Patient perspectives on the impact of fibromyalgia

Patient Education and Counseling

Volumn 73, Issue 1, 2008, Pages 114-120

  Arnold, Lesley M ^a   Crofford, Leslie J ^b   Mease, Philip J ^c   Burgess, Somali Misra ^d   Palmer, Susan C ^d   Abetz, Linda ^d   Martin, Susan A ^e  

^a UNIVERSITY OF CINCINNATI MEDICAL CENTER   (United States)

^b UNIVERSITY OF KENTUCKY   (United States)

^c Seattle Rhumatology Associates   (United States)

^d MAPI VALUES   (United States)

^e PFIZER INC   (United States)

Author keywords

Fibromyalgia; Patient focus group; Quality of life; Symptom domains

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; CLINICAL ARTICLE; COGNITIVE DEFECT; CONTROLLED STUDY; DAILY LIFE ACTIVITY; DEMOGRAPHY; DEPRESSION; EMOTION; FATIGUE; FEMALE; FIBROMYALGIA; HUMAN; LEISURE; MALE; PAIN; PATIENT CARE; PHYSICAL ACTIVITY; PRIORITY JOURNAL; QUALITY OF LIFE; SLEEP DISORDER; SOCIAL INTERACTION; SYMPTOMATOLOGY;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; COGNITION DISORDERS; FATIGUE; FEMALE; FIBROMYALGIA; FOCUS GROUPS; HUMANS; MALE; MICHIGAN; MIDDLE AGED; OHIO; PAIN; QUALITY OF LIFE; SLEEP DISORDERS; WASHINGTON;

EID: 50249096174     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2008.06.005     Document Type: Article

References (22)

1. Wolfe F., Ross K., Anderson J., Russell I.J., and Hebert L. The prevalence and characteristics of fibromyalgia in the general population. Arthritis Rheum 38 (1995) 19-28
2. White K.P., and Harth M. Classification, epidemiology, and natural history of fibromyalgia. Curr Pain Headache Rep 5 (2001) 320-329
3. Wolfe F., Smythe H.A., Yunus M.B., Bennett R.M., Bombardier C., Goldenberg D.L., Tugwell P., Campbell S.M., Abeles M., Clark P., Fam A.G., Farber S.J., Fiechtner J.J., Franklin C.M., Gatter R.A., Hamaty D., Lessard J., Lichtbroun A.S., Masi A.T., McCain G.A., Reynolds W.J., Romano T.J., Russell I.J., and Sheon R.P. The American College of Rheumatology 1990 criteria for the classification of fibromyalgia. Arthritis Rheum 33 (1990) 160-172
4. Staud R. Evidence of involvement of central neural mechanisms in generating fibromyalgia pain. Curr Rheumatol Rep 4 (2002) 299-305
5. Bernard A., Prince A., and Edsall P. Quality of life issues for fibromyalgia patients. Arthritis Care Res 13 (2000) 42-50
6. White K.P., Speechley M., Harth M., and Ostbye T. Comparing self-reported function and work disability in 100 community cases of fibromyalgia syndrome versus controls in London, Ontario. Arthritis Rheum 42 (1999) 76-83
7. Mease P. Fibromyalgia syndrome: review of clinical presentation, pathogenesis, outcome measures, and treatment. J Rheumatol 32 (2005) 6-21
8. Haugli L., Strand E., and Finset A. How do patients with rheumatic disease experience their relationship with their doctors? A qualitative study of experiences of stress and support in the doctor-patient relationship. Patient Educ Couns 52 (2004) 169-174
9. Henriksson C.M. Living with continuous muscular pain-patient perspectives. Part II. Strategies for daily life. Scand J Caring Sci 9 (1995) 77-86
10. Hallberg L.R.M., and Carlsson S.G. Psychosocial vulnerability and maintaining forces related to fibromyalgia. Scand J Caring Sci 12 (1998) 95-103
11. Hellstrom O., Bullington J., Karlsson G., Lindqvist P., and Mattsson B. A phenomenological study of fibromyalgia. Patient perspectives. Scand J Prim Health Care 17 (1999) 11-16
12. Hallberg L.R.M., and Carlsson S.G. Coping with fibromyalgia. A qualitative study. Scand J Caring Sci 14 (2000) 29-36
13. Raymond M.C., and Brown J.B. Experience of fibromyalgia. Qualitative study. Can Fam Physician 46 (2000) 1100-1106
14. Asbring P., and Narvanen A.L. Women's experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia. Qual Health Res 12 (2002) 148-160
15. Sturge-Jacobs M. The experience of living with fibromyalgia: confronting an invisible disability. Res Theor Nurs Pract: Int J 16 (2002) 19-31
16. Cunningham M.M., and Jillings C. Individuals' descriptions of living with fibromyalgia. Clin Nurs Res 15 (2006) 258-273
17. Strauss A.C., and Corbin J.M. Basics of qualitative research: techniques and procedures for developing grounded theory (1998), Sage Publications
18. Ramirez A.G., and Sheppard J. The use of focus groups in health research. Scand J Primary Health Care (1988) 81-90
19. Arnold L.M., Keck Jr. P.E., and Welge J.A. Antidepressant treatment of fibromyalgia. A meta- analysis and review. Psychosomatics 41 (2000) 104-113
20. Arnold L.M. New therapies in fibromyalgia. Arthritis Res Ther 8 (2006) 212
21. Burckhardt C.S., Clark S.R., and Bennett R.M. The fibromyalgia impact questionnaire: development and validation. J Rheumatol 18 (1991) 728-733
22. Mease P.J., Arnold L.M., Crofford L.J., Williams D.A., Russell I.J., Humphrey L., Abetz L., and Martin S.A. Identifying the clinical domains of fibromyalgia: contributions from clinician and patient Delphi exercises. Arthritis Rheum 59 (2008) 952-960