PedsQL™ Cognitive Functioning Scale in pediatric liver transplant recipients: Feasibility, reliability, and validity

Quality of Life Research

Volumn 20, Issue 6, 2011, Pages 913-921

  Varni, James W ^a   Limbers, Christine A ^b   Sorensen, Lisa G ^c   Neighbors, Katie ^d   Martz, Karen ^e   Bucuvalas, John C ^f   Alonso, Estella M ^d  

^a TEXAS A AND M UNIVERSITY   (United States)

^b BAYLOR UNIVERSITY   (United States)

^c NORTHWESTERN UNIVERSITY   (United States)

^d NORTHWESTERN UNIVERSITY   (United States)

^e EMMES CORPORATION   (United States)

^f CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

Author keywords

Cognitive functioning; Executive functioning; Liver transplant; Pediatrics; PedsQL ; Quality of life

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; EXECUTIVE FUNCTION; FEASIBILITY STUDY; FEMALE; HUMAN; LIVER TRANSPLANTATION; MALE; OUTCOME ASSESSMENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SELF REPORT; SURVIVOR; VALIDATION STUDY;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; EXECUTIVE FUNCTION; FEASIBILITY STUDIES; FEMALE; HUMANS; LIVER TRANSPLANTATION; MALE; OUTCOME ASSESSMENT (HEALTH CARE); QUALITY OF LIFE; SELF REPORT; SURVIVORS; VALIDATION STUDIES AS TOPIC;

EID: 80052338400     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-010-9823-1     Document Type: Article

References (46)

1. J Weissberg-Benchell TE Zielinski S Rodgers RN Greenley D Askenazi SL Goldstein EM Fredericks S McDiarmid L Williams CA Limbers K Tuzinkiewicz S Lerret EM Alonso JW Varni 2010 Pediatric health-related quality of life: Feasibility, reliability and validity of the PedsQL™ Transplant Module American Journal of Transplantation 10 1677 1685 20642689 10.1111/j.1600-6143. 2010.03149.x 1:STN:280:DC%2BC3cnotl2qtw%3D%3D
2. EM Alonso CA Limbers K Neighbors K Martz JC Bucuvalas T Webb JW Varni 2010 Cross-sectional analysis of health-related quality of life in pediatric liver transplant recipients Journal of Pediatrics 156 270 276 19846110 10.1016/j.jpeds.2009.08.048
3. S Gilmour R Adkinsb GA Liddellb G Jhangric CM Robertsond 2009 Assessment of psychoeducational outcomes after pediatric liver transplant American Journal of Transplantation 9 294 300 19067656 10.1111/j.1600-6143.2008.02480.x 1:STN:280:DC%2BD1M7gsVSktA%3D%3D
4. K Krull C Fuchs H Yurk P Boone EM Alonso 2003 Neurocognitive outcome in pediatric liver transplant recipients Pediatric Transplantation 7 111 118 12654051 10.1034/j.1399-3046.2003.00026.x (Pubitemid 36514066)
5. A Adeback A Nemeth B Fischler 2003 Cognitive and emotional outcome after pediatric liver transplantation Pediatric Transplantation 7 385 389 14738300 10.1034/j.1399-3046.2003.00081.x (Pubitemid 37295946)
6. T Kaller K Schulz K Sander A Boeck X Rogiers M Burdelski 2005 Cognitive abilities in children after liver transplantation Transplantation 79 1252 1256 15880080 10.1097/01.TP.0000161251.20520.42 (Pubitemid 40664034)
7. Sorensen, L. G., Neighbors, K., Martz, K., Zelko, F., Bucuvalas, J. C., & Alonso, E. M. (in press). Cognitive and academic outcomes after pediatric liver transplantation: Functional outcomes group (FOG) results. American Journal of Transplantation.
8. JW Varni TM Burwinkle ER Katz K Meeske P Dickinson 2002 The PedsQL™ in pediatric cancer: Reliability and validity of The Pediatric Quality of Life Inventory™ Generic Core Scales, Multidimensional Fatigue Scale, and cancer module Cancer 94 2090 2106 11932914 10.1002/cncr.10428 (Pubitemid 34270065)
9. ML McCarthy EJ MacKenzie DR Durbin ME Aitken KM Jaffe CN Paidas BS Slomine AM Dorsch RA Berk JR Christensen R Ding 2005 The Pediatric Quality of Life Inventory: An evaluation of its reliability and validity for children with traumatic brain injury Archives of Physical Medicine and Rehabilitation 86 1901 1909 16213229 10.1016/j.apmr.2005.03.026 (Pubitemid 41423615)
10. Y Suchy 2009 Executive functioning: Overview, assessment, and research issues for non-neuropsychologists Annals of Behavioral Medicine 37 106 116 19455377 10.1007/s12160-009-9097-4
11. JW Varni TM Burwinkle IS Szer 2004 The PedsQL™ Multidimensional Fatigue Scale in pediatric rheumatology: Reliability and validity Journal of Rheumatology 31 2494 2500 15570657 (Pubitemid 39603103)
12. SN Palmer KA Meeske ER Katz TM Burwinkle JW Varni 2007 The PedsQL™ brain tumor module: Initial reliability and validity Pediatric Blood & Cancer 49 287 293 10.1002/pbc.21026 (Pubitemid 47236218)
13. JI Gold NE Mahrer J Yee TM Palermo 2009 Pain, fatigue, and health-related quality of life in children and adolescents with chronic pain Clinical Journal of Pain 25 407 412 19454874 10.1097/AJP.0b013e318192bfb1
14. JW Varni CA Limbers WP Bryant DP Wilson 2009 The PedsQL™ Multidimensional Fatigue Scale in type 1 diabetes: Feasibility, reliability, and validity Pediatric Diabetes 10 321 328 19067887 10.1111/j.1399-5448.2008.00482. x
15. JW Varni CA Limbers WP Bryant DP Wilson 2010 The PedsQL™ Multidimensional Fatigue Scale in pediatric obesity: Feasibility, reliability, and validity International Journal of Pediatric Obesity 5 34 42 19593727 10.3109/17477160903111706
16. JW Varni TM Burwinkle CA Limbers IS Szer 2007 The PedsQL™ as a patient-reported outcome in children and adolescents with fibromyalgia: An analysis of OMERACT domains Health and Quality of Life Outcomes 5 9 1 12 17201920 10.1186/1477-7525-5-1 (Pubitemid 46201470)
17. SB Marcus JA Strople K Neighbors J Weissberg-Benchell SP Nelson CA Limbers JW Varni EM Alonso 2009 Fatigue and health-related quality of life in pediatric inflammatory bowel disease Clinical Gastroenterology and Hepatology 7 554 561 19418604 10.1016/j.cgh.2009.01.022
18. WS MacAllister C Christodoulou R Troxell M Milazzo P Block TE Preston HA Bender A Belman LB Krupp 2009 Fatigue and quality of life in pediatric multiple sclerosis Multiple Sclerosis 15 1502 1508 19965517 10.1177/1352458509345902
19. EK Paulsen LS Friedman LM Myers DR Lynch 2010 Health-related quality of life in children with Friedreich ataxia Pediatric Neurology 42 335 337 20399387 10.1016/j.pediatrneurol.2010.01.002
20. C Dampier S Lieff P Lebeau S Rhee M McMurray Z Rogers K Smith-Whitley W Wang 2010 Health-related quality of life in children with sickle cell disease: A report from the comprehensive sickle cell centers clinical trial consortium Pediatric Blood & Cancer 55 485 494 10.1002/pbc.22497
21. CA Limbers RW Heffer JW Varni 2009 Health-related quality of life and cognitive functioning from the perspective of parents of school-aged children with Asperger's Syndrome utilizing the PedsQL™ Journal of Autism and Developmental Disorders 39 1529 1541 19526334 10.1007/s10803-009-0777-5
22. PM Fayers DJ Hand 1997 Factor analysis, causal indicators and quality of life Quality of Life Research 6 139 150 9161114 1:STN:280:DyaK2szgsVyisg%3D%3D (Pubitemid 27207279)
23. CL Rubenstein JW Varni ER Katz 1990 Cognitive functioning in long-term survivors of childhood leukemia: A prospective analysis Journal of Developmental and Behavioral Pediatrics 11 301 305 2289962 10.1097/00004703-199012000-00004 1:STN:280:DyaK3M7kslGltw%3D%3D
24. DR Copeland 1992 Neuropsychological and psychosocial effects of childhood leukemia and its treatment CA-A Cancer Journal for Clinicians 42 283 295 1515967 10.3322/canjclin.42.5.283 1:STN:280:DyaK38zos1emsw%3D%3D
25. RK Mulhern J Hancock D Fairclough L Kun 1992 Neuropsychological status of children treated for brain tumors: A critical review and integrative analysis Medical and Pediatric Oncology 20 181 191 1574027 10.1002/mpo.2950200302 1:STN:280:DyaK383ksVWhtA%3D%3D
26. AT Meadows DJ Massari J Fergusson 1981 Declines in IQ scores and cognitive dysfunctions in children with acute lymphocytic leukemia treated with cranial irradiation Lancet 2 1015 1018 6118478 10.1016/S0140-6736(81)91216-2 1:STN:280:DyaL38%2FnvFCktw%3D%3D (Pubitemid 11027578)
27. JW Varni M Seid PS Kurtin 2001 PedsQL™ 4.0: Reliability and validity of The Pediatric Quality of Life Inventory™ version 4.0 Generic Core Scales in healthy and patient populations Medical Care 39 800 812 11468499 10.1097/00005650-200108000-00006 1:STN:280:DC%2BD3MvitVGgtw%3D%3D (Pubitemid 33686263)
28. CA McHorney M Kosinski JE Ware 1994 Comparisons of the costs and quality of norms for the SF-36 Health Survey collected by mail versus telephone interview: Results from a national survey Medical Care 32 551 567 8189774 10.1097/00005650-199406000-00002 1:STN:280:DyaK2c3kslSisg%3D%3D
29. DL Fairclough DF Cella 1996 Functional assessment of cancer therapy (FACT-G): Non-response to individual questions Quality of Life Research 5 321 329 8763800 10.1007/BF00433916 1:STN:280:DyaK28zitFOltQ%3D%3D (Pubitemid 26228465)
30. Gioia, G. A., Isquith, P. K., Guy, S. C., & Kenworthy, L. (2000). Behavior rating inventory of executive function. Odessa, FL: Psychological Assessment Resources.
31. HW Sesma BS Slomine R Ding ML McCarthy 2008 Executive functioning in the first year after pediatric traumatic brain injury Pediatrics 121 e1686 e1695 18519472 10.1542/peds.2007-2461
32. CA McHorney JE Ware JFR Lu CD Sherbourne 1994 The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups Medical Care 32 40 66 8277801 10.1097/00005650-199401000-00004 1:STN:280:DyaK2c7gsVeltQ%3D%3D
33. LJ Cronbach 1951 Coefficient alpha and the internal structure of tests Psychometrika 16 297 334 10.1007/BF02310555
34. Nunnally, J. C., & Bernstein, I. R. (1994). Psychometric theory (3rd ed.). New York: McGraw-Hill.
35. CA McHorney JE Ware AE Raczek 1993 The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs Medical Care 31 247 263 8450681 10.1097/00005650-199303000-00006 1:STN:280:DyaK3s7ps1antA%3D%3D
36. Cohen, J. (1988). Statistical Power Analysis for the Behavioral Sciences (2nd ed.). Hillsdale, NJ: Erlbaum.
37. Pedhazur, E. J., & Schmelkin, L. P. (1991). Measurement, design, and analysis: An integrated approach. Hillsdale, NJ: Erlbaum.
38. KO McGraw SP Wong 1996 Forming inferences about some intraclass correlation coefficients Psychological Methods 1 30 46 10.1037/1082-989X.1.1.30 (Pubitemid 126421252)
39. KA Wilson AJ Dowling M Abdolell IF Tannock 2001 Perception of quality of life by patients, partners and treating physicians Quality of Life Research 9 1041 1052 10.1023/A:1016647407161
40. SPSS. (2008). SPSS 16.0 for windows. Chicago: SPSS, Inc.
41. P Upton J Lawford C Eiser 2008 Parent-child agreement across child health-related quality of life instruments: A review of the literature Quality of Life Research 17 895 913 18521721 10.1007/s11136-008-9350-5
42. C Eiser R Morse 2001 Can parents rate their child's health-related quality of life?: Results from a systematic review Quality of Life Research 10 347 357 11763247 10.1023/A:1012253723272 1:STN:280:DC%2BD38%2FjsVymtQ%3D%3D (Pubitemid 33079013)
43. JW Varni CA Limbers TM Burwinkle 2007 Parent proxy-report of their children's health-related quality of life: An analysis of 13, 878 parents' reliability and validity across age subgroups using the PedsQL™ 4.0 Generic Core Scales Health and Quality of Life Outcomes 5 2 1 10 17201920 10.1186/1477-7525-5-1 (Pubitemid 46201470)
44. JW Varni TM Burwinkle M Seid 2006 The PedsQL™ 4.0 as a school population health measure: Feasibility, reliability, and validity Quality of Life Research 15 203 215 16468077 10.1007/s11136-005-1388-z (Pubitemid 43230112)
45. DA Newman CA Limbers JW Varni 2010 Factorial invariance of child self-report across English and Spanish language groups in a Hispanic population utilizing the PedsQL™ 4.0 Generic Core Scales European Journal of Psychological Assessment 26 194 202 10.1027/1015-5759/a000026
46. JW Varni M Seid CA Rode 1999 The PedsQL™: Measurement model for The Pediatric Quality of Life Inventory Medical Care 37 126 139 10024117 10.1097/00005650-199902000-00003 1:STN:280:DyaK1M7ks1OhsA%3D%3D