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Volumn 72, Issue 11, 2011, Pages 1802-1809

Genetic testing, governance, and the family in the People's Republic of China

Author keywords

China; Duchenne muscular dystrophy (DMD); Eugenics; Family; Genetic testing; Governence; Neoliberalism; Thalassemia

Indexed keywords

AUTONOMY; CITIZENSHIP; FAMILY PLANNING; FAMILY STRUCTURE; GENETIC ANALYSIS; GENETICS; GOVERNANCE APPROACH; NEOLIBERALISM; POLICY REFORM; POPULATION POLICY; PUBLIC HEALTH; TESTING METHOD;

EID: 79958744459     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2010.03.052     Document Type: Article
Times cited : (24)

References (71)
  • 1
    • 0012025678 scopus 로고
    • A surfeit of bodies: population and the rationality of state in Post-Mao China
    • University of California Press, Berkeley, F. Ginsburg, R. Rapp (Eds.)
    • Anagnost A. A surfeit of bodies: population and the rationality of state in Post-Mao China. Conceiving the New World order: Local/global intersections in the politics of reproduction 1995, 22-41. University of California Press, Berkeley. F. Ginsburg, R. Rapp (Eds.).
    • (1995) Conceiving the New World order: Local/global intersections in the politics of reproduction , pp. 22-41
    • Anagnost, A.1
  • 2
    • 0345951754 scopus 로고    scopus 로고
    • The corporeal politics of quality (Suzhi)
    • Anagnost A. The corporeal politics of quality (Suzhi). Public Culture 2004, 16(2):189-208.
    • (2004) Public Culture , vol.16 , Issue.2 , pp. 189-208
    • Anagnost, A.1
  • 3
    • 79958751180 scopus 로고    scopus 로고
    • BBC. Chinese scientists back eugenics, Thursday, October 22, 1998 Published at 00:03 GMT 01:03 UK. Available at
    • BBC. Chinese scientists back eugenics, Thursday, October 22, 1998 Published at 00:03 GMT 01:03 UK. Available at: http://news.bbc.co.uk/1/hi/world/asia-pacific/198555.stm.
  • 4
    • 79958752159 scopus 로고    scopus 로고
    • Birth Defects on Rise as Check-ups Slide (May 21, 2007)
    • Birth Defects on Rise as Check-ups Slide (May 21, 2007). China Daily.
    • China Daily.
  • 5
    • 79958707103 scopus 로고    scopus 로고
    • Birth Defects on Rise as China Loosens Premarital Checks (March 3, 2005)
    • Birth Defects on Rise as China Loosens Premarital Checks (March 3, 2005). People's Daily.
    • People's Daily
  • 6
    • 77954777727 scopus 로고    scopus 로고
    • Premarital check-up vital to family health
    • N 30
    • Cao D.S. Premarital check-up vital to family health. China Daily November 30, 2004.
    • (2004) China Daily
    • Cao, D.S.1
  • 8
    • 79958731974 scopus 로고    scopus 로고
    • Beijing cheng zhi xujia yilaio guanggao (Beijing punishes exaggerated medical advertisement)
    • A 10
    • Chen X.G. Beijing cheng zhi xujia yilaio guanggao (Beijing punishes exaggerated medical advertisement). Zhonghua gongshang bao (Chinese Industry and Commerce Daily) August 10, 2005.
    • (2005) Zhonghua gongshang bao (Chinese Industry and Commerce Daily)
    • Chen, X.G.1
  • 10
    • 77950969155 scopus 로고    scopus 로고
    • Chinese Ministry of Health, Source. Available from
    • Chinese Ministry of Health Guidelines for genetic counselling [Jiyin zixun guifan] 2003, Source. Available from. http://www.healthychildren.org.cn/actionplan/fagui/fagui.htm.
    • (2003) Guidelines for genetic counselling [Jiyin zixun guifan]
  • 11
    • 79958708229 scopus 로고    scopus 로고
    • Chinese Population and Family Planning Law (Zhongguo renkou yu jihua shengyu fa)
    • Articles 2 and 30, 1st September 2002
    • Chinese Population and Family Planning Law (Zhongguo renkou yu jihua shengyu fa) (2002). Articles 2 and 30, 1st September 2002.
    • (2002)
  • 12
    • 79958702381 scopus 로고    scopus 로고
    • Chinese Red Cross Foundation
    • Available at Last entered: August 2009
    • Chinese Red Cross Foundation. (2009). Available at Last entered: August 2009. http://www.crcf.org.cn/news/findnews/shownews.asp-newsid%3D2052.
    • (2009)
  • 13
    • 0033663162 scopus 로고    scopus 로고
    • Alternative therapies and medical science: designing clinical trials of alternative/complementary medicines-is evidence-based traditional Chinese medicine attainable?
    • Critchley J.A., Zhang Y., Suthisisang C.C., Chan T.Y., Tomlinson B. Alternative therapies and medical science: designing clinical trials of alternative/complementary medicines-is evidence-based traditional Chinese medicine attainable?. Journal of Clinical Pharmacology 2000, 2000(40):462-467.
    • (2000) Journal of Clinical Pharmacology , vol.2000 , Issue.40 , pp. 462-467
    • Critchley, J.A.1    Zhang, Y.2    Suthisisang, C.C.3    Chan, T.Y.4    Tomlinson, B.5
  • 16
    • 0013196269 scopus 로고    scopus 로고
    • De-constructing the Chinese nation
    • An East Gate Book, M.E. Sharpe, New York, J. Unger (Ed.)
    • Duara P. De-constructing the Chinese nation. Chinese nationalism 1996, 31-55. An East Gate Book, M.E. Sharpe, New York. J. Unger (Ed.).
    • (1996) Chinese nationalism , pp. 31-55
    • Duara, P.1
  • 17
    • 0025998134 scopus 로고
    • Population frequency of inherited neuromuscular disease - a world survey
    • Emery A.E.H. Population frequency of inherited neuromuscular disease - a world survey. Neuromuscular Disorders 1991, 1:19-29.
    • (1991) Neuromuscular Disorders , vol.1 , pp. 19-29
    • Emery, A.E.H.1
  • 18
    • 29844452280 scopus 로고    scopus 로고
    • Gender, older female bodies and medical uncertainty: finding my feminist voice by telling my illness story'
    • Ettorre E. Gender, older female bodies and medical uncertainty: finding my feminist voice by telling my illness story'. Women's Studies International Forum 2005, 28:535-546.
    • (2005) Women's Studies International Forum , vol.28 , pp. 535-546
    • Ettorre, E.1
  • 19
    • 0024582412 scopus 로고
    • Some studies of the Duchenne and autosomal recessive types of muscular dystrophy
    • Gardner-Medwin D., Sharples P. Some studies of the Duchenne and autosomal recessive types of muscular dystrophy. Brain Development 1989, 11:91-97.
    • (1989) Brain Development , vol.11 , pp. 91-97
    • Gardner-Medwin, D.1    Sharples, P.2
  • 20
    • 0042388518 scopus 로고    scopus 로고
    • Science, modernity, and the making of China's one-child policy
    • Greenhalgh S. Science, modernity, and the making of China's one-child policy. Population and Development Review 2003, 29(2):163-196.
    • (2003) Population and Development Review , vol.29 , Issue.2 , pp. 163-196
    • Greenhalgh, S.1
  • 23
    • 79958751178 scopus 로고    scopus 로고
    • Gen War of the Century. Unpublished paper presented at The fourth BIONET workshop: Biobank & Genomics: Challenges - Futures for EU-China Collaborations
    • April 27-29th, 2009, Shenzhen, China
    • Guo, S. W. (2009). Gen War of the Century. Unpublished paper presented at The fourth BIONET workshop: Biobank & Genomics: Challenges - Futures for EU-China Collaborations, April 27-29th, 2009, Shenzhen, China.
    • (2009)
    • Guo, S.W.1
  • 24
    • 0008341224 scopus 로고
    • Information Office of the State Council of the People's Republic of China, Available at, Last Accessed, 18.01.10
    • Information Office of the State Council of the People's Republic of China Family planning in China (report) 1995, Available at, Last Accessed, 18.01.10. http://www.china-un.ch/eng/bjzl/t176938.htm.
    • (1995) Family planning in China (report)
  • 26
    • 79958743867 scopus 로고
    • Guanyu Zhonghua Minzu de yanjiu' [Research on the Zhonghua Minzu]
    • Jin B. Guanyu Zhonghua Minzu de yanjiu' [Research on the Zhonghua Minzu]. Zhongyang Minzuxueyuan Xuebao 1992, 5:43-49.
    • (1992) Zhongyang Minzuxueyuan Xuebao , vol.5 , pp. 43-49
    • Jin, B.1
  • 28
    • 34249665494 scopus 로고    scopus 로고
    • Neoliberalism reified: Sushi discourse and tropes of neoliberalism in the PRC
    • Kipnis A. Neoliberalism reified: Sushi discourse and tropes of neoliberalism in the PRC. Journal of the Royal Anthropological Institute 2007, 13:383-400.
    • (2007) Journal of the Royal Anthropological Institute , vol.13 , pp. 383-400
    • Kipnis, A.1
  • 29
    • 0033233686 scopus 로고    scopus 로고
    • Grooming Quezi: marriage exclusion and identity formation among disabled men in contemporary China
    • Kohrman M. Grooming Quezi: marriage exclusion and identity formation among disabled men in contemporary China. American Ethnologist 1999, 26(4):890-909.
    • (1999) American Ethnologist , vol.26 , Issue.4 , pp. 890-909
    • Kohrman, M.1
  • 31
    • 77951017863 scopus 로고    scopus 로고
    • Hubei asks for permission for prenatal genetic testing
    • 9 D, Also available from
    • Li C.Z., Zhou J.Y. Hubei asks for permission for prenatal genetic testing. Xinhua Web 9 December 2005, Also available from. http://www.xinhuanet.com.ww.
    • (2005) Xinhua Web
    • Li, C.Z.1    Zhou, J.Y.2
  • 32
    • 79958755178 scopus 로고    scopus 로고
    • Free testing for thalassemia in Nanning
    • 19 J, Also available from
    • Li J. Free testing for thalassemia in Nanning. Zhongguo Renkou [China's Population] 19 June 2006, Also available from. http://www.chinapop.gov.cn/.
    • (2006) Zhongguo Renkou [China's Population]
    • Li, J.1
  • 33
    • 0037351254 scopus 로고    scopus 로고
    • Village context, women's status and son preference among rural Chinese women
    • Li J., Lavely W. Village context, women's status and son preference among rural Chinese women. Rural Sociology 2003, 68:87-108.
    • (2003) Rural Sociology , vol.68 , pp. 87-108
    • Li, J.1    Lavely, W.2
  • 34
    • 79958698275 scopus 로고    scopus 로고
    • Zhongguo de xingbie pianhao [Gender fondness of Chinese Couple]
    • Liu S. Zhongguo de xingbie pianhao [Gender fondness of Chinese Couple]. Renkou Yanjiu (Population Research) 2005, 3:1-11.
    • (2005) Renkou Yanjiu (Population Research) , vol.3 , pp. 1-11
    • Liu, S.1
  • 35
    • 85141081808 scopus 로고    scopus 로고
    • Utopias of health eugenics, and germ-line engineering
    • Routledge, London, M. Nichter, M. Lock (Eds.)
    • Lock M. Utopias of health eugenics, and germ-line engineering. New Horizons in medical anthropology 2003, 240-266. Routledge, London. M. Nichter, M. Lock (Eds.).
    • (2003) New Horizons in medical anthropology , pp. 240-266
    • Lock, M.1
  • 36
    • 0032231759 scopus 로고    scopus 로고
    • Chinese geneticists' view of ethical issues in genetic testing and screening: evidence for eugenics in China
    • Mao X. Chinese geneticists' view of ethical issues in genetic testing and screening: evidence for eugenics in China. American Journal for Human Genetics 1998, 63:688-695.
    • (1998) American Journal for Human Genetics , vol.63 , pp. 688-695
    • Mao, X.1
  • 37
    • 0030801474 scopus 로고    scopus 로고
    • China's genetics services provider's attitudes towards several ethical issues: a cross-cultural survey
    • Mao X., Wertz D.C. China's genetics services provider's attitudes towards several ethical issues: a cross-cultural survey. Clinical Genetics 1997, 52:100-109.
    • (1997) Clinical Genetics , vol.52 , pp. 100-109
    • Mao, X.1    Wertz, D.C.2
  • 38
    • 4244124233 scopus 로고    scopus 로고
    • Kinship and medical genetics: a clinician's perspective
    • MacMillan Press Ltd, Basingstoke, A. Clarke, E. Parsons (Eds.)
    • Modell B. Kinship and medical genetics: a clinician's perspective. Culture, kinship and genes. Towards cross-cultural genetics 1997, 27-39. MacMillan Press Ltd, Basingstoke. A. Clarke, E. Parsons (Eds.).
    • (1997) Culture, kinship and genes. Towards cross-cultural genetics , pp. 27-39
    • Modell, B.1
  • 40
    • 79958694700 scopus 로고    scopus 로고
    • National Population and Family Planning Commission (Guojia jishengwei)
    • Source. Available from
    • National Population and Family Planning Commission (Guojia jishengwei) (2001). Source. Available from http://www.chinapop.gov.cn/rklt/zjjz/t20040326_1722.htm.
    • (2001)
  • 42
    • 79958700873 scopus 로고
    • Office of National Sampling Survey of the Handicapped, The Office of National Sampling Survey of the Handicapped, Beijing
    • Office of National Sampling Survey of the Handicapped China data of 1987: Sampling survey of the handicapped 1987, The Office of National Sampling Survey of the Handicapped, Beijing.
    • (1987) China data of 1987: Sampling survey of the handicapped
  • 43
    • 0141607979 scopus 로고    scopus 로고
    • An ethical dilemma: the rise and fall of UmanGenomics - the model biotech company?
    • Rose H. An ethical dilemma: the rise and fall of UmanGenomics - the model biotech company?. Nature 2003, 425:123-124.
    • (2003) Nature , vol.425 , pp. 123-124
    • Rose, H.1
  • 45
    • 84889387547 scopus 로고    scopus 로고
    • Biological citizenship
    • Blackwell, Malden/Oxford, A. Ong, S. Collier (Eds.)
    • Rose N., Novas C. Biological citizenship. Global assemblages 2005, 439-465. Blackwell, Malden/Oxford. A. Ong, S. Collier (Eds.).
    • (2005) Global assemblages , pp. 439-465
    • Rose, N.1    Novas, C.2
  • 46
    • 0032537856 scopus 로고    scopus 로고
    • Scientists debate China's law on sterilizing the carriers of genetic defects
    • 16 A
    • Rosenthal E. Scientists debate China's law on sterilizing the carriers of genetic defects. The New York Times 16 August 1998.
    • (1998) The New York Times
    • Rosenthal, E.1
  • 48
    • 84875545105 scopus 로고
    • Evolutie en Revolutie in China, over het samenspel van maatschappelijke en wetenschappelijke denkbeelden en strategieen [Evolution and Revolution in China
    • On the Interplay of Social and Scientific Images and Strategies], M.A. Thesis, University of Amsterdam
    • Sleeboom, M. (1989). Evolutie en Revolutie in China, over het samenspel van maatschappelijke en wetenschappelijke denkbeelden en strategieen [Evolution and Revolution in China. On the Interplay of Social and Scientific Images and Strategies], M.A. Thesis, University of Amsterdam.
    • (1989)
    • Sleeboom, M.1
  • 49
    • 79958721409 scopus 로고    scopus 로고
    • The coherent force of struggle and diversity in Chinese socialism
    • Sleeboom M. The coherent force of struggle and diversity in Chinese socialism. Studies in Ethnicity and Nationalism 2002, 2(1):299-314.
    • (2002) Studies in Ethnicity and Nationalism , vol.2 , Issue.1 , pp. 299-314
    • Sleeboom, M.1
  • 50
    • 85044910290 scopus 로고    scopus 로고
    • How to define a population: cultural politics of genetic sampling in the People's Republic of China (PRC) and the Republic of China (ROC)
    • Sleeboom-Faulkner M. How to define a population: cultural politics of genetic sampling in the People's Republic of China (PRC) and the Republic of China (ROC). Biosocieties 2006, 1(4):399-420.
    • (2006) Biosocieties , vol.1 , Issue.4 , pp. 399-420
    • Sleeboom-Faulkner, M.1
  • 51
    • 85044983248 scopus 로고    scopus 로고
    • The changing nature of ideology in the life sciences in the People's Republic of China (PRC). Case studies of human cloning and human embryonic stem cell research (hESR) in medical textbooks (1996-2005)
    • Sleeboom-Faulkner M. The changing nature of ideology in the life sciences in the People's Republic of China (PRC). Case studies of human cloning and human embryonic stem cell research (hESR) in medical textbooks (1996-2005). Biosocieties 2008, 3:21-36.
    • (2008) Biosocieties , vol.3 , pp. 21-36
    • Sleeboom-Faulkner, M.1
  • 52
    • 84875507197 scopus 로고    scopus 로고
    • Eugenic birth and foetal education: how instructions for premarital testing in mainland China miss their target among rural households
    • in press
    • Sleeboom-Faulkner, M. Eugenic birth and foetal education: how instructions for premarital testing in mainland China miss their target among rural households, The China Journal, in press.
    • The China Journal
    • Sleeboom-Faulkner, M.1
  • 53
    • 0030756740 scopus 로고    scopus 로고
    • Classification, prevalence, prevention and rehabilitation of intellectual disability, an overview of research in the People's Republic of China
    • Sonnander K., Claesson M. Classification, prevalence, prevention and rehabilitation of intellectual disability, an overview of research in the People's Republic of China. Journal of Intellectual Disability Research 1997, 41:180-192.
    • (1997) Journal of Intellectual Disability Research , vol.41 , pp. 180-192
    • Sonnander, K.1    Claesson, M.2
  • 54
    • 37649018593 scopus 로고    scopus 로고
    • Commercial genetic testing in mainland China: social, financial and ethical issues
    • Sui S., Sleeboom-Faulkner M. Commercial genetic testing in mainland China: social, financial and ethical issues. Journal of Bioethical Inquiry 2007, 4(3):229-237.
    • (2007) Journal of Bioethical Inquiry , vol.4 , Issue.3 , pp. 229-237
    • Sui, S.1    Sleeboom-Faulkner, M.2
  • 55
    • 77950983839 scopus 로고    scopus 로고
    • Choosing offspring - case studies of prenatal genetic testing for thalassemia and the reproduction of a 'saviour sibling' in China
    • Sui S., Sleeboom-Faulkner M. Choosing offspring - case studies of prenatal genetic testing for thalassemia and the reproduction of a 'saviour sibling' in China. Culture, Health and Sexuality 2010, 12(2):167-175.
    • (2010) Culture, Health and Sexuality , vol.12 , Issue.2 , pp. 167-175
    • Sui, S.1    Sleeboom-Faulkner, M.2
  • 56
    • 79958751771 scopus 로고    scopus 로고
    • Genetic testing on Duchenne muscular dystrophy in China: vulnerabilities of Chinese families
    • University of Amsterdam, Amsterdam, M. Sleeboom-Faulkner (Ed.)
    • Sui S., Sleeboom-Faulkner M. Genetic testing on Duchenne muscular dystrophy in China: vulnerabilities of Chinese families. Frameworks of choice: Predictive & genetic testing in Asia 2010, 167-182. University of Amsterdam, Amsterdam. M. Sleeboom-Faulkner (Ed.).
    • (2010) Frameworks of choice: Predictive & genetic testing in Asia , pp. 167-182
    • Sui, S.1    Sleeboom-Faulkner, M.2
  • 57
    • 79958713877 scopus 로고    scopus 로고
    • Within borders. Risks and the development of biobanking in China
    • Routledge, London/New York, Sleeboom-Faulkner (Ed.)
    • Sung W.-c. Within borders. Risks and the development of biobanking in China. Human genetic biobanking in Asia: Politics of trust and scientific advancement 2008, 168-188. Routledge, London/New York. Sleeboom-Faulkner (Ed.).
    • (2008) Human genetic biobanking in Asia: Politics of trust and scientific advancement , pp. 168-188
    • Sung, W.-C.1
  • 58
    • 84887772774 scopus 로고    scopus 로고
    • Flexible eugenics: technologies of the self in the age of genetics
    • University of California Press, Berkeley, A. Goodman, E. Heath, S. Lindee (Eds.)
    • Taussig K., Rapp R., Heath D. Flexible eugenics: technologies of the self in the age of genetics. Genetic nature/culture 2003, 58-76. University of California Press, Berkeley. A. Goodman, E. Heath, S. Lindee (Eds.).
    • (2003) Genetic nature/culture , pp. 58-76
    • Taussig, K.1    Rapp, R.2    Heath, D.3
  • 59
    • 79958708225 scopus 로고
    • The PRC's Maternal and Infant Health Law [Zhonghua renmin gongheguo muying baojian fa]
    • Zhonghua renmin gongheguo quanguo renmin daibiao dahui changwu weiyuanhui gongbao
    • The PRC's Maternal and Infant Health Law [Zhonghua renmin gongheguo muying baojian fa] (1994), Zhonghua renmin gongheguo quanguo renmin daibiao dahui changwu weiyuanhui gongbao, Vol. 7, pp. 3-8.
    • (1994) , vol.7 , pp. 3-8
  • 62
    • 15044364339 scopus 로고    scopus 로고
    • Population policy and the family-planning programme
    • Blackwell Publishers, Oxford, P. Xizhe, G. Zhigang (Eds.)
    • Zhenming Xie Population policy and the family-planning programme. The Changing Population of China 2000, Blackwell Publishers, Oxford. P. Xizhe, G. Zhigang (Eds.).
    • (2000) The Changing Population of China
    • Zhenming, X.1
  • 64
    • 0043165152 scopus 로고    scopus 로고
    • The origins and genetic structure of three co-resident Chinese Muslim populations: the Salar, Bo'an and Dongxiang
    • Wang W., Wise C., Baric T., Black M.L., Bittles A.H. The origins and genetic structure of three co-resident Chinese Muslim populations: the Salar, Bo'an and Dongxiang. Human Genetics 2003, 113:244-252.
    • (2003) Human Genetics , vol.113 , pp. 244-252
    • Wang, W.1    Wise, C.2    Baric, T.3    Black, M.L.4    Bittles, A.H.5
  • 65
    • 79958764719 scopus 로고    scopus 로고
    • Beijing umbilical cord blood bank opens to public
    • 27 F
    • Wei M.Y. Beijing umbilical cord blood bank opens to public. Xin Jing Bao 27 February 2008.
    • (2008) Xin Jing Bao
    • Wei, M.Y.1
  • 66
    • 0031972832 scopus 로고    scopus 로고
    • Ethical and social issues in prenatal sex selection: a survey of geneticists in 37 nations
    • Wertz D.C., Fletcher J.C. Ethical and social issues in prenatal sex selection: a survey of geneticists in 37 nations. Social Science & Medicine 1998, 46(2):265.
    • (1998) Social Science & Medicine , vol.46 , Issue.2 , pp. 265
    • Wertz, D.C.1    Fletcher, J.C.2
  • 67
    • 0030801474 scopus 로고    scopus 로고
    • China's genetics services provider's attitudes towards several ethical issues: A cross-cultural survey
    • Wertz D.C., Mao X. China's genetics services provider's attitudes towards several ethical issues: A cross-cultural survey. Clinical Genetics 1997, 52:100-109.
    • (1997) Clinical Genetics , vol.52 , pp. 100-109
    • Wertz, D.C.1    Mao, X.2
  • 69
    • 79958700870 scopus 로고    scopus 로고
    • Discrimination rife against carriers of hepatitis virus
    • M 23
    • Wu Y. Discrimination rife against carriers of hepatitis virus. China Daily March 23, 2007.
    • (2007) China Daily
    • Wu, Y.1
  • 71
    • 79958737685 scopus 로고    scopus 로고
    • Zhongguo Chanjing Xinwenbao (China Production Daily) (12 April 2002), Weile guojia anquan kanguanhao women de yichuan mima (For the Sake of Our National Security: Carefully Preserve Our Genetic Code)
    • Zhongguo Chanjing Xinwenbao (China Production Daily) (12 April 2002), Weile guojia anquan kanguanhao women de yichuan mima (For the Sake of Our National Security: Carefully Preserve Our Genetic Code).


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