What's so big about the 'little things': A phenomenological inquiry into the meaning of spiritual care in dementia

Dementia

Volumn 10, Issue 3, 2011, Pages 399-414

  Carr, Tracy J ^a   Hicks Moore, Sandee ^a   Montgomery, Phyllis ^b  

^a UNIVERSITY OF NEW BRUNSWICK   (Canada)

^b LAURENTIAN UNIVERSITY   (Canada)

Author keywords

dementia; phenomenology; spiritual care

Indexed keywords

EID: 79960584537     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301211408122     Document Type: Article

References (61)

1. Aggarwal, N., Vass, A.A., Minardi, H.A., Ward, R., Garfield, C., & Cybyk, B. (2003). People with dementia and their relative: Personal experiences of Alzheimer's and of the provision of care. Journal of Psychiatric and Mental Health Nursing, 10, 187-197.
2. Ambert, A.M., & Adler, P.A. (1995). Understanding and evaluating qualitative research. Journal of Marriage and Family, 57(4), 879-894.
3. Appelin, G., & Bertero, C. (2004). Patients' experiences of palliative care in the home: A phenomenological study of a Swedish sample. Cancer Nursing, 27(1), 65-70.
4. Bell, V., & Troxel, D. (2001). Spirituality and the person with dementia - a view from the field. Alzheimer's Care Quarterly, 2(2), 31-45.
5. Boero, M.E., Caviglia, M.L., Monteverdi, R., Braida, V., Fabello, M., & Zorzella, L.M. (2005). Spirituality of health workers: A descriptive study. International Journal of Nursing Studies, 42(8), 915-921.
6. Carroll, B. (2001). A phenomenological exploration of the nature of spirituality and spiritual care. Mortality, 6(1), 81-98.
7. Carr, T. (2003). The spirit of Nursing: Ghost of our past or force for our future? In M. R. McIntyre &, & E. H. Thomlinson (Eds.), Realities of Canadian nursing: Professional, practice and power issues (pp. 470-492). Philadelphia, PE: Lippincott, Williams & Wilkins.
8. Carr, T. (2008). Mapping the processes and qualities of spiritual nursing care. Qualitative Health Research, 18(5), 686-700.
9. Como, J.M. (2007). Spiritual practice: A literature review related to spiritual health and health outcomes. Holistic Nursing Practice, 21(5), 224-236.
10. Daaleman, T.P., Kuckelman Cobb, A., & Frey, B.B. (2001). Spirituality and well-being: An exploratory study of the patient perspective. Social Science and Medicine, 53 1503-1511.
11. Demerath, N.J. (2000). Varieties of sacred experience: Finding the sacred in a secular grove. Journal for the Scientific Study of Religion, 39(1), 1-11.
12. Dunn, D. (2004). Hearing the story: Spiritual challenges for the ageing in an acute mental health unit. In Jewell Albert (Ed.), Ageing, Spirituality and Well-Being (pp. 153-160). London: Jessica Kingsley.
13. Farran, C.J., Paun, O., & Elliott, M.H. (2003). Spirituality in multicultural caregivers of persons with dementia. Dementia, 2(3), 353-37.
14. Faver, C.A. (2001). Rights, responsibility, and relationship: Motivations for women's social activism. Affilia: Journal of Women & Social Work, 16(3), 314-336.
15. Folstein, M.F., Folstein, S.E., & McHugh, P.R. (1975). Mini-mental state: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
16. Gilligan, C. (1982). In a different voice: Psychological theory and women's development. Cambridge, MA: Harvard University Press.
17. Goodley, D. (1996). Tales of hidden lives: A critical examination of life history research with people who have learning difficulties. Disability & Society, 11(3), 333-348.
18. Grant, D. (2004). Spiritual interventions: How, when, and why nurses use them. Holistic Nursing Practice, 18(1), 36-41.
19. Harmer, B., & Orrell, M. (2008). What is meaningful activity for people with dementia living in care homes? A comparison of the views of older people with dementia, staff and family carers. Aging and Mental Health, 12(5), 548-558.
20. Hicks-Moore, S.L. (2005). Relaxing music at mealtime in nursing homes: Effects on agitated patients with dementia. Journal of Gerontological Nursing, 31(12) 26-32.
21. Hicks-Moore, S.L., & Robinson, B.A. (2008). Favorite music and hand massage: Two interventions to decrease agitation in residents with dementia. Dementia, 7(1), 95-108.
22. Jonas-Simpson, C., Mitchell, G.J., Fisher, A., Jones, G., & Linscott, J. (2006). The experience of being listened to: A qualitative study of older adults in long-term care settings. Journal of Gerontological Nursing, 32(1), 46-53.
23. Katsuno, T. (2003). Personal spirituality of persons with early-stage dementia: Is it related to perceived quality of life. Dementia, 2(3), 315-335.
24. Keller, J. (1996). Care ethics as a health care ethic. Contexts: A Forum for the Medical Humanities, 4(4). Retrieved October 27, 2008 from: http://www.uhmc.sunysb.edu/prevmed/mns/imcs/contexts/care/carejean.html.
25. Kirsh, B., Dawson, D., Antolikova, S., & Reynolds, L. (2001). Developing awareness of spirituality in occupational therapy students: Are our curricula up to the task? Occupational Therapy International, 8(2), 119-125http://search.ebscohost.com/login.aspx?direct=true&db=cin20&AN=2001091151&site=ehost-liv.
26. Kitwood, T. (1997). Dementia reconsidered: The person comes first. Philadelpia, PA: Open UNiversity Press.
27. Kociszewski, C. (2003). A phenomenological pilot study of the nurses' experience providing spiritual care. Journal of Holistic Nursing, 21(2), 131-148.
28. Lengermann, P.M., & Niebrugge-Brantley, J. (1998). The women founders: Sociology and social theory, 1830-1930. New York, NY: McGraw-Hill.
29. Locke, L.F., Spirduso, W.W., & Silverman, S.J. (2000). Proposals that work: A guide for planning dissertations and grant proposals 4th edition. Thousand Oaks, CA: Sage Publication.
30. Lofland, J., & Lofland, L.H. (1995). Analyzing social settings: A guide to qualitative observation and analysis. Belmont, CA: Wadsworth Publishing Company.
31. Logsdon, R.G., Gibbons, L.E., McCurry, S.M., & Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64, 510-519.
32. Mclean, A.P. (2007). Dementia care as a moral enterprise: A call for a return to the sanctity of lived time. Alzheimer's Care Today, 8(4), 360-372.
33. Moberg, D.O. (2001). Aging and spirituality: Spiritual dimensions of aging theory, research, practice, and policy. New York, NY: The Haworth Pastoral Press.
34. Narayanasamy, A., Clissett, P., Parumal, L., Thompson, D., Annasamy, S., & Edge, R. (2004). Responses to the spiritual needs of older people. Journal of Advanced Nursing, 48(1), 6-16.
35. Narayanasamy, A., & Owens, J. (2001). A critical incident study of nurses' responses to the spiritual needs of their patients. Journal of Advanced Nursing, 33(4), 446-455.
36. Neely, D., & Minford, E.J. (2008). Current status of teaching on spirituality in UK medical schools. Medical Education, 42(2), 176-182http://search.ebscohost.com/login.aspx?direct=true&db=cin20&AN=2009771258&site=ehost-liv.
37. Noddings, N. (1984). Caring: A feminine approach to ethics and moral education. Berkeley, CA: University of California Press.
38. O'Brien, M.E. (1999). Spirituality in nursing: Standing on holy ground. Toronto, ON: Jones and Bartlett Publishers.
39. O'Connor, D., Phinney, A., Smith, A., Small, J., Purves, B., Perry, J., Drance, E., Donnelly, M., Chaudhury, H., & Beattie, L. (2007). Personhood in dementia care: Developing a research agenda for broadening the vision. Dementia, 6(1), 121-142.
40. Olson, J.K., Paul, P., Douglas, L., Clark, M.B., Simington, J., & Goddard, N. (2003). Addressing the spiritual dimension in Canadian Undergraduate nursing education. Canadian. Journal of Nursing Research, 34(3), 94-107.
41. Orrell, M., Hancock, G.A., Galboda Liyanage, K.C., Woods, B., Challis, D., & Hoe, J. (2008). The needs of people with dementia in care homes: The perspectives of users, staff and family caregivers. International Psychogeriatrics, 20(5), 941-951.
42. Patton, M.Q. (2002). Qualitative research and evaluation methods 3rd edn. Thousand Oaks, CA: Sage Publications.
43. Pesut, B. (2008). A conversation on diverse perspectives of spirituality in nursing literature. Nursing Philosophy, 9(2), 98-109.
44. Priest, H. (2002). Issues in research: An approach to the phenomenological analysis of data. Nurse Researcher, 10(2), 50-63.
45. Ross, L.A. (1997). Nurses' perceptions of spiritual care. Brookfeild, VT Ashgate.
46. Ross, L.A. (2006). Spiritual care in nursing: An overview of the research to date. Journal of Clinical Nursing, 15(7), 852-862.
47. Rothman, J. (2009). Spirituality: What we can teach and how we can teach it. Journal of Religion & Spirituality in Social Work, 28(1-2), 161-184 http://search.ebscohost.com/login.aspx?direct=true&db=cin20&AN=2010257441&site=ehost-liv.
48. Savage, J. (2000). Participative observation: Standing in the shoes of others? Qualitative Health Research, 10(3), 324-340.
49. Smith, S.D.M. (2005). Dementia palliative care needs assessment: A focus on spiritual care. Scottish Journal of Healthcare Chaplaincy, 8(1), 13-19.
50. Stuckey, G. (2003). Dementia, religion, and spirituality. Dementia, 2(3), 291-297.
51. Stuckey, J.C., Post, S.G., Ollerton, S., FallCreek, S.J., & Whitehouse, P.J. (2002). Alzheimer's disease, religion, and the ethics of respect for spirituality: A community dialogue. Alzheimer's Care Quarterly, 3(3), 199-207.
52. Sumner, J. (2008). Is caring in nursing an impossible ideal for today's practicing nurse. Nursing Administration Quarterly, 32(2), 92-101.
53. Tanyi, R.A. (2002). Toward clarification of the meaning of spirituality. Journal of Advanced Nursing, 39(5), 500-509.
54. Toma, J.D. (2006). Approaching rigor in applied qualitative research. In F. Conrad, & R. C. Serlin (Eds.), The Sage handbook for research in education: Engaging ideas and enriching inquiry (pp. 405-423). Thousand Oaks, CA: Sage Publications.
55. Touhy, T.A. (2001). Nurturing hope and spirituality in the nursing home. Holistic Nursing Practice, 15(4), 45-5.
56. Tuck, I., McCain, N.L., & Elswick, R.K. (2001). Spirituality and psychosocial factors in persons living with HIV. Journal of Advanced Nursing, 33, 776-783.
57. van Manen, M. (1997). Hermeneutic Phenomenological reflection. In M. van Manen (Ed.), Researching lived experience (2nd edn. pp. 77-109). London, ON: The Althouse Press.
58. van Manen, M. (2003). Writing in the Dark. Phenomenological Studies in Interpretive Inquiry. London, ON: The Althouse Press.
59. Vickrey, B.G., Strickland, T.L., Fitten, L.J., Adams, G.R., Ortiz, F., & Hays, R.D. (2007). Ethnic variations in dementia caregiving from focus groups. Journal of Human Behavior in the Social Environment, 15(2-3) 233-249.
60. Walters, D. (2007). The effect of multi-sensory ministry on the affect and engagement of women with dementia. Dementia, 6(2), 233-243.
61. Walton, J. (1999). Spirituality of patients recovering from an acute myocardial infarction. Journal of Holistic Nursing, 17(1), 334-353.