End of life care in CF: Patients, families and staff experiences and unmet needs

Journal of Cystic Fibrosis

Volumn 10, Issue 4, 2011, Pages 253-257

  Braithwaite, Maxine ^a   Philip, Jennifer ^a   Tranberg, Heidi ^a   Finlayson, Felicity ^a   Gold, Michelle ^a   Kotsimbos, Tom ^a   Wilson, John ^a  

^a ALFRED HOSPITAL   (Australia)

Author keywords

Attitudes; Beliefs; Cystic fibrosis; Non malignant; Palliative care

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; CLINICAL ARTICLE; COPING BEHAVIOR; CYSTIC FIBROSIS; FAMILY; FEMALE; HEALTH CARE QUALITY; HEALTH SERVICE; HUMAN; MALE; MEDICAL STAFF; PALLIATIVE THERAPY; PSYCHOSOCIAL CARE; TERMINAL CARE;

ADULT; ATTITUDE TO HEALTH; CAREGIVERS; CYSTIC FIBROSIS; FAMILY; FEMALE; FOCUS GROUPS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; LUNG TRANSPLANTATION; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PALLIATIVE CARE; PATIENTS; TERMINAL CARE; WAITING LISTS;

EID: 79958271457     PISSN: 15691993     EISSN: 18735010     Source Type: Journal    
DOI: 10.1016/j.jcf.2011.03.002     Document Type: Article

References (18)

1. Billings J.A. Recent advances: palliative care. BMJ 2000, 321(7260):555-558.
2. National cancer control programmes: Policies and management guidelines 2002, World Health Organisation, Geneva: Switzerland.
3. Stewart S., McMurray J.J. Palliative care for heart failure. BMJ 2002, 325(7370):915-916.
4. Philip J.A., Gold M., Sutherland S., Finlayson F., Ware C., Braithwaite M., et al. End-of-life care in adults with cystic fibrosis. J Palliat Med 2008, 11(2):198-203.
5. Rosenwax L.K., McNamara B.A. Who receives specialist palliative care in Western Australia - and who misses out. Palliat Med 2006, 20(4):439-445.
6. Seamark D.A., Seamark C.J., Halpin D.M. Palliative care in chronic obstructive pulmonary disease: a review for clinicians. J R Soc Med 2007, 100(5):225-233.
7. Spathis A., Booth S. End of life care in chronic obstructive pulmonary disease: in search of a good death. Int J Chron Obstruct Pulmon Dis 2008, 3(1):11-29.
8. Dellon E.P., Leigh M.W., Yankaskas J.R., Noah T.L. Effects of lung transplantation on inpatient end of life care in cystic fibrosis. J Cyst Fibros 2007, 6(6):396-402.
9. Ford D., Flume P.A. Impact of lung transplantation on site of death in cystic fibrosis. J Cyst Fibros 2007, 6(6):391-395.
10. Miller M., Hankinson J., Brusasco V., Burgos F., Casaburi R., Coates A., et al. Standardisation of spirometry. Eur Respir J 2005, 26(2):319-338.
11. Daly J., Kellehear A., Gliksman M. The public health researcher: a methodological approach 1997, Oxford University Press. Melbourne, Australia.
12. Chapman E., Landy A., Lyon A., Haworth C., Bilton D. End of life care for adult cystic fibrosis patients: facilitating a good enough death. J Cyst Fibros 2005, 4(4):249-257.
13. Leydon G.M., Boulton M., Moynihan C., Jones A., Mossman J., Boudioni M., et al. Cancer patients' information needs and information seeking behaviour: in depth interview study. BMJ 2000, 320(7239):909-913.
14. Murray S.A., et al. Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community. BMJ 2002, 325(7370):929.
15. Abbott J., Hart A., Morton A., Gee L., Conway S. Health-related quality of life in adults with cystic fibrosis: the role of coping. J Psychosom Res 2008, 64(2):149-157.
16. Kubler-Ross E. On death and dying 1969, Mac-millan, New York.
17. Odling G., Norberg A., Danielson E. Care of women with breast cancer on a surgical ward: nurses' opinions of the need for support for women, relatives and themselves. J Adv Nurs 2002, 39(1):77-86.
18. Catalan J., Burgess A., Pergami A., Hulme N., Gazzard B., Phillips R. The psychological impact on staff of caring for people with serious diseases: the case of HIV infection and oncology. J Psychosom Res 1996, 40(4):425-435.