Palliative Care and Hospice in Advanced Heart Failure

Progress in Cardiovascular Diseases

Volumn 54, Issue 2, 2011, Pages 168-178

  Lemond, Lisa ^a   Allen, Larry A ^a  

^a UNIVERSITY OF COLORADO   (United States)

Author keywords

Advanced heart failure; End of life; Hospice; Palliative care

Indexed keywords

BENZODIAZEPINE DERIVATIVE; DIPEPTIDYL CARBOXYPEPTIDASE INHIBITOR; DIURETIC AGENT; DOBUTAMINE; HYDRALAZINE; INOTROPIC AGENT; METHADONE; NITRIC ACID DERIVATIVE; NONSTEROID ANTIINFLAMMATORY AGENT; OPIATE DERIVATIVE; PLACEBO; SERTRALINE; TRICYCLIC ANTIDEPRESSANT AGENT;

ADVANCED HEART FAILURE; ARTICLE; CARDIAC PATIENT; CAREGIVER BURDEN; CONTINUOUS INFUSION; DEFIBRILLATOR; DEPRESSION; DOCTOR PATIENT RELATION; DRUG FATALITY; DYSPNEA; FLUID RETENTION; HEALTH CARE DELIVERY; HEART FAILURE; HOSPICE CARE; HUMAN; LEFT VENTRICULAR ASSIST DEVICE; META ANALYSIS (TOPIC); ORTHOSTATIC HYPOTENSION; PAIN; PALLIATIVE THERAPY; PATIENT CARE PLANNING; PROGNOSIS; QT PROLONGATION; RANDOMIZED CONTROLLED TRIAL (TOPIC); SIDE EFFECT; SODIUM RETENTION; TERMINAL CARE; XEROSTOMIA;

DELIVERY OF HEALTH CARE, INTEGRATED; DISEASE PROGRESSION; EVIDENCE-BASED MEDICINE; HEALTH SERVICES ACCESSIBILITY; HEART FAILURE; HOSPICE CARE; HUMANS; PALLIATIVE CARE; PROGNOSIS;

EID: 80052166815     PISSN: 00330620     EISSN: 18731740     Source Type: Journal    
DOI: 10.1016/j.pcad.2011.03.012     Document Type: Article

References (67)

1. Hunt S.A., Abraham W.T., Chin M.H., et al. 2009;Focused update incorporated into the ACC/AHA 2005 Guidelines for the Diagnosis and Management of Heart Failure in Adults A Report of the American College of Cardiology Foundation/American Heart Association Task Force on Practice Guidelines Developed in Collaboration With the International Society for Heart and Lung Transplantation. J Am Coll Cardiol 2009, 53:e1-e90.
2. Roger V.L., Go A.S., Lloyd-Jones D.M., et al. Heart disease and stroke statistics-2011 update: a report from the American Heart Association. Circulation 2011, 123(4):e18-e209.
3. Pantilat S.Z., Steimle A.E. Palliative care for patients with heart failure. JAMA 2004, 291:2476-2482.
4. Goodlin S.J. Palliative care in congestive heart failure. J Am Coll Cardiol 2009, 54:386-396.
5. Adler E.D., Goldfinger J.Z., Kalman J., et al. Palliative care in the treatment of advanced heart failure. Circulation 2009, 120:2597-2606.
6. Goebel J.R., Doering L.V., Shugarman L.R., et al. Heart failure: the hidden problem of pain. J Pain Symptom Manage 2009, 38:698-707.
7. Bekelman D.B., Rumsfeld J.S., Havranek E.P., et al. Symptom burden, depression, and spiritual well-being: a comparison of heart failure and advanced cancer patients. J Gen Intern Med 2009, 24:592-598.
8. Evangelista L.S., Sackett E., Dracup K. Pain and heart failure: unrecognized and untreated. Eur J Cardiovasc Nurs 2009, 8:169-173.
9. Wolinsky F.D., Smith D.M., Stump T.E., et al. The sequelae of hospitalization for congestive heart failure among older adults. J Am Geriatr Soc 1997, 45:558-563.
10. Harding R., Selman L., Beynon T., et al. Meeting the communication and information needs of chronic heart failure patients. J Pain Symptom Manage 2008, 36:149-156.
11. Allen L.A., Yager J.E., Funk M.J., et al. Discordance between patient-predicted and model-predicted life expectancy among ambulatory patients with heart failure. JAMA 2008, 299:2533-2542.
12. Silveira MJ, Kim SY, Langa KM: Advance directives and outcomes of surrogate decision making before death. N Engl J Med;362:1211-1218.
13. Higginson I.J., Sen-Gupta G.J. Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. J Palliat Med 2000, 3:287-300.
14. Olshansky B., Wood F., Hellkamp A.S., et al. Where patients with mild to moderate heart failure die: results from the Sudden Cardiac Death in Heart Failure Trial (SCD-HeFT). Am Heart J 2007, 153:1089-1094.
15. The Dartmouth Institute for Health Policy and Clinical Practice The Dartmouth Atlas Accessed November 30, 2010. http://www.dartmouthatlas.org.
16. Department of Health and Human Services, Centers for Medicare and Medicaid Services 42 CFR Part 418: Medicare and Medicaid programs: hospice conditions of participation; Final Rule. Fed Regist 2008, 73(109):32088-32220.
17. World Health Organization WHO definition of palliative care Accessed November 30, 2010. http://www.who.int/cancer/palliative/definition/en/.
18. Clark D. From margins to centre: a review of the history of palliative care in cancer. Lancet Oncol 2007, 8:430-438.
19. Dickstein K., Cohen-Solal A., Filippatos G., et al. ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2008: the Task Force for the Diagnosis and Treatment of Acute and Chronic Heart Failure 2008 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association of the ESC (HFA) and endorsed by the European Society of Intensive Care Medicine (ESICM). Eur Heart J 2008, 29:2388-2442.
20. Lindenfeld J., Albert N.M., Boehmer J.P., et al. HFSA 2010 Comprehensive heart failure practice guideline. J Card Fail 2010, 16:e1-e194.
21. Goodlin S.J., Hauptman P.J., Arnold R., et al. Consensus statement: palliative and supportive care in advanced heart failure. J Card Fail 2004, 10:200-209.
22. Lanken P.N., Terry P.B., Delisser H.M., et al. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med 2008, 177:912-927.
23. Levy W.C., Mozaffarian D., Linker D.T., et al. The Seattle Heart Failure Model: prediction of survival in heart failure. Circulation 2006, 113:1424-1433.
24. Gorodeski E.Z., Chu E.C., Chow C.H., et al. Application of the Seattle Heart Failure Model in ambulatory patients presented to an advanced heart failure therapeutics committee. Circ Heart Fail 2010, 3:706-714.
25. Huynh B.C., Rovner A., Rich M.W. Long-term survival in elderly patients hospitalized for heart failure: 14-year follow-up from a prospective randomized trial. Arch Intern Med 2006, 166:1892-1898.
26. Huynh B.C., Rovner A., Rich M.W. Identification of older patients with heart failure who may be candidates for hospice care: development of a simple four-item risk score. J Am Geriatr Soc 2008, 56:1111-1115.
27. A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT Principal Investigators. JAMA 1995, 274:1591-1598.
28. Teno J.M., Clarridge B.R., Casey V., et al. Family perspectives on end-of-life care at the last place of care. JAMA 2004, 291:88-93.
29. Teno J.M., Shu J.E., Casarett D., et al. Timing of referral to hospice and quality of care: length of stay and bereaved family members' perceptions of the timing of hospice referral. J Pain Symptom Manage 2007, 34:120-125.
30. Benedict C.R., Weiner D.H., Johnstone D.E., et al. Comparative neurohormonal responses in patients with preserved and impaired left ventricular ejection fraction: results of the Studies of Left Ventricular Dysfunction (SOLVD) Registry. The SOLVD Investigators. J Am Coll Cardiol 1993, 22:146A-153A.
31. Blinderman C.D., Homel P., Billings J.A., et al. Symptom distress and quality of life in patients with advanced congestive heart failure. J Pain Symptom Manage 2008, 35:594-603.
32. Hopp F.P., Thornton N., Martin L. The lived experience of heart failure at the end of life: a systematic literature review. Health Soc Work 2010, 35:109-117.
33. Rocker G., Horton R., Currow D., et al. Palliation of dyspnoea in advanced COPD: revisiting a role for opioids. Thorax 2009, 64:910-915.
34. Abernethy A.P., Currow D.C., Frith P., et al. Randomised, double blind, placebo controlled crossover trial of sustained release morphine for the management of refractory dyspnoea. BMJ 2003, 327:523-528.
35. Simon S,T., Higginson I.J., Booth S., et al. Benzodiazepines for the relief of breathlessness in advanced malignant and non-malignant diseases in adults. Cochrane Database Syst Rev 2010, CD007354.
36. Clemens K.E., Quednau I., Klaschik E. Use of oxygen and opioids in the palliation of dyspnoea in hypoxic and non-hypoxic palliative care patients: a prospective study. Support Care Cancer 2009, 17:367-377.
37. Rutledge T., Reis V.A., Linke S.E., et al. Depression in heart failure a meta-analytic review of prevalence, intervention effects, and associations with clinical outcomes. J Am Coll Cardiol 2006, 48:1527-1537.
38. O'Connor C.M., Jiang W., Kuchibhatla M., et al. Safety and efficacy of sertraline for depression in patients with heart failure: results of the SADHART-CHF (Sertraline Against Depression and Heart Disease in Chronic Heart Failure) trial. J Am Coll Cardiol 2010, 56:692-699.
39. Goodlin S.J., Wingate S., Houser J.L., et al. How painful is advanced heart failure? Results from PAIN-HF. J Card Fail 2008, 14(6S):S106.
40. Setoguchi S., Glynn R.J., Stedman M., et al. Hospice, opiates, and acute care service use among the elderly before death from heart failure or cancer. Am Heart J 2010, 160:139-144.
41. Krantz M.J., Martin J., Stimmel B., et al. QTc interval screening in methadone treatment. Ann Intern Med 2009, 150:387-395.
42. Page J., Henry D. Consumption of NSAIDs and the development of congestive heart failure in elderly patients: an underrecognized public health problem. Arch Intern Med 2000, 160:777-784.
43. Quill T.E. Perspectives on care at the close of life. Initiating end-of-life discussions with seriously ill patients: addressing the "elephant in the room". JAMA 2000, 284:2502-2507.
44. Steinhauser K.E., Christakis N.A., Clipp E.C., et al. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000, 284:2476-2482.
45. Weissman D.E. Decision making at a time of crisis near the end of life. JAMA 2004, 292:1738-1743.
46. Krumholz H.M., Phillips R.S., Hamel M.B., et al. Resuscitation preferences among patients with severe congestive heart failure: results from the SUPPORT project. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Circulation 1998, 98:648-655.
47. Stevenson L.W., Hellkamp A.S., Leier C.V., et al. Changing preferences for survival after hospitalization with advanced heart failure. J Am Coll Cardiol 2008, 52:1702-1708.
48. MacIver J., Rao V., Delgado D.H., et al. Choices: a study of preferences for end-of-life treatments in patients with advanced heart failure. J Heart Lung Transplant 2008, 27:1002-1007.
49. Goldfinger J.Z., Adler E.D. End-of-life options for patients with advanced heart failure. Curr Heart Fail Rep 2010, 7:140-147.
50. Thackray S., Easthaugh J., Freemantle N., et al. The effectiveness and relative effectiveness of intravenous inotropic drugs acting through the adrenergic pathway in patients with heart failure-a meta-regression analysis. Eur J Heart Fail 2002, 4:515-529.
51. Oliva F., Latini R., Politi A., et al. Intermittent 6-month low-dose dobutamine infusion in severe heart failure: DICE multicenter trial. Am Heart J 1999, 138:247-253.
52. Hauptman P.J., Mikolajczak P., George A., et al. Chronic inotropic therapy in end-stage heart failure. Am Heart J 2006, 152:1096.e1-1096.e8.
53. Hammill S.C., Kremers M.S., Stevenson L.W., et al. Review of the Registry's second year, data collected, and plans to add lead and pediatric ICD procedures. Heart Rhythm 2008, 5:1359-1363.
54. Padeletti L., Arnar D.O., Boncinelli L., et al. EHRA Expert Consensus Statement on the management of cardiovascular implantable electronic devices in patients nearing end of life or requesting withdrawal of therapy. Europace 2010, 12:1480-1489.
55. Kelley A.S., Reid M.C., Miller D.H., et al. Implantable cardioverter-defibrillator deactivation at the end of life: a physician survey. Am Heart J 2009, 157:702-708.e1.
56. Hauptman P.J., Swindle J., Hussain Z., et al. Physician attitudes toward end-stage heart failure: a national survey. Am J Med 2008, 121:127-135.
57. Goldstein N., Carlson M., Livote E., et al. Brief communication: management of implantable cardioverter-defibrillators in hospice: a nationwide survey. Ann Intern Med 2010, 152:296-299.
58. Slaughter MS, Pagani FD, Rogers JG, et al: Clinical management of continuous-flow left ventricular assist devices in advanced heart failure. J Heart Lung Transplant 29:S1-S39.
59. Long J.W., Healy A.H., Rasmusson B.Y., et al. Improving outcomes with long-term "destination" therapy using left ventricular assist devices. J Thorac Cardiovasc Surg 2008, 135:1353-1360. [discussion 1360-1].
60. Slaughter M.S., Rogers J.G., Milano C.A., et al. Advanced heart failure treated with continuous-flow left ventricular assist device. N Engl J Med 2009, 361:2241-2251.
61. Rush BS, Budge D, Alharethi R, et al: End-of-life decision making and implementation in recipients of a destination left ventricular assist device. J Heart Lung Transplant 29:1337-1341.
62. Rizzieri A.G., Verheijde J.L., Rady M.Y., et al. Ethical challenges with the left ventricular assist device as a destination therapy. Philos Ethics Humanit Med 2008, 3:20.
63. Wingate S.J., Goodlin S.J. Where's the data? Heart failure admissions to hospice. Journal of cardiac failure 2006, 12:S124.
64. Berry J.I. Hospice and heart disease: missed opportunities. J Pain Palliat Care Pharmacother 2010, 24:23-26.
65. Thomas J.M., O'Leary J.R., Fried T.R. Understanding their options: determinants of hospice discussion for older persons with advanced illness. J Gen Intern Med 2009, 24:923-928.
66. Unroe K.T., Greiner M.A., Hernandez A.F., et al. Resource use in the last 6 months of life among Medicare beneficiaries with heart failure, 2000-2007. Arch Intern Med 2011, 171:196-203.
67. Kaul P., McAlister F.A., Ezekowitz J.A., et al. Resource use in the last 6 months of life among patients with heart failure in Canada. Arch Intern Med 2011, 171:211-217.