Ethnic variations in Dementia caregiving experiences: Insights from focus groups

Journal of Human Behavior in the Social Environment

Volumn 15, Issue 2-3, 2007, Pages 233-249

  Vickrey, Barbara G ^a   Strickland, Tony L ^b   Fitten, L Jaime ^c   Adams, Gloria Rodriguez ^b   Ortiz, Freddy ^d   Hays, Ron D ^c  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b CHARLES R DREW UNIVERSITY OF MEDICINE AND SCIENCE   (United States)

^c UNIVERSITY OF CALIFORNIA   (United States)

^d OLIVE VIEW UCLA MEDICAL CENTER   (United States)

Author keywords

Caregiving; Dementia; Ethnicity; Focus groups; Spirituality; Stigma

Indexed keywords

EID: 37749021016     PISSN: 10911359     EISSN: 15403556     Source Type: Journal    
DOI: 10.1300/J137v15n02_14     Document Type: Article

References (27)

1. Agar, M., & MacDonald, J. (1995). Focus groups and ethnography. Human Organizations, 54, 78-86.
2. Betancourt, J. R., Green, A. R., Carrillo, J. E., & Ananeh-Firempong, O. 2nd. (2003). Defining cultural competence: A practical framework for addressing racial/ethnic disparities in health and health care. Public Health Reports, 118, 293-302.
3. Connell, C. M., & Gibson, G. D. (1997). Racial, ethnic, and cultural differences in dementia caregiving: Review and analysis. Gerontologist, 37, 355-364.
4. Cooper, L. A., Hill, M. N., & Powe, N. R. (2002). Designing and evaluating interventions to eliminate racial and ethnic disparities in health care. Journal of General Internal Medicine, 17, 477-486.
5. Cox, C., & Monk, A. (1993). Hispanic culture and family care of Alzheimer's patients. Health and Social Work, 18, 92-100.
6. Daker-White, G., Beattie, A. M., Gilliard, J., & Means, R. (2002). Minority ethnic groups in dementia care: A review of service needs, service provision and models of good practice. Aging and Mental Health, 6, 101-108.
7. Dilworth-Anderson, P., Williams, I. C., & Gibson, B. E. (2002). Issues of race, ethnicity, and culture in caregiving research: A 20-year review (1980-2000). Gerontologist, 42, 237-272.
8. Elliott, K. S., DiMonno, M., Lam, D., & Tu, A. M. (1996). Working with Chinese families in the context of dementia. In G. Yeo & D. Gallagher-Thompson (Eds.), Ethnicity and the dementias (pp. 89-108). Washington, DC: Taylor & Francis.
9. Farran, C. J., Miller, B. H., Kaufman, J. E., & Davis, L. (1997). Race, finding meaning, and caregiver distress. Journal of Aging and Health, 9, 316-333.
10. Farran, C. J., Miller, B. H., Kaufman, J. E., Donner, E., & Fogg, L. (1999). Finding meaning through caregiving: Development of an instrument for family caregivers of persons with Alzheimer's Disease. Journal of Clinical Psychology, 55, 1107-1125.
11. Graves, A. B. (2004). Alzheimer's disease and vascular dementia. In L.M. Nelson, C. M. Tanner, S. K. Van Den Eeden, & V. M. McGuire (Eds.), Neuroepidemiology: From Principles to Practice (pp. 102-130). New York: Oxford University Press.
12. Haley, W. E., Roth, D. L., & Coleton, M. I. (1996). Appraisal, coping and social support as mediators of well-being in Black and White family caregivers of patients with Alzheimer's disease. Journal of Consulting & Clinical Psychology, 64, 121-129.
13. Heckler, M. (1985). Report of the Secretary's task force on Black and minority health. Vol. I: Executive summary. Washington, DC: U.S. Department of Health and Human Services.
14. Henderson, J. N., & Gutierrez-Mayka, M. (1992). Ethnocultural themes in caregiving to Alzheimer's disease patients in Hispanic farnilies. Clinical Gerontologist, 11, 59-74.
15. Krueger, R. A. (1994). Focus groups: A practical guide for applied research (2nd ed.). Thousand Oaks, CA: Sage Publications.
16. Larson, E. B., & Imai, Y. (1996). An overview of dementia and ethnicity with special emphasis on the epidemiology of dementia. In G. Yeo & D. Gallagher-Thompson (Eds.), Ethnicity and the dementias (pp. 9-21). Washington, DC: Taylor & Francis.
17. Lawton, M. P., Rajagopal, D., Brody, E., & Kleban, M. (1992). The dynamics of caregiving for a demented elder among Black and White families. Journal of Gerontology, 47, S156-S164.
18. Navaie-Waliser, M., Feldman, P. H., Gould, D. A., Levine, C., Kuerbis, A. N., & Donelan, K. (2001). The experiences and challenges of informal caregivers: Common themes and differences among Whites, Blacks, and Hispanics. Gerontologist, 41, 733-741.
19. Ortiz, F., & Fitten, L. J. (2000). Barriers to healthcare access for cognitively impaired older Hispanics. Alzheimer's Disease and Associated Disorders, 14, 141-50.
20. Picot, S. J. (1994). Choice and social exchange theory and the rewards of African American caregivers. Journal of the National Black Nurses Association, 7, 29-40.
21. Picot, S. J., Debanne, S. M., Namazi, K. H., & Wykle, M. L. (1997). Religiosity and perceived rewards of Black and White caregivers. Gerontologist, 37, 89-101.
22. Schulz, R., Mendelsohn, A. B., Haley, W. E., Mahoney, D., Allen, R. S., Zhang, S., Thompson, L., & Belle, S. H. (2003). Resources for enhancing Alzheimer's care-giver health investigators. End-of-life care and the effects of bereavement on family caregivers of persons with dementia. New England Journal of Medicine, 349, 1936-1942.
23. Smedley, B. D., Stith, A. Y., & Nelson, A. R. (2003). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, DC: The National Academies Press.
24. Sterritt, P., & Pokorny, M. (1998). African-American caregiving for a relative with Alzheimer's disease. Geriatric Nursing, 19, 127-133.
25. U.S. Census Bureau (2005). The elderly population. Retrieved March 3, 2005, from http://www.census.gov/population/www/pop-profile/ elderpop.html.
26. Waite, A., Bebbington, P., Skelton-Robinson, M., & Orrell, M. (2004). Social factors and depression in carers of people with dementia. International Journal of Geriatric Psychiatry, 19, 582-7.
27. Wykle, M., & Segal, M. (1991). A comparison of Black and White farnily caregivers experience with dementia. Journal of the National Black Nurses Association, 5, 29-41.