Preferences and experiences of chronically ill and disabled patients regarding shared decision-making: Does the type of care to be decided upon matter?

Patient Education and Counseling

Volumn 84, Issue 1, 2011, Pages 111-117

  Van den Brink Muinen, Atie ^a   Spreeuwenberg, Peter ^a   Rijken, Mieke ^a  

^a NETHERLANDS INSTITUTE FOR HEALTH SERVICES RESEARCH   (Netherlands)

Author keywords

Chronically ill and disabled; Home care issues; Lifestyle issues; Medical care issues; Occupational healthcare issues; Shared decision making

Indexed keywords

ADULT; AGE; AGED; ALCOHOL CONSUMPTION; ARTICLE; CHRONIC PATIENT; DIET; DISABLED PERSON; DISEASE SEVERITY; FEMALE; FOOD INTAKE; GENDER; GENERAL PRACTICE; HEALTH CARE PERSONNEL; HOME CARE; HUMAN; LIFESTYLE; MAJOR CLINICAL STUDY; MALE; MEDICAL CARE; MEDICAL DECISION MAKING; MEDICAL SPECIALIST; OCCUPATIONAL HEALTH; OCCUPATIONAL PHYSICIAN; PATIENT DECISION MAKING; PATIENT EXPERIENCE; PERSONAL EXPERIENCE; PHYSICAL ACTIVITY; PRIORITY JOURNAL; SHARED DECISION MAKING; SMOKING; WORK RESUMPTION; WORKING TIME; WORKLOAD;

AGED; CHRONIC DISEASE; DECISION MAKING; DECISION SUPPORT TECHNIQUES; DISABLED PERSONS; FEMALE; HUMANS; LINEAR MODELS; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PATIENT PREFERENCE; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; SEVERITY OF ILLNESS INDEX; SOCIOECONOMIC FACTORS;

EID: 79958759010     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2010.07.032     Document Type: Article

References (37)

1. Bensing J.M., Langewitz W. Die Artzliche Konsultation. Psychosomatische Medizin 2002, 415-424. Uxcull (Ed.).
2. van den Brink-Muinen A., van Dulmen A.M., de Haes H.C.J.M., Visser A.Ph., Schellevis F.G., Bensing J.M. Has patients' involvement in the decision-making process in general practice changed over time?. Health Expect 2006, 9:333-342.
3. de Haes H. Dilemmas in patient centeredness and shared decision making: a case for vulnerability. Patient Educ Couns 2006, 62:291-298.
4. Makoul G., Clayman M.L. An integrative model of shared decision making in medical encounters. Patient Educ Couns 2006, 60:301-312.
5. Charles C., Gafni A., Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med 1999, 49:651-661.
6. Elwyn G., Edwards A., Mowle S., Wensing M., Wilkinson C., Kinnersley P., et al. Measuring the involvement of patients in shared decision-making: a systematic review of literature. Patient Educ Couns 2001, 43:5-22.
7. Mead N., Bower P., Hann M. The impact of general practitioners' patient-centredness on patients' post-consultation satisfaction and enablement. Soc Sci Med 2002, 55:283-299.
8. Edwards A., Elwyn G. Inside the black box of shared decision-making. Distinguishing between the process of involvement and who makes the decision. Health Expect 2006, 9:248-258.
9. van den Brink-Muinen A, van Dulmen AM, Schellevis FG, Bensing JM (red.). Oog voor communicatie: huisarts-patiënt communicatie in Nederland. Tweede Nationale Studie naar ziekten en verrichtingen in de huisartspraktijk [Focus on communication: doctor-patient communication in the Netherlands. Second Dutch National Survey of General Practice]. Utrecht: NIVEL; 2004.
10. van den Brink-Muinen A., van Dulmen A.M., Jung H.P., Bensing J.M. Do our talks with patients meet their expectations?. J Fam Practice 2007, 7:559-568.
11. van Dulmen A.M., Bensing J.M. The effect of context in healthcare. A programming study 2001, NIVEL, Utrecht, The Netherlands.
12. Hack T.F., Degner L.F., Watson P., Sinha L. Do patients benefit from participating in medical decision making? Longitudinal follow-up of women with breast cancer. Psychooncology 2006, 15:9-19.
13. Brady T.J. The patient's role in rheumatology care. Curr Opin Rheumatol 1998, 10:146-151.
14. Stubblefield C., Mutha S. Provider-patient roles in chronic disease management. Allied Health 2002, 31:87-92.
15. Rosen P., Anell A., Hiortsberg C. Patient views on choice and participation in primary health care. Health Policy 2001, 55:121-128.
16. Elwyn G., Edwards A. Shared decision-making and the concept of equipoise: the competences of involving patients in healthcare choices. Brit J Gen Pract 2000, 50:892-897.
17. Ishikawa H., Hashimoto H., Yano E. Patients' preferences for decision making and the feeling of being understood in the medical encounter among patients with rheumatoid arthritis. Arthritis Rheum 2006, 55:878-883.
18. Richards N., Coulter A. Is the NHS becoming more patient-centred? 2007, Picker Institute Europe.
19. Corser W., Holmes-Rovner M., Lein C., Gossain V. A shared decision-making primary care intervention for type 2 diabetes. Diabetes Educator 2007, 33:700-708.
20. Robinson A., Thomson R. Variability in patient preferences for participating in medical decision-making: implication for the use of decisions support tools. Qual Health Care 2001, 10(Suppl. 1):i34-i38.
21. Montori V.M., Gafni A., Charles C. A shared treatment decision-making approach between patients with chronic conditions and their clinicians: the case of diabetes. Health Expect 2006, 9:25-36.
22. Heesen C., Köpke S., Richter T., Kasper J. Shared decision making and self-management in multiple sclerosis-a consequence of evidence. J Neurol 2007, 254(Suppl. 2):II/116-II/121.
23. Cassileth B.R., Zupkis R.V., Sutton-Smith K., March V. Information and participation among cancer patients. Ann Intern Med 1980, 92:832-836.
24. Ende J., Kazis L., Ash A., Moskowitz M.A. Measuring patients' desire for autonomy: decision-making and information-seeking preferences among medical patients. J Gen Intern Med 1989, 4:23-30.
25. Haes de H., Koedoot N. Patient-centered decision-making in palliative cancer treatment: a world of paradoxes. Patient Educ Couns 2003, 50:43-49.
26. Légaré F., O'Connor A.M., Graham I.D., Wells G.A., Tremblay S. Impact of the Ottawa Decision Support Framework on the agreement and the difference between patients' and physicians' decisional conflict. Med Decis Making 2006, 26:373-390.
27. Rijken M., van Kerkhof M., Dekker J., Schellevis F.G. Comorbidity of chronic diseases. Effects of disease pairs on physical and mental functioning. Qual Life Res 2005, 14:45-55.
28. de Wit J.S.J. De SCP-maat voor beperkingen. Een technische toelichting 1997, The Netherlands Institute for Social Research/SCP, Rijswijk, [SCP-werkdocument 40].
29. Ware J.E., Sherbourne C.D. The MOS 36-item Short Form Health Survey (SF-36): I. Conceptual framework and item selection. Med Care 1992, 30:473-483.
30. Van der Zee K.I., Sanderman R., Heyink J.W., de Haes H. Psychometric qualities of the RAND 36-Item Health Survey 1.0: a multidimensional measure of general health status. Int J Behav Med 1996, 3:104-122.
31. Leyland A.H., Groenewegen P.P. Multilevel modelling and public health policy. Scand J Public Health 2003, 31:267-274.
32. Rijken M., Jones M., Heijmans M., Dixon A. Supporting self-management. Caring for people with chronic conditions. A health system perspective. European Observatory on Health Systems and Policies Series 2008, 2008. Open University Press, Berkshire, UK. E. Nolte, M. McKee (Eds.).
33. van den Brink-Muinen A. Hoe communiceren bedrijfsartsen en verzekeringsartsen met chronisch zieken en gehandicapten?. TBV 2008, 9:375-380.
34. Edwards A., Elwyn G. Shared decision-making in health care: achieving evidence-based patient choice. Shared decision-making in health care. Achieving evidence-based patient choice 2009, Oxford University Press, UK, Oxford. 2nd ed. A. Edwards, G. Elwyn (Eds.).
35. Frosch D.L., Kaplan R.M. Shared decision making in clinical medicine: past research and future directions. Am J Prev Med 1999, 17:285-294.
36. Longo M., Cohen D., Hood K., Edwards A., Robling M., Elwyn G., et al. Involving patients in primary care consultations: assessing preferences using discrete choice experiments. Brit J Gen Pract 2006, 56:35-42.
37. Gravel K., Légaré F., Graham I.D. Barriers and facilitators to implementing shared decision-making in clinical practice: a systematic review of health professionals perceptions. Implement Sci 2006, 1:1-16.