Caring for an individual with autism disorder: A qualitative analysis

Journal of Intellectual and Developmental Disability

Volumn 34, Issue 1, 2009, Pages 27-35

  Phelps, Kenneth W ^a   Hodgson, Jennifer L ^a   McCammon, Susan L ^a   Lamson, Angela L ^a  

^a EAST CAROLINA UNIVERSITY   (United States)

Author keywords

Autism; Biopsychosocial spiritual; Caregiving; Ecological; Systemic

Indexed keywords

ARTICLE; AUTISM; CAREGIVER; CHILD CARE; HUMAN; PSYCHOLOGICAL ASPECT; QUALITATIVE ANALYSIS; QUESTIONNAIRE; SOCIAL ASPECT;

ADOLESCENT; ADULT; AUTISTIC DISORDER; CAREGIVERS; CHILD; CHILD, PRESCHOOL; FEMALE; HUMANS; MALE; PSYCHOLOGY; QUESTIONNAIRES; SPIRITUALITY; YOUNG ADULT;

EID: 61649104585     PISSN: 13668250     EISSN: 14699532     Source Type: Journal    
DOI: 10.1080/13668250802690930     Document Type: Article

References (30)

1. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text revision). Washington, DC: Author.
2. Baruth, L. G., & Burggraf, M. Z. (1983). Marital counseling: Parents have special needs also. The Journal of Alderian Theory, Research, and Practice, 37, 409-418.
3. Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51, 702-714.
4. Bischoff, L., & Tingstrom, D. (1991). Siblings of children with disabilities: Psychological and behavioral characteristics. Counseling Psychology Quarterly, 4, 311-321.
5. Boss, P., Dahl, C., & Kaplan, L. (1996). The use of phenomenology for family therapy research: The search for meaning. In D. H. Sprenkle & S. M. Moon (Eds.), Research methods in family therapy (pp. 83-106). New York: Guilford Press.
6. Bristol, M. M. (1984). Family resources and successful adaptation to autistic children. In E. Schopler & G.B. Meisbov (Eds.), The effects of autism on the family (pp. 287-310). New York: Plenum Press.
7. Bronfenbrenner, U. (1979). The ecology of human development. Cambridge, MA: Harvard University Press.
8. Colaizzi, P. F. (1978). Psychological research as the phenomenologist views it. In R. Vaile & M. King (Eds.), Existential phenomenological alternatives for psychology (pp. 48-71). New York: Oxford University Press.
9. Coulthard, P., & Fitzgerald, M. (1999). In God we trust? Organized religion and personal beliefs as resources and coping strategies, and their implications for health in parents with a child on the autistic spectrum. Mental Health, Religion & Culture, 2, 19-33.
10. Creswell, J. L. (1998). Qualitative inquiry and research design choosing among five traditions. London: Sage Publications.
11. Engel, G. L. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196, 129-136.
12. Featherstone, H. (1980). A difference in the family: Living with a disabled child. New York: Penguin.
13. Gray, D. E. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual & Developmental Disability, 27, 215-222.
14. Hastings, R., Kovshoff, H., Ward, N., Espinosa, T., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635-644.
15. Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: A contrast between Down's syndrome and childhood autism. American Journal of Mental Deficiencies, 80, 431-436.
16. Jabrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service, and cost impacts of children with autism spectrum disorders: A pilot study. Journal of Autism and Developmental Disorders, 33, 395-402.
17. Jackson, D. D. (1957). The question of family homeostasis. Psychiatric Quarterly, Supplement, 31, 79-90.
18. Koegel, R. L., Schreibman, L., O'Neill, R. E., & Burke, J. C. (1983). The personality and family interaction characteristics of parents of autistic children. Journal of Consulting and Clinical Psychology, 51, 683-692.
19. Konrad, S. C. (2006). Posttraumatic growth in mothers of children with acquired disabilities. Journal of Loss and Trauma, 11, 101-113.
20. Konstantareas, M., & Homatidis, S. (1989). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry and Allied Disciplines, 30, 459-470.
21. Lincoln, Y., & Guba, E. (1985). Naturalistic inquiry. Newbury Park, CA: Sage Publications.
22. Phelps, K. W., McCammon, S. L., Wuensch, K. L., & Golden, J. A. (in press). Enrichment, stress, and growth from parenting an individual with an autism spectrum disorder. Journal of Intellectual & Developmental Disability.
23. Rodrigue, J. R., Geffken, G. R., & Morgan, S. B. (1993). Perceived competence and behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 23, 665-674.
24. Sharpley, C. F., & Bitsika, V. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism. Journal of Intellectual & Developmental Disability, 22, 19-29.
25. Stoner, J., & Angell, M. (2006). Parent perspectives on role engagement: An investigation of parents of children with autism spectrum disorders and their self-reported roles with educational professionals. Focus on Autism and Other Developmental Disabilities, 21, 177-189.
26. Stoner, J., Bock, S., Thompson, J., Angell, M., Heyl, B., & Crowley, E. (2005). Welcome to our world: Parents perceptions of interactions between parents of young children with ASD and educated professionals. Focus on Autism and Other Developmental Disabilities, 20, 39-51.
27. Trute, B. (2003). Grandparents of children with developmental disabilities: Intergenerational support and family well-being. Families in Society: The Journal of Contemporary Human Services, 84, 119-126.
28. Wolf, L. C., Noh, S., Fisman, S. N., & Speechley, M. (1989). Brief report: Psychological effects of parenting stress on parents of autistic children. Journal of Autism and Developmental Disorders, 19, 157-166.
29. Wright, S., Watson, W. L., & Bell, J. M. (1996). Beliefs: The heart of healing in families and illness. New York: Basic Books.
30. Yatchmenoff, D., Koren, P., Friesen, B., Gordon, L., & Kinney, R. (1998). Enrichment and stress in families caring for a child with a serious emotional disorder. Journal of Child and Family Studies, 7, 129-145.