Scientific Research and the Public Trust

Science and Engineering Ethics

Volumn 17, Issue 3, 2011, Pages 399-409

  Resnik, David B ^a  

^a NATIONAL INSTITUTE OF ENVIRONMENTAL HEALTH SCIENCES   (United States)

Author keywords

Ethics; Policy; Public expectations; Public trust; Science

Indexed keywords

ANIMAL; ARTICLE; ETHICS; HUMAN; MEDICAL RESEARCH; PUBLIC OPINION; RESEARCH ETHICS; SCIENCE; TRUST;

ANIMALS; BIOMEDICAL RESEARCH; ETHICS, RESEARCH; HUMANS; PUBLIC OPINION; SCIENCE; TRUST;

EID: 80053312603     PISSN: 13533452     EISSN: 16605454     Source Type: Journal    
DOI: 10.1007/s11948-010-9210-x     Document Type: Article

References (52)

1. Alberts, B., & Shine, K. (1994). Scientists and the integrity of research. Science, 266, 1660-1661.
2. American Public Health Association. (2010). Ethical guidelines. Accessed March 2, 2010, from http://www. apha. org/programs/education/progeduethicalguidelines. htm.
3. American Society for Biochemistry and Molecular Biology. (2010). Code of ethics. Accessed March 2, 2010, from http://www. asbmb. org/Page. aspx?id=70&terms=ethics.
4. Association of American Medical Colleges. (2001). Protecting subjects, preserving trust, promoting progress: Policy and guidelines for individual financial interests in human subjects research. Accessed March 2, 2010, from http://www. aamc. org/research/coi/firstreport. pdf.
5. Baier, A. (1986). Trust and anti-trust. Ethics, 96, 231-260.
6. Becker, L. (1996). Trust as non-cognitive security about motives. Ethics, 107, 43-61.
7. Blomqvist, K. (1997). The many faces of trust. Scandinavian Journal of Management, 13, 271-286.
8. Bowen, A. (2002). Research involving pregnant women. In R. Amdur & E. Bankert (Eds.), Institutional review board management and function (pp. 380-382). Boston: Jones and Bartlett.
9. Committee on Science, Engineering and Public Policy. (2009). On being a scientist (3rd ed.). Washington, DC: National Academy Press.
10. DeAngelis, C. (2000). Conflict of interest and the public trust. Journal of the American Medical Association, 284, 2237-2238.
11. Dictionary. com. (2010). Public. Dictionary. com unabridged. Random House, Inc. Accessed May 12, 2010, from http://dictionary. reference. com/browse/public.
12. Dresser, R. (2001). When science offers salvation. New York: Oxford University Press.
13. Fukuyama, F. (1995). Trust: The social virtues and the creation of prosperity. New York: Free Press.
14. Gambetta, D. (Ed.). (1988). Trust: Making and breaking cooperative relationships. Oxford: Blackwell.
15. Govier, T. (1997). Social trust and human communities. Montreal: McGill-Queen's University Press.
16. Grady, C., Hampson, L., Wallen, G., Rivera-Goba, M., Carrington, K., & Mittleman, B. (2006). Exploring the ethics of clinical research in an urban community. American Journal of Public Health, 96, 1996-2001.
17. Gurney, S., & Sass, J. (2001). Public trust requires disclosure of potential conflicts of interest. Nature, 413, 565.
18. Haerlin, B., & Parr, D. (1999). How to restore public trust in science. Nature, 400, 499.
19. Hall, M., Camacho, F., Lawlor, J., DePuy, V., Sugarman, J., & Weinfurt, K. (2006). Measuring trust in medical researchers. Medical Care, 44, 1048-1053.
20. Hardin, R. (2001). Trust. In L. Becker & C. Becker (Eds.), Encyclopedia of ethics (2nd ed., pp. 1728-1731). New York: Routledge.
21. Hardin, R. (2006). Trust. New York: Polity.
22. Institute of Medicine. (2001). Preserving public trust: Accreditation and human research participant protection programs. Washington, DC: National Academy Press.
23. Jacobson, P., & Parmet, W. (2007). A new era of unapproved drugs: The case of Abigail Alliance v Von Eschenbach. Journal of the American Medical Association, 297, 205-208.
24. Kass, N., Sugarman, J., Faden, R., & Schoch-Spana, M. (1996). Trust, the fragile foundation of contemporary biomedical research. Hastings Center Report, 26(5), 25-29.
25. Kennedy, D. (2004). Clinical trials and public trust. Science, 306, 1649.
26. Lind, U., Mose, T., & Knudsen, L. (2007). Participation in environmental health research by placenta donation-a perception study. Environmental Health, 6, 36-43.
27. Mastroianni, A. (2008). Sustaining public trust: Falling short in the protection of human research participants. Hastings Center Report, 38(3), 8-9.
28. McDonald, M., Townsend, A., Cox, S., Paterson, N., & Lafrenière, D. (2008). Trust in health research relationships: Accounts of human subjects. Journal of Empirical Research on Human Research Ethics, 3(4), 35-47.
29. Merton, V. (1993). The exclusion of pregnant, pregnable and once-pregnable people (a. k. a. women) from biomedical research. American Journal of Law and Medicine, 19, 369-451.
30. Miller, D. (2004). Public understanding of, and attitudes toward, scientific research: What we know and what we need to know. Public Understand of Science, 13, 273-294.
31. Miller, P., & Weijer, C. (2006). Trust based obligations of the state and physician-researchers to patient-subjects. Journal of Medical Ethics, 32, 542-547.
32. Minkler, M. (2004). Ethical challenges for the "outside" researcher in community-based participatory research. Health Education and Behavior, 31, 684-697.
33. Moore, D. (2003). Public lukewarm on animal rights. The Gallup Organization, May 21, 2003. Accessed March 13, 2010, from http://www. gallup. com/poll/8461/public-lukewarm-animal-rights. aspx.
34. National Institutes of Health. (2010). NIH public trust. Accessed May 12, 2010, from http://publictrust. nih. gov/index. cfm.
35. National Science Foundation. (2010). Science and technology indicators 2010. Accessed May 12, 2010, from http://www. nsf. gov/statistics/seind10/c/cs1. htm.
36. Neidich, A., Joseph, J., Ober, C., & Ross, L. (2008). Empirical data about women's attitudes toward a hypothetical pediatric biobank. American Journal of Medical Genetics Part A, 146A, 297-304.
37. Nisbett, M. (2004). Public opinion about stem cell research and human cloning. Public Opinion Quarterly, 68, 131-154.
38. Obama, B. (2009). Memorandum for the heads of executive departments and agencies: Scientific integrity. March 9, 2009. Accessed May 12, 2010, from http://www. whitehouse. gov/the_press_office/Memorandum-for-the-Heads-of-Executive-Departments-and-Agencies-3-9-09/.
39. Priest, S. (2000). US public opinion divided over biotechnology? Nature Biotechnology, 18, 939-942.
40. Resnik, D. (2009). Playing politics with science. New York: Oxford University Press.
41. Rosenberg, J. (1995). The practice of philosophy. Upper Saddle River, NJ: Prentice-Hall.
42. Schroeder, S., Zones, J., & Showstack, J. (1989). Academic medicine as a public trust. Journal of the American Medical Association, 262, 803-812.
43. Schüklenk, U. (2000). Access to experimental drugs in terminal illness. London: Informa Healthcare.
44. Schüklenk, U., & Lowry, C. (2009). Terminal illness and access to Phase 1 experimental agents, surgeries and devices: Reviewing the ethical arguments. British Medical Bulletin, 89, 7-22.
45. Shamoo, A., & Resnik, D. (2009). Responsible conduct of research (2nd ed.). New York: Oxford University Press.
46. Sharp, R., & Foster, W. (2002). Community involvement in ethical review of genetic research: Lessons from American Indian and Alaska Native populations. Environmental Health Perspectives, 110(Supplement 2), 145-148.
47. Shrader-Frechette, K. (1994). Ethics of scientific research. Lanham, MD: Rowman and Littlefield.
48. Siegrist, M. (2000). The influence of trust and perceptions of risks and benefits on the acceptance of gene technology. Risk Analysis, 20, 195-203.
49. Siegrist, M., Keller, C., Kastenholz, H., Frey, S., & Wiek, A. (2007). Laypeople's and experts' perception of nanotechnology hazards. Risk Analysis, 27, 59-69.
50. Tullberg, J. (2008). Trust-the importance of trustfulness versus trustworthiness. The Journal of Socio-Economics, 37, 2059-2071.
51. Weinfurt, K., Hall, M., Dinan, M., DePuy, V., Friedman, J., Allsbrook, J., et al. (2008). Effects of disclosing financial interests on attitudes toward clinical research. Journal of General Internal Medicine, 23(6), 860-866.
52. Whitbeck, C. (1995). Truth and trustworthiness in research. Science and Engineering Ethics, 1, 403-416.