Parenting a child with an autism spectrum disorder: Public perceptions and parental conceptualizations

Journal of Family Social Work

Volumn 14, Issue 3, 2011, Pages 208-225

  Neely Barnes, Susan L ^a   Hall, Heather R ^b   Roberts, Ruth J ^c   Graff, J Carolyn ^c  

^a UNIVERSITY OF MEMPHIS   (United States)

^b University of South Alabama College of Nursing   (United States)

^c UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER   (United States)

Author keywords

Autism; Focus group; Parent blame; Qualitative research

Indexed keywords

EID: 79957873416     PISSN: 10522158     EISSN: 15404072     Source Type: Journal    
DOI: 10.1080/10522158.2011.571539     Document Type: Article

References (29)

1. Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or Fragile X syndrome. American Journal on Mental Retardation, 109, 237-254.
2. Altiere, M. J., & Von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual & Developmental Disability, 34, 142-152.
3. Baker-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research & Practice for Persons with Severe Disabilities, 30, 194-204.
4. Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 31, 702-714.
5. Denzin, N. K., & Lincoln, Y. S. (Eds.). (2005). The Sage handbook of qualitative research (3rd ed.). Thousand Oaks, CA: Sage.
6. Fitzpatrick, M. (2009). Defeating autism: A damaging delusion. London, England: Routledge.
7. Gibbs, A. (1997). Focus groups. Social research update, 19. Retrieved from http://sru.soc.surrey.ac.uk/SRU19.html
8. Goss, J. D., & Leinbach, T. R. (1996). Focus groups as alternative research practice. Area, 28(2), 115-123.
9. Graff, J. C., Neely-Barnes, S. L., Hall, H. R., Roberts, R. J., & Hankins, J. S. (n.d.). Parent communication with siblings of children withdevelopmental and genetic disorders. Unpublished manuscript, University of Tennessee Health Science Center, Memphis, Tennessee.
10. Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science & Medicine, 56, 631-642.
11. Hastings, R. P., Beck, A., & Hill, C. (2005). Positive contributions made by children with an intellectual disability in the family: Mothers' and fathers' perceptions. Journal of Intellectual Disability, 9, 155-165.
12. In the news. (n.d.). Autism speaks. Retrieved from http://www.autismspeaks.org/inthenews/index.php?WT.svl=Top_Nav
13. Ivey, A. E., D'Andrea, M., Ivey, M. B., & Simek-Morgan, L. (2007). Theories of counseling and psychotherapy: A multicultural perspective. Boston, MA: Pearson/ Allyn and Bacon.
14. Kitzinger, J. (1995). Qualitative research: Introducing focus groups. British Medical Journal, 311, 299-302.
15. Krueger, R. A., & Casey, M. A. (2009). Focus groups: A practical guide for applied research (4th ed.). Thousand Oaks, CA: Sage.
16. Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172-183.
17. Linton, S. (1998). Claiming disability: Knowledge and identity. New York, NY: New York University Press.
18. Mesibov, G. B., Adams, L. W., & Schopler, E. (2000). Autism: A brief history. Psychoanalytic Inquiry, 5, 637-647.
19. Myers, B. J., Mackintosh, V. H., & Goin-Kochel, R. P. (2009). "My greatest joy and my greatest heart ache": Parents' own words on how having a child in the autism spectrum has affected their lives and their families' lives. Research in Autism Spectrum Disorders, 3, 670-684.
20. Olsson, M. B., & Hwang, C. P. (2001). Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research, 45, 535-543.
21. Phelps, K. W., Hodgson, J. L., McCammon, S. L., & Lamson, A. L. (2009). Caring for an individual with autism disorder: A qualitative analysis. Journal of Intellectual & Developmental Disability, 34, 27-35.
22. QSR International Pty Ltd. (2006). NVivo7 [Computer software]. Retrieved from http://www.qsrinternational.com
23. Race, K. E., Hotch, D. F., & Parker, T. (1994). Rehabilitation program evaluation:Use of focus groups to empower clients'. Evaluation Review, 18(6), 730-740.
24. Scorgie, K., & Sobsey, D. (2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38, 195-206.
25. Stewart, D. W., Shamdasani, P. N., & Rook, D. W. (2007). Focus groups: Theory and practice (2nd ed.). Newbury Park, CA: Sage.
26. Taunt, H. M., & Hastings, R. P. (2002). Positive impact of children with developmental disabilities on their families: A preliminary study. Education and Training in Mental Retardation and Developmental Disabilities, 37, 410-420.
27. Wing, L. (1997). The history of ideas on autism. Autism, 1, 13-23.
28. Wolff, S. (2004). The history of autism. European Journal of Child and Adolescent Psychiatry, 13, 201-208.
29. Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18, 1075-1083.