Genetic risk communication: Experiences of adolescent girls and young women from families with fragile X syndrome

Journal of Genetic Counseling

Volumn 18, Issue 4, 2009, Pages 313-325

  McConkie Rosell, Allyn ^a   Heise, Elizabeth Melvin ^a   Spiridigliozzi, Gail A ^a  

^a DUKE UNIVERSITY HEALTH SYSTEM   (United States)

Author keywords

Adolescents; Carrier testing; Fragile X syndrome; Genetic counseling; Genetic testing in children; Risk and resiliency; Risk communication

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; COPING BEHAVIOR; EXPERIENCE; FAMILY RELATION; FEMALE; FRAGILE X SYNDROME; GENETIC COUNSELING; GENETIC RISK; HETEROZYGOTE; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL INFORMATION; RISK ASSESSMENT; SELF CONCEPT; STRUCTURED INTERVIEW;

ADOLESCENT; ADULT; FEMALE; FRAGILE X SYNDROME; GENETIC PREDISPOSITION TO DISEASE; HETEROZYGOTE DETECTION; HUMANS; RISK ASSESSMENT; YOUNG ADULT;

EID: 68149169889     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-009-9215-2     Document Type: Article

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