Gender differences in health-related quality of life of adolescents with cystic fibrosis

Health and Quality of Life Outcomes

Volumn 4, Issue , 2006, Pages

  Arrington Sanders, Renata ^a   Yi, Michael S ^b,d   Tsevat, Joel ^b,c,d   Wilmott, Robert W ^f   Mrus, Joseph M ^b,c,d,g   Britto, Maria T ^d,e  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF CINCINNATI COLLEGE OF MEDICINE   (United States)

^c VA Healthcare System of Ohio   (United States)

^d UNIVERSITY OF CINCINNATI   (United States)

^e CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

^f SAINT LOUIS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^g GLAXOSMITHKLINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; AGE; ARTICLE; ATTITUDE TO ILLNESS; CHILD BEHAVIOR; CONTROLLED STUDY; CYSTIC FIBROSIS; EMOTIONALITY; FAMILY LIFE; FEMALE; FORCED EXPIRATORY VOLUME; HEALTH CARE FACILITY; HUMAN; LOGISTIC REGRESSION ANALYSIS; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; MULTIVARIATE ANALYSIS; PAIN ASSESSMENT; PHYSICAL CAPACITY; PREVALENCE; QUALITY OF LIFE; QUESTIONNAIRE; REGRESSION ANALYSIS; SCORING SYSTEM; SELF ESTEEM; SELF REPORT; SEX DIFFERENCE; SOCIAL ASPECT; UNIVARIATE ANALYSIS; CHILD; CROSS-SECTIONAL STUDY; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; SICKNESS IMPACT PROFILE; STATISTICAL MODEL; UNITED STATES;

ADOLESCENT; CHILD; CROSS-SECTIONAL STUDIES; CYSTIC FIBROSIS; FEMALE; FORCED EXPIRATORY VOLUME; HUMANS; LINEAR MODELS; MALE; MULTIVARIATE ANALYSIS; OHIO; QUALITY OF LIFE; QUESTIONNAIRES; REGRESSION ANALYSIS; SEX FACTORS; SICKNESS IMPACT PROFILE;

EID: 33644948450     PISSN: 14777525     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-4-5     Document Type: Article

References (56)

1. Elborn JS, Shale DJ, Britton JR: Cystic fibrosis: current survival and population estimates to the year 2000. Thorax 1991, 46:881-885.
2. Orenstein DM, Winnie GB, Altman H: Cystic fibrosis: A 2002 update. J Pediatr 2002, 140:156-164.
3. American Medical Association: Profiles of Adolescent Health Series Chicago, IL: American Medical Association; 1990.
4. Newacheck PW, Taylor WR: Childhood chronic illness: prevalence, severity and impact. Am J Public Health 1992, 82:364-371.
5. Koppleman J: Meeting the needs of chronically disabled children in changing health care system. National Health Policy Forum Issue Brief 1994, 651:1-9.
6. Eigen H, Clark NM, Wolle JM: NHLBI Workshop summary: clinical behavioral aspects of cystic fibrosis; directions for future research. Am Rev Respir Dis 1987, 136:1509-1513.
7. Orenstein DM, Nixon PA, Ross EA, Kaplan RM: The quality of well-being in cystic fibrosis. Chest 1989, 95:344-347.
8. Gee L, Abbott J, Conway SP, Etherington C, Webb AK: Development of disease specific health related quality of life measure for adults and adolescents with cystic fibrosis. Thorax 2000, 55:946-954.
9. Busschbach JJ, Horikx PE, van den Bosch JM, de la Riviere A, de Charro FT: Measuring the quality of life before and after bilateral lung transplantation in patients with cystic fibrosis. Chest 1994, 105:911-917.
10. Curtis JR, Burke W, Kassner AW, Aitken ML: Absence of health insurance is associated with decreased life expectancy in patients with cystic fibrosis. Am J Respir Crit Care Med 1997, 155:1921-1924.
11. Schechter MS, Margolis PA: Relationship between socioeconomic status and disease severity in cystic fibrosis. J Pediatr 1998, 132:260-264.
12. Britto MT, Kotagal UR, Hornung RW, Atherton HD, Tsevat J, Wilmott R: Impact of recent pulmonary exacerbations on quality of life in patients with cystic fibrosis. Chest 2001, 121:64-72.
13. Rosenfeld M, Davis R, FitzSimmons S, Pepe M, Ramsey B: Gender gap in cystic fibrosis mortality. Am J Epidemiol 1997, 145:794-803.
14. FitzSimmons SC: The changing epidemiology of cystic fibrosis. J Pediatr 1993, 122:1-9.
15. Demko CA: Gender differences in cystic fibrosis: Pseudomonas aeurginosa infection. J Clin Epidemiol 1995, 48:1041-1049.
16. Yi MS, Britto MT, Wilmott RW, Kotagal UR, Eckman MH, Nielson DW, Kociela VL, Tsevat J: Health values of adolescents with cystic fibrosis. J Pediatr 2003, 142:133-40.
17. Sawyer SM, Rosier MJ, Phelam PD, Bowes G: The self-image of adolescents with cystic fibrosis. J Adolesc Health 1995, 16:204-208.
18. Wijnhoven HA, Kriegsman DM, Snoek FJ, Hesselink AE, de Haan M: Gender differences in health-related quality of life among asthma patients. J Asthma 2003, 40:189-199.
19. Vingilis ER, Wade TJ, Seeley JS: Predictors of adolescent self-rated health: analysis of the National Population Health Survey. Can J Public Health 2002, 93:193-197.
20. Goodman E, Amick BC, Rezendes MO, Tarlov AR, Rogers WH, Kagan J: Influences on gender and social class on adolescents' perceptions of health. Arch Pediatr Adolesc Med 1997, 151:899-904.
21. Heinonen H, Volin L, Uutela A, Zevon M, Barrick C, Ruutu T: Gender-associated differences in quality of life after allogenic BMT. Bone Marrow Transplant 2001, 28:503-509.
22. De Vries J, Van Heck GL, Drent M: Gender differences in sarcoidosis: symptoms, quality of life, and medical consumption. Women Health 1999, 30:99-114.
23. Riedinger MS, Dracup KA, Brecht ML, Padilla G, Sarna L, Ganz PA: Quality of life in patients with heart failure: Do gender differences exist? Heart Lung 2001, 30:105-116.
24. Westbrook JI, Talley NJ, Westbrook MT: Gender differences in the symptoms and physical and mental well-being of dyspeptics: a population based study. Qual Life Res 2002, 11:283-291.
25. Mrus JM, Williams P, Tsevat J, Cohn SE, Wu AW: Gender differences in health-related quality of life in patients with HIV/AIDS. Qual Life Res 2005, 14:479-491.
26. Mechanic D: Sex illness behaviour and the use of health services. Social Sci Med 1978, 128:207-214.
27. Merrill SS, Seeman TE, Kasl SV, Berkman LF: Gender differences in the comparison of self reported disability and performance measures. J Gerontol A Biol Sci Med Sci 1997, 52:M19-M26.
28. Piccinelli M, Simon G: Gender and cross-cultural differences in somatic symptoms in association with emotional distress: an international study in primary care. Psychol Med 1997, 27:433-44.
29. Unruh AM: Gender variations in clinical pain experience. Pain 1997, 65:123-67.
30. Macintyre S, Hunt K, Sweeting H: GenderDifferences in health are things really as simple as they seem? Soc Sci & Med 1996, 42:617-24.
31. Bisegger C, Cloetta B, von Rueden U, Abel T, Ravens-Sieberer U: Health-related quality of life: gender differences in childhood and adolescence. Soz Praventivmed 2005, 50:281-91.
32. Ruiz MT, Verbrugge LM: A two way view of gender bias in medicine. J Epidemiol Community Health 1997, 51:106-9.
33. Gee L, Abbott J: Quality of Life in cystic fibrosis: the impact of gender, general health perceptions and disease severity. J Cyst Fibros 2003, 2:206-213.
34. Congleton J, Hodson ME, Duncan-Skingle F: Quality of Life in adults with cystic fibrosis. Thorax 1996, 51:936-940.
35. Congleton J, Hodson ME, Duncan-Skingle F: Quality of life in adults with cystic fibrosis. Thorax 1997, 52:397-400.
36. Landgraf JM, Abetz L, Ware JE, Child Health Questionnaire (CHQ): A User's Manual. First edition. Boston, MA: The Health Institute, New England Medical Center; 1996.
37. Landgraf JM: Measuring Health Outcomes in Pediatric Populations: Issues in Psychometrics and Application Philadelphia, PA: Lippincott-Raven; 1996.
38. Sawyer M, Antoniou G, Toogood I, Rice M: A comparison of parent and adolescent reports describing the health-related quality of life of adolescents treated for cancer. Int J Cancer Suppl 1999, 12:39-45.
39. Homer C, Susskind O, Alpert HR, Owusu M, Schneider L, Rappaport LA, Rubin DH: An evaluation of an innovative multimedia educational software program for asthma management: report of a randomized, controlled trial. Pediatrics 2000, 106:210-5.
40. Hays RD, Woolley JM: The concept of clinically meaningful difference in health-related quality-of-life research. How meaningful is it? Pharmacoeconomics 2000, 18:419-423.
41. Samsa G, Edelman D, Rothman ML, Williams GR, Lipscomb J, Matchar D: Determining clinically important differences in health status measures: a general approach with illustration to the Health Utilities Index Mark II. Pharmacoeconomics 1999, 15:141-155.
42. Norman GR, Sloan JA, Wyrwich KW: Interpretation of changes in health-related quality of life: the remarkable universality of half a standard deviation. Med Care 2003, 41:582-92.
43. Farivar SS, Liu H, Hays RD: Half standard deviation estimate of the minimally important difference in HRQOL scores? Expert Review Pharmacoeconomics Outcomes Res 2004, 4:515-523.
44. Davis PB: The gender gap in cystic fibrosis survival. J Gend Specif Med 1999, 2:47-51.
45. Simmons RJ, Corey M, Cowen L, Keenan N, Robertson J, Levinson H: Emotional adjustment of early adolescents with cystic fibrosis. Psychosom Med 1985, 47:111-121.
46. Keefe FJ, Lefebvre JC, Egert J, Affleck G, Sullivan MJ, Caldwell DS: The relationship of gender to pain, pain behavior, and disability in osteoarthritis patients: the role of catastrophizing. Pain 2000, 87:325-334.
47. Keefe FJ, Affleck G, France CR, Emery CF, Waters S, Caldwell DS, Stainbrook D, Hackshaw KV, Fox LC, Wilson K: Gender differences in pain, coping, and mood in individuals having osteoarthritic knee pain: a within-day analysis. Pain 2004, 110:571-577.
48. Wilson G, Pritchard ME, Revalee B: Individual differences in adolescent health symptoms: the effects of gender and coping. J Adolesc 2005, 28:369-79.
49. Wade TJ, Pevalin DJ, Vingilis E: Revisting student self-rated physical health. J Adolesc 2000, 23:785-791.
50. Lowry R, Kann L, Collins JL, Kolbe LJ: The effect of socioeconomic status on chronic disease behaviors among U.S. adolescents. JAMA 1996, 276:792-797.
51. West P, Macintyre S, Annadale E, Hunt K: Social class and health in youth: findings from the west of Scotland twenty-07 study. Soc Sci Med 1990, 30:665-673.
52. Abbott J, Conway S, Etherington C, Fitzjohn J, Gee L, Morton A, Musson H, Webb AK: Perceived body image and eating behavior in young adults with cystic fibrosis and their healthy peers. J Behav Med 2000, 23:501-517.
53. Walters S: Sex differences in weight perception and nutritional behaviour in adults with cystic fibrosis. J Hum Nutr Diet 2001, 14:83-91.
54. Willis E, Miller R, Wyn J: Gendered embodiment and survival for young people with cystic fibrosis. Soc Sci Med 2001, 53:1163-1174.
55. Powers PM: Adolescents with cystic fibrosis: family reports of adolescent health-related quality of life and forced expiratory volume in one second. Pediatrics 2001, 107:e70.
56. Barr RD, Sek J, Horsman J, Forlong W, Saleh M, Pai M, Walker I: Health status and health-related quality of life associated with von Willebrand disease. Am J Hematol 2003, 73:108-114.