-
1
-
-
79551606008
-
Reconsidering the value of consent in biobank research
-
Allen J, McNamara B (2011) Reconsidering the value of consent in biobank research. Bioethics 2011(25):155-166
-
(2011)
Bioethics
, vol.2011
, Issue.25
, pp. 155-166
-
-
Allen, J.1
McNamara, B.2
-
2
-
-
27144485387
-
Bias from requiring explicit consent from all participants in observational research: Prospective, population based study
-
Scottisch Intracranial Vasculkar Malformation Study Steering Committee
-
Al-Shahi R, Vousden C, Warlow C, Scottisch Intracranial Vasculkar Malformation Study Steering Committee (2005) Bias from requiring explicit consent from all participants in observational research: prospective, population based study. BMJ 331(7522):942
-
(2005)
BMJ
, vol.331
, Issue.7522
, pp. 942
-
-
Al-Shahi, R.1
Vousden, C.2
Warlow, C.3
-
3
-
-
75149194970
-
Progress towards personalized medicine
-
Bates S (2010) Progress towards personalized medicine. Drug Discov Today 15:115-120
-
(2010)
Drug Discov Today
, vol.15
, pp. 115-120
-
-
Bates, S.1
-
6
-
-
77951257199
-
The role of the pathologist in tissue banking: European consensus expert group report
-
Bevilacqua G, Bosman F, Dassesse T, Höfler H, Janin A, Langer R, Larsimont D, Morente MM, Riegman P, Schirmacher P, Stanta G, Zatloukal K, Caboux E, Hainaut P (2010) The role of the pathologist in tissue banking: European Consensus Expert Group Report. Virchows Arch 456:449-454
-
(2010)
Virchows Arch
, vol.456
, pp. 449-454
-
-
Bevilacqua, G.1
Bosman, F.2
Dassesse, T.3
Höfler, H.4
Janin, A.5
Langer, R.6
Larsimont, D.7
Morente, M.M.8
Riegman, P.9
Schirmacher, P.10
Stanta, G.11
Zatloukal, K.12
Caboux, E.13
Hainaut, P.14
-
8
-
-
73449120797
-
Needles in the haystack: Identifying individuals present in pooled genomic data
-
doi:10.1371/journal.pgen.1000668
-
Braun R, Rowe W, Schaefer C, Zhang J, Buetow K (2009) Needles in the haystack: identifying individuals present in pooled genomic data. PLoS Genet 5:e1000668. doi:10.1371/journal.pgen.1000668
-
(2009)
PLoS Genet
, vol.5
-
-
Braun, R.1
Rowe, W.2
Schaefer, C.3
Zhang, J.4
Buetow, K.5
-
10
-
-
58149223088
-
The ethical challenges of genetic databases: Safeguarding altruism and trust
-
Campbell AV (2007) The ethical challenges of genetic databases: Safeguarding altruism and trust. King's Law J 18:227-245
-
(2007)
King's Law J
, vol.18
, pp. 227-245
-
-
Campbell, A.V.1
-
11
-
-
79952682331
-
Commentary: Autonomy revisited-a response to H. Haker
-
Campbell AV (2011) Commentary: autonomy revisited-a response to H. Haker. J Int Med 269:380-382
-
(2011)
J Int Med
, vol.269
, pp. 380-382
-
-
Campbell, A.V.1
-
15
-
-
77955155561
-
Identifiability genomics and UK data protection law
-
Curren L, Boddington P, Gowans H, Hawkins N, Kanellopoulou N, Kaye J, Melham K (2010) Identifiability genomics and UK data protection law. Eur J Health Law 17:329-344
-
(2010)
Eur J Health Law
, vol.17
, pp. 329-344
-
-
Curren, L.1
Boddington, P.2
Gowans, H.3
Hawkins, N.4
Kanellopoulou, N.5
Kaye, J.6
Melham, K.7
-
16
-
-
80054747575
-
International health law. Solidarity and justice in health care
-
den Exter AP (ed) (2008) International health law. Solidarity and justice in health care. Maklu, Apeldoorn
-
(2008)
Maklu, Apeldoorn
-
-
Den Exter, A.P.1
-
17
-
-
77957102468
-
Personalized medicine: Marking a new epoch in cancer patient management
-
Diamandis M, White NM, Yousef GM (2010) Personalized medicine: marking a new epoch in cancer patient management. Mol Cancer Res 8:1175-1187
-
(2010)
Mol Cancer Res
, vol.8
, pp. 1175-1187
-
-
Diamandis, M.1
White, N.M.2
Yousef, G.M.3
-
18
-
-
67650391208
-
Disclosure of research results from cancer genomic studies: State of the science
-
Dressler LG (2009) Disclosure of research results from cancer genomic studies: state of the science. Clin Cancer Res 15:4270-4276
-
(2009)
Clin Cancer Res
, vol.15
, pp. 4270-4276
-
-
Dressler, L.G.1
-
19
-
-
33745596413
-
Consent and anonymization in research involving biobanks
-
Elger BS, Caplan AL (2006) Consent and anonymization in research involving biobanks. EMBO Reports 7(7):661-666
-
(2006)
EMBO Reports
, vol.7
, Issue.7
, pp. 661-666
-
-
Elger, B.S.1
Caplan, A.L.2
-
20
-
-
80054756731
-
The future of health care and care for the elderly: Guaranteeing accessibility, quality and financial viability
-
European Commission 723 final
-
European Commission (2001) The future of health care and care for the elderly: guaranteeing accessibility, quality and financial viability, COM (2001) 723 final
-
(2001)
COM 2001
-
-
-
23
-
-
44649096321
-
The use of genomic tools for the molecular understanding of breast cancer and to guide personolized medicine
-
Foekens JA, Wang Y, Martens JWM, Berns EMJJ, Klijn JGM (2008) The use of genomic tools for the molecular understanding of breast cancer and to guide personolized medicine. Drug Discov Today 13:481-487
-
(2008)
Drug Discov Today
, vol.13
, pp. 481-487
-
-
Foekens, J.A.1
Wang, Y.2
Martens, J.W.M.3
Berns, E.M.J.J.4
Klijn, J.G.M.5
-
25
-
-
77950863513
-
Changing defaults in biobank research could save lives too
-
Forsberg JS, Eriksson S, Hansson MG (2010) Changing defaults in biobank research could save lives too. Eur J Epidemiol 25:65-68
-
(2010)
Eur J Epidemiol
, vol.25
, pp. 65-68
-
-
Forsberg, J.S.1
Eriksson, S.2
Hansson, M.G.3
-
26
-
-
78149233729
-
Quality, quantity and harmony: The DataSHaPER approach to integrating data across bioclinical studies
-
Fortier I, Burton PR, Robson PJ, Ferretti V, Little J, L'Heureux F, Deschênes M, Knoppers BM, Doiron D, Keers JC, Linksted P, Harris JR, Lachance G, Boileau C, Pedersen NL, Hamilton CM, Hveem K, Borugian MJ, Gallagher RP, McLaughlin J, Parker L, Potter JD, Gallacher J, Kaaks R, Liu B, Sprosen T, Vilain A, Atkinson SA, Rengifo A, Morton R, Metspalu A, Wichmann HE, Tremblay M, Chisholm RL, Garcia-Montero A, Hillege H, Litton JE, Palmer LJ, Perola M, Wolffenbuttel BH, Peltonen L, Hudson TJ (2010) Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies. Int J Epidemiol 39:1383-1393
-
(2010)
Int J Epidemiol
, vol.39
, pp. 1383-1393
-
-
Fortier, I.1
Burton, P.R.2
Robson, P.J.3
Ferretti, V.4
Little, J.5
L'heureux, F.6
Deschênes, M.7
Knoppers, B.M.8
Doiron, D.9
Keers, J.C.10
Linksted, P.11
Harris, J.R.12
Lachance, G.13
Boileau, C.14
Pedersen, N.L.15
Hamilton, C.M.16
Hveem, K.17
Borugian, M.J.18
Gallagher, R.P.19
McLaughlin, J.20
Parker, L.21
Potter, J.D.22
Gallacher, J.23
Kaaks, R.24
Liu, B.25
Sprosen, T.26
Vilain, A.27
Atkinson, S.A.28
Rengifo, A.29
Morton, R.30
Metspalu, A.31
Wichmann, H.E.32
Tremblay, M.33
Chisholm, R.L.34
Garcia-Montero, A.35
Hillege, H.36
Litton, J.E.37
Palmer, L.J.38
Perola, M.39
Wolffenbuttel, B.H.40
Peltonen, L.41
Hudson, T.J.42
more..
-
27
-
-
0842287359
-
A study of public opinion on the use of tissue samples from living subjects for clinical research
-
Goodson ML, Vernon BG (2004) A study of public opinion on the use of tissue samples from living subjects for clinical research. J Clin Pathol 57:136-138
-
(2004)
J Clin Pathol
, vol.57
, pp. 136-138
-
-
Goodson, M.L.1
Vernon, B.G.2
-
28
-
-
34249786238
-
Solidarity and justice as guiding principles in genomic research
-
DOI 10.1111/j.1467-8519.2007.00562.x
-
Hoedemaker R, Gordijn B, Pijnenburg M (2007) Solidarity and justice as guiding principles in genomics research. Bioethics 21(6):342-350 (Pubitemid 46854981)
-
(2007)
Bioethics
, vol.21
, Issue.6
, pp. 342-350
-
-
Hoedemaekers, R.1
Gordijn, B.2
Pijnenburg, M.3
-
29
-
-
50849101381
-
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays
-
doi:10.1371/journal.pgen.1000167
-
Homer N, Szelinger S, Redman M, Duggan D, Tembe W, Muehling J, Pearson JV, Stephan DA, Nelson SF, Craig DW (2008) Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays. PloS Genet 4:e1000167. doi:10.1371/journal.pgen.1000167
-
(2008)
PloS Genet
, vol.4
-
-
Homer, N.1
Szelinger, S.2
Redman, M.3
Duggan, D.4
Tembe, W.5
Muehling, J.6
Pearson, J.V.7
Stephan, D.A.8
Nelson, S.F.9
Craig, D.W.10
-
30
-
-
80054770825
-
Definitions for genomic biomarkers, pharmacogenomics, pharmacogenetics, genomic data and sample coding categories
-
E15, step 4 version
-
International Conference on Harmonization (2007) Definitions for genomic biomarkers, pharmacogenomics, pharmacogenetics, genomic data and sample coding categories, E15, step 4 version
-
(2007)
International Conference on Harmonization
-
-
-
31
-
-
70349969413
-
Population-wide generalizability of genome-wide discovered associations
-
Ioannidis JPA (2009) Population-Wide Generalizability of Genome-Wide Discovered Associations. JNCI 101(19):1297-1299
-
(2009)
JNCI
, vol.101
, Issue.19
, pp. 1297-1299
-
-
Ioannidis, J.P.A.1
-
32
-
-
80054741838
-
-
ISO (International Organization for Standardization, Health informatics). ISO, Geneva
-
ISO (International Organization for Standardization, Health informatics) (2008) Pseudonymization ISO/TS 25237:2008. ISO, Geneva
-
(2008)
Pseudonymization ISO/TS 25237: 2008
-
-
-
33
-
-
0032962011
-
Potential effect of authorization bias on medical record research
-
Jacobsen SJ, Xia Z, Campion ME et al (1999) Potential effect of authorization bias on medical record research. Mayo Clin Proc 74(4):330-338 (Pubitemid 29162532)
-
(1999)
Mayo Clinic Proceedings
, vol.74
, Issue.4
, pp. 330-338
-
-
Jacobsen, S.J.1
Xia, Z.2
Campion, M.E.3
Darby, C.H.4
Plevak, M.F.5
Seltman, K.D.6
Joseph Melton, L.7
-
34
-
-
57649243614
-
Genome-based prediction of common diseases: Advances and prospects
-
Janssens AC, van Duijn CM (2008a) Genome-based prediction of common diseases: advances and prospects. Hum Mol Genet 17:R166-R173
-
(2008)
Hum Mol Genet
, vol.17
-
-
Janssens, A.C.1
Van Duijn, C.M.2
-
35
-
-
57649243614
-
Genome-based prediction of common diseases: Advances and prospects
-
Janssens ACJW, van Duijn CM (2008b) Genome-based prediction of common diseases: advances and prospects. Hum Mol Genet 17:R166-R173
-
(2008)
Hum Mol Genet
, vol.17
-
-
Acjw, J.1
Van Duijn, C.M.2
-
36
-
-
15544382533
-
Total and cause specific mortality among participants and non-participants of population based health surveys: A comprehensive follow up of 54 372 Finnish men and women
-
DOI 10.1136/jech.2004.024349
-
Jusilahti P, Salomaa V, Kuulasmaa K et al (2005) Total and cause specific mortality among participants and non-participants of population based surveys: a comprehensive follow-up of 54372 Finnish men and women. J Epedimiol Commun Health 59:310-315 (Pubitemid 40460584)
-
(2005)
Journal of Epidemiology and Community Health
, vol.59
, Issue.4
, pp. 310-315
-
-
Jousilahti, P.1
Salomaa, V.2
Kuulasmaa, K.3
Niemela, M.4
Vartiainen, E.5
-
37
-
-
33646164690
-
Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research
-
Kaphingst KA, Janoff JM, Harris LN, Emmons KM (2006) Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research. Clin Genet 69:393-398
-
(2006)
Clin Genet
, vol.69
, pp. 393-398
-
-
Kaphingst, K.A.1
Janoff, J.M.2
Harris, L.N.3
Emmons, K.M.4
-
38
-
-
33748207767
-
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
-
DOI 10.1093/eurpub/cki198
-
Kettis-Lindblad A et al (2005) Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Eur J Public Health 16(4):433-440 (Advanced access published online October 2005) (Pubitemid 44310264)
-
(2006)
European Journal of Public Health
, vol.16
, Issue.4
, pp. 433-440
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
Hansson, M.G.4
-
39
-
-
10644282182
-
Human genetic research: Emerging trends in ethics
-
DOI 10.1038/nrg1505
-
Knoppers BM, Chadwick R (2005) Human genetic research: emerging trends in ethics. Nat Rev Genet 6(1):75-79 (Pubitemid 39657899)
-
(2005)
Nature Reviews Genetics
, vol.6
, Issue.1
, pp. 75-79
-
-
Knoppers, B.M.1
Chadwick, R.2
-
40
-
-
84862244404
-
The Babel of genetic data terminology
-
Knoppers BM, Saginur M (2005) The Babel of genetic data terminology. Nat Biotechnol 23:8
-
(2005)
Nat Biotechnol
, vol.23
, pp. 8
-
-
Knoppers, B.M.1
Saginur, M.2
-
41
-
-
58149249381
-
Genomic databases and international collaboration
-
Knoppers BM, Abdul MH, Bédard K (2007) Genomic Databases and International Collaboration, 18 KLJ, pp 291-311
-
(2007)
KLJ
, vol.18
, pp. 291-311
-
-
Knoppers, B.M.1
Abdul, M.H.2
Bédard, K.3
-
42
-
-
80054748089
-
Consent to research: Exceptional situations
-
Lévesque E, Fraser W, Knoppers BM (2009) Consent to research: exceptional situations. GenEdit 7(3):1-12
-
(2009)
GenEdit
, vol.7
, Issue.3
, pp. 1-12
-
-
Lévesque, E.1
Fraser, W.2
Knoppers, B.M.3
-
43
-
-
34547779363
-
Ethics identifiability in genomic research
-
Lowrance WW, Collins FS (2007) Ethics identifiability in genomic research. Science 317:600-602
-
(2007)
Science
, vol.317
, pp. 600-602
-
-
Lowrance, W.W.1
Collins, F.S.2
-
44
-
-
80054755707
-
Consent for biobanking: Assessing the understanding and views of cancer patients
-
Mancini J et al (2010) Consent for biobanking: assessing the understanding and views of cancer patients. JNCI 103:1-4
-
(2010)
JNCI
, vol.103
, pp. 1-4
-
-
Mancini, J.1
-
45
-
-
53149142519
-
Informed consent in the genomics era
-
doi:10.1371/journal.pmed.0050192
-
Mascalzoni D, Hicks A, Pramstaller P, Wjst M (2008) Informed consent in the genomics era. PLoS Med 5:e192. doi:10.1371/journal.pmed.0050192
-
(2008)
PLoS Med
, vol.5
-
-
Mascalzoni, D.1
Hicks, A.2
Pramstaller, P.3
Wjst, M.4
-
46
-
-
77952529089
-
Examining the public refusal to consent to DNA biobanking: Empirical data from a Swedish population-based study
-
Melas P, Sjöholm LK, Forsner T et al (2010) Examining the public refusal to consent to DNA biobanking: empirical data from a Swedish population-based study. J Med Ethics 36:93-98
-
(2010)
J Med Ethics
, vol.36
, pp. 93-98
-
-
Melas, P.1
Sjöholm, L.K.2
Forsner, T.3
-
47
-
-
77954655906
-
The Havasupai Indian tribe case-lessons for research involving stored biologic samples
-
Mello MM, Wolf LE (2010) The Havasupai Indian tribe case-lessons for research involving stored biologic samples. N Engl J Med 363:204-207
-
(2010)
N Engl J Med
, vol.363
, pp. 204-207
-
-
Mello, M.M.1
Wolf, L.E.2
-
48
-
-
41549141445
-
Participant characteristics that influence consent for genetic research in a population-based survey: The Baltimore epidemiologic catchment area follow-up
-
DOI 10.1159/000113880
-
Mezuk B, Eaton WW, Zandi P (2008) Participant characteristics that influence consent for genetic research in a population-based survey: the baltimore epidemiologic catchment area follow-up. Community Genet 11:171-178 (Pubitemid 351465621)
-
(2008)
Community Genetics
, vol.11
, Issue.3
, pp. 171-178
-
-
Mezuk, B.1
Eaton, W.W.2
Zandi, P.3
-
49
-
-
77957734636
-
Information systems for biobanks/biorepositories: Handling information associated with compliant sample management
-
doi:10.1089/bio.2010.8310
-
Mills FJ, Brooks A (2010) Information systems for Biobanks/ Biorepositories: handling information associated with Compliant Sample Management. Biopreservation Biobanking 8:163-165. doi:10.1089/bio.2010.8310
-
(2010)
Biopreservation Biobanking
, vol.8
, pp. 163-165
-
-
Mills, F.J.1
Brooks, A.2
-
51
-
-
34547662985
-
What is anonymous (letter)
-
Nietfeld JJ (2007) What is anonymous (letter). EMBO Reports 8(6):518
-
(2007)
EMBO Reports
, vol.8
, Issue.6
, pp. 518
-
-
Nietfeld, J.J.1
-
53
-
-
0004148001
-
Autonomy and trust in bioethics
-
Cambridge
-
O'Neill O (2002) Autonomy and trust in bioethics. CUP, Cambridge
-
(2002)
CUP
-
-
O'neill, O.1
-
55
-
-
77957594024
-
Broken promises of privacy: Responding to the surprising failure of anonymization (August 13, 2009)
-
U of Colorado Law Legal Studies Research Paper No. 9-12
-
Ohm P (2010) broken promises of privacy: responding to the surprising failure of anonymization (August 13, 2009). UCLA Law Rev vol 57, p 1701 U of Colorado Law Legal Studies Research Paper No. 9-12. Available at SSRN: http://ssrn.com/abstract=1450006
-
(2010)
UCLA Law Rev
, vol.57
, pp. 1701
-
-
Ohm, P.1
-
56
-
-
0037271078
-
Tumor banks, well guarded treasures in the interests of patients
-
Oosterhuis JW, Coebergh J, van Veen EB (2003) Tumor banks, well guarded treasures in the interests of patients. Nat Rev Cancer 3:73-77
-
(2003)
Nat Rev Cancer
, vol.3
, pp. 73-77
-
-
Oosterhuis, J.W.1
Coebergh, J.2
Van Veen, E.B.3
-
57
-
-
80054722153
-
Gegeven voor de wetenschap; Regulering van onderzoek met gegevens, lichaamsmateriaal en biobanken, in Wetenschappelijk onderzoek in de zorg: Preadvies 2010
-
Den Haag, SDU
-
Ploem MC (2010) Gegeven voor de wetenschap; Regulering van onderzoek met gegevens, lichaamsmateriaal en biobanken, in Wetenschappelijk onderzoek in de zorg: Preadvies 2010, Vereniging voor Gezondheidsrecht, Den Haag, SDU: 117-210
-
(2010)
Vereniging voor Gezondheidsrecht
, pp. 117-210
-
-
Ploem, M.C.1
-
60
-
-
77950838855
-
The organization of european cancer institute pathobiology working group and its support of European biobanking infrastructures for translational cancer research
-
Riegman PHJ, de Jong BWD, Llombart-Bosch A (2010) The Organization of European Cancer Institute Pathobiology Working Group and its support of European biobanking infrastructures for translational cancer research. Cancer Epidemiol Biomarkers Prev 19:923-926
-
(2010)
Cancer Epidemiol Biomarkers Prev
, vol.19
, pp. 923-926
-
-
Riegman, P.H.J.1
De Jong, B.W.D.2
Llombart-Bosch, A.3
-
64
-
-
77951115122
-
International network of cancer genome projects
-
The International Cancer Genome Consortium
-
The International Cancer Genome Consortium (2010) International network of cancer genome projects. Nature 15 464:993-998
-
(2010)
Nature
, vol.15
, Issue.464
, pp. 993-998
-
-
-
65
-
-
80054757545
-
Van lichaam naar lichaamsmateriaal
-
Trouet C (2003) Van lichaam naar lichaamsmateriaal, Intersentia Antwerpen
-
(2003)
Intersentia Antwerpen
-
-
Trouet, C.1
-
67
-
-
80054752888
-
Zeggenschap over lichaamsmateriaal: suggesties vanuit Europa
-
van der Valk T (2010) Zeggenschap over lichaamsmateriaal: suggesties vanuit Europa. TvGR 7:562
-
(2010)
TvGR
, vol.7
, pp. 562
-
-
Van Der Valk, T.1
-
68
-
-
41349102397
-
Ethiek van medisch-wetenschappelijk onderzoek: Informed consent en de therapeutische misconceptie
-
van Leeuwen E (2008) Ethiek van medisch-wetenschappelijk onderzoek: informed consent en de therapeutische misconceptie. NTvG 12:679-683 (Pubitemid 351448823)
-
(2008)
Nederlands Tijdschrift voor Geneeskunde
, vol.152
, Issue.12
, pp. 679-683
-
-
De Vries, M.C.1
Van Leeuwen, E.2
-
69
-
-
44949258868
-
Obstacles to European research projects with data and tissue: Solutions and further challenges
-
van Veen EB (2008) Obstacles to European research projects with data and tissue: solutions and further challenges. Eur J Cancer 44:1438-1450
-
(2008)
Eur J Cancer
, vol.44
, pp. 1438-1450
-
-
Van Veen, E.B.1
-
70
-
-
33751113667
-
TuBaFrost 3: Regulatory and ethical issues on the exchange of residual tissue for research across Europe
-
DOI 10.1016/j.ejca.2006.04.028, PII S0959804906007295
-
van Veen EB, Riegman PH, Dinjens WN, Lam KH, Oomen MH, Spatz A, Mager R, Ratcliffe C, Knox K, Kerr D, van Damme B, van de Vijver M, van Boven H, Morente MM, Alonso S, Kerjaschki D, Pammer J, Lopez-Guerrero JA, Llombart Bosch A, Carbone A, Gloghini A, Teodorovic I, Isabelle M, Passioukov A, Lejeune S, Therasse P, Oosterhuis JW (2006) TuBaFrost 3: regulatory and ethical issues on the exchange of residual tissue for research across Europe. Eur J Cancer 42:2914-2923 (Pubitemid 44767664)
-
(2006)
European Journal of Cancer
, vol.42
, Issue.17
, pp. 2914-2923
-
-
Van Veen, E.-B.1
Riegman, P.H.J.2
Dinjens, W.N.M.3
Lam, K.H.4
Oomen, M.H.A.5
Spatz, A.6
Mager, R.7
Ratcliffe, C.8
Knox, K.9
Kerr, D.10
Van Damme, B.11
Van De Vijver, M.12
Van Boven, H.13
Morente, M.M.14
Alonso, S.15
Kerjaschki, D.16
Pammer, J.17
Lopez-Guerrero, J.A.18
Llombart Bosch, A.19
Carbone, A.20
Gloghini, A.21
Teodorovic, I.22
Isabelle, M.23
Passioukov, A.24
Lejeune, S.25
Therasse, P.26
Oosterhuis, J.W.27
more..
-
71
-
-
77955854999
-
A review of international Biobanks and Networks: Success factors and key benchmarks
-
doi:10.1089/bio.2010.0003
-
Vaught J, Kelly A, Hewitt R (2010) A review of International Biobanks and Networks: success factors and key benchmarks. Biopreservation Biobanking 7:143-150. doi:10.1089/bio.2010.0003
-
(2010)
Biopreservation Biobanking
, vol.7
, pp. 143-150
-
-
Vaught, J.1
Kelly, A.2
Hewitt, R.3
-
72
-
-
61849175400
-
Opt-out plus, the patients' choice: Preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment
-
Vermeulen E, Schmidt MK, Aaronson NK, Kuenen M, van der Valk P, Sietses C, van den Tol P, van Leeuwen FE (2009) Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment. J Clin Pathol 62:275-278
-
(2009)
J Clin Pathol
, vol.62
, pp. 275-278
-
-
Vermeulen, E.1
Schmidt, M.K.2
Aaronson, N.K.3
Kuenen, M.4
Van Der Valk, P.5
Sietses, C.6
Van Den Tol, P.7
Van Leeuwen, F.E.8
-
73
-
-
33644930832
-
One-time general consent for research on biological samples
-
Wendler D (2006) One time general consent for research on biological samples. BMJ 332:544-547 (Pubitemid 44364375)
-
(2006)
British Medical Journal
, vol.332
, Issue.7540
, pp. 544-547
-
-
Wendler, D.1
-
74
-
-
0034538696
-
Selection bias from requiring patients to give consent to examine data for health services research
-
Wolf SH, Rothemich SF, Johnson RE, Marsland DW (2000) Selection bias from requiring patients to give consent to examine data for health services research. Arch Fam Med 9(10):1111-1118 (Pubitemid 32014707)
-
(2000)
Archives of Family Medicine
, vol.9
, Issue.10
, pp. 1111-1118
-
-
Woolf, S.H.1
Rothemich, S.F.2
Johnson, R.E.3
Marsland, D.W.4
-
75
-
-
78149243538
-
DataSHIELD: Resolving a conflict in contemporary bioscience-performing a pooled analysis of individual-level data without sharing the data
-
doi:10.1093/ije/dyq111
-
Wolfson M et al (2010) DataSHIELD: resolving a conflict in contemporary bioscience-performing a pooled analysis of individual-level data without sharing the data. Int J Epidemiol 39:1372-1382. doi:10.1093/ije/dyq111
-
(2010)
Int J Epidemiol
, vol.39
, pp. 1372-1382
-
-
Wolfson, M.1
-
76
-
-
60749109484
-
-
Working Party, Article 29 Data Protection Working Party, Brussels 2007: 0124807/EN, WP 136
-
Working Party (2007) Opinion 4/2007 on the concept of personal data, Article 29 Data Protection Working Party, Brussels 2007: 0124807/EN, WP 136
-
(2007)
Opinion 4/2007 on the Concept of Personal Data
-
-
-
77
-
-
0004177253
-
-
World Medical Association article A.6, WMA
-
World Medical Association. Declaration of Helsinki (2008) article A.6, WMA
-
(2008)
Declaration of Helsinki
-
-
-
78
-
-
77950848208
-
Custodianship as an ethical framework for biospecimen-based research
-
Yassin R, Lockhart N, González del Riego M, Pitt K, Thomas JW, Weiss L, Compton C (2010) Custodianship as an ethical framework for biospecimen-based research. Cancer Epidemiol Biomarkers Prev 19:1012-1015
-
(2010)
Cancer Epidemiol Biomarkers Prev
, vol.19
, pp. 1012-1015
-
-
Yassin, R.1
Lockhart, N.2
González Del Riego, M.3
Pitt, K.4
Thomas, J.W.5
Weiss, L.6
Compton, C.7
|