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Volumn 42, Issue 1, 2003, Pages 47-57

Ambiguous loss and disenfranchised grief: The impact of DNA predictive testing on the family as a system

Author keywords

[No Author keywords available]

Indexed keywords

DNA;

EID: 0242380654     PISSN: 00147370     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1545-5300.2003.00047.x     Document Type: Article
Times cited : (77)

References (44)
  • 1
    • 0031082775 scopus 로고
    • Nuance, complexity and context: Qualitative measures in genetic research
    • Beeson, D. (1994). Nuance, complexity and context: Qualitative measures in genetic research. Journal of Genetic Counseling, 6, 21-43.
    • (1994) Journal of Genetic Counseling , vol.6 , pp. 21-43
    • Beeson, D.1
  • 2
    • 3342928502 scopus 로고
    • Family scripts and loss
    • F. Walsh & M. McGoldrick (Eds.). New York: W.W. Norton
    • Bing-Hall, J. (1991). Family scripts and loss. In F. Walsh & M. McGoldrick (Eds.), Loss and the family: A systemic perspective (pp. 130-143). New York: W.W. Norton.
    • (1991) Loss and the Family: A Systemic Perspective , pp. 130-143
    • Bing-Hall, J.1
  • 3
    • 0004223488 scopus 로고    scopus 로고
    • Cambridge, MA: Harvard University Press
    • Boss, P. (1999). Ambiguous loss. Cambridge, MA: Harvard University Press.
    • (1999) Ambiguous Loss
    • Boss, P.1
  • 4
    • 0008957040 scopus 로고
    • Alzheimer disease and ambiguous loss
    • C. Chilman, E. Nunnally, & F. Cox (Eds.). Beverly Hills, CA: Sage Publications
    • Boss, P., Caron, W., & Horbal, J. (1988). Alzheimer disease and ambiguous loss. In C. Chilman, E. Nunnally, & F. Cox (Eds.), Chronic illness and disability: Families in trouble series 2 (pp. 123-140). Beverly Hills, CA: Sage Publications.
    • (1988) Chronic Illness and Disability: Families in Trouble Series 2 , pp. 123-140
    • Boss, P.1    Caron, W.2    Horbal, J.3
  • 5
    • 0028209130 scopus 로고
    • Ethical issues in genetic testing for Alzheimer disease: Lessons from Huntington disease
    • Burgess, M. (1994). Ethical issues in genetic testing for Alzheimer disease: Lessons from Huntington disease. Alzheimer's Disease and Associated Disorders, 8, 71-78.
    • (1994) Alzheimer's Disease and Associated Disorders , vol.8 , pp. 71-78
    • Burgess, M.1
  • 6
    • 0002208260 scopus 로고
    • The grounded theory method: An explication and interpretation
    • Robert Emerson (Ed.). Boston: Little, Brown
    • Charmaz, K. (1983). The grounded theory method: An explication and interpretation. In Robert Emerson (Ed.), Contemporary Field Research (pp 109-126). Boston: Little, Brown.
    • (1983) Contemporary Field Research , pp. 109-126
    • Charmaz, K.1
  • 7
    • 34247732721 scopus 로고
    • Grounded theory research: Procedures, canon, and evaluative criteria
    • Corbin, J., & Strauss, A. (1990). Grounded theory research: Procedures, canon, and evaluative criteria. Qualitative Sociology, 13(1), 4-21.
    • (1990) Qualitative Sociology , vol.13 , Issue.1 , pp. 4-21
    • Corbin, J.1    Strauss, A.2
  • 9
    • 0028022712 scopus 로고
    • Psychological costs and benefits of predictive testing for Huntington disease
    • Cordori, A., & Brandt, J. (1994). Psychological costs and benefits of predictive testing for Huntington disease. American Journal of Medical Genetics, 54, 174-184.
    • (1994) American Journal of Medical Genetics , vol.54 , pp. 174-184
    • Cordori, A.1    Brandt, J.2
  • 12
  • 14
    • 0024632552 scopus 로고
    • Putting the illness in its place: Discussion groups for families with chronic illness
    • Gonzalez, S., Steinglass, P., & Reiss, D. (1989). Putting the illness in its place: Discussion groups for families with chronic illness. Family Process, 28(1), 69-87.
    • (1989) Family Process , vol.28 , Issue.1 , pp. 69-87
    • Gonzalez, S.1    Steinglass, P.2    Reiss, D.3
  • 15
    • 0033094307 scopus 로고    scopus 로고
    • Depressive symptoms among spousal caregivers of institutionalized mates with Alzheimer: Boundary ambiguity and master as predictors
    • Kaplan, L., & Boss, P. (1999). Depressive symptoms among spousal caregivers of institutionalized mates with Alzheimer: Boundary ambiguity and master as predictors. Family Process, 38(1), 85-103.
    • (1999) Family Process , vol.38 , Issue.1 , pp. 85-103
    • Kaplan, L.1    Boss, P.2
  • 16
    • 0023685024 scopus 로고
    • Invited essay on the psychological aspects of genetic testing. V. Pre-selection: A family coping mechanism
    • Kessler, W. (1988). Invited essay on the psychological aspects of genetic testing. V. Pre-selection: A family coping mechanism. American Journal of Medical Genetics, 31, 617-621.
    • (1988) American Journal of Medical Genetics , vol.31 , pp. 617-621
    • Kessler, W.1
  • 17
    • 0028100407 scopus 로고
    • Predictive testing for Huntington disease: A psychologist's view
    • Kessler, S. (1994). Predictive testing for Huntington disease: A psychologist's view. American Journal of Medical Genetics, 54, 161-166.
    • (1994) American Journal of Medical Genetics , vol.54 , pp. 161-166
    • Kessler, S.1
  • 18
    • 0042691537 scopus 로고    scopus 로고
    • Psychological aspects of genetic counseling. 1X. Teaching counseling
    • Kessler, S. (1997). Psychological aspects of genetic counseling. 1X. Teaching counseling. Journal of Genetic Counseling, 6(3), 287-296.
    • (1997) Journal of Genetic Counseling , vol.6 , Issue.3 , pp. 287-296
    • Kessler, S.1
  • 22
    • 34249840590 scopus 로고
    • Presymptomatic testing for Huntington disease: Recommendations for counseling
    • Quaid, K. (1992). Presymptomatic testing for Huntington disease: Recommendations for counseling. Journal of Genetic Counseling, 1, 277-302.
    • (1992) Journal of Genetic Counseling , vol.1 , pp. 277-302
    • Quaid, K.1
  • 23
    • 0029007707 scopus 로고
    • Exploration of the effects of predictive testing for Huntington disease on intimate relationships
    • Quaid, K., & Wesson, M. (1995). Exploration of the effects of predictive testing for Huntington disease on intimate relationships. American Journal of Medical Genetics, 57, 46-51.
    • (1995) American Journal of Medical Genetics , vol.57 , pp. 46-51
    • Quaid, K.1    Wesson, M.2
  • 24
    • 0342323313 scopus 로고
    • Families and their paradigms. An ecologic approach to understanding the family and its social world
    • N. Ramsey (Ed.). New York: Guilford Press
    • Reiss, D. (1989). Families and their paradigms. An ecologic approach to understanding the family and its social world. In N. Ramsey (Ed.), Family systems in medicine (pp. 119-134). New York: Guilford Press.
    • (1989) Family Systems in Medicine , pp. 119-134
    • Reiss, D.1
  • 25
    • 0025276066 scopus 로고
    • Patient, family, and staff responses to end-stage renal disease
    • Reiss, D. (1990). Patient, family, and staff responses to end-stage renal disease. American Journal of Kidney Disease, 15(3), 194-200.
    • (1990) American Journal of Kidney Disease , vol.15 , Issue.3 , pp. 194-200
    • Reiss, D.1
  • 26
    • 0022539130 scopus 로고
    • Family process, chronic illness, and death
    • Reiss, D., & Kramer, N. (1986). Family process, chronic illness, and death. Archives of General Psychiatry, 43, 795-804.
    • (1986) Archives of General Psychiatry , vol.43 , pp. 795-804
    • Reiss, D.1    Kramer, N.2
  • 27
    • 0021134926 scopus 로고
    • Toward a psychosocial typology of chronic and life-threatening illness
    • Rolland, J.S. (1984). Toward a psychosocial typology of chronic and life-threatening illness. Family Systems Medicine, 2, 245-262.
    • (1984) Family Systems Medicine , vol.2 , pp. 245-262
    • Rolland, J.S.1
  • 28
    • 0023359704 scopus 로고
    • Chronic illness and the life cycle: A conceptual framework
    • Rolland, J.S. (1987a). Chronic illness and the life cycle: A conceptual framework. Family Process, 26, 203-221.
    • (1987) Family Process , vol.26 , pp. 203-221
    • Rolland, J.S.1
  • 29
    • 0023543165 scopus 로고
    • Family illness paradigms: Evolution and significance
    • Rolland, J.S. (1987b). Family illness paradigms: Evolution and significance. Family Systems Medicine, 5, 482-503.
    • (1987) Family Systems Medicine , vol.5 , pp. 482-503
    • Rolland, J.S.1
  • 30
    • 0000859121 scopus 로고
    • A conceptual model of chronic and life threatening illness and its impact on the family
    • C. Chilman, E. Nunnally, & F. Cox (Eds.). Beverly Hills, CA: Sage Publications
    • Rolland, J.S. (1988). A conceptual model of chronic and life threatening illness and its impact on the family. In C. Chilman, E. Nunnally, & F. Cox (Eds.), Chronic illness and disability: Families in trouble (pp. 17-68). Beverly Hills, CA: Sage Publications.
    • (1988) Chronic Illness and Disability: Families in Trouble , pp. 17-68
    • Rolland, J.S.1
  • 31
    • 0025482960 scopus 로고
    • Anticipatory loss: A family systems developmental framework
    • Rolland, J.S. (1990). Anticipatory loss: A family systems developmental framework. Family Process, 29, 229-244.
    • (1990) Family Process , vol.29 , pp. 229-244
    • Rolland, J.S.1
  • 33
    • 84986660219 scopus 로고
    • In sickness and in health: The impact of illness on couples' relationships
    • Rolland, J.S. (1994b). In sickness and in health: The impact of illness on couples' relationships. Journal of Marital and Family Therapy, 20, 327-347.
    • (1994) Journal of Marital and Family Therapy , vol.20 , pp. 327-347
    • Rolland, J.S.1
  • 34
    • 0031302650 scopus 로고    scopus 로고
    • Commentary. The meaning of disability and suffering: Sociopolitical and ethical concerns
    • Rolland, J.S. (1997). Commentary. The meaning of disability and suffering: Sociopolitical and ethical concerns. Family Process, 36(4), 437-440.
    • (1997) Family Process , vol.36 , Issue.4 , pp. 437-440
    • Rolland, J.S.1
  • 35
    • 0345291172 scopus 로고    scopus 로고
    • Commentary. Families and genetic fate: A millennial challenge
    • Rolland, J.S. (1999). Commentary. Families and genetic fate: A millennial challenge. Families, Systems and Health, 17(1), 123-131.
    • (1999) Families, Systems and Health , vol.17 , Issue.1 , pp. 123-131
    • Rolland, J.S.1
  • 36
    • 3342970171 scopus 로고
    • Boston: Houghton Mifflin Company
    • Sexton, A. (1962). All my pretty ones. Boston: Houghton Mifflin Company.
    • (1962) All My Pretty Ones
    • Sexton, A.1
  • 37
    • 0042104721 scopus 로고    scopus 로고
    • The client's perspective of genetic counseling: A grounded theory study
    • Skirton, H. (2001). The client's perspective of genetic counseling: A grounded theory study. Journal of Genetic Counseling, 10(4), 311-329.
    • (2001) Journal of Genetic Counseling , vol.10 , Issue.4 , pp. 311-329
    • Skirton, H.1
  • 38
    • 0033989352 scopus 로고    scopus 로고
    • Impact of genetic testing for Huntington disease on the family system
    • Sobel, S., & Cowan, D. B. (2000a). Impact of genetic testing for Huntington disease on the family system. American Journal of Medical Genetics, 90(1), 49-59.
    • (2000) American Journal of Medical Genetics , vol.90 , Issue.1 , pp. 49-59
    • Sobel, S.1    Cowan, D.B.2
  • 39
    • 0033923041 scopus 로고    scopus 로고
    • The process of family reconstruction after DNA testing for Huntington disease
    • Sobel, S., & Cowan, D. B. (2000b). The process of family reconstruction after DNA testing for Huntington disease. Journal of Genetic Counseling, 9(3), 237-253.
    • (2000) Journal of Genetic Counseling , vol.9 , Issue.3 , pp. 237-253
    • Sobel, S.1    Cowan, D.B.2
  • 40
    • 0031667634 scopus 로고    scopus 로고
    • A conceptual framework for the psychosocial issues faced by families with genetic conditions
    • Street, E., & Soldan, J. (1998). A conceptual framework for the psychosocial issues faced by families with genetic conditions. Families, Systems & Health, 16(3), 217-232.
    • (1998) Families, Systems & Health , vol.16 , Issue.3 , pp. 217-232
    • Street, E.1    Soldan, J.2
  • 41
    • 0027275790 scopus 로고
    • Quality control in qualitative research
    • Stiles, W.B. (1993). Quality control in qualitative research. Clinical Psychology Review, 13, 593-618.
    • (1993) Clinical Psychology Review , vol.13 , pp. 593-618
    • Stiles, W.B.1
  • 43
    • 0030577060 scopus 로고    scopus 로고
    • Genetic testing of families with hereditary diseases
    • Wexler, A. (1996). Genetic testing of families with hereditary diseases. Journal of the American Medical Association, 276(14), 1139-1140.
    • (1996) Journal of the American Medical Association , vol.276 , Issue.14 , pp. 1139-1140
    • Wexler, A.1
  • 44
    • 0000902514 scopus 로고
    • Genetic "Russian-Roulette": The experience of being at risk for Huntington disease
    • S. Kessler (Ed.). New York: Academic Press
    • Wexler, N. (1979). Genetic "Russian-Roulette": The experience of being at risk for Huntington disease. In S. Kessler (Ed.), Genetic counseling: Psychological dimensions (pp. 199-220). New York: Academic Press.
    • (1979) Genetic Counseling: Psychological Dimensions , pp. 199-220
    • Wexler, N.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.