Theory and practice in participatory research: Lessons from the native elder care study

Gerontologist

Volumn 51, Issue 3, 2011, Pages 285-294

  Goins, R Turner ^a   Garroutte, Eva Marie ^b   Fox, Susan Leading ^c   Dee Geiger, Sarah ^a   Manson, Spero M ^d  

^a WEST VIRGINIA UNIVERSITY   (United States)

^b BOSTON COLLEGE   (United States)

^c Health and Medical Division   (United States)

^d UNIVERSITY OF COLORADO   (United States)

Author keywords

Aged, Minority health; CBPR; Indians, North American; TPR

Indexed keywords

AGED; AMERICAN INDIAN; ARTICLE; CONSUMER; COOPERATION; GERIATRICS; HUMAN; INTERVIEW; METHODOLOGY; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; PARTICIPATORY RESEARCH; PROGRAM DEVELOPMENT; PUBLIC RELATIONS; UNITED STATES;

AGED; COMMUNITY-BASED PARTICIPATORY RESEARCH; CONSUMER PARTICIPATION; COOPERATIVE BEHAVIOR; GERIATRICS; HUMANS; INDIANS, NORTH AMERICAN; INTERINSTITUTIONAL RELATIONS; INTERVIEWS AS TOPIC; MIDDLE AGED; NORTH CAROLINA; PROGRAM DEVELOPMENT;

EID: 79957510397     PISSN: 00169013     EISSN: 17585341     Source Type: Journal    
DOI: 10.1093/geront/gnq130     Document Type: Article

References (34)

1. Brydon-Miller, M. (1997). Participatory action research: Psychology and social change. Journal of Social Issues, 53, 657-666. doi:10.1111/j.1540-4560. 1997.tb02454.x. (Pubitemid 127575292)
2. Davis, S. M., & Reid, R. (1999). Practicing participatory research in American Indian communities. American Journal of Clinical Nutrition, 69, 755S-759S. (Pubitemid 29160216)
3. Deloria, V. (1991). Commentary: Research, redskins, and reality. American Indian Quarterly, 15, 457.
4. Deloria, V. (1995). Red earth, white lies. New York: Scribner.
5. Deloria, V. (2003). God is red (3rd ed.). Golden, CO: Fulcrum.
6. Denny, C. H., Holtzman, D., Goins, R. T., & Croft, J. B. (2005). Disparities in chronic disease risk factors and health status between American Indian/Alaska Native and White elders: Findings from a telephone survey, 2001 and 2002. American Journal of Public Health, 95, 825-827. doi:10.2105/AJPH.2004. 043489. (Pubitemid 40593743)
7. Fisher, P. A., & Ball, T. J. (2002). The Indian family wellness project: An application of the Tribal Participatory Research Model. Prevention Science, 3, 235-240. doi:10.1023/A:1019950818048. (Pubitemid 44133874)
8. Fisher, P. A., & Ball, T. J. (2003). Tribal participatory research: Mechanisms of a collaborative model. American Journal of Community Psychology, 32, 207-216. doi:10.1023/B:AJCP.0000004742.39858.c5. (Pubitemid 38981439)
9. Fisher, P. A., & Ball, T. J. (2005). Balancing empiricism and local cultural knowledge in design and prevention research. Journal of Urban Health, 82(Suppl. 3), iii44-iii55. doi:10.1093/jurban/jti063. (Pubitemid 41442967)
10. Fixico, D. L. (2003). The American Indian mind in a linear world. New York: Routledge.
11. Folstein, M. F., Folstein, S. E, & McHugh, P. R. (1975). Mini-mental state: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatry Research, 12(3), 189-198. doi:10.1016/0022- 3956(75)90026-6.
12. Froehlich, T. E., Robison, J. T., & Inouye, S. K. (1998). Screening for dementia in the outpatient setting: The Time and Change Test. Journal of the American Geriatrics Society, 46, 1506-1511. (Pubitemid 28551196)
13. Goins, R. T., Moss, M. P., Buchwald, D., & Guralnik, J. (2007). Disability among older American Indians and Alaska Natives: An analysis of the 2000 Census public use microdata sample. Gerontologist, 47, 690-696. (Pubitemid 350156065)
14. Hayward, M. D., & Heron, M. (1999). Racial inequality in active life among adult Americans. Demography, 36, 77-91.
15. Hendrix, L. R., & LeBeau, H. (2009). American Indian traditions and theologies. In Ethnogeriatrics Steering Committee of the American Geriatrics Society (Ed.), Doorway thoughts: Vol. 3. Cross-cultural health care for older adults (pp. 9-21). Sudbury, MA: Jones and Bartlett.
16. Indian Health Service. (1997). Indian health focus: Elders. Washington, DC: U.S. Government Printing Offce.
17. Inouye, S. K., Robison, J. T., Froehlich, T. E., & Richardson, E. D. (1998). The time and change test: A simple screening test for dementia. Journal of Gerontology: Medical Sciences, 53A, M281-M286. doi:10.1093/gerona/53A.4.M281. (Pubitemid 28354745)
18. Israel, B. A., Schulz, A. J., Parker, E. A., & Becker, A. B. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19, 173-202. (Pubitemid 28279929)
19. Jerusalem, M., & Schwarzer, R. (1992). Self-effcacy as a resource factor in stress appraisal processes. In R. Schwarzer (Ed.), Self-effcacy: Thought control of action (pp. 195-213). Washington, DC: Hemisphere.
20. Kituwah Preservation and Education Program. (2006). 2005 Cherokee language comprehensive survey. Cherokee, NC: Eastern Band of Cherokee Indians.
21. Letiecq, B. L., & Bailey, S. J. (2004). Evaluating from the outside: Conducting cross-cultural evaluation research on an American Indian reservation. Evaluation Review, 28, 342-357. doi:10.1177/01938 41X04265185.
22. Mello, M. M., & Wolf, L. E. (2010). The Havasupai Indian Tribe case: Lessons for research involving stored biologic samples. New England Journal of Medicine, 363, 204-207. doi:10.1056/NEJMp1005203.
23. Nyden, P. (2003). Academic incentives for faculty participation in community-based participatory research. Journal of General Internal Medicine, 18, 576-585. doi:10.1046/j.1525-1497.2003.20350.x. (Pubitemid 36921025)
24. Quinn, S. C. (2004). Protecting human subjects: The role of community advisory boards. American Journal of Public Health, 94, 918-922. (Pubitemid 38691533)
25. Red Horse, J. G. (1980). American Indian elders: Unifers of Indian families. Social Casework, 61, 490-493.
26. Smith, L. T. (1999). Decolonizing methodologies: Research and indigenous peoples. New York: Zed Books.
27. Smith-Morris, C. (2007). Autonomous individuals or self-determined communities? The changing ethics of research among Native Americans. Human Organization, 66, 327-336.
28. Smyer, T., & Stenvig, T. E. (2007). Health care for American Indian elders: An overview of cultural infuences and policy issues. Home Health Care Management and Practice, 20, 27-33. doi:10.1177/1084822307305380.
29. Strauss, R. P., Sengupta, S., Quinn, S. C., Goeppinger, J., Spaulding, C., & Kegeles, S. M. (2001). The role of community advisory boards: Involving communities in the informed consent process. American Journal of Public Health, 91, 1938-1943. (Pubitemid 33114396)
30. Strickland, C. J. (2006). Challenges in community-based participatory research implementation: Experiences in cancer prevention with Pacifc Northwest American Indian tribes. Cancer Control, 13, 230-236. (Pubitemid 44469746)
31. U.S. Census Bureau. (2002). The American Indian and Alaska Native population 2000: Census 2000 Brief. Washington, DC.
32. U.S. Census Bureau. (2008). Projections of the American Indian and Alaska Native alone or in combination population by age and sex for the United States: 2010 to 2050. Statistical Abstract of the United States: 2008. Washington, DC.
33. Viswanathan, M., Ammerman, A., Eng, E., Gartlehner, G., Lohr, K. N., Griffth, D., et al. (2004). Community-based participatory research: Assessing the evidence. (AHRQ Publication No. 04-E022-2). Rockville, MD: Agency for Healthcare Research and Quality.
34. Willis, G. B. (1999). Cognitive interviewing: A "how to" guide. Research Triangle Park, NC: Research Triangle Institute.