Body satisfaction, nutritional adherence, and quality of life in youth with cystic fibrosis

Pediatric Pulmonology

Volumn 46, Issue 11, 2011, Pages 1085-1092

  Simon, Stacey L ^a   Duncan, Christina L ^b   Horky, Susan C ^c   Nick, Todd G ^d   Castro, Maria Melguizo ^d   Riekert, Kristin A ^e  

^a UNIVERSITY OF FLORIDA   (United States)

^b WEST VIRGINIA UNIVERSITY   (United States)

^c UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE   (United States)

^d UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES   (United States)

^e JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

adherence; adolescents; body image; HRQOL; nutrition

Indexed keywords

ADOLESCENT; ARTICLE; ATTITUDE TO HEALTH; BODY IMAGE; BODY MASS; BODY SATISFACTION; BODY SIZE; BODY WEIGHT; CALORIC INTAKE; CAREGIVER; CHILD; CYSTIC FIBROSIS; CYSTIC FIBROSIS QUESTIONNAIRE REVISED; DIET; DIGESTION; DISEASE SEVERITY; EATING; EMOTION; EVALUATION; FAT INTAKE; FEMALE; FIGURE RATING SCALE; FORCED EXPIRATORY VOLUME; GENDER; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; NUTRITIONAL STATUS; PRIORITY JOURNAL; QUALITY OF LIFE; RATING SCALE; SCHOOL CHILD; SOCIAL ASPECT;

ADOLESCENT; BODY MASS INDEX; BODY SIZE; CHILD; CYSTIC FIBROSIS; DIET RECORDS; DIET SURVEYS; DIETARY FATS; FEEDING BEHAVIOR; FEMALE; HUMANS; MALE; PATIENT COMPLIANCE; PATIENT SATISFACTION; QUALITY OF LIFE; QUESTIONNAIRES; SEX FACTORS;

EID: 80053356273     PISSN: 87556863     EISSN: 10990496     Source Type: Journal    
DOI: 10.1002/ppul.21477     Document Type: Article

References (35)

1. Stark L, Powers SW,. Behavioral aspects of nutrition in children with cystic fibrosis. Curr Opin Pulm Med 2006; 11: 539-542.
2. Anthony H, Paxton S, Catto-Smith A, Phelan P,. Physiological and psychosocial contributors to malnutrition in children with cystic fibrosis: a review. Clin Nutr 1999; 18: 327-335. (Pubitemid 30032239)
3. Magoffin A, Allen JR, McCauley J, Gruca MA, Van Asperen P, Gaskin K,. Longitudinal analysis of resting energy expenditure in patients with cystic fibrosis. J Pediatr 2008; 152: 703-708.
4. Michel SH, Maqbool A, Hanna MD, Mascarenhas M,. Nutrition management of pediatric patients who have cystic fibrosis. Pediatr Clin N Am 2009; 56: 1123-1141.
5. Rosenfeld M, Davis R, FitzSimmons S, Pepe M, Ramsey B,. Gender gap in cystic fibrosis mortality. Am J Epidemiol 1997; 145: 794-803. (Pubitemid 27188516)
6. Zemel BS, Jawad AF, FitzSimmons S, Stallings V,. Longitudinal relationship among growth, nutritional status, and pulmonary function in children with cystic fibrosis: Analysis of the Cystic Fibrosis Foundation National CF Patient Registry. J Pediatr 2000; 137: 374-380.
7. Verma N, Bush A, Buchdahl R,. Is there still a gender gap in cystic fibrosis ? Chest 2005; 128: 2824-2834. (Pubitemid 41507646)
8. Barclay A, Allen JR, Blyler E, Yap J, Gruca MA, Asperen PV, Cooper P, Gaskin KJ,. Resting energy expenditure in females with cystic fibrosis: is it affected by puberty. Eur J Clin Nutr 2007; 61: 1207-1212. (Pubitemid 47521553)
9. Stallings VA, Tomezsko JL, Schall JI, Mascarenhas MR, Stettler N, Scanlin TF, Zemel BS,. Adolescent development and energy expenditure in females with cystic fibrosis. Clin Nutr 2005; 24: 737-745. (Pubitemid 41403628)
10. Cohn L, Adler NE, Irwin CE, Millstein SG, Kegeles SM, Stone G,. Body-figure preferences in male and female adolescents. J Abnorm Psychol 1987; 96: 276-279.
11. Frisen A,. Measuring health-related quality of life in adolescence. Acta Paediatr 2007; 96: 963-968. (Pubitemid 46934450)
12. Stallings MD, Stark LJ, Robinson KA, Feranchak AP, Quinton H,. Clinical Practice Guidelines on Growth & Nutrition Subcommittee. Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: Results of a systematic review. J Am Diet Assoc 2008; 108: 832-839. (Pubitemid 351602057)
13. Abbott J, Conway S, Etherington C, Fitzjohn J, Gee L, Morton A, Musson H, Webb AK,. Perceived body image and eating behavior in young adults with cystic fibrosis and their healthy peers. J Behav Med 2000; 23: 501-517. (Pubitemid 32052714)
14. Truby H, Paxton SJ,. Body image and dieting behavior in cystic fibrosis. Pediatrics 2001; 107: E92.
15. Abbott J, Morton AM, Musson H, Conway SP, Etherington C, Gee L, Fitzjohn J, Webb AK,. Nutritional status, perceived body image and eating behaviours in adults with cystic fibrosis. Clin Nutr 2007; 26: 91-99. (Pubitemid 46179117)
16. Neumark-Sztainer D, Paxton SJ, Hannan PJ, Haines J, Story M,. Does body satisfaction matter? Five-year longitudinal associations between body satisfaction and health behaviors in adolescent females and males. J Adolesc Health 2006; 39: 244-251. (Pubitemid 44062335)
17. Wenninger K, Weiss C, Wahn U, Staab D,. Body image in cystic fibrosis-development of a brief diagnostic scale. J Behav Med 2003; 26: 81-94. (Pubitemid 36262384)
18. Riekert KA, Bartlett SJ, Boyle MP, Krishnan JA, Rand CS,. The association between depression, lung function, and health-related quality of life among adults with cystic fibrosis. Chest 2007; 132: 231-237. (Pubitemid 47068226)
19. Wahl A, Rustoen T, Hanestad BR, Gjengedal E, Mourn T,. Living with cystic fibrosis: impact on global quality of life. Heart Lung 2005; 34: 324-331. (Pubitemid 41266983)
20. Arrington-Sanders R, Yi MS, Tsevat J, Wilmott RW, Mrus JM, Britto MT,. Gender differences in health-related quality of life of adolescents with cystic fibrosis. Health Qual Life Outcomes 2006; 4: 5.
21. Sawicki GS, Rasouliyan L, McMullen AH, Wagener JS, McColley SA, Pasta DJ, Quittner AL,. Longitudinal assessment of health related quality of life in an observational cohort of patients with cystic fibrosis. Pediatr Pulm 2011; 46: 36-44.
22. Quittner A, Buu A, Messer MA, Modi AC, Watrous M,. Development and validation of the cystic fibrosis questionnaire in the United States: a health-related quality-of-life measure for cystic fibrosis. Chest 2005; 128: 2347-2354. (Pubitemid 41507578)
23. Modi A, Quittner AL,. Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis. J Pediatr Psychol 2003; 28: 535-546.
24. Stunkard A, Sorenson T, Schulsinger F,. Use of the Danish Adoption Register for the study of obesity and thinness. In:, Kety SS, Sidman RL, Matthysse SW, editors. The genetics of neurological and psychiatric disorders. New York: Raven Press; 1983. pp 115-120.
25. Thompson J, Altabe MN,. Psychometric qualities of the figure rating scale. Int J Eat Disord 1991; 10: 615-619.
26. Raper N, Perloff B, Ingwersen LA, Steinfeldt L, Anand J,. An overview of the USDA's Dietary Intake Data System. J Food Compost Anal 2004; 17: 545-555. (Pubitemid 38801450)
27. Buzzard M,. 24-Hour dietary recall and food record methods. In:, Willett W, editor. Nutritional epidemiology, 2nd edition. New York: Oxford University Press; 1998. pp 50-73.
28. Blanton C, Moshfegh AJ, Baer DJ, Kretsch MJ,. The USDA automated multiple-pass method accurately estimates group total energy and nutrient intake. J Nutr 2006; 136: 2594-2599 (Pubitemid 44521619)
29. USDA. Food and Nutrient Database for Dietary Studies. Beltsville, MD: Agricultural Research Service, Food Surveys Research Group; 2004. Database on the Internet.
30. Otten JJ, Hellwig JP, Meyers LD,. DRI: dietary reference intakes: the essential guide to nutrient requirements. Washington, DC: National Academies Press; 2006.
31. Raymond N, Chang P-N, Crow SJ, Mitchell JE, Dieperink BS, Beck MM, Crosby RD, Clawson CC, Warwick WJ,. Eating disorders in patients with cystic fibrosis. J Adolesc 2000; 23: 359-363. (Pubitemid 30654890)
32. Shearer J, Bryon M,. The nature and prevalence of eating disorders and eating disturbance in adolescents with cystic fibrosis. J R Soc Med 2004; 97: 36-42. (Pubitemid 38680172)
33. Quittner AL, Modi AC, Wainwright C, Otto K, Kirihara J, Montgomery AB,. Determination of the minimally clinically important difference scores for the Cystic Fibrosis Questionnaire-Revised Respiratory Symptom Scale in two populations of patients with Cystic Fibrosis and chronic Pseudomonas. Chest 2009; 135: 1610-1618.
34. Goss CH, Quittner AL,. Patient reported outcomes in cystic fibrosis. Proc Am Thor Soc 2007; 4: 378-386. (Pubitemid 47330875)
35. Duff AJ, Latchford GJ,. Motivational interviewing for adherence problems in cystic fibrosis. Pediatr Pulmonol 2010; 45: 211-220.