Stigma and Parental HIV

Qualitative Social Work

Volumn 3, Issue 1, 2004, Pages 7-24

  Cree, Viviene E ^a   Kay, Helen ^b   Tisdall, Kay ^b   Wallace, Jennifer ^b  

^a UNIVERSITY OF EDINBURGH   (United Kingdom)

^b Children in Scotland   (United Kingdom)

Author keywords

affected children and young people; children and families social work; parental HIV; qualitative research; research with children; stigma

Indexed keywords

EID: 31544434330     PISSN: 14733250     EISSN: 17413117     Source Type: Journal    
DOI: 10.1177/1473325004041129     Document Type: Article

References (47)

1. Alderson, P. ( 2000 ) Young Children’s Rights: Exploring Beliefs, Principles and Practice. London:Jessica Kingsley.
2. Alonzo, A.A. and Reynolds, N.R. ( 1995 ) ‘ Stigma, HIV and AIDS: An Exploration and Elaboration of a Stigma Trajectory ’, Social Science and Medicine 41 ( 3 ): 303 - 315.
3. Au, T.K., Romo, L. F. and De Witt, J. E. ( 1999 ) ‘ Considering Children’s Folkbiology in Health Education ’, in M. Siegal and G. C. Peterson (eds) Children’s Understanding of Biology and Health, pp. 209 - 234. Cambridge: Cambridge University Press.
4. Batty, D. ( 1993 ) HIV Infection and Children in Need. London: British Agencies for Adoption and Fostering (BAAF).
5. Bor, R. and Elford, J. ( 1998 ) The Family and HIV Today: Recent Research and Practice. London: Cassell.
6. Borland, M., Laybourn, A., Hill, M. and Brown, J. ( 1998 ) Middle Childhood.The Perspectives of Children and Parents. London: Jessica Kingsley.
7. Brannen, J., Heptinstall, E. and Bhopal, K. ( 2000 ) Connecting Children. Care and Family Life in Later Childhood. London: Routledge.
8. Capitanio, J.P. and Herek, G.M. ( 1999 ) ‘ Aids-related Stigma and Attitudes toward Injecting Drug Users among Black and White Americans ’, American Behavioral Scientist 42 (7): 1148 - 1161.
9. Carlisle, C. ( 2001 ) ‘ HIV and AIDS ’, in T. Mason, C. Carlisle, C. Watkins and E. Whitehead (eds) Stigma and Social Exclusion in Healthcare, pp. 117 - 125. London: Routledge.
10. Carricaburu, D. and Pierret, J. ( 1995 ) ‘ From Biographical Disruption to Biographical Reinforcement: The Case of HIV-positive Men ’, Sociology of Health and Illness 17 (1): 65 - 88.
11. Cree, V.E., Kay, H. and Tisdall, K. ( 2002 ) ‘ Research with Children: Sharing the Dilemmas ’, Child and Family Social Work 7 (1): 47 - 56.
12. Department of Health ( 2002 ) Prevalence of HIV and Hepatitis Infections in the UK, 2001. London: Department of Health.
13. Devine, P.G., Plant, E. A. and Harrison, K. ( 1999 ) ‘ The Problem of ‘Us’Versus ‘Them’ and AIDS Stigma ’, American Behavioral Scientist 42 ( 7 ): 1212 - 1228.
14. Finlay, W.M.L., Dinos, S. and Lyons, E. ( 2001 ) ‘ Stigma and Multiple Social Comparisons in People with Schizophrenia ’, European Journal of Social Psychology 31 ( 5 ): 579 - 592.
15. Geballe, S. and Gruendel, J. ( 1995 ) ‘ The Crisis within the Crisis: The Growing Epidemic of AIDS Orphans ’, in J. Gruendel and S. Geballe (eds) Silent Voices: Children in Families with AIDS, pp. 50 - 62. New Haven, CT: Yale University Press.
16. Goffman, E. ( 1963 ) Stigma: Notes on the Management of a Spoiled Identity. Englewood Cliffs, NJ: Prentice Hall.
17. Green, G. and Sobo, E.J. ( 2000 ) The Endangered Self: Managing the Social Risks of HIV. London: Routledge.
18. Herek, G.M. ( 1999 ) ‘ AIDS and Stigma ’, American Behavioral Scientist 42 ( 7 ): 1106 - 1116.
19. Herek, G.M. and Capitanio, J.P. ( 1999 ) ‘ AIDS Stigma and Sexual Prejudice ’, American Behavioral Scientist 42 ( 7 ): 1130 - 1147.
20. Hergenrather, J.R. and Rabinowitz, M. ( 1991 ) ‘ Age-related Differences in the Organization of Children’s Knowledge of Illness ’, Developmental Psychology 27 ( 6 ): 952 - 959.
21. Holland, J., Ramazanoglu, C. and Scott, S. ( 1990 ) ‘ AIDS: From Panic Stations to Power Relations, Sociologcial Perspectives and Problems ’, Sociology 24 ( 3 ): 499 - 518.
22. Honigsbaum, N. ( 1991 ) HIV, AIDS and Children. A Cause for Concern. London: National Children’s Bureau.
23. Hunt, N. and Derricott, J. ( 2001 ) ‘ Smackheads, Crackheads and Other Junkies: Dimensions of the Stigma of Drug Use ’, in T. Mason, C. Carlisle, C. Watkins and E. Whitehead (eds) Stigma and Social Exclusion in Healthcare, pp. 190 - 205. London: Routledge.
24. Imrie, J. and Coombes, Y. ( 1995 ) No Time to Waste:The Scale and Dimension of the Problem of Children Affected by HIV/AIDS in the United Kingdom. London: Barnardo’s.
25. Inglis, S. and Morton, S. ( 1996 ) Children Affected by HIV in Dundee, Edinburgh and Glasgow. Edinburgh: Children in Scotland.
26. Iphofen, R. ( 1990 ) ‘ Coping with a ‘Perforated Life ’: A Case Study in Managing the Stigma of Petit Mal Epilepsy’, Sociology 24 ( 3 ): 447 - 463.
27. Lewis, E. ( 2001 ) Afraid to Say:The Needs and Views of Young People Living with HIV/AIDS. London: National Children’s Bureau.
28. MacLaren, L. ( 2002 ) ‘ Day Mum Told Me She Had HIV ’, Herald (20 June): 12 - 12.
29. MacRae, H. ( 1999 ) ‘ Managing Courtesy Stigma: The Case of Alzheimer’s Disease ’, Sociology of Health and Illness 21 ( 1 ): 54 - 70.
30. Mason, T., Carlisle, C., Watkins, C. and Whitehead, E. (eds) ( 2001 ) IStigma and Social Exclusion in Healthcare. London: Routledge.
31. Mays, V.M. and Cochran, S.D. ( 1987 ) ‘ Acquired Immunodeficiency Syndrome and Black Americans: Special Psychosocial Issues ’, Public Health Reports 102 ( 2 ): 224 - 231.
32. Melvin, D. and Sherr, L. ( 1993 ) ‘ The Child in the Family: Responding to AIDS and HIV ’, AIDS Care 5 ( 1 ): 35 - 42.
33. Nagler, S., Adnopoz, J. and Forsyth, B. ( 1995 ) ‘ Uncertainty, Stigma and Secrecy ’, in S. Geballe, J. Gruendel and W. Andiman (eds) Forgotten Children of the AIDS Epidemic, pp. 71 - 82. New Haven, CT: Yale University Press.
34. Pryor, J.B., Reader, G. D. and Landau, S. ( 1999 ) ‘ A Social-psychological Analysis of HIV-related Stigma ’, American Behavioral Scientist 42 ( 7 ): 1193 - 1211.
35. Renold, E. and Barter, C. ( 2002 ) ‘ Hi, I’m Ramon and I Run this Place ’, in E. Stanko (ed.) The Meanings of Violence. London: Routledge.
36. Scambler, G. and Hopkins, A. ( 1986 ) ‘ Being Epileptic: Coming to Terms with Stigma ’, Sociology of Health and Illness 8 ( 1 ): 26 - 43.
37. Schneider, J. and Conrad, P. ( 1980 ) ‘ In the Closet with Illness: Epilepsy, Stigma Potential and Information Control ’, Social Problems 28: 36 - 36.
38. SCIEH ( 2002 ) HIV/AIDS Quarterly Report to 31st December 2001. Edinburgh: Scottish Council on Infection and Environmental Health.
39. Segal, J. and Simkins, J. ( 1996 ) Helping Children with Ill or Disabled Parents. London:Jessica Kingsley.
40. Siegal, M. and Peterson, G.C. ( 1999 ) Children’s Understanding of Biology and Health. Cambridge: Cambridge University Press
41. Skidmore, C.A., Robertson, J. R., Robertson, A. A. and Elton, R. A. ( 1990 ) ‘ After the Epidemic: Follow Up Study of HIV Seroprevalence and Changing Patterns of Drug Use ’, British Medical Journal 300: 219 - 223.
42. Sontag, S. ( 1978 ) Illness as Metaphor. London: Penguin.
43. Sontag, S. ( 1989 ) AIDS and Its Metaphors. London: Penguin.
44. Strode, A. and Grant, K.B. ( 2001 ) The Role of Stigma and Discrimination in Increasing the Vulnerability of Children and Youth Infected with and Affected by HIV/AIDS. South Africa: Save the Children.
45. Thorne, C., Newell, M. and Peckham, C. ( 1998 ) ‘ Social Care of Children Born to HIV-Infected Mothers in Europe: European Collaborative Study ’, AIDS Care 10 ( 1 ): 7 - 16.
46. Wiener, L.S., Battles, H. B. and Heilman, N.E. ( 1998 ) ‘ Factors Associated with Parents ’ Decision to Disclose their HIV Diagnosis to Their Children’, Child Welfare 77 ( 5 ): 115 - 135.
47. Watney, S. ( 1994 ) Practices of Freedom: Selected Writings on HIV/AIDS. Durham, NC: Duke University Press.