Young caregiving and HIV in the UK: Caring relationships and mobilities in African migrant families

Population, Space and Place

Volumn 17, Issue 4, 2011, Pages 338-360

  Evans, Ruth ^a  

^a UNIVERSITY OF READING   (United Kingdom)

Author keywords

African migrants; Geographies of care; Geographies of children and youth; HIV and AIDS; Homespace; Young caregiving

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; AFRICAN IMMIGRANT; HEALTH CARE; HEALTH SERVICES; HUMAN IMMUNODEFICIENCY VIRUS; IDENTITY CONSTRUCTION; MOBILITY; SERVICE PROVISION; SOCIAL SECURITY; URBAN AREA; YOUNG POPULATION;

ENGLAND; LONDON [ENGLAND]; UNITED KINGDOM;

EID: 79959416754     PISSN: 15448444     EISSN: 15448452     Source Type: Journal    
DOI: 10.1002/psp.583     Document Type: Article

References (102)

1. Aldridge J, Becker S. 2003. Children Caring for Parents with Mental Illness: Perspectives of Young Carers, Parents and Professionals. The Policy Press: Bristol.
2. Anderson J, Doyal L. 2004. Women from Africa living with HIV in London: a descriptive study. AIDS Care 16(1): 95-105.
3. Ansell N. 2005. Children, Youth and Development. Routledge: Abingdon and New York.
4. Ansell N, van Blerk L. (2004) Children's migration as a household/family strategy: coping with AIDS in southern Africa. Journal of Southern African Studies 30(3): 673-690.
5. Banks P, Cogan N, Deeley S, Hill M, Riddell S, Tisdall K. 2001. Seeing the invisible children and young people affected by disability. Disability and Society 16(6): 797-814.
6. Bauman L, Foster G, Johnson Silver E, Gamble I, Muchaneta L. 2006. Children caring for their ill parents with HIV/AIDS. Vulnerable Children and Youth Studies 1(1): 1-14.
7. Becker S. 2000. Young carers. In The Blackwell Encyclopedia of Social Work, Davies M (ed.). Blackwell: Oxford.
8. Becker S. 2007. Global perspectives on children's unpaid caregiving in the family: research and policy on 'young carers' in the UK, Australia, the USA and Sub-Saharan Africa. Global Social Policy 7(1): 23-50.
9. Becker F, Becker S. 2008. Young Adult Carers in the UK: Experiences, Needs and Services for Carers aged 16-24. London: Princess Royal Trust for Carers.
10. Becker S, Aldridge J, Dearden C. 1998. Young Carers and Their Families. Blackwell Science: Oxford.
11. van Blerk L, Ansell N. 2006a. Imagining migration: placing children's understanding of 'moving house' in Malawi and Lesotho. Geoforum 37: 256-272.
12. van Blerk L, Ansell N. 2006b. Children's experiences of migration: moving in the wake of AIDS in Southern Africa. Environment and Planning D: Society and Space 24: 449-471.
13. van Blerk L, Ansell N. 2007. Alternative strategies for care giving in the context of AIDS in Southern Africa: complex strategies for care. Journal of International Development 19: 865-884.
14. Blunt A. 2007. Cultural geographies of migration: mobility, transnationality and diaspora. Progress in Human Geography 31(5): 684-694.
15. Blunt A, Varley A. 2004. Geographies of home: introduction. Cultural Geographies 11: 3-6.
16. Blunt A, Wills J. 2000. Dissident Geographies: A Introduction to Radical Ideas and Practice. Pearson Education: Harlow.
17. Bowlby S, Gregory S, McKie L. 1997 'Doing home': patriarchy, caring and space. Women's Studies International Forum 20(3): 342-350.
18. Boyle P. 2002. Population geography: transnational women on the move. Progress in Human Geography 26(4): 531-543.
19. Bushin N. 2009. Researching family migration decision-making: a children-in-families approach. Population, Space and Place 15: 429-443.
20. Chinouya M. 2006. Telling children about HIV in transnational African families: tensions about rights. Diversity in Health and Social Care 3: 7-17.
21. Chinouya-Mudari M, O'Brien M. 1999. African refugee children and HIV/AIDS in London. In Families and Communities Responding to AIDS, Aggleton P, Hart G, Davies P (eds). Routledge: London and New York; 21-33.
22. Conradson D. 2003. Geographies of care: spaces, practices, experiences. Social and Cultural Geography 4(4): 451-454.
23. Conradson D, McKay D. 2007. Translocal subjectivities: mobility, connection, emotion. Mobilities 2(2): 167-174.
24. Conway M. 2006a. Developing Support Services for Children, Young People and Families living with HIV: A Handbook for Service Providers. National Children's Bureau: London.
25. Conway M. 2006b. Children, HIV, Asylum and Immigration: An Overview of the Current Situation for Children Living with HIV and Insecure Immigration Status. National Children's Bureau: London.
26. Cree V, Kay H, Tisdall K. 2002. Research with children: sharing the dilemmas. Child and Family Social Work 7: 47-56.
27. Cree V, Kay H, Tisdall K, Wallace J. 2004. Stigma and parental HIV. Qualitative Social Work 3(1): 3-21.
28. Cresswell T. 2004. Place: A Short Introduction. Blackwell: Oxford.
29. Dearden C, Becker S. 2000. Growing Up Caring: Vulnerability and Transition to Adulthood - Young Carers' Experiences. Youth Work Press for the Joseph Rowntree Foundation: Leicester.
30. Dearden C, Becker S. 2004. Young Carers in the UK: The 2004 Report. Carers UK: London.
31. Dobson J, Stillwell J. 2000. Changing home, changing school: towards a research agenda on child migration. Area 32(4): 395-401.
32. Dobson M. 2009. Unpacking children in migration research. Children's Geographies 7: 355-360.
33. Doyal L, Anderson J. 2005. 'My fear is to fall in love again. ...' How HIV-positive African women survive in London. Social Science and Medicine 60: 1729-1738.
34. Doyal L, Anderson J, Apenteng P. 2005. 'I want to survive, I want to win, I want tomorrow': An exploratory study of African men living with HIV in London, Homerton University Hospital and Terrence Higgins Trust: London.
35. Dyck I. 2006. Travelling tales and migratory meanings: South Asian migrant women talk of place, health and healing. Social and Cultural Geography 7(1): 1-18.
36. Dyck I, Kontos P, Angus J, McKeever P. 2005. The home as a site for long-term care: meanings and management of bodies and spaces. Health and Place 11: 173-185.
37. Ely A. 2006 Children and Young People Living with HIV/AIDS, Highlight No. 228, National Children's Bureau: London.
38. Erwin J, Peters B. 1999. Treatment issues for HIV+ Africans in London. Social Science and Medicine 49: 1519-1528.
39. Evans R. 2004. Tanzanian childhoods: street children's narratives of 'home.' Journal of Contemporary African Studies 22(1): 69-92.
40. Evans R. 2005. Social networks, migration and care in Tanzania: caregivers' and children's resilience to coping with HIV/AIDS. Children and Poverty 11(2): 111-129.
41. Evans R, Becker S. 2009 Children Caring for Parents with HIV and AIDS: Global Issues and Policy Responses. The Policy Press: Bristol.
42. Finch J, Groves D. 1983. A Labour of Love: Women, Work and Caring. Routledge and Kegan Paul Plc.: London.
43. Frank J, Tatum C, Tucker S. 1999. On Small Shoulders: Learning from the Experiences of Former Young Carers. The Children's Society: London.
44. Gilligan R. 2004. Promoting resilience in child and family social work: issues for social work practice, education and policy. Social Work Education 23(1): 93-104.
45. Graham H. 1983. Caring: a labour of love. In A Labour of Love: Women, Work and Caring, Finch J, Groves D (eds). Routledge and Kegan Paul Plc.: London.
46. Hockey J. 1999. The ideal of home: domesticating the institutional space of old age and death. In Ideal Homes? Social Change and Domestic Life, Chapman T, Hockey J (eds). Routledge: London; 108-118.
47. Hooks B. 1991. Homeplace: a site of resistance. In Yearning: Race, Gender and Cultural Politics, Hooks B (ed.). South End Press: Boston; 41-49.
48. Hopkins P, Hill M. 2008. Pre-flight experiences and migration stories: the accounts of unaccompanied asylum-seeking children. Children's Geographics 6: 257-268.
49. Imrie R. 2004. Disability, embodiment and the meaning of the home. Housing Studies 19(5): 745-763.
50. James A, Prout A (eds). 1997. Constructing and Reconstructing Childhood: Contemporary Issues in the Sociological Study of Childhood. The Falmer Press: London.
51. Jones A, Jeyasingham D, Rajasooriya S. 2002. Invisible Families: the Strengths and Needs of Black Families in which Young People Have Caring Responsibilities. The Policy Press: Bristol.
52. Keith L, Morris J. 1996. Easy targets: a disability rights perspective on the 'children as carers' debate. In Encounters with Strangers: Feminism and Disability, Morris J (ed.). The Women's Press: London; 69-115.
53. Kesby M, Fenton K, Boyle P, Power R. 2003. An agenda for future research on HIV and sexual behaviour among African migrant communities in the UK. Social Science and Medicine 57: 1573-1592.
54. Kesby M., Gwanzura-Ottemoller F., Chizororo, M. 2006. Theorising other, 'other childhoods': issues emerging from work on HIV in urban and rural Zimbabwe. Children's Geographies 4(2): 185-202.
55. Laird S. 2005 International child welfare: deconstructing UNICEF's country programmes. Social Policy and Society 4(4): 457-466.
56. Lewis E. 2001. Afraid to Say: The Needs and Views of Young People Living with HIV/AIDS. National Children's Bureau: London.
57. Liddell C., Barrett L., Bydawell M. 2005. Indigenous representations of illness and AIDS in Sub-Saharan Africa. Social Science and Medicine 60: 691-700.
58. Mallett S. 2004. Understanding home: a critical review of the literature. The Sociological Review 52(1): 62-89.
59. McDowell L. 1999. Gender, Identity and Place: Understanding Feminist Geographies. Polity Press: Cambridge.
60. McGregor J. 2008. Children and 'African values': Zimbabwean professionals in Britain reconfiguring family life. Environment and Planning A 40: 596-614.
61. Miller P. 2005. Useful and priceless children in contemporary welfare states. Social Politics 12(1): 1-39.
62. Milligan C. 2000. 'Bearing the burden': towards a restructured geography of caring. Area 32(1): 49-58.
63. Milligan C. 2001. Geographies of Care. Space, Place and the Voluntary Sector. Ashgate: Aldershot.
64. Milligan C. 2003. Location or dis-location? Towards a conceptualization of people and place in the care-giving experience. Social and Cultural Geography 4(4): 455-470.
65. Newman T. 2002. 'Young carers' and disabled parents: time for a change of direction? Disability and Society 17(6): 613-625.
66. O'Connell Davidson J, Farrow C. 2007. Child Migration and the Construction of Vulnerability. Save the Children Sweden: Stockholm.
67. Ogden J, Esim S, Grown C. 2006. Expanding the care continuum for HIV/AIDS: bringing carers into focus. Health Policy and Planning 21(5): 333-342.
68. Olsen R. 1996. Young Carers: challenging the facts and politics of research into children and caring. Disability and Society 11(1): 41-54.
69. Omari C, Mbilinyi S. 1997. African Values and Child Rights: Some Cases From Tanzania. Dar es Salaam University Press: Dar es Salaam.
70. Parrenas R. 2005. Children of Global Migration: Transnational Families and Gendered Woes. Stanford University Press: Stanford.
71. Pinnock K, Evans R. 2008. Developing responsive preventative practices: key messages from children's and families' experiences of the Children's Fund. Children and Society 22: 86-98.
72. Prost A. 2005. A Review of Research among Black African Communities Affected by HIV in the UK and Europe. Occasional Paper No. 15, Medical Research Council Social and Public Health Sciences Unit, University of Glasgow: Glasgow.
73. Punch S. 2001. Household division of labour: generation, gender, age, birth order and sibling composition. Work, Employment and Society 15(4): 803-823.
74. Punch S. 2002. Youth transitions and interdependent adult-child relations in rural Bolivia. Journal of Rural Studies 18: 123-133.
75. Reyland S, Higgins-D'Alessandro A, Mcmahon T. 2002. Tell them you love them because you never know when things could change: voices of adolescents living with HIV-positive mothers. AIDS Care 14(2): 285-294.
76. Ridge D, Williams A., Anderson, J., Elford, J. 2008. Like a prayer: the role of spirituality and religion for people living with HIV in the UK. Sociology of Health and illness 30(3): 413-428.
77. Robson E. 2000. Invisible carers: young people in Zimbabwe's home-based healthcare. Area 32(1): 59-69.
78. Robson E. 2004. Hidden child workers: Young Carers in Zimbabwe. Antipode 36(2): 227-248.
79. Robson E, Ansell N, Huber US, Gould WTS, van Blerk L. 2006. Young caregivers in the context of the HIV/AIDS pandemic in sub-Saharan Africa. Population, Space and Place, 12: 93-111. DOI: 10.1002/psp.392.
80. Rose G. 1993 Feminism and Geography: The Limits of Geographical Knowledge. Polity Press: Cambridge.
81. Salway S, Platt L, Chowbey P, Harriss K, Bayliss E. 2007. Long-term Ill Health, Poverty and Ethnicity. The Policy Press: Bristol.
82. Sibley D. 1995. Geographies of Exclusion: Society and Difference in the West. Routledge: London.
83. Silvey R. 2004. Power, difference and mobility: feminist advances in migration studies. Progress in Human Geography 28(4): 490-506.
84. Sinka K, Mortimer J, Evans B, Morgan D. 2003. Impact of the HIV epidemic in sub-Saharan Africa on the pattern of HIV in the UK. AIDS 17: 1638-1690.
85. Skelton T. 2000. 'Nothing to do, nowhere to go?': teenage girls and 'public' space in the Rhondda Valleys, South Wales. In Children's Geographies: Playing Living, Learning, Holloway S, Valentine G (eds). Routledge: London: 80-99.
86. Solberg A. 1997. Negotiating childhood: changing constructions of age for Norwegian children. In Constructing and Reconstructing Childhood: Contemporary Issues in the Sociological Study of Childhood, James A, Prout A (eds). The Falmer Press: London: 126-144.
87. Sporton D, Valentine G, Bang Nielsen K. 2006. Post conflict identities: affiliations and practices of Somali asylum seeker children. Children's Geographies. 4(2): 203-217.
88. Stables J, Smith F. 1999. 'Caught in the Cinderella trap': narratives of disabled parents and young carers. In Mind and Body Spaces, Butler R, Parr H (eds). Routledge: London; 256-268.
89. Such E, Walker R. 2004. Being responsible and responsible beings: children's understanding of responsibility. Children and Society 18: 231-242.
90. Such E, Walker R. 2005. Young citizens or policy objects? Children in the 'rights and responsibilities' debate. Journal of Social Policy 34(1): 39-57.
91. Thomas N, Stainton T, Jackson S, Cheung WY, Doubtfire S, Webb A. 2003. 'Your friends don't understand': Invisibility and unmet need in the lives of 'young carers'. Child and Family Social Work 8(1): 35-46.
92. Tisdall E, Kay H, Cree V, Wallace J. 2004. Children in Need? Listening to Children whose Parent or Carer is HIV Positive. British Journal of Social Work 34: 1097-113.
93. Tronto J. 1993. Moral Boundaries: A Political Argument for an Ethic of Care, Routledge: London and New York.
94. Twigg J. 2000. Bathing: the Body and Community Care. Routledge: London.
95. UK Collaborative Group for HIV and STI Surveillance. 2006. A Complex Picture. HIV and other Sexually Transmitted Infections in the United Kingdom: 2006, Health Protection Agency, Centre for Infections: London.
96. Urassa M., Boerma J, Ng'weshemi J, Isingo R., Schapink D, Kumogola Y. 1997. Orphanhood, child fostering and the AIDS epidemic in rural Tanzania. Health Transition Review 7(suppl 2): 141-153.
97. Valentine G. 1999. 'Oh Please, Mum. Oh Please, Dad': Negotiating Children's Spatial Boundaries. In Gender Power and the Household, McKie L, Bowlby S, Gregory S (eds). MacMillan: London: 137-154.
98. Warrington M. 2001. 'I must get out': the geographies of domestic violence. Transactions of the Institute of British Geographers 26(3): 365-382.
99. Whitehead A, Hashim I, Iversen V. 2007. Child Migration, Child Agency and Intergenerational Relations in Africa and South Asia. Migration DRC Working Paper T24. Migration DRC, University of Sussex: Brighton. Available at (accessed 20 August 2009).
100. Wilson S. 2007. 'When you have children, you're obliged to live': motherhood, chronic illness and biographical disruption. Sociology of Health and Illness 29(4): 610-629.
101. Wood K, Chase E, Aggleton P. 2006. 'Telling the truth is the best thing': Teenage orphans' experiences of parental AIDS-related illness and bereavement in Zimbabwe. Social Science and Medicine 63: 1923-1933.
102. Young L, Ansell N. 2003. Fluid households, complex families: the impacts of children's migration as a response to HIV/AIDS in Southern Africa. The Professional Geographer 55(4): 464-476.