal versus reality: Physicians' perspectives on patients with chronic fatigue syndrome (CFS) and fibromyalgia. Social Science & Medicine 57 4 (2003) 711-720
7. Atkinson P. Discourse, descriptions and diagnoses: Reproducing normal medicine. In: Lock M., and Gordon D. (Eds). Biomedicine examined (1988), Kluwer Academic Publishers, Dordrecht 179-204
8. Bennett R.M. Fibromyalgia and the facts. Sense or nonsense. Rheumatic Diseases Clinics of North America 19 1 (1993) 45-59
9. Blaxter M. The cause of disease: Women talking. Social Science & Medicine 17 2 (1983) 50-69
10. Blumer H. Symbolic interactionism (1969), Prentice-Hall, Englewood Cliffs
11. Brashers D.E., Neidrig J.L., Haas S.M., Dobbs L.K., Cardillo L.W., and Russell J.A. Communication in the management of uncertainty: The case of persons living with HIV or AIDS. Communication Monographs 67 1 (2000) 63-84
12. Broom D.H., and Woodward R.V. Medicalisation reconsidered: Toward a collaborative approach to care. Sociology of Health and Illness 18 3 (1996) 357-378
13. Brown, P. (1995). Naming and framing: The social construction of diagnosis and illness [Special issue]. Journal of Health and Social Behaviour, 34-52.
14. Bülow P.H., and Hydén L.C. Patient school as a way of creating meaning in a contested illness: The case of CFS. Health 7 2 (2003) 227-249
15. Bury M. Chronic illness as biographical disruption. Sociology of Health and Illness 4 2 (1982) 167-182
16. Bury M. The sociology of chronic illness: A review of research and prospects. Sociology of Health and Illness 13 4 (1991) 451-468
17. Charmaz K. The body, identity and self: Adapting to impairment. Sociological Quarterly 36 4 (1995) 657-680
18. Cohen M.L., and Quintner J.L. Fibromyalgia syndrome, a problem of tautology. Lancet 342 8876 (1993) 906-909
19. Cooper L. Myalgic encephalomyelitis and the medical encounter. Sociology of Health and Illness 19 2 (1997) 186-207
20. Coulter A., Entwistle V., and Gilbert D. Sharing decisions with patients: Is the information good enough?. British Medical Journal 318 7179 (1999) 318-323
21. Damen S., Mortelmans D., and Van Hove E. Self-help groups in Belgium: Their place in the care network. Sociology of Health and Illness 22 3 (2000) 331-348
22. Donovan J.L., and Blake D.R. Qualitative study of interpretation of reassurance among patients attending rheumatology clinics: "Just a touch of arthritis, doctor"?. British Medical Journal 320 7234 (2000) 541-544
23. Draucker C.B. Coping with a difficult-to-diagnose illness: The example of interstitial cystitis. Health Care for Women International 12 2 (1991) 191-198
24. Ehrlich G.E. Pain is real; fibromyalgia isn't. Journal of Rheumatology 30 8 (2003) 1666-1667
25. Garro L. Narrative representations of chronic illness experience: Cultural models of illness, mind and body in stories concerning the temporomandibular joint (TMJ). Social Science & Medicine 38 6 (1994) 775-788
26. Gerhardt U. Ideas about illness. An intellectual and political history of medical sociology (1989), Macmillan Education, Hong Kong
27. Glenton C. Chronic back pain sufferers-striving for the sick role. Social Science & Medicine 57 11 (2003) 2243-2252
28. Hadler N.M. Fibromyalgia and the medicalization of misery. Journal of Rheumatology 30 8 (2003) 1668-1670
29. Hallberg L.R.-M., and Carlsson S.G. Psychosocial vulnerability and maintaining forces related to fibromyalgia. In-depth interviews with twenty-two female patients. Scandinavian Journal of Caring Sciences 12 2 (1998) 95-103
30. Holstein J.A., and Gubrium J.F. Active interviewing. In: Silverman D. (Ed). Qualitative research: Theory, method and practice (1997), Sage, London 113-129
31. Kelle, U. (1997). Theory building in qualitative research and computer programs for the management of textual data. Sociological Research Online, 1, 〈http://www.socresonline.org.uk/2/2/1.html〉.
32. Kralik D., Brown M., and Koch T. Women's experiences of 'being diagnosed' with a long-term illness. Journal of Advanced Nursing 33 5 (2001) 594-602
33. Lewis S.E. A search for meaning: Making sense of depression. Journal of Mental Health 4 4 (1995) 369-381
34. Malterud K. Women's undefined disorders-a challenge for clinical communication. Family Practice 9 3 (1992) 299-303
35. McCain G.A. A clinical overview of the fibromyalgia syndrome. Journal of Musculoskeletal Pain 4 1/2 (1996) 9-34
36. Meile R.L. Pathways to patienthood: Sick role and labelling perspectives. Social Science & Medicine 22 1 (1986) 35-40
37. Mishler E.G. Viewpoint: Critical perspective on the biomedical model. In: Mishler E.G., Amarasingham L.R., Osherson S.D., Hauser S.T., Waxler N.E., and Liem R. (Eds). Social contexts of health, illness and patient care (1981), Cambridge University Press, Cambridge 1-23
38. Molleman E., Krabbendam P.J., Annyas A.A., Koops H.S., Sleijfer D.T., and Vermay A. The significance of the doctor-patient relationship in coping with cancer. Social Science & Medicine 18 6 (1984) 475-480
39. O'Flynn N., and Britten N. Menorrhagia in general practice-disease or illness. Social Science & Medicine 50 5 (2000) 651-661
40. Petchey R., Farnsworth B., and Williams J. 'The last resort would be to go to the GP'. Understanding the perceptions and use of general practitioner services among people with HIV/AIDS. Social Science & Medicine 50 2 (2000) 233-245
41. Peters S., Stanley I., Rose M., and Salmon P. Patients with medically unexplained symptoms: Sources of patients' authority and implications for demands on medical care. Social Science & Medicine 46 4/5 (1998) 559-565
42. Pierret J. The illness experience: State of knowledge and perspectives for research. Sociology of Health and Illness 25 3 (2003) 4-22
43. Pinder R. Striking balances: Living with Parkinson's disease. In: Anderson R., and Bury M. (Eds). Living with chronic illness: The experience of patients and their families (1988), Unwin Hyman, London 67-88
44. Prein G., and Kelle U. Computers and qualitative theory building. In: Kelle U. (Ed). Computer-aided qualitative data analysis: Theory, methods and practices (1995), Sage, London 62-68
45. Raspe H., and Croft P. Fibromyalgia. Baillière's Clinical Rheumatology 9 3 (1995) 599-614
46. Reilly P.A. The differential diagnosis of generalized pain. Baillière's Best Practice and Research in Clinical Rheumatology 13 3 (1999) 391-401
47. Robinson D. The self-help component of primary health care. Social Science & Medicine 14A 5 (1980) 415-421
48. Silverman D. Interpreting qualitative data. Methods for analysing talk, text and interaction (1993), Sage, London
49. Smith R.T. Societal reaction and physical disability: Contrasting perspectives. In: Gove W.R. (Ed). The labelling of deviance. 2nd ed. (1980), Sage, Beverly Hills 227-236
50. Stewart D.C., and Sullivan T.J. Illness behavior and the sick role in chronic disease: The case of multiple sclerosis. Social Science & Medicine 16 5 (1982) 1397-1404
51. Telles J.L., and Pollack M.H. Feeling sick: The experience and legitimation of illness. Social Science & Medicine 15A 3 (1981) 243-251
52. Vickers M.H. Stigma, work and 'unseen' illness: A case and notes to enhance understanding. Illness, Crisis and Loss 8 2 (2000) 131-151
53. Wiener C.L. The burden of rheumatoid arthritis: Tolerating the uncertainty. Social Science & Medicine 9 2 (1975) 97-104
54. Williams G.H. Hope for the humblest? The role of self-help in chronic illness: The case of ankylosing spondylitis. Sociology of Health and Illness 11 2 (1989) 135-159
55. Williams S.J. Parsons revisited: From sick role to...?. Health 9 2 (2005) 123-144
56. Woodward R.V., Broom D.H., and Legge D.G. Diagnosis in chronic illness: Disabling or enabling-the case of chronic fatigue syndrome. Journal of the Royal Society of Medicine 88 6 (1995) 325-329