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Volumn 73, Issue 1, 2011, Pages 111-120

Risk and reproductive decisions: British Pakistani couples' responses to genetic counselling

Author keywords

British Pakistanis; Ethnicity; Genetic risk; Muslims; Prenatal diagnosis; Religion; Reproductive decisions; United Kingdom

Indexed keywords

CHILD HEALTH; CULTURE; DECISION MAKING; ETHNIC GROUP; ETHNICITY; HEALTH RISK; ISLAMISM; PREGNANCY; RELIGION; RISK ASSESSMENT; STEREOTYPIC BEHAVIOR;

EID: 79959580026     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2011.04.011     Document Type: Article
Times cited : (24)

References (60)
  • 1
    • 33749466083 scopus 로고    scopus 로고
    • The influence of faith and religion and the role of religious and community leaders in prenatal decisions for sickle cell disorders and thalassaemia major
    • Ahmed S., Atkin K., Hewison J., Green J.M. The influence of faith and religion and the role of religious and community leaders in prenatal decisions for sickle cell disorders and thalassaemia major. Prenatal Diagnosis 2006, 26:801-809.
    • (2006) Prenatal Diagnosis , vol.26 , pp. 801-809
    • Ahmed, S.1    Atkin, K.2    Hewison, J.3    Green, J.M.4
  • 2
    • 33645397151 scopus 로고    scopus 로고
    • Attitudes towards prenatal diagnosis and termination of pregnancy for thalassaemia in pregnant Pakistani women in the North of England
    • Ahmed S., Green J.M., Hewison J. Attitudes towards prenatal diagnosis and termination of pregnancy for thalassaemia in pregnant Pakistani women in the North of England. Prenatal Diagnosis 2006, 26:248-257.
    • (2006) Prenatal Diagnosis , vol.26 , pp. 248-257
    • Ahmed, S.1    Green, J.M.2    Hewison, J.3
  • 3
    • 57349095505 scopus 로고    scopus 로고
    • Decisions about testing and termination of pregnancy for different fetal conditions: a qualitative study of European White and Pakistani mothers of affected children
    • Ahmed S., Hewison J., Green J.M., Cuckle H.S., Thornton J.G. Decisions about testing and termination of pregnancy for different fetal conditions: a qualitative study of European White and Pakistani mothers of affected children. Journal of Genetic Counseling 2008, 17:560-572.
    • (2008) Journal of Genetic Counseling , vol.17 , pp. 560-572
    • Ahmed, S.1    Hewison, J.2    Green, J.M.3    Cuckle, H.S.4    Thornton, J.G.5
  • 4
    • 0034064855 scopus 로고    scopus 로고
    • Prenatal diagnosis of beta-thalassaemia in Pakistan: experience in a Muslim country
    • Ahmed S., Saleem M., Sultana N., Raashid Y., Waqar A., Anwar M., et al. Prenatal diagnosis of beta-thalassaemia in Pakistan: experience in a Muslim country. Prenatal Diagnosis 2000, 20:378-383.
    • (2000) Prenatal Diagnosis , vol.20 , pp. 378-383
    • Ahmed, S.1    Saleem, M.2    Sultana, N.3    Raashid, Y.4    Waqar, A.5    Anwar, M.6
  • 5
    • 0034927337 scopus 로고    scopus 로고
    • Attitude of Saudi families affected with hemoglobinophatheis towards prenatal screening and abortion and the influence of relious ruling (Fatwa)
    • Alkuraya F.S., Kilani R.A. Attitude of Saudi families affected with hemoglobinophatheis towards prenatal screening and abortion and the influence of relious ruling (Fatwa). Prenatal Diagnosis 2001, 21:448-451.
    • (2001) Prenatal Diagnosis , vol.21 , pp. 448-451
    • Alkuraya, F.S.1    Kilani, R.A.2
  • 8
    • 57149094286 scopus 로고    scopus 로고
    • Attitudes and perceptions about prenatal diagnosis and induced abortion among adults of Pakistani population
    • Arif M.O., Fatmi Z., Pardeep B., Ali T., Iqbal H., Bangash H.K., et al. Attitudes and perceptions about prenatal diagnosis and induced abortion among adults of Pakistani population. Prenatal Diagnosis 2008, 10.1002/pd.2144.
    • (2008) Prenatal Diagnosis
    • Arif, M.O.1    Fatmi, Z.2    Pardeep, B.3    Ali, T.4    Iqbal, H.5    Bangash, H.K.6
  • 10
    • 36949021591 scopus 로고    scopus 로고
    • Decision-making and ante-natal screening for sickle cell and thalassaemia disorders: to what extent do faith and religious identity mediate choice?
    • Atkin K., Ahmed S., Hewison J., Green J.M. Decision-making and ante-natal screening for sickle cell and thalassaemia disorders: to what extent do faith and religious identity mediate choice?. Current Sociology 2008, 56:77. 10.1177/0011392107084380.
    • (2008) Current Sociology , vol.56 , pp. 77
    • Atkin, K.1    Ahmed, S.2    Hewison, J.3    Green, J.M.4
  • 11
    • 38949145657 scopus 로고    scopus 로고
    • Culture and acculturation influences on Palestinian perceptions of prenatal genetic counseling
    • Awwad R., Veach P.M., Bartels D.M., LeRoy B.S. Culture and acculturation influences on Palestinian perceptions of prenatal genetic counseling. Journal of Genetic Counseling 2008, 17(1):101-116. 10.1007/s10897-007-9131-2.
    • (2008) Journal of Genetic Counseling , vol.17 , Issue.1 , pp. 101-116
    • Awwad, R.1    Veach, P.M.2    Bartels, D.M.3    LeRoy, B.S.4
  • 12
    • 0032708997 scopus 로고    scopus 로고
    • Ethnicity, bioethics, and prenatal diagnosis: the amniocentesis decisions of Mexican-origin women and their partners
    • Browner C.H., Preloran M., Cox S.J. Ethnicity, bioethics, and prenatal diagnosis: the amniocentesis decisions of Mexican-origin women and their partners. American Journal of Public Health 1999, 89(11):1658-1666.
    • (1999) American Journal of Public Health , vol.89 , Issue.11 , pp. 1658-1666
    • Browner, C.H.1    Preloran, M.2    Cox, S.J.3
  • 13
    • 0004247420 scopus 로고    scopus 로고
    • Pluto Press, London, P. Caplan (Ed.)
    • Risk revisited 2000, Pluto Press, London. P. Caplan (Ed.).
    • (2000) Risk revisited
  • 15
    • 79959610536 scopus 로고    scopus 로고
    • Public understandings of science: British South Asian men's perceptions of third party assisted conception
    • Culley L., Hudson N. Public understandings of science: British South Asian men's perceptions of third party assisted conception. The International Journal of Interdisciplinary Social Sciences 2007, 2(4):79-86.
    • (2007) The International Journal of Interdisciplinary Social Sciences , vol.2 , Issue.4 , pp. 79-86
    • Culley, L.1    Hudson, N.2
  • 16
    • 0026782467 scopus 로고
    • Reproductive choices in couples at risk for genetic disease: a qualitative and quantitative analysis
    • D'Amico R., Jacoponi G., Vivona G., Frontali M. Reproductive choices in couples at risk for genetic disease: a qualitative and quantitative analysis. Birth Defects: Original Article Series 1992, 28(1):41-46.
    • (1992) Birth Defects: Original Article Series , vol.28 , Issue.1 , pp. 41-46
    • D'Amico, R.1    Jacoponi, G.2    Vivona, G.3    Frontali, M.4
  • 17
    • 18444378173 scopus 로고    scopus 로고
    • Uptake of prenatal screening for Down syndrome in minority ethnic and socially deprived groups: a reflection of women's attitudes or a failure to facilitate informed choices?
    • Dormandy E., Michie S., Hooper R., Marteau T.M. Uptake of prenatal screening for Down syndrome in minority ethnic and socially deprived groups: a reflection of women's attitudes or a failure to facilitate informed choices?. International Journal of Epidemiology 2005, 34:346-352.
    • (2005) International Journal of Epidemiology , vol.34 , pp. 346-352
    • Dormandy, E.1    Michie, S.2    Hooper, R.3    Marteau, T.M.4
  • 24
    • 34347271679 scopus 로고    scopus 로고
    • Attitudes to prenatal testing and termination of pregnancy for fetal abnormality: a comparison of white and Pakistani women in the UK
    • Hewison J., Green J.M., Ahmed S., Cuckle H.S., Hirst J., Hucknall C., et al. Attitudes to prenatal testing and termination of pregnancy for fetal abnormality: a comparison of white and Pakistani women in the UK. Prenatal Diagnosis 2007, 27:419-430.
    • (2007) Prenatal Diagnosis , vol.27 , pp. 419-430
    • Hewison, J.1    Green, J.M.2    Ahmed, S.3    Cuckle, H.S.4    Hirst, J.5    Hucknall, C.6
  • 26
    • 33845310517 scopus 로고    scopus 로고
    • Making Muslim babies: IVF and gamete donation in Sunni versus Shi'a Islam
    • Inhorn M.C. Making Muslim babies: IVF and gamete donation in Sunni versus Shi'a Islam. Culture, Medicine and Psychiatry 2006, 30:427-450.
    • (2006) Culture, Medicine and Psychiatry , vol.30 , pp. 427-450
    • Inhorn, M.C.1
  • 28
    • 36849054594 scopus 로고    scopus 로고
    • Professional uncertainty and disempowerment responding to ethnic diversity in health care: a qualitative study
    • Kai J., Beavan J., Faull C., Dodson L., Gill P., Beighton A. Professional uncertainty and disempowerment responding to ethnic diversity in health care: a qualitative study. Plos Medicine 2007, 4(11):e323.
    • (2007) Plos Medicine , vol.4 , Issue.11
    • Kai, J.1    Beavan, J.2    Faull, C.3    Dodson, L.4    Gill, P.5    Beighton, A.6
  • 29
    • 58849153345 scopus 로고    scopus 로고
    • 'Choosing not to choose': reproductive responses of parents of children with genetic conditions or impairments
    • Kelly S. 'Choosing not to choose': reproductive responses of parents of children with genetic conditions or impairments. Sociology of Health and Illness 2009, 31(1):81-97.
    • (2009) Sociology of Health and Illness , vol.31 , Issue.1 , pp. 81-97
    • Kelly, S.1
  • 31
    • 0029932256 scopus 로고    scopus 로고
    • Racial-ethnic differences in prenatal diagnostic test use and outcomes: preferences, socioeconomics, or patient knowledge?
    • Kuppermann M., Gates E., Washington A.E. Racial-ethnic differences in prenatal diagnostic test use and outcomes: preferences, socioeconomics, or patient knowledge?. Obstetrics & Gynecology 1996, 87(5):676-682.
    • (1996) Obstetrics & Gynecology , vol.87 , Issue.5 , pp. 676-682
    • Kuppermann, M.1    Gates, E.2    Washington, A.E.3
  • 32
    • 33646785403 scopus 로고    scopus 로고
    • Beyond race or ethnicity and socioeconomic status: predictors of prenatal genetic testing for Down syndrome
    • Kuppermann M., Learman L.A., Gates E., Gregorich S.E., Nease R.F., Lewis J., et al. Beyond race or ethnicity and socioeconomic status: predictors of prenatal genetic testing for Down syndrome. Obstetrics & Gynecology 2006, 107(5):1087-1097.
    • (2006) Obstetrics & Gynecology , vol.107 , Issue.5 , pp. 1087-1097
    • Kuppermann, M.1    Learman, L.A.2    Gates, E.3    Gregorich, S.E.4    Nease, R.F.5    Lewis, J.6
  • 33
    • 0032916138 scopus 로고    scopus 로고
    • Attitudes towards cystic fibrosis carrier and prenatal testing and utilization of carrier testing among relatives of individuals with cystic fibrosis
    • Lafayette D., Abuelo D., Passero M.A., Tantrvahi U. Attitudes towards cystic fibrosis carrier and prenatal testing and utilization of carrier testing among relatives of individuals with cystic fibrosis. Journal of Genetic Counseling 1999, 8:17-36. 10.1023/A:1022830519602.
    • (1999) Journal of Genetic Counseling , vol.8 , pp. 17-36
    • Lafayette, D.1    Abuelo, D.2    Passero, M.A.3    Tantrvahi, U.4
  • 36
    • 0018575973 scopus 로고
    • Genetic counseling: parents' responses to uncertainty
    • 5C, C.J. Epstein, C.J.R. Curry, S. Packman, S. Sherman, B.D. Hall (Eds.) Risk communication and decision making in genetic counseling
    • Lippman-Hand A., Fraser F.C. Genetic counseling: parents' responses to uncertainty. The national Foundation March of Dimes. Birth Defects: Original articles series 1979, Vol. XV, 5C:325-339. C.J. Epstein, C.J.R. Curry, S. Packman, S. Sherman, B.D. Hall (Eds.).
    • (1979) The national Foundation March of Dimes. Birth Defects: Original articles series , vol.15 , pp. 325-339
    • Lippman-Hand, A.1    Fraser, F.C.2
  • 37
    • 0003614471 scopus 로고    scopus 로고
    • Cambridge University Press, Cambridge, M. Lock, P.A. Kaufert (Eds.)
    • Pragmatic women and body politics 1998, Cambridge University Press, Cambridge. M. Lock, P.A. Kaufert (Eds.).
    • (1998) Pragmatic women and body politics
  • 38
    • 0033737944 scopus 로고    scopus 로고
    • Attitudes towards termination of pregnancy in subjects who underwent presymptomatic testing for the BRCA1/BRCA2 gene mutation in The Netherlands
    • Lodder L.N., Frets P.G., Trijsburg R.W., Meijers-Heijboer E.J., Klijn J.G., Niermeijer M.F. Attitudes towards termination of pregnancy in subjects who underwent presymptomatic testing for the BRCA1/BRCA2 gene mutation in The Netherlands. Journal of Medical Genetics 2000, 37:883-884. 10.1136/jmg.37.11.883.
    • (2000) Journal of Medical Genetics , vol.37 , pp. 883-884
    • Lodder, L.N.1    Frets, P.G.2    Trijsburg, R.W.3    Meijers-Heijboer, E.J.4    Klijn, J.G.5    Niermeijer, M.F.6
  • 39
    • 0003999764 scopus 로고    scopus 로고
    • Routledge, London
    • Lupton D. Risk 1999, Routledge, London.
    • (1999) Risk
    • Lupton, D.1
  • 40
    • 0032883373 scopus 로고    scopus 로고
    • Termination rates after prenatal diagnosis of Down syndrome, spina bifida, anencephaly, and Turner and Kleinfelter syndromes: a systematic literature review. European concerted action: decision-making after the diagnosis of a fetal abnormality
    • Mansfield C., Hopfer S., Marteau T.M. Termination rates after prenatal diagnosis of Down syndrome, spina bifida, anencephaly, and Turner and Kleinfelter syndromes: a systematic literature review. European concerted action: decision-making after the diagnosis of a fetal abnormality. Prenatal Diagnosis 1999, 19:808-812.
    • (1999) Prenatal Diagnosis , vol.19 , pp. 808-812
    • Mansfield, C.1    Hopfer, S.2    Marteau, T.M.3
  • 41
    • 0033015696 scopus 로고    scopus 로고
    • 'Because of the risks': how US pregnant women account for refusing prenatal screening
    • Markens S., Browner C.H., Press N. 'Because of the risks': how US pregnant women account for refusing prenatal screening. Social Science & Medicine 1999, 49:359-369.
    • (1999) Social Science & Medicine , vol.49 , pp. 359-369
    • Markens, S.1    Browner, C.H.2    Press, N.3
  • 42
    • 77955939522 scopus 로고    scopus 로고
    • 'Fasting and prayer don't concern the doctors...they don't even know what it is': communication, decision-making and perceived social relations of Pakistani Muslim patients with long-term illnesses
    • Mir G., Sheikh A. 'Fasting and prayer don't concern the doctors...they don't even know what it is': communication, decision-making and perceived social relations of Pakistani Muslim patients with long-term illnesses. Ethnicity and Health 2010, 15(4):327-342. 10.1080/13557851003624273.
    • (2010) Ethnicity and Health , vol.15 , Issue.4 , pp. 327-342
    • Mir, G.1    Sheikh, A.2
  • 43
    • 0034606928 scopus 로고    scopus 로고
    • Informed choice in genetic screening for thalassaemia during pregnancy: audit from a national confidential enquiry
    • Modell B., Harris R., Lane B., Khan M., Darlison M., Petrou M., et al. Informed choice in genetic screening for thalassaemia during pregnancy: audit from a national confidential enquiry. British Medical Journal 2000, 320:337-341.
    • (2000) British Medical Journal , vol.320 , pp. 337-341
    • Modell, B.1    Harris, R.2    Lane, B.3    Khan, M.4    Darlison, M.5    Petrou, M.6
  • 44
    • 0030803565 scopus 로고    scopus 로고
    • Why women say yes to prenatal diagnosis
    • Press N., Browner C.H. Why women say yes to prenatal diagnosis. Social Science & Medicine 1997, 45(7):979-989.
    • (1997) Social Science & Medicine , vol.45 , Issue.7 , pp. 979-989
    • Press, N.1    Browner, C.H.2
  • 45
    • 0032253438 scopus 로고    scopus 로고
    • Refusing prenatal diagnosis: the meaning of Bioscience in a Multicultural world
    • Rapp R. Refusing prenatal diagnosis: the meaning of Bioscience in a Multicultural world. Science, Technology, and Human Values 1998, 23:45-70.
    • (1998) Science, Technology, and Human Values , vol.23 , pp. 45-70
    • Rapp, R.1
  • 46
    • 64049107709 scopus 로고    scopus 로고
    • 'It's them faulty genes again': women, men and the gendered nature of genetic responsibility in prenatal blood screening
    • Reed K. 'It's them faulty genes again': women, men and the gendered nature of genetic responsibility in prenatal blood screening. Sociology of Health and Illness 2009, 31(3):343-359.
    • (2009) Sociology of Health and Illness , vol.31 , Issue.3 , pp. 343-359
    • Reed, K.1
  • 47
    • 1342287774 scopus 로고    scopus 로고
    • Social and Ethnic Inequalities in the offer and uptake of prenatal screening and diagnosis in the UK: a systematic review
    • Rowe R.E., Garcia J., Davidson L.L. Social and Ethnic Inequalities in the offer and uptake of prenatal screening and diagnosis in the UK: a systematic review. Public Health 2004, 118:177-189.
    • (2004) Public Health , vol.118 , pp. 177-189
    • Rowe, R.E.1    Garcia, J.2    Davidson, L.L.3
  • 48
    • 36448956770 scopus 로고    scopus 로고
    • Genetics, religion and identity among British Bangladeshis: some initial findings
    • Rozario S. Genetics, religion and identity among British Bangladeshis: some initial findings. Diversity in Health and Social Care 2005, 2:187-196.
    • (2005) Diversity in Health and Social Care , vol.2 , pp. 187-196
    • Rozario, S.1
  • 50
    • 33749079236 scopus 로고    scopus 로고
    • Changing their minds with time: a comparison of hypothetical and actual reproductive behaviours in parents of children with cystic fibrosis
    • Sawyer S.M., Cerritelli B., Carler L.S., Cooke M., Glazner J.A., Massie J. Changing their minds with time: a comparison of hypothetical and actual reproductive behaviours in parents of children with cystic fibrosis. Pediatrics 2006, 118:e649-656.
    • (2006) Pediatrics , vol.118
    • Sawyer, S.M.1    Cerritelli, B.2    Carler, L.S.3    Cooke, M.4    Glazner, J.A.5    Massie, J.6
  • 51
    • 33747422841 scopus 로고    scopus 로고
    • Variation in the decision to terminate pregnancy in the setting of fetal aneuploidy
    • Shaffer B.L., Caughey A.B., Norton M.E. Variation in the decision to terminate pregnancy in the setting of fetal aneuploidy. Prenatal Diagnosis 2006, 26:667-671. 10.1002/pd.1462.
    • (2006) Prenatal Diagnosis , vol.26 , pp. 667-671
    • Shaffer, B.L.1    Caughey, A.B.2    Norton, M.E.3
  • 52
    • 33645174754 scopus 로고    scopus 로고
    • Interpreting images: diagnostic skill in the genetics clinic
    • Shaw A. Interpreting images: diagnostic skill in the genetics clinic. Journal of the Royal Anthropological Institute 2003, 9(1):39-55.
    • (2003) Journal of the Royal Anthropological Institute , vol.9 , Issue.1 , pp. 39-55
    • Shaw, A.1
  • 54
    • 66949164472 scopus 로고    scopus 로고
    • " I don't see any point in telling them": attitudes to sharing genetic information in the family and carrier testing of relatives among British Pakistani adults referred to a genetics clinic
    • Shaw A., Hurst J.A. " I don't see any point in telling them": attitudes to sharing genetic information in the family and carrier testing of relatives among British Pakistani adults referred to a genetics clinic. Ethnicity and Health 2009, 14(2):205-224.
    • (2009) Ethnicity and Health , vol.14 , Issue.2 , pp. 205-224
    • Shaw, A.1    Hurst, J.A.2
  • 55
    • 79959609146 scopus 로고    scopus 로고
    • They say Islam has a solution for everything, so why are there no guidelines for this? Ethical dilemmas associated with the births and deaths of infants with fatal abnormalities from a small sample of Pakistani Muslim couples in Britain. Bioethics, in press.
    • Shaw, A. They say Islam has a solution for everything, so why are there no guidelines for this? Ethical dilemmas associated with the births and deaths of infants with fatal abnormalities from a small sample of Pakistani Muslim couples in Britain. Bioethics, in press.
    • Shaw, A.1
  • 56
    • 0142031147 scopus 로고    scopus 로고
    • Screening for fragile X syndrome: parent attitudes and perspectives
    • Skinner D., Sparkman K.L., Bailey D.B. Screening for fragile X syndrome: parent attitudes and perspectives. Genetics in Medicine 2003, 5(5):378-384. 10.1097/01.GIM.0000086480.69309.1E.
    • (2003) Genetics in Medicine , vol.5 , Issue.5 , pp. 378-384
    • Skinner, D.1    Sparkman, K.L.2    Bailey, D.B.3
  • 59
    • 0030957740 scopus 로고    scopus 로고
    • Acceptance of first-trimester prenatal diagnosis for the haemoglobinopathies in Lebanon
    • Zahed L., Bou-Dames J. Acceptance of first-trimester prenatal diagnosis for the haemoglobinopathies in Lebanon. Prenatal Diagnosis 1997, 17:423-428.
    • (1997) Prenatal Diagnosis , vol.17 , pp. 423-428
    • Zahed, L.1    Bou-Dames, J.2
  • 60
    • 0036899413 scopus 로고    scopus 로고
    • Parental decisions to abort or continue a pregnancy with an abnormal finding after an invasive test
    • Zlotogora J. Parental decisions to abort or continue a pregnancy with an abnormal finding after an invasive test. Prenatal Diagnosis 2002, 22:1102-1106. 10.1002/pd472.
    • (2002) Prenatal Diagnosis , vol.22 , pp. 1102-1106
    • Zlotogora, J.1


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