Reflections on being a recipient of care: Vexing the concept of vulnerability;Réflexions sur la réception du soin: En contrariant le concept de la vulnérabilite

Social and Cultural Geography

Volumn 12, Issue 6, 2011, Pages 573-588

  Wiles, Janine ^a  

^a UNIVERSITY OF AUCKLAND   (New Zealand)

Author keywords

Care; Care recipients; Older people; Spatiality of care; Vulnerability

Indexed keywords

CONCEPTUAL FRAMEWORK; ELDERLY CARE; HEALTH CARE; PSYCHOLOGY; VULNERABILITY;

EID: 80052194340     PISSN: 14649365     EISSN: 14701197     Source Type: Journal    
DOI: 10.1080/14649365.2011.601237     Document Type: Article

References (93)

1. Abel, E.K. (1990) Informal care for the disabled elderly: a critique of recent literature, Research on Aging 12: 139-157.
2. Adey, P. (2009) Holding still: the private life of an air-raid, m/c journal: A Journal of Media and Culture 12(1).
3. Albertini, M., Kohli, M. and Vogel, C. (2007) Transfers of time and money in European families: common patterns, different regimes?, Journal of European Social Policy 17: 319-344.
4. Allen, R.E.S. (2009) It works both ways: experiences and expectations of support amongst childless older New Zealanders, paper, New Zealand Association of Gerontology and Age Concern Conference, Wellington, 7-9 October.
5. Angus, J. and Reeve, P. (2006) Ageism: a threat to aging well in the 21st century, Journal of Applied Gerontology 25: 137-152.
6. Angus, J., Kontos, P.C., Dyck, I., McKeever, P. and Poland, B. (2005) The personal significance of home: habitus and the experience of receiving long-term home care, Sociology of Health & Illness 27: 161-187.
7. Aronson, J. (1990) Women's perspectives on informal care of the elderly: public ideology and personal experience of giving and receiving care, Ageing & Society 10: 61-84.
8. Bar David, G. (1999) Three phase development of caring capacity in primary caregivers for relatives with Alzheimer's disease, Journal of Aging Studies 13: 177-197.
9. Barker, J. (2002) Neighbors, friends, and other nonkin caregivers of community-living dependent elders, The Journals of Gerontology Series B: Psychological Sciences and Behavioural Sciences 57: S158-S167.
10. Barusch, A.S. and Spaid, W.M. (1989) Gender differences in caregiving: why do wives report greater burden?, The Gerontologist 29: 667-676.
11. Beard, R.L., Knauss, J. and Moyer, D. (2009) Managing disability and enjoying life: how we reframe dementia through personal narratives, Journal of Aging Studies 23: 227-236.
12. Biggs, S., Bernard, M., Kingston, P. and Nettleton, H. (2000) Lifestyles of belief: narrative and culture in a retirement community, Ageing & Society 20: 649-672.
13. Brown, M. (2003) Hospice and the spatial paradoxes of terminal care, Environment and Planning A 35: 833-851.
14. Cartier, C. (2003) From home to hospital and back again: economic restructuring, end of life, and the gendered problems of place-switching health services, Social Science and Medicine 56: 2289-2301.
15. Chappell, N.L. and Reid, R.C. (2002) Generalized wellbeing as an outcome of caregiving: a path analysis, The Gerontologist 42: 772-780.
16. Clark, N. (2007) Living through the tsunami: vulnerability and generosity on a volatile earth, Geoforum 38: 1127-1139.
17. Clarke, C. (1999) Commentary (on Lyons and Zarit 1999 'Formal and informal support: the great divide'), International Journal of Geriatric Psychiatry 14: 194-196.
18. Cloutier-Fisher, D. and Joseph, A. (2000) Long-term care restructuring in rural Ontario: retrieving community service user and provider narratives, Social Science and Medicine 50: 1037-1045.
19. Coe, M. and Neufeld, A. (1999) Male caregivers' use of formal support, Western Journal of Nursing Research 21: 568-588.
20. Conradson, D. (2003) Geographies of care: spaces, practices, experiences, Social & Cultural Geography 4: 451-454.
21. Cutchin, M.P. (2005) Spaces for inquiry into the role of place for older people's care, Journal of Clinical Nursing 14(Suppl 2): 121-129.
22. Dorn, M. (1998) Beyond nomadism: the travel narratives of a cripple, in Nast, H.J. and Pile, S. (eds) Places Through the Body. London: Routledge, pp. 183-206.
23. Duggleby, W., Holtslander, L., Kylma, J., Duncan, V., Hammond, C. and Williams, A. (2010) Metasynthesis of the hope experience of family caregivers of persons with chronic illness, Qualitative Health Research 20: 148-158.
24. Dyck, I., Kontos, P., Angus, J. and McKeever, P. (2005) The home as a site for long-term care: meanings and management of bodies and spaces, Health and Place 11: 173-185.
25. Finch, J. and Mason, J. (1990) Filial obligations and kin support for elderly people, Ageing & Society 10: 151-175.
26. Fine, M. and Glendinning, C. (2005) Dependence, independence, or inter-dependence? Revisiting the concepts of 'care' and 'dependency', Ageing & Society 25: 602-621.
27. Frank, A.W. (2001) Can we research suffering?, Qualitative Health Research 11: 353-362.
28. Gardiner, J. (1997) Gender, Care and Economics. London: Macmillan Press.
29. Gee, E. and Gutman, G. (eds) (2000) The Overselling of Population Aging: Apocalyptic Demography, Intergenerational Challenges, and Social Policy. Toronto: Oxford University Press.
30. Glendinning, C. (1990) Dependency and interdependency: the incomes of informal carers and the impact of social security, Journal of Social Policy 19: 469-497.
31. Glendinning, C., Halliwell, S., Jacobs, S., Rummery, K. and Tyrer, J. (2000) New kinds of care, new kinds of relationships: how purchasing services affects relationships in giving and receiving personal assistance, Health and Social Care in the Community 8: 201-211.
32. Glendinning, C., Schunk, M. and McLaughlin, E. (1997) Paying for long-term domiciliary care: a comparative perspective, Ageing & Society 17: 123-140.
33. Graham, H. (1991) The concept of caring in feminist research: the case of domestic service, Sociology 25: 61-78.
34. Grenier, A.M. (2005) The contextual and social locations of older women's experiences of disability and decline, Journal of Aging Studies 19: 131-146.
35. Grenier, A.M. (2006) The distinction between being and feeling frail: exploring emotional experiences in health and social care, Journal of Social Work Practice 20: 299-313.
36. Harré, R. and van Langenhove, L. (eds) (1999) Positioning Theory: Moral Contexts of Intentional Action. Oxford: Blackwell.
37. Harrison, P. (2008) Corporeal remains: vulnerability, proximity, and living on after the end of the world, Environment and Planning A 40: 423-445.
38. Health Canada (2002) National Profile of Family Caregivers in Canada-2002: Final Report. Ottawa: Decima Research.
39. Held, V. (2006) The Ethics of Care: Personal, Political, and Global. New York: Oxford University Press.
40. Hughes, B., McKie, L., Hopkins, D. and Watson, N. (2005) Love's labours lost? Feminism, the disabled people's movement and an ethic of care, Sociology 39: 259-275.
41. Hurd, L.C. (1999) We're not old! Older women's negotiation of aging and oldness, Journal of Aging Studies 13: 419-439.
42. Johansson, L., Sundström, G. and Hassing, L. (2003) State provision down, offspring's up: the reverse substitution of old-age care in Sweden, Ageing & Society 23: 269-280.
43. Jones, R. (2002) That's very rude, I shouldn't be telling you that: older women talking about sex, Narrative Inquiry 12: 121-144.
44. Jones, R. (2006) 'Older people' talking as if they were not older people: positioning theory as an explanation, Journal of Aging Studies 20: 79-91.
45. Kittay, E.F. (2001) When caring is just and justice is caring: justice and mental retardation, Public Culture 13: 557-579.
46. Larragy, J.F. (1993) Formal service provision and the care of the elderly at home in Ireland, Journal of Cross Cultural Gerontology 8: 361-374.
47. Lawton, M.P. (1998) Environment and aging: theory revisited, in Scheidt, R. and Windley, P. (eds) Environment and Aging Theory: A Focus on Housing. New York: Springer, pp. 1-31.
48. Lewinter, M. (2003) Reciprocities in caregiving relationships in Danish elder care, Journal of Aging Studies 17: 357-377.
49. Litwin, H. (1998) The provision of informal support by elderly people residing in assisted living facilities, The Gerontologist 38: 239-246.
50. McIntyre, M. (2003) Dignity in dementia: person-centred care in community, Journal of Aging Studies 17: 473-484.
51. McKeever, P. (1999) Between women: nurses and family caregivers, Canadian Journal of Nursing Research 30: 185-191.
52. Meintel, D., Fortin, S. and Cognet, M. (2006) On the road and on their own: autonomy and giving in home health care in Quebec, Gender, Place and Culture 13: 563-580.
53. Milligan, C. (2000) 'Bearing the burden': towards a restructured geography of caring, Area 32: 49-58.
54. Milligan, C. (2003) Location or dis-location? Towards a conceptualization of people and place in the care-giving experience, Social & Cultural Geography 4: 471-488.
55. Milligan, C. (2009) There's No Place Like Home: People, Place, and Care in an Ageing Society. Aldershot: Ashgate.
56. Milligan, C. and Power, A. (2009) The changing geography of care, in Brown, T., McLafferty, S. and Moon, G. (eds) Companion to Medical and Health Geography. London: Blackwell, doi: 10.1002/9781444 314762.ch29.
57. Milligan, C. and Wiles, J.L. (2010) Landscapes of care, Progress in Human Geography 34: 736-754.
58. Minkler, M. and Robertson, A. (1991) The ideology of 'age/race wars': deconstructing a social problem, Ageing & Society 11: 1-22.
59. Morris, M., Robinson, J., Simpson, J., Galey, S., Kirby, S., Martin, L. and Muzychka, M. (1999) The Changing Nature of Home Care and its Impact on Women's Vulnerability to Poverty. Ottawa: Canadian Research Institute for the Advancement of Women (CRIAW).
60. Nakashima, M. and Canda, E.R. (2005) Positive dying and resiliency in later life: a qualitative study, Journal of Aging Studies 19: 109-125.
61. Parr, H. (2003) Medical geography: care and caring, Progress in Human Geography 27: 212-221.
62. Pearlin, L., Mullan, J., Semple, S. and Skaff, M. (1990) Caregiving and the stress process: an overview of concepts and their measures, The Gerontologist 30: 583-594.
63. Pinquart, M. and Sörensen, S. (2003) Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis, The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 58: P112-P128.
64. Popke, J. (2006) Geography and ethics: everyday mediations through care and consumption, Progress in Human Geography 30: 504-512.
65. Power, A. (2010) The geographies of interdependence in the lives of people with intellectual disabilities, in Chouinard, V., Hall, E. and Wilton, R.D. (eds) Towards Enabling Geographies: 'Disabled' Bodies and Minds in Society and Space. Aldershot: Ashgate.
66. Qureshi, H. and Walker, A. (1989) The Caring Relationship: Elderly People and Their Families. Basingstoke: Macmillan.
67. Robison, J., Fortinsky, R., Kleppinger, A., Shugrue, N. and Porter, M. (2009) A broader view of family caregiving: effects of caregiving and caregiver conditions on depressive symptoms, health, work, and social isolation, The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 64B: 788-798.
68. Rubinstein, R.L. (1989) Themes in the meaning of caregiving, Journal of Aging Studies 3: 119-138.
69. Seltzer, M.M. and Li, L.W. (2000) The dynamics of caregiving: transitions during a three-year prospective study, The Gerontologist 40: 165-178.
70. Skaff, M., Pearlin, L.I. and Mullan, J.T. (1996) Transitions in the caregiving career: effects on sense of mastery, Psychology and Aging 11: 247-257.
71. Son, J., Erno, A., Shea, D.G., Femia, E.E., Zarit, S.H. and Stephens, M.A.P. (2007) The caregiver stress process and health outcomes, Journal of Aging and Health 19: 871-887.
72. Svenhuijsen, S. (1998) Citizenship and the Ethics of Care. London: Routledge.
73. Tauiliili, D., Delva, J. and Browne, C. (2001) A study of attitudes toward aging and caregiving patterns among Samoan families in Hawaii, Journal of Family Social Work 6: 1-14.
74. Thomas, C. (2004) How is disability understood? An examination of sociological approaches, Disability & Society 19: 569-583.
75. Thomas-MacLean, R. (2002) Understanding breast cancer stories via Frank's narrative types, Social Science and Medicine 58: 1647-1657.
76. Tronto, J. (1993) Moral Boundaries: A Political Argument for an Ethic of Care. New York: Routledge.
77. Twigg, J. (1999) The spatial ordering of care: public and private in bathing support at home, Sociology of Health and Illness 21: 381-400.
78. Twigg, J. (2000) Bathing-The Body and Community Care. London: Routledge.
79. Twigg, J. (2004) The body, gender, and age: feminist insights in social gerontology, Journal of Aging Studies 18: 59-73.
80. Twigg, J. and Atkin, K. (1994) Carers Perceived: Policy and Practice in Informal Care. Buckingham and Philadelphia: Open University Press.
81. Ungerson, C. (1997) Social politics and the commodification of care, Social Politics 4: 362-381.
82. Ungerson, C. (2003) Commodified care work in European labour markets, European Societies 5: 377-396.
83. Ungerson, C. (2004) Whose empowerment and independence? A cross-national perspective on 'cash for care' schemes, Ageing & Society 24: 189-212.
84. Vannini, P. (2002) Waiting dynamics: Bergson, Virilio, Deleuze and the experience of global times, Journal of Mundane Behaviour 3(2): 193-208.
85. Watson, N., McKie, L., Hughes, B., Hopkins, D. and Gregory, S. (2004) (Inter)dependence, needs and care: the potential for disability and feminist theorists to develop an emancipatory model, Sociology 38: 331-350.
86. Wenger, G.C. (1987) Dependence, interdependence, and reciprocity after eighty, Journal of Aging Studies 1: 355-377.
87. Wenger, G.C. (1990) Elderly carers: the need for appropriate intervention, Ageing & Society 10: 197-219.
88. Wiles, J.L. (2003a) Daily geographies of caregivers: mobility, routine, scale, Social Science and Medicine 57: 1307-1325.
89. Wiles, J.L. (2003b) Informal caregivers' experiences of formal support in a changing context, Health and Social Care in the Community 11: 189-207.
90. Wiles, J.L. (2005) Conceptualising the importance of place in the care of older people: the role of geographical gerontology, International Journal of Nursing for Older People 14: 100-108.
91. Wiles, J.L. and Allen, R.E.S. (2010) Embodied ageing in place: what does it mean to grow old?, in Chouinard, V., Hall, E. and Wilton, R.D. (eds) Towards Enabling Geographies: 'Disabled' Bodies and Minds in Society and Space. Aldershot: Ashgate, pp. 217-236.
92. Wiles, J.L. and Rosenberg, M.W. (2003) Paradoxes and contradictions in Canada's home care provision: informal privatisation and private informalisation, International Journal of Canadian Studies 28(Fall): 63-89.
93. Zarit, S.H., Reever, K.E. and Bach-Peterson, J. (1980) Relatives of the impaired elderly: correlates of feelings of burden, The Gerontologist 20: 649-655.