Dignified death: Concept development involving nurses and doctors in pediatric intensive care units

Nursing Ethics

Volumn 18, Issue 5, 2011, Pages 694-709

  Poles, Kátia ^a   Bousso, Regina ^b  

^a University Center of Lavras (UNILAVRAS)   (Brazil)

^b UNIVERSITY OF SÃO PAULO   (Brazil)

Author keywords

concept development; dignified death; end of life decisions; hybrid model; nursing; pediatric intensive care; pediatrics

Indexed keywords

ARTICLE; BRAZIL; CHILD; CLINICAL PRACTICE; HUMAN; INTENSIVE CARE UNIT; MEDICAL STAFF; METHODOLOGY; NOMENCLATURE; NURSING PRACTICE; NURSING STAFF; QUALITATIVE RESEARCH; RIGHT TO DIE; TERMINAL CARE;

BRAZIL; CHILD; HUMANS; INTENSIVE CARE UNITS, PEDIATRIC; MEDICAL STAFF, HOSPITAL; NURSE'S PRACTICE PATTERNS; NURSING STAFF, HOSPITAL; PHYSICIAN'S PRACTICE PATTERNS; QUALITATIVE RESEARCH; RIGHT TO DIE; TERMINAL CARE; TERMINOLOGY AS TOPIC;

EID: 80052310381     PISSN: 09697330     EISSN: 14770989     Source Type: Journal    
DOI: 10.1177/0969733011408043     Document Type: Article

References (48)

1. Westphal DM and McKee SA End-of-life decision making in the intensive care unit: physician and nurse perspectives. Am J Med Qual 2009; 24(3): 222-8.
2. Giannini A., Messeri A., Aprile A.,et al.End-of-life decisions in pediatric intensive care. Recommendations of the Italian Society of Neonatal and Pediatric Anesthesia and Intensive Care (SARNePI). Paediatr Anaesth 2008; 18(11): 1089-95.
3. Castledine G. Death can be dignified. Br J Nurs 2007; 16(22): 1435.
4. Lago PM, Piva J., Garcia PC,et al.End-of-life practices in seven Brazilian pediatric intensive care units. Pediatr Crit Care Med 2008; 9(1): 26-31.
5. Kipper DJ, Piva JP, Garcia PC,et al.The medical practices and modes of death on pediatric intensive care units in southern Brazil. Pediatr Crit Care Med 2005; 6(3): 258-63.
6. Devictor D., Latour JM and Tissières P. Forgoing life-sustaining or death-prolonging therapy in the PICU. Pediatr Clin North Am 2008; 55(3): 791-804.
7. Moore P., Kerridge I., Gillis J.,et al.Withdrawal and limitation of life-sustaining treatments in a paediatric intensive care unit and review of the literature. J Paediatr Child Health 2008; 44(7-8): 404-8.
8. Zamperetti N., Bellomo R. and Ronco C. Bioethical aspects of end-of-life care. Eur J Anaesthesiol Suppl 2008; 42: 51-7.
9. Heijkenskjöld KB, Ekstedt M. and Lindwall L. The patient's dignity from the nurse's perspective. Nurs Ethics 2010; 17(3): 313-24.
10. Chochinov HM, Hack T., McClement S.,et al.Dignity in the terminally ill: a developing empirical model. Soc Sci Med 2002; 54(3): 433-43.
11. Ternestedt BM, Andershed B., Eriksson M. and Johansson I. A good death: development of a nursing model of care. J Hosp Palliat Nurs 2002; 4(3): 153-60.
12. Casanueva Mateos LC, Ruiz LP, Sánchez DJI,et al.End-of-life care in the pediatric intensive care unit. A literature review. An Pediatr (Barc) 2005; 63(2): 152-9.
13. Papadatou D., Bellali T., Papazoglou I. and Petraki D. Greek nurses and physicians grief as a result of caring for children dying of cancer. Pediatr Nurs 2002; 28(4): 345-53.
14. Rodgers BL and Knafl KA Introduction to concept development in nursing. In: Rodgers BL and Knafl KA (eds). Concept development in nursing, second edition. Philadelphia, PA: Saunders Company, 2000, p.1-6.
15. Hopkinson J. and Hallett C. Good death? An exploration of newly qualified nurses' understanding of good death. Int J Palliat Nurs 2002; 8(11): 532-9.
16. Schwartz-Barcott D. and Kim HS An expansion and elaboration of the Hybrid Model of Concept Development. In: Rodgers BL and Knafl KA (eds). Concept development in nursing, second edition. Philadelphia, PA: Saunders Company, 2000, p.129-59.
17. Bracegirdle KE A time to die: withdrawal of pediatric intensive care. Br J Nurs 1994; 3(10): 513-7.
18. Garros D. A 'good' death in a PICU: is it possible? J Pediatr (Rio J) 2003; 79(suppl 2): S243-54.
19. Salas Arrambide MS, Poc OG, Miravete JLM,et al.The pediatrician and child death: integration of palliative care in the pediatric intensive care unit. An Pediatr (Barc) 2005; 62(5): 450-7.
20. Vernon DD, Dean JM, Timmons OD,et al.Modes of death in the pediatric intensive care unit: withdrawal and limitation of supportive care. Crit Care Med 1993; 21(11): 1798-802.
21. Anderson B., McCall E., Leversha A. and Webster L. A review of children's dying in a paediatric intensive care unit. N Z Med J 1994; 107(985): 345-7.
22. Levetown M., Pollack MM, Cuerdon TT,et al.Limitations and withdrawals of medical intervention in pediatric critical care. JAMA 1994; 272(16): 1271-5.
23. Althabe M. Consensus on recommendations about vital support limitations in intensive care units. Arch Argent Pediatr 1999; 97(6): 411-15.
24. Carvalho PRA, Rocha TS, Santo AE and Lago P. Modes of death in PICU of a tertiary hospital. Rev Assoc Med Bras 2001; 47(4): 325-31.
25. Meyer EC, Burns JP, Griffith JL and Troug RD Parental perspectives on end-of-life in the pediatric intensive care unit. Crit Care Med 2002; 30(1): 226-31.
26. Garros D., Rosychuck R. and Cox P. Circumstances surrounding end-of-life in a pediatric intensive care unit. Pediatrics 2003; 112(5): e371-9.
27. Torreão LA, Pereira CR and Troster E. Ethical aspects in the management of the terminally ill patient in the pediatric intensive care unit. Rev Hosp Clin Fac Med Sao Paulo 2004; 59(1): 3-9.
28. Zawistowski CA and DeVita MA A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment. Pediatr Crit Care Med 2004; 5(3): 216-23.
29. Lago PM, Piva J., Kipper D.,et al.Life support limitation at three pediatric intensive care units in Southern Brazil. J Pediatr (Rio J) 2005; 81(2): 111-17.
30. Rotta AT End-of-Life care in pediatrics: much more than a fight against entropy. J Pediatr (Rio J) 2005; 81(2): 93-5.
31. Sharman M., Meert KL and Sarnaik AP What influences parents' decisions to limit or withdraw life support? Pediatr Crit Care Med 2005; 6(5): 513-8.
32. Tonelli HA, Mota JA and Oliveira JS A profile of the medical conduct preceding child death at a tertiary hospital. J Pediatr (Rio J) 2005; 81(2): 118-25.
33. Robinson MR, Thiel MM, Backus MM and Meyer EC Matters of spirituality at the end of life in the pediatric intensive care unit. Pediatrics 2006; 118(3): e719-29.
34. Lago PM, Garros D. and Piva JP Terminal ill children and end-of-life practices in the pediatric intensive care units. Rev Bras Ter Intensiva 2007; 19(3): 359-63.
35. Longden JV and Mayer AP Family involvement in end-of-life care in a paediatric intensive care unit. Nurs Crit Care 2007; 12(4): 181-7.
36. Martino Alba R., Casado Flores J. and Ruiz Díaz MA Attitudes and needs of pediatric intensivists in relation to the death of their patients. An Pediatr (Barc) 2007; 66(4): 351-6.
37. Inwald D. The best interests test at the end of life on PICU: a plea for a family centred approach. Arch Dis Child 2008; 93(3): 248-50.
38. Tagarro García A., Dorao Martínez-Romillo P., Moraleda S.,et al.End-of-life care in a Spanish Pediatric Intensive Care Unit: staff and parental evaluation. An Pediatr (Barc) 2008; 68(4): 346-52.
39. Burns JP, Mitchell C., Outwater KM,et al.End-of-life in pediatric intensive care unit after forgoing of life-sustaining treatment. Crit Care Med 2000; 28(8): 3060-6.
40. Meert KL, Thurston CS and Sarnaik AP End-of-life decision-making and satisfaction with care: parental perspectives. Pediatr Crit Care Med 2000; 1(2): 179-85.
41. Meert KL, Thurston CS and Thomas R. Parental coping and bereavement outcome after death of a child in the pediatric intensive care unit. Pediatr Crit Care Med 2001; 2(4): 324-8.
42. Meert KL, Thurston CS and Briller SH The spiritual needs of parents at the time of their child's death in the pediatric intensive care unit and during bereavement: a qualitative study. Pediatr Crit Care Med 2005; 6(4): 420-7.
43. Matthews K., Gambles M., Ellershaw JE,et al.Developing the Liverpool Care Pathway for the dying child. Paediatr Nurs 2006; 18(1): 18-21.
44. Meert KL, Eggly S., Pollack M.,et al.Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit. J Pediatr 2007; 151(1): 50-2.
45. Althabe M., Cardigni G., Vassallo JC,et al.Dying in intensive care unit: collaborative multicenter study about forgoing life-sustaining treatment in Argentine pediatric intensive care units. Pediatr Crit Care Med 2003; 4(2): 164-9.
46. Rodgers BL Concepts, analysis, and the development of nursing knowledge: the evolutionary cycle. J Adv Nurs 1989; 14(4): 330-5.
47. Angen MJ Evaluating interpretive inquiry: reviewing the validity debate and opening the dialogue. Qual Health Res 2000; 10(3): 378-95.
48. Chinn PL and Kramer MK Replicating and validating empiric knowledge using research. In: Chinn PL and Kramer MK (eds). Integrated knowledge development in nursing, sixth edition. St Louis, MO: Mosby, 2004, p.121-43.