Who receives specialist palliative care in Western Australia - And who misses out

Palliative Medicine

Volumn 20, Issue 4, 2006, Pages 439-445

  Rosenwax, L K ^a   McNamara, B A ^b  

^a CURTIN UNIVERSITY   (Australia)

^b UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

Author keywords

Cancer; Palliative care; Population based study; Specialist palliative care

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; AUSTRALIA; CANCER MORTALITY; CAUSE OF DEATH; CHILD; CITY; COHORT ANALYSIS; CONFIDENCE INTERVAL; CONTROLLED STUDY; DOCUMENTATION; FEMALE; GERIATRIC PATIENT; HEALTH CARE ACCESS; HEALTH CARE NEED; HEALTH CARE PLANNING; HEALTH CARE POLICY; HEALTH CARE UTILIZATION; HUMAN; INDIGENOUS PEOPLE; INFANT; MAJOR CLINICAL STUDY; MALE; MARRIAGE; MEDICAL SPECIALIST; PALLIATIVE THERAPY; REGIONALIZATION; RETROSPECTIVE STUDY; STATISTICAL SIGNIFICANCE; WIDOW;

ADOLESCENT; ADULT; AGED; CAUSE OF DEATH; CHILD; CHILD, PRESCHOOL; COHORT STUDIES; DELIVERY OF HEALTH CARE; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; INFANT; INFANT, NEWBORN; MALE; MIDDLE AGED; NEOPLASMS; PALLIATIVE CARE; RETROSPECTIVE STUDIES; WESTERN AUSTRALIA;

EID: 33746137849     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1191/0269216306pm1146oa     Document Type: Article

References (39)

1. Potter J, Hami F, Bryan T, Quigley C. Symptoms in 400 patients referred to palliative care services: prevalence and patterns. Palliat Med 2003; 17: 310-14.
2. Addington-Hall JM, Higginson IJ. Palliative care for non-cancer patients. Oxford University Press, 2001.
3. Davies E, Higginson IJ eds. Better palliative care for older people, WHO, 2004a. (http://www.eur.int/document/E82933.pdf)
4. Davies E, Higginson IJ eds. The solid facts - palliative care. WHO, 2004b. (http://www.eur.int/document/E82931.pdf)
5. Hunt RW, Fazekas BS, Luke CG, et al. The coverage of cancer patients by designated palliative services: a population-based study, South Australia, 1999. Palliat Med 2002; 16: 403-409.
6. Higginson IJ. Palliative and terminal care. In Stevens A ed. Palliative and terminal care health care needs assessment. Radcliffe Medical Press, 1997: 1-77.
7. Currow DC, Abernethy AP, Fazekas BS. Specialist palliative care needs of whole populations: a feasibility study using a novel approach. Palliat Med 2004; 18: 239-47.
8. Addington-Hall JM, Fakhoury W, McCarthy M. Specialist palliative care in non-malignant disease. Palliat Med 1998; 12: 417-27.
9. Gibbs JS, McCoy A, Gibbs L, Rogers A, Addington-Hall JM. Living with and dying from heart failure: the role of palliative care. Heart 2002; 88: 36-39.
10. Abrahm JL, Hansen-Flaschen J. Hospice care for patients with advanced lung disease. Chest 2002; 121: 220-29.
11. Reid DW, Soltani A, Johns DP, et al. Bronchodilator reversibility in Australian adults with chronic obstructive pulmonary disease. Intern Med J 2003; 33: 572-77.
12. Poppel DM, Cohen LM, Germain MJ. The renal palliative care initiative. J Palliat Med 2003; 6: 321-26.
13. Albinsson L, Strang P. Differences in supporting families of dementia patients and cancer patients: a palliative perspective. Palliat Med 2003; 17: 359-67.
14. Heneghan MA, O'Grady JG. Palliative care in liver disease. In Addington-Hall JM, Higginson IJ eds. Palliative care for non-cancer patients. Oxford University Press, 2001: 82-102.
15. Adam SJ. Palliative care for patients with a failed liver transplant. Intensive Crit Care Nurs 2000; 16: 396-402.
16. Kutzen HS. Integration of palliative care into primary care for human immunodeficiency virus-infected patients. Am J Med Sci 2004; 328: 37-47.
17. O'Brien T. Neurodegenerative disease. In Addington-Hall JM, Higginson IJ eds. Palliative care for non-cancer patients. Oxford University Press, 2001: 44-55.
18. Dawson S, Kristjanson LJ. Mapping the journey: family carers' perceptions of issues related to end-stage care of individuals with muscular dystrophy or motor neurone disease. J Palliat Care 2003; 19: 36-42.
19. Eagar K, Gordon R, Quinsey K, Fildes D. Palliative care in Tasmania: current situation and future directions. Centre for Health Services Development, University of Wollongong, 2004.
20. Palliative Care Australia (PCA). A guide to palliative care service development: a population based approach. PCA, 2005.
21. Australian Institute of Health and Welfare (AIHW). Admitted patient palliative care in Australia 1999-00. AIHW, 2003.
22. Rosenwax L, McNamara B, Blackmore M, Holman CDJ. Estimating a potential palliative care population. Palliat Med 2005; 19: 556-62.
23. Australian Bureau of Statistics (ABS). Census of population and housing: socio-economic indexes for areas, information paper. ABS Cat. No. 2039.0. ABS, 2001.
24. Glover J, Tenant S. Remote areas statistical geography in Australia: notes on the Accessibility/Remoteness Index for Australia (ARIA + version). Working Paper Series No. 9. The University of Adelaide, 2002.
25. Ahmed N, Bestall J, Ahmedzai S, Payne SA, Clark D, Noble B. Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals. Palliat Med 2004; 18: 525-42.
26. Fox E, Landrum-McNiff K, Zhong Z, Dawson NV, Wu AW, Lynn J. Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced heart, lung, or liver disease. J Am Geriatr Soc 1999; 282: 1638-45.
27. Coventry PA, Grande GE, Richards DA, Todd CJ. Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review. Age Ageing 2005; 34: 217-27.
28. Field D, Addington-Hall JM. Extending palliative care to all? Soc Sci Med 1999; 48: 1271-80.
29. Murray SA, Boyd K, Kendall M, Worth A, Benton TF, Clausen H. Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community. BMJ 2002; 325: 929-33.
30. Palliative Care Australia (PCA). Palliative care service provision in Australia: a planning guide. PCA, 2003.
31. Cartwright A. Death in England and Wales. Rev Clin Gerontol 1997; 7: 265-72.
32. McGrath P, Watson J, Derschow B, Murphy S, Rayner R. Indigenous palliative care service delivery - a living model. National Health and Medical Research Council, 2004.
33. Brameld KJ, Thomas MA, Holman CD, Bass AJ, Rouse IL. Validation of linked administrative data on end-stage renal failure: application of record linkage to a 'clinical base population'. Aus N Z J Publ Health 1999; 23: 464-67.
34. Hoyert DL. Mortality trends for Alzheimers' disease: 1979-1999. Vital Health Stat 1996; 28: 1-23.
35. Mannino DM, Brown C, Giovino GA. Obstructive lung disease deaths in the United States from 1979 through 1993. An analysis using multiple-cause mortality data. Am J Respir Crit Care Med 1997; 156: 814-18.
36. Camilli AE, Robbins DR, Lebowitz MD. Death certificate reporting of confirmed airways obstructive disease. Am J Epidemiol 1991; 133: 795-800.
37. Glare PA, Virik K. Can we do better in end-of-life care? The mixed management model and palliative care. MJA 2001; 175: 534-36.
38. Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ 2005; 330: 1007-11.
39. Exley C, Field D, Jones L, Stokes T. Palliative care in the community for cancer and end-stage cardiorespiratory disease: the views of patients, lay-carers and health care professionals. Palliat Med 2005; 19: 76-83.