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Volumn 18, Issue 2, 2009, Pages 119-129

How parents search, interpret, and evaluate genetic information obtained from the internet

Author keywords

Attitudes; Consumer health information; Genetic counseling; Genetic services; Health knowledge; Health literacy; Internet; Parents; Practice; Qualitative research

Indexed keywords

ARTICLE; AUDIO RECORDING; AUTOMATION; COMPUTER PROGRAM; EDUCATIONAL STATUS; ETHNICITY; EVALUATION RESEARCH; FAMILY; GENETIC SERVICE; GENETICS; HEALTH SERVICE; INCOME; INFORMATION PROCESSING; INFORMATION RETRIEVAL; INTERNET; INTERVIEW; MEDICAL EXAMINATION; MEDICAL INFORMATION; PARENT; PEDIATRIC HOSPITAL;

EID: 62449279030     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-008-9198-4     Document Type: Article
Times cited : (39)

References (42)
  • 3
    • 84978708848 scopus 로고    scopus 로고
    • Health-related information on the Web: Results from the HealthStyles Survey, 2002-3
    • P. Bansil N. Keenan A. Zlot J. Gilliand 2006 Health-related information on the Web: results from the HealthStyles Survey, 2002-3 Preventing Chronic Disease 3 2 1 10
    • (2006) Preventing Chronic Disease , vol.3 , Issue.2 , pp. 1-10
    • Bansil, P.1    Keenan, N.2    Zlot, A.3    Gilliand, J.4
  • 6
    • 0029418161 scopus 로고
    • Lay understanding of genetic disease: A British study of families attending a genetic counseling service
    • A. Chapple C. May P. Campion 1995 Lay understanding of genetic disease: A British study of families attending a genetic counseling service Journal of Genetic Counseling 4 4 281 301
    • (1995) Journal of Genetic Counseling , vol.4 , Issue.4 , pp. 281-301
    • Chapple, A.1    May, C.2    Campion, P.3
  • 7
    • 0034769253 scopus 로고    scopus 로고
    • Medical genetics and patient use of the Internet
    • S. Christian S. A. Kieffer N. J. Leonard 2001 Medical genetics and patient use of the Internet Clinical Genetics 60 3 232 236
    • (2001) Clinical Genetics , vol.60 , Issue.3 , pp. 232-236
    • Christian, S.1    Kieffer, S.A.2    Leonard, N.J.3
  • 8
    • 0042782543 scopus 로고    scopus 로고
    • Parents' experiences with genetic counseling after the birth of a baby with a genetic disorder: An explanatory study
    • V. Collins J. Halliday S. Kahler R. Williamson 2001 Parents' experiences with genetic counseling after the birth of a baby with a genetic disorder: An explanatory study Journal of Genetic Counseling 10 1 53 72
    • (2001) Journal of Genetic Counseling , vol.10 , Issue.1 , pp. 53-72
    • Collins, V.1    Halliday, J.2    Kahler, S.3    Williamson, R.4
  • 9
    • 62449325018 scopus 로고
    • 3 N.J.L. Prentice Hall Englewood Cliffs
    • Denzin, N. K. (1989). The research act: A theoretical introduction to sociological method (3rd ed.). Englewood Cliffs: N.J.L. Prentice Hall.
    • (1989)
    • Denzin, N.K.1
  • 10
    • 0042195812 scopus 로고    scopus 로고
    • Internet use and perceptions of information reliability by parents in a neonatal intensive care unit
    • A. Dhillon S. Albersheim S. Alsaad N. Pargass J. Zupancic 2003 Internet use and perceptions of information reliability by parents in a neonatal intensive care unit Journal of Perinatology 23 420 424
    • (2003) Journal of Perinatology , vol.23 , pp. 420-424
    • Dhillon, A.1    Albersheim, S.2    Alsaad, S.3    Pargass, N.4    Zupancic, J.5
  • 14
    • 0035885254 scopus 로고    scopus 로고
    • An interactive computer program can effectively educate patients about genetic testing for breast cancer susceptibility
    • M. J. Green B. B. Biesecker A. M. McInerney D. Mauger N. Fost 2001 An interactive computer program can effectively educate patients about genetic testing for breast cancer susceptibility American Journal of Medical Genetics 103 1 16 23
    • (2001) American Journal of Medical Genetics , vol.103 , Issue.1 , pp. 16-23
    • Green, M.J.1    Biesecker, B.B.2    McInerney, A.M.3    Mauger, D.4    Fost, N.5
  • 15
    • 0031014078 scopus 로고    scopus 로고
    • Women's need for information before attending genetic counseling for familial breast or ovarian cancer: A questionnaire, interview, and observational study
    • N. Hallowell F. Murton H. Statham J. M. Green M. P. M. Richards 1997 Women's need for information before attending genetic counseling for familial breast or ovarian cancer: A questionnaire, interview, and observational study British Medical Journal 314 7076 281 283
    • (1997) British Medical Journal , vol.314 , Issue.7076 , pp. 281-283
    • Hallowell, N.1    Murton, F.2    Statham, H.3    Green, J.M.4    Richards, M.P.M.5
  • 16
    • 5444240231 scopus 로고    scopus 로고
    • The role of the Internet in patient-practitioner relationships: Findings from a qualitative research study
    • A. Hart F. Henwood S. Wyatt 2004 The role of the Internet in patient-practitioner relationships: Findings from a qualitative research study Journal of Medical Internet Research 6 3 e36
    • (2004) Journal of Medical Internet Research , vol.6 , Issue.3 , pp. 36
    • Hart, A.1    Henwood, F.2    Wyatt, S.3
  • 17
    • 33745676349 scopus 로고    scopus 로고
    • Parents' information needs about the treatment of their chronically ill child: A qualitative study
    • A. Hummelinck K. Pollock 2006 Parents' information needs about the treatment of their chronically ill child: A qualitative study Patient Education and Counseling 62 228 234
    • (2006) Patient Education and Counseling , vol.62 , pp. 228-234
    • Hummelinck, A.1    Pollock, K.2
  • 18
    • 0036177872 scopus 로고    scopus 로고
    • Internet use in families with children requiring cardiac surgery for congenital heart disease
    • C. Ikemba C. Kozinetz T. Feltes C. Fraser E. D. McKenzie N. Shah 2002 Internet use in families with children requiring cardiac surgery for congenital heart disease Pediatrics 109 3 419 422
    • (2002) Pediatrics , vol.109 , Issue.3 , pp. 419-422
    • Ikemba, C.1    Kozinetz, C.2    Feltes, T.3    Fraser, C.4    McKenzie, E.D.5    Shah, N.6
  • 19
    • 0026340765 scopus 로고
    • Increasing patient knowledge, satisfaction, and involvement: Randomized trial of a communication intervention
    • C. C. Lewis R. H. Pantell L. Sharp 1991 Increasing patient knowledge, satisfaction, and involvement: Randomized trial of a communication intervention Pediatrics 88 2 351 358
    • (1991) Pediatrics , vol.88 , Issue.2 , pp. 351-358
    • Lewis, C.C.1    Pantell, R.H.2    Sharp, L.3
  • 20
    • 33745940664 scopus 로고    scopus 로고
    • Pew Internet & American Life Project. Retrieved September, 19, 2008
    • Madden, M., & Fox, S. (2006). Finding answers on-line in sickness and in health. Pew Internet & American Life Project. Retrieved September, 19, 2008, from http://www.pewinternet.org/trends/User-Demo-1.11.07.htm.
    • (2006) Finding Answers On-line in Sickness and in Health
    • Madden, M.1    Fox, S.2
  • 21
    • 62449092366 scopus 로고
    • 2 Sage Thousand Oaks
    • Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis (2nd ed.). Thousand Oaks: Sage.
    • (1994)
    • Miles, M.B.1    Huberman, A.M.2
  • 23
    • 0035001214 scopus 로고    scopus 로고
    • Additional medical information: Prevalence, source, and benefit to parents
    • S. Noll L. Spitz A. Pierro 2001 Additional medical information: Prevalence, source, and benefit to parents Journal of Pediatric Surgery 36 5 791 794
    • (2001) Journal of Pediatric Surgery , vol.36 , Issue.5 , pp. 791-794
    • Noll, S.1    Spitz, L.2    Pierro, A.3
  • 24
    • 0033161499 scopus 로고    scopus 로고
    • Coping with a child with disabilities from the parents' perspective: The function of information
    • H. Pain 1999 Coping with a child with disabilities from the parents' perspective: The function of information Child: Care, Health and Development 25 4 299 312
    • (1999) Child: Care, Health and Development , vol.25 , Issue.4 , pp. 299-312
    • Pain, H.1
  • 25
    • 62449123116 scopus 로고    scopus 로고
    • 3 Sage Thousand Oaks
    • Patton, M. (2002). Qualitative evaluation and research methods (3rd ed.). Thousand Oaks: Sage.
    • (2002)
    • Patton, M.1
  • 26
    • 0033986672 scopus 로고    scopus 로고
    • Shared vision: Concordance among fathers, mothers, and pediatricians about unmet needs of children with chronic health conditions
    • E. Perrin C. Lewkowicz M. H. Young 2000 Shared vision: Concordance among fathers, mothers, and pediatricians about unmet needs of children with chronic health conditions Pediatrics 105 1 277 285
    • (2000) Pediatrics , vol.105 , Issue.1 , pp. 277-285
    • Perrin, E.1    Lewkowicz, C.2    Young, M.H.3
  • 27
    • 0038823833 scopus 로고    scopus 로고
    • Information sources and their use by parents of children with ophthalmic disorders
    • J. S. Rahi I. Manaras K. Barr 2003 Information sources and their use by parents of children with ophthalmic disorders Investigative Ophthalmology & Visual Science 44 6 2457 2460
    • (2003) Investigative Ophthalmology & Visual Science , vol.44 , Issue.6 , pp. 2457-2460
    • Rahi, J.S.1    Manaras, I.2    Barr, K.3
  • 28
    • 30444454327 scopus 로고    scopus 로고
    • Influences, usage, and outcomes of Internet health information searching: Multivariate results from the Pew surveys
    • R. Rice 2006 Influences, usage, and outcomes of Internet health information searching: Multivariate results from the Pew surveys International Journal of Medical Informatics 75 8 28
    • (2006) International Journal of Medical Informatics , vol.75 , pp. 8-28
    • Rice, R.1
  • 30
    • 36249005043 scopus 로고    scopus 로고
    • Producing genetic knowledge and citizenship through the Internet: Mothers, pediatric genetics, and cybermedicine
    • R. Schaffer K. Kuczynski D. Skinner 2008 Producing genetic knowledge and citizenship through the Internet: Mothers, pediatric genetics, and cybermedicine Sociology of Health & Illness 30 145 159
    • (2008) Sociology of Health & Illness , vol.30 , pp. 145-159
    • Schaffer, R.1    Kuczynski, K.2    Skinner, D.3
  • 32
    • 0036808805 scopus 로고    scopus 로고
    • Referral for genetic counseling after the birth of a child with a congenital anomaly in the northern Netherlands
    • E. Sikkens H. de Walle J. Reefhuis J. Tintelen A. van Essen 2002 Referral for genetic counseling after the birth of a child with a congenital anomaly in the northern Netherlands American Journal of Medical Genetics 112 2 133 137
    • (2002) American Journal of Medical Genetics , vol.112 , Issue.2 , pp. 133-137
    • Sikkens, E.1    De Walle, H.2    Reefhuis, J.3    Tintelen, J.4    Van Essen, A.5
  • 34
    • 33749431395 scopus 로고    scopus 로고
    • Families and genetic diagnoses in the genomic and Internet age
    • D. Skinner R. Schaffer 2006 Families and genetic diagnoses in the genomic and Internet age Infants and Young Children 19 1 16 24
    • (2006) Infants and Young Children , vol.19 , Issue.1 , pp. 16-24
    • Skinner, D.1    Schaffer, R.2
  • 36
    • 0036884223 scopus 로고    scopus 로고
    • Parents' needs for knowledge concerning the medical diagnosis of their children
    • M. Stark A. Moller 2002 Parents' needs for knowledge concerning the medical diagnosis of their children Journal of Child Health Care 6 4 245 257
    • (2002) Journal of Child Health Care , vol.6 , Issue.4 , pp. 245-257
    • Stark, M.1    Moller, A.2
  • 37
    • 0029047131 scopus 로고
    • Physicians and the communication of "bad news": Parent experiences of being informed of their child's cleft lip and/or palate
    • R. Strauss M. Sharp C. Lorch B. Kachalia 1995 Physicians and the communication of "bad news": Parent experiences of being informed of their child's cleft lip and/or palate Pediatrics 96 1 Pt 1 82 89
    • (1995) Pediatrics , vol.96 , Issue.1 PART 1 , pp. 82-89
    • Strauss, R.1    Sharp, M.2    Lorch, C.3    Kachalia, B.4
  • 38
    • 0032195780 scopus 로고    scopus 로고
    • Parental guidance and counseling by doctors and nursing staff: Parents' views of initial information and advice for families with disabled children
    • A. Taanila M. -R. Jarvelin J. Kokkonen 1998 Parental guidance and counseling by doctors and nursing staff: Parents' views of initial information and advice for families with disabled children Journal of Clinical Nursing 7 505 511
    • (1998) Journal of Clinical Nursing , vol.7 , pp. 505-511
    • Taanila, A.1    J. M, -R.2    Kokkonen, J.3
  • 39
    • 0034904689 scopus 로고    scopus 로고
    • Use of the Internet by patients and their families to obtain genetics-related information
    • M. Taylor A. Alman D. Manchester 2001 Use of the Internet by patients and their families to obtain genetics-related information Mayo Clinic Proceedings 76 772 776
    • (2001) Mayo Clinic Proceedings , vol.76 , pp. 772-776
    • Taylor, M.1    Alman, A.2    Manchester, D.3
  • 40
    • 0036897783 scopus 로고    scopus 로고
    • Use of the Internet by parents of paediatric outpatients
    • C. Tuffrey F. Finlay 2002 Use of the Internet by parents of paediatric outpatients Archives of Disease in Childhood 87 534 536
    • (2002) Archives of Disease in Childhood , vol.87 , pp. 534-536
    • Tuffrey, C.1    Finlay, F.2
  • 42
    • 0034117892 scopus 로고    scopus 로고
    • Efficacy of a touchscreen computer based family cancer history questionnaire and subsequent cancer risk assessment
    • J. Westman H. Hampel T. Bradley 2000 Efficacy of a touchscreen computer based family cancer history questionnaire and subsequent cancer risk assessment American Journal of Medical Genetics 37 5 354 360
    • (2000) American Journal of Medical Genetics , vol.37 , Issue.5 , pp. 354-360
    • Westman, J.1    Hampel, H.2    Bradley, T.3


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