Choosing offspring: Prenatal genetic testing for thalassaemia and the production of a 'saviour sibling' in China

Culture, Health and Sexuality

Volumn 12, Issue 2, 2010, Pages 167-175

  Sui, Suli ^a   Sleeboom Faulkner, Margaret ^b  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

^b UNIVERSITY OF SUSSEX   (United Kingdom)

Author keywords

China; Pre natal genetic testing; Reproductive choice; Thalassaemia

Indexed keywords

ABORTION; ARTICLE; CHINA; DECISION MAKING; ECONOMICS; FEMALE; GENETIC SCREENING; GENETICS; HUMAN; PREGNANCY; PRENATAL DEVELOPMENT; PRENATAL DIAGNOSIS; SIBLING; SOCIAL PSYCHOLOGY; THALASSEMIA;

ABORTION, EUGENIC; CHINA; CHOICE BEHAVIOR; FEMALE; GENETIC TESTING; HUMANS; PREGNANCY; PREJUDICE; PRENATAL DIAGNOSIS; SIBLINGS; THALASSEMIA;

EID: 77950983839     PISSN: 13691058     EISSN: 14645351     Source Type: Journal    
DOI: 10.1080/13691050902914110     Document Type: Article

References (19)

1. Chinese National Peoples Representative Congress (CNPRC). 2002. Chinese population and family planning law [Zhongguo renkou yu jihua shengyu fa], articles 2 and 30. Beijing: CNPRC.
2. Deng, J., W.L. Peng, J. Li, C. Fang, X.Y. Liang, Y.H. Zeng, H.Y. Sun, C.Q. Zhou, and G.L. Zhuang. 2006. Successful pre-implantation genetic diagnosis for alpha- and beta-thalassaemia in China. Pre-natal Diagnosis 26, no. 11: 1021-8.
3. Genetics and Public Policy Centre. 2004. Reproductive genetic testing: What America thinks. http:// www.dnapolicy.org/images/reportpdfs/ReproGenTestAmericaThinks.pdf
4. Harper, P.S. 1988. Genetic councelling in Mendelian disorders. In Practical genetic councelling, ed. P.S. Harper, 18-41. London: John Wright.
5. He, X. 2008. Umbilical Cord Blood Bank should be standardized [qixueku yingdang guifan hua]. Keji Ribao [Science and Technology Daily], February 25, p. 2.
6. Jiao, Z.X., G.L. Zhuang, C.Q. Zhou, Y.M. Shu, J. Li, and X.Y. Liang. 2004. Birth of healthy children after pre-implantation diagnosis of beta-thalassaemia. Chinese Medical Journal 117, no. 4: 483-7.
7. Li, C., and J. Zhou. 2005. Hubei asks for permission for pre-natal genetic testing [Hubei dui chanqian zhenduan shixing zhunruzhi] [online]. Xinhua Web. 9 December. Available from: http://news. xinhuanet.com/health/2005-12/09/content_3900052.htm [accessed 24 November 2008].
8. Li, J. 2006. Nanning mianfei jiance dizhonghai pinxue [Free testing for Thalessemia in Nanning]. Zhongguo renkou [Chinese Population]. 19 June. http://www.chinapop.gov.cn [Accessed 24 November 2008].
9. Liu, M. 2007. Five hospitals got permission for pre-natal genetic testing in Beijing [Beijng wu jia yiyuan huoxu shishi chanqian yichuan jiance]. Beijing Chenbao [Beijing Morning Daily], 10 July, p. 2. People Net [ren min wang]. http://life.people.com.cn/BIG5/1089/5967176.html
10. Ministry of Health (MOH), China. 2003a. Guidelines for genetic counseling [Jiyin zixun guifan]. Beijing: MOH.
11. MOH, China. 2003b. Measures for the administration of pre-natal diagnosis technology [chanqian zhenduan jishu guanli banfa], article 24. Beijing: MOH.
12. MOH, China. 2006. List of the institutions apply ART with permission of MOH [weishengbu shenhe pizhun de kaizhan renlei fuzhu shengzhi jishu jigou mingdan]. Beijing: MOH.
13. National Population and Family Planning Commission [Guojia Jishengwei]. 2001. Intervention with birth defects. http://www.chinapop.gov.cn/rklt/zjjz/t20040326_1722.htm
14. Shakespeare, T. 1995. Back to the future? New genetics and disabled people. Critical Social Policy 15, no. 2/3: 22-35.
15. Wapner, R.J. 2005. Invasive pre-natal diagnostic techniques. Seminars in Perinatology 29, no. 6: 401-4.
16. Wei, M. 2008. Beijing Umbilical Cord Blood Bank opens to public [Beijing qixueku dui gongzong kaifang]. Xin Jing Bao [New Beijing Daily], 27 February, p. 4.
17. Yang, D., and L. Xie. 2007. Couple have the third child for saviour sibling [fuqi wei jiu erzi sheng disan tai]. Tianfu Zaobao [Tianfu Morning Daily], 14 March, p. 3.
18. Yang, H. 2002. The human genome project and its social impact: To educate the educators. In Ethics in medical education in China. Distinguishing education of ethics from moral preaching, ed. Ole Döring, 358, 33-44. Hamburg: Mitteilungen des Instituts fur Asienkunde.
19. Zhu, H. 2006. Thalassaemia children who should not be born [bu gai chusheng de dipin haizi]. Nanfang Zhoumo [Southern Weekend], 12 January, p. 4.