Cancer information sources used by patients to inform and influence treatment decisions

Journal of Health Communication

Volumn 15, Issue 4, 2010, Pages 445-463

  Walsh, Matthew C ^a   Trentham Dietz, Amy ^a   Schroepfer, Tracy A ^a   Reding, Douglas J ^b   Campbell, Bruce ^c   Foote, Mary L ^d   Kaufman, Stephanie ^a   Barrett, Morgan ^e   Remington, Patrick L ^a   Cleary, James F ^a  

^a UNIVERSITY OF WISCONSIN   (United States)

^b MARSHFIELD CLINIC   (United States)

^c MEDICAL COLLEGE OF WISCONSIN   (United States)

^d U S DEPARTMENT OF HEALTH AND HUMAN SERVICES   (United States)

^e Affinity Health System   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AGE; AGED; ALTERNATIVE MEDICINE; ARTICLE; ATTITUDE TO HEALTH; CONSUMER HEALTH INFORMATION; FEMALE; HUMAN; INTERNET; MALE; MIDDLE AGED; NEOPLASM; PATIENT PARTICIPATION; QUESTIONNAIRE; REGISTER; SELF HELP; SOCIOECONOMICS; STATISTICAL MODEL; UTILIZATION REVIEW;

AGE FACTORS; AGED; AGED, 80 AND OVER; COMPLEMENTARY THERAPIES; CONSUMER HEALTH INFORMATION; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERNET; LOGISTIC MODELS; MALE; MIDDLE AGED; NEOPLASMS; PATIENT PARTICIPATION; QUESTIONNAIRES; REGISTRIES; SELF-HELP GROUPS; SOCIOECONOMIC FACTORS;

EID: 77954013023     PISSN: 10810730     EISSN: 10870415     Source Type: Journal    
DOI: 10.1080/10810731003753109     Document Type: Article

References (33)

1. Anderson, A. S., & Klemm, P. (2008). The Internet: Friend or foe when providing patient education? Clinical Journal of Oncology Nursing, 12(1), 55-63.
2. Bilodeau, B. A., & Degner, L. F. (1996). Information needs, sources of information, and decisional roles in women with breast cancer. Oncology Nursing Forum, 23(4), 691-696.
3. Boudioni, M., McPherson, K., Moynihan, C., Melia, J., Boulton, M., Leydon, G., et al. (2001). Do men with prostate or colorectal cancer seek different information and support from women with cancer? British Journal of Cancer, 85(5), 641-648.
4. Carlsson, M. (2000). Cancer patients seeking information from sources outside the health care system. Supportive Care in Cancer, 8(6), 453-457.
5. Chatwin, J., & Tovey, P. (2004). Complementary and alternative medicine (CAM), cancer and group-based action: A critical review of the literature. European Journal of Cancer Care (Engl), 13(3), 210-218.
6. Cowan, C., & Hoskins, R. (2007). Information preferences of women receiving chemotherapy for breast cancer. European Journal of Cancer Care (Engl), 16(6), 543-550.
7. Czaja, R., Manfredi, C., & Price, J. (2003). The determinants and consequences of information seeking among cancer patients. Journal of Health Communication, 8(6), 529-562.
8. Degner, L. F., Kristjanson, L. J., Bowman, D., Sloan, J. A., Carriere, K. C., O'Neil, J., et al. (1997). Information needs and decisional preferences in women with breast cancer. Journal of the American Medical Association, 277(18), 1485-1492.
9. Dey, A. (2004). Consumer health informatics: An overview of patient perspectives on health information needs. Health Information Management Journal, 33(4), 121-126.
10. Dillman, D. (1978). Mail and telephone surveys: The total design method. New York: John Wiley & Sons, Inc.
11. Evans, M., Shaw, A., Thompson, E. A., Falk, S., Turton, P., Thompson, T., et al. (2007). Decisions to use complementary and alternative medicine (CAM) by male cancer patients: Information-seeking roles and types of evidence used. BMC Complementary and Alternative Medicine, 7, 25.
12. Feldman-Stewart, D., Brennenstuhl, S., & Brundage, M. D. (2008). The information needed by Canadian early-stage prostate cancer patients for decision-making: Stable over a decade. Patient Education and Counseling, 73, 437-442.
13. Feldman-Stewart, D., Brundage, M. D., Nickel, J. C., & MacKillop, W. J. (2001). The information required by patients with early-stage prostate cancer in choosing their treatment. British Journal of Urology International, 87(3), 218-223.
14. Goldberg, R., Guadagnoli, E., Silliman, R. A., & Glicksman, A. (1990). Cancer patients' concerns: Congruence between patients and primary care physicians. Journal of Cancer Education, 5(3), 193-199.
15. Gustafson, D. H., Hawkins, R. P., Boberg, E. W., McTavish, F., Owens, B., Wise, M., et al. (2002). CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. Int J Med Inform, 65(3), 169-177.
16. Krasuska, M. E., & Stanislawek, A. (2003). Professional information, education and counselling as prerequisites for quality cancer care. Annales Universitatis Mariae Curie-Sklodowska, 58(2), 179-184.
17. Linssen, C., Schook, R. M., The, A. M., Lammers, E., Festen, J., & Postmus, P. E. (2007). A web site on lung cancer: Who are the users and what are they looking for? Journal of Thoracic Oncology, 2(9), 813-818.
18. Manfredi, C., Czaja, R., Price, J., Buis, M., & Janiszewski, R. (1993). Cancer patients' search for information. Journal of The National Cancer Institute Monographs, 14, 93-104.
19. Niederdeppe, J., Hornik, R. C., Kelly, B. J., Frosch, D. L., Romantan, A., Stevens, R. S., et al. (2007). Examining the dimensions of cancer-related information seeking and scanning behavior. Health Communication, 22(2), 153-167.
20. Nielsen-Bohlman, L., Panzer, A. M.,&Kindig,D.A. (2004). Health literacy:A prescription to end confusion. Committee on Health Literacy Board on Neuroscience and Behavior, Institute of Medicine of the National Academies. Washington, DC: The National Academies Press.
21. O'Leary, K. A., Estabrooks, C. A., Olson, K., & Cumming, C. (2007). Information acquisition for women facing surgical treatment for breast cancer: Influencing factors and selected outcomes. Patient Education and Counseling, 69(1-3), 5-19.
22. Rains, S. A. (2007). Perceptions of traditional information sources and use of the world wide web to seek health information: Findings from the health information national trends survey. Journal of Health Communication, 12(7), 667-680.
23. Royak-Schaler, R., Passmore, S. R., Gadalla, S., Hoy, M. K., Zhan, M., Tkaczuk, K., et al. (2008). Exploring patient-physician communication in breast cancer care for African American women following primary treatment. Oncology Nursing Forum, 35(5), 836-843.
24. Rutten, L. J., Arora, N. K., Bakos, A. D., Aziz, N., & Rowland, J. (2005). Information needs and sources of information among cancer patients: A systematic review of research (1980-2003). Patient Education and Counseling, 57(3), 250-261.
25. Rutten, L. J., Squiers, L., & Hesse, B. (2006). Cancer-related information seeking: Hints from the 2003 Health Information National Trends Survey (HINTS). Journal of Health Communication, 11(Suppl. 1), 147-156. (Pubitemid 44594390)
26. Satterlund, M. J., McCaul, K. D., & Sandgren, A. K. (2003). Information gathering over time by breast cancer patients. Journal of Medical Internet Research, 5(3), e15.
27. Smith, R. P., Devine, P., Jones, H., DeNittis, A., Whittington, R., & Metz, J. M. (2003). Internet use by patients with prostate cancer undergoing radiotherapy. Urology, 62(2), 273-277.
28. Suominen, T., Leino-Kilpi, H., & Laippala, P. (1995). Who provides support and how? Breast cancer patients and nurses evaluate patient support. Cancer Nursing, 18(4), 278-285.
29. Trentham-Dietz, A., & Walsh, M. C. (2008). ACCESS: Assessment of cancer care and satisfaction. Summary of results. Madison, WI: University of Wisconsin Paul P. Carbone Comprehensive Cancer Center. Retrieved May 9, 2010 from http://www.wicancer.org/ documents/ACCESS%20results%20doc.pdf
30. van de Poll-Franse, L. V., & van Eenbergen, M. C. (2008). Internet use by cancer survivors: Current use and future wishes. Support Care in Cancer, 16(10), 1189-1195.
31. Verhoef, M. J., Boon, H. S., & Page, S. A. (2008). Talking to cancer patients about complementary therapies: Is it the physician's responsibility? Current Oncology, 15(Suppl. 2), S88-S93.
32. Weis, J. (2003). Support groups for cancer patients. Supportive Care in Cancer, 11(12), 763-768.
33. Ziebland, S., Chapple, A., Dumelow, C., Evans, J., Prinjha, S., & Rozmovits, L. (2004). How the internet affects patients' experience of cancer: A qualitative study. British Medical Journal, 328(7439), 564.