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1
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33846220206
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Congenital heart disease in the general population: Changing prevalence and age distribution
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DOI 10.1161/CIRCULATIONAHA.106.627224, PII 0000301720070116000005
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Marelli AJ, Mackie AS, Ionescu-Ittu R, et al. Congenital heart disease in the general population: changing prevalence and age distribution. Circulation 2007; 115:163-172. (Pubitemid 46105714)
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Circulation
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Marelli, A.J.1
Mackie, A.S.2
Ionescu-Ittu, R.3
Rahme, E.4
Pilote, L.5
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2
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0034670086
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Mode of death in adults with congenital heart disease
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Oechslin EN, Harrison DA, Connelly MS, et al. Mode of death in adults with congenital heart disease. Am J Cardiol 2000; 86:1111-1116.
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Am J Cardiol
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Oechslin, E.N.1
Harrison, D.A.2
Connelly, M.S.3
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3
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34548634451
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Causes of Late Deaths After Pediatric Cardiac Surgery. A Population-Based Study
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DOI 10.1016/j.jacc.2007.05.040, PII S0735109707021237
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Nieminen HP, Jokinen EV, Sairanen HI. Causes of late deaths after pediatric cardiac surgery: a population-based study. J Am Coll Cardiol 2007; 50:1263-1271. (Pubitemid 47405126)
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Journal of the American College of Cardiology
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Nieminen, H.P.1
Jokinen, E.V.2
Sairanen, H.I.3
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4
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78650174615
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Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium
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This study reports the long-term experience of a single national center. It is unique as it is the only large center in Belgium and that patients with CHD at this center are followed from 'fetus to adults'. It, therefore, likely accurately reflects changes in survival of patients born with CHD
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Moons P, Bovijn L, Budts W, et al. Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium. Circulation 2010; 122:2264-2272. This study reports the long-term experience of a single national center. It is unique as it is the only large center in Belgium and that patients with CHD at this center are followed from 'fetus to adults'. It, therefore, likely accurately reflects changes in survival of patients born with CHD.
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(2010)
Circulation
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, pp. 2264-2272
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Moons, P.1
Bovijn, L.2
Budts, W.3
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5
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78650172142
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Mortality resulting from congenital heart disease among children and adults in the United States, 1999 to 2006
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Gilboa SM, Salemi JL, Nembhard WN, et al. Mortality resulting from congenital heart disease among children and adults in the United States, 1999 to 2006. Circulation 2010; 122:2254-2263.
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Circulation
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Gilboa, S.M.1
Salemi, J.L.2
Nembhard, W.N.3
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6
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77957202528
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Changing mortality in congenital heart disease
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This population-based study from Quebec provides unique data of changing patterns of mortality in CHD. It demonstrates that mortality has shifted almost entirely to adult life. It is, however, important to underscore that excess mortality of adult survivors with complex CHD is not reflected by this study, as these populations are just emerging
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Khairy P, Ionescu-Ittu R, Mackie AS, et al. Changing mortality in congenital heart disease. J Am Coll Cardiol 2010; 56:1149-1157. This population-based study from Quebec provides unique data of changing patterns of mortality in CHD. It demonstrates that mortality has shifted almost entirely to adult life. It is, however, important to underscore that excess mortality of adult survivors with complex CHD is not reflected by this study, as these populations are just emerging.
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(2010)
J Am Coll Cardiol
, vol.56
, pp. 1149-1157
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Khairy, P.1
Ionescu-Ittu, R.2
Mackie, A.S.3
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7
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77952367604
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Mortality in adult congenital heart disease
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The Dutch CONCOR national registry is the largest national registry of adults with CHD in Europe. From this database, several important questions around adults with CHD such as mortality, hospital admissions, and endocarditis among others have been addressed
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Verheugt CL, Uiterwaal CS, van der Velde ET, et al. Mortality in adult congenital heart disease. Eur Heart J 2010; 31:1220-1229. The Dutch CONCOR national registry is the largest national registry of adults with CHD in Europe. From this database, several important questions around adults with CHD such as mortality, hospital admissions, and endocarditis among others have been addressed.
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(2010)
Eur Heart J
, vol.31
, pp. 1220-1229
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Verheugt, C.L.1
Uiterwaal, C.S.2
Van Der Velde, E.T.3
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8
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67650555670
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Palliative care in congestive heart failure
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Goodlin SJ. Palliative care in congestive heart failure. J Am Coll Cardiol 2009; 54:386-396.
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(2009)
J Am Coll Cardiol
, vol.54
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Goodlin, S.J.1
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9
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ACC/AHA 2005 guideline update for the diagnosis and management of chronic heart failure in the adult: A report of the American College of Cardiology
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American Heart Association Task Force on Practice Guidelines (Writing Committee to Update the 2001 Guidelines for the Evaluation and Management of Heart Failure): Developed in collaboration with the American College of Chest Physicians and the International Society for Heart and Lung Transplantation: Endorsed by the Heart Rhythm Society
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Hunt SA, Abraham WT, Chin MH, et al. ACC/AHA 2005 guideline update for the diagnosis and management of chronic heart failure in the adult: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Update the 2001 Guidelines for the Evaluation and Management of Heart Failure): developed in collaboration with the American College of Chest Physicians and the International Society for Heart and Lung Transplantation: endorsed by the Heart Rhythm Society. Circulation 2005; 112:e154-e235.
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(2005)
Circulation
, vol.112
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Hunt, S.A.1
Abraham, W.T.2
Chin, M.H.3
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10
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58149238097
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ACC/AHA2008 guidelines for the management of adults with congenital heart disease: A report of the American College of Cardiology
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American Heart Association Task Force on Practice Guidelines (writing committee to develop guidelines on the management of adults with congenital heart disease)
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Warnes CA, WilliamsRG, Bashore TM, et al. ACC/AHA2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (writing committee to develop guidelines on the management of adults with congenital heart disease). Circulation 2008; 118:e714-e833.
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(2008)
Circulation
, vol.118
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Warnes, C.A.1
Williams, R.G.2
Bashore, T.M.3
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11
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78649813429
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ESC guidelines for the management of grown-up congenital heart disease (new version 2010): The task force on the management of grown-up congenital heart disease of the European society of cardiology (ESC)
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The latest European Guidelines of the management of adults with CHD are comprehensive and very well written. They, however, do not address palliative and EOL care as well as psychosocial issues of adults with CHD
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Baumgartner H, Bonhoeffer P, De Groot NM, et al. ESC guidelines for the management of grown-up congenital heart disease (new version 2010): the task force on the management of grown-up congenital heart disease of the European society of cardiology (ESC). Eur Heart J 2010; 32:2915-2957. The latest European Guidelines of the management of adults with CHD are comprehensive and very well written. They, however, do not address palliative and EOL care as well as psychosocial issues of adults with CHD.
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(2010)
Eur Heart J
, vol.32
, pp. 2915-2957
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Baumgartner, H.1
Bonhoeffer, P.2
De Groot, N.M.3
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12
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80052782619
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AH. End-of-life care in hospitalized adults with complex congenital heart disease: Care delayed, care denied
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in press
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Tobler D, Greutmann M, Greutmann-Yantiri M, et al AH. End-of-life care in hospitalized adults with complex congenital heart disease: care delayed, care denied. Palliat Med 2011. (in press).
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(2011)
Palliat Med
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Tobler, D.1
Greutmann, M.2
Greutmann-Yantiri, M.3
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13
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34648843113
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Preferences of patients with heart failure for prognosis communication
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Caldwell PH, Arthur HM, Demers C. Preferences of patients with heart failure for prognosis communication. Can J Cardiol 2007; 23:791-796. (Pubitemid 47455341)
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(2007)
Canadian Journal of Cardiology
, vol.23
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Caldwell, P.H.1
Arthur, H.M.2
Demers, C.3
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14
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84857791673
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End-of-life in adults with congenital heart disease: A call for early communication
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doi:10.1016/j.ijcard.2010.10.050 This is the first study addressing EOL issues in adults with CHD. The Toronto Congenital Cardiac Centre for Adults has started to empirically investigate patients with CHD at the end of their lives. As a result of research, palliative care specialists have been integrated in clinical practice
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Tobler D, Greutmann M, Colman JM, et al. End-of-life in adults with congenital heart disease: a call for early communication. Int J Cardiol 2010. doi:10.1016/j.ijcard.2010.10.050 This is the first study addressing EOL issues in adults with CHD. The Toronto Congenital Cardiac Centre for Adults has started to empirically investigate patients with CHD at the end of their lives. As a result of research, palliative care specialists have been integrated in clinical practice.
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(2010)
Int J Cardiol
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Tobler, D.1
Greutmann, M.2
Colman, J.M.3
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15
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The nature of heart failure as a challenge to the integration of palliative care services
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Stuart B. The nature of heart failure as a challenge to the integration of palliative care services. Curr Opin Support Palliat Care 2007; 1:249-254.
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Curr Opin Support Palliat Care
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Stuart, B.1
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16
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End-of-life planning in heart failure: It should be the end of the beginning
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The Canadian Heart Health Strategy and Action Plan includes a model for chronic disease management and EOL planning and care. The authors give an overview of the problems such a strategy may be facing. Some of the suggested approaches amount to cultural changes in medical practice
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Howlett J, Morin L, Fortin M, et al. End-of-life planning in heart failure: it should be the end of the beginning. Can J Cardiol 2010; 26:135-141. The Canadian Heart Health Strategy and Action Plan includes a model for chronic disease management and EOL planning and care. The authors give an overview of the problems such a strategy may be facing. Some of the suggested approaches amount to cultural changes in medical practice.
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(2010)
Can J Cardiol
, vol.26
, pp. 135-141
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Howlett, J.1
Morin, L.2
Fortin, M.3
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17
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Specialist palliative care and nonmalignant diseases
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Addington-Hall JM, Higginson IJ, editors. New York: Oxford University Press
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Dunlop R. Specialist palliative care and nonmalignant diseases. In: Addington-Hall JM, Higginson IJ, editors. Palliative Care for Non-Cancer Patients. New York: Oxford University Press 2001; pp. 189-197.
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Palliative Care for Non-Cancer Patients
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Dunlop, R.1
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18
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23744486079
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Exploring symptoms in chronic heart failure
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DOI 10.1016/j.ejheart.2005.07.003, PII S1388984205001674
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Ekman I, Cleland JG, Andersson B, Swedberg K. Exploring symptoms in chronic heart failure. Eur J Heart Fail 2005; 7:699-703. (Pubitemid 41125882)
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European Journal of Heart Failure
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Ekman, I.1
Cleland, J.G.F.2
Andersson, B.3
Swedberg, K.4
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19
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73149091620
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Fatigue and its related factors in patients with chronic heart failure
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A rare example in heart failure research of exploring a symptom in its own right, including all its subjective dimensions as well as objectively measurable factors
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Tang WR, Yu CY, Yeh SJ. Fatigue and its related factors in patients with chronic heart failure. J Clin Nurs 2010; 19:69-78. A rare example in heart failure research of exploring a symptom in its own right, including all its subjective dimensions as well as objectively measurable factors.
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J Clin Nurs
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Tang, W.R.1
Yu, C.Y.2
Yeh, S.J.3
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20
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40449123218
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Fatigue in palliative care patients - An EAPC approach
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DOI 10.1177/0269216307085183
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Radbruch L, Strasser F, Elsner F, et al. Fatigue in palliative care patients: an EAPC approach. Palliat Med 2008; 22:13-32. (Pubitemid 351351367)
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Palliative Medicine
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Radbruch, L.1
Strasser, F.2
Elsner, F.3
Goncalves, J.F.4
Loge, J.5
Kaasa, S.6
Nauck, F.7
Stone, P.8
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21
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33847103071
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Why does chronic heart failure cause breathlessness and fatigue?
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DOI 10.1016/j.pcad.2006.10.003, PII S0033062006001228
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Witte KK, Clark AL. Why does chronic heart failure cause breathlessness and fatigue? Prog Cardiovasc Dis 2007; 49:366-384. (Pubitemid 46295437)
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Progress in Cardiovascular Diseases
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Witte, K.K.1
Clark, A.L.2
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Physiologic changes and clinical correlates of advanced dyspnea
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Gilman SA, Banzett RB. Physiologic changes and clinical correlates of advanced dyspnea. Curr Opin Support Palliat Care 2009; 3:93-97.
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Gilman, S.A.1
Banzett, R.B.2
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25
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73649141003
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Exercise training in adults with congenital heart disease: Feasibility and benefits
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Despite its small sample size, this is the first study including symptomatic adults with CHD that has investigated feasibility and efficacy of exercise training on aerobic capacity and quality of life
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Dua JS, Cooper AR, Fox KR, Graham Stuart A. Exercise training in adults with congenital heart disease: feasibility and benefits. Int J Cardiol 2010; 138:196-205. Despite its small sample size, this is the first study including symptomatic adults with CHD that has investigated feasibility and efficacy of exercise training on aerobic capacity and quality of life.
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Int J Cardiol
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Dua, J.S.1
Cooper, A.R.2
Fox, K.R.3
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Depressive symptoms and heart failure: Examining the sociodemographic variables
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Rohyans LM, Pressler SJ. Depressive symptoms and heart failure: examining the sociodemographic variables. Clin Nurse Spec 2009; 23:138-144.
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Moon JR, Huh J, Kang IS, et al. Factors influencing depression in adolescents with congenital heart disease. Heart Lung 2009; 38:419-426.
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Adult age with congenital heart disease: Quo vadis
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De Stoutz N, Leventhal M. Adult age with congenital heart disease: quo vadis. Kardiovaskulaere Medizin 2009; 12:38-44.
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The Seattle Heart Failure Model: Prediction of survival in heart failure
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Levy WC, Mozaffarian D, Linker DT, et al. The Seattle heart failure model: prediction of survival in heart failure. Circulation 2006; 113:1424-1433. (Pubitemid 43739439)
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Levy, W.C.1
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Anand, I.7
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Predicting Mortality among Patients Hospitalized for Heart Failure: Derivation and Validation of a Clinical Model
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Estimates of life expectancy by adolescents and young adults with congenital heart disease
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The Role of the Psychologist in Adult Congenital Heart Disease
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DOI 10.1016/j.ccl.2006.08.003, PII S0733865106000610, Congenital Heart Disease
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Kovacs AH, Silversides C, Saidi A, Sears SF. The role of the psychologist in adult congenital heart disease. Cardiol Clin 2006; 24:607-618. (Pubitemid 44711981)
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