Validation of outcome measurement instruments used in a multidisciplinary rehabilitation intervention for patients with chronic inflammatory arthritis : Linking to the international classification of functioning, disability and health , construct validity and responsiveness to change

Journal of Rehabilitation Medicine

Volumn 43, Issue 5, 2011, Pages 411-419

  Hagel, Sofia ^a   Lindqvist, Elisabet ^a   Petersson, Ingemar F ^a   Nilsson, Jan Ake ^a   Bremander, Ann ^a,b  

^a LUND UNIVERSITY   (Sweden)

^b Spenshult Hospital for Rheumatic Diseases   (Sweden)

Author keywords

Ankylosing spondylitis; Outcome measures; Quality of life; Rehabilitation; Rheumatoid arthritis

Indexed keywords

ADULT; AGED; ANKYLOSING SPONDYLITIS; ARTICLE; DISABILITY; FEMALE; HUMAN; INTERNATIONAL CLASSIFICATION OF DISEASES; MALE; METHODOLOGY; MIDDLE AGED; OUTCOME ASSESSMENT; PAIN ASSESSMENT; QUALITY OF LIFE; QUESTIONNAIRE; RHEUMATOID ARTHRITIS; STANDARD; VALIDATION STUDY;

ADULT; AGED; ARTHRITIS, RHEUMATOID; DISABILITY EVALUATION; FEMALE; HUMANS; INTERNATIONAL CLASSIFICATION OF DISEASES; MALE; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PAIN MEASUREMENT; QUALITY OF LIFE; QUESTIONNAIRES; SPONDYLITIS, ANKYLOSING;

EID: 79955942266     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-0794     Document Type: Article

References (47)

1. Boonen A. A review of work-participation, cost-of-illness and cost-effectiveness studies in ankylosing spondylitis. Nat Clin Pract Rheumatol 2006; 2: 546-553. (Pubitemid 44489958)
2. Lillegraven S, Kvien TK. Measuring disability and quality of life in established rheumatoid arthritis. Best Pract Res Clin Rheumatol 2007; 21: 827-840. (Pubitemid 47377806)
3. Vliet Vlieland TP, Pattison D. Non-drug therapies in early rheumatoid arthritis. Best Pract Res Clin Rheumatol 2009; 23: 103-116.
4. Cieza A, Stucki G. Understanding functioning, disability, and health in rheumatoid arthritis: the basis for rehabilitation care. Curr Opin Rheumatol 2005; 17: 183-189. (Pubitemid 40279615)
5. Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustun B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005; 37: 212-218. (Pubitemid 41025328)
6. Strand V, Gladman D, Isenberg D, Petri M, Smolen J, Tugwell P. Endpoints: consensus recommendations from OMERACT IV. Outcome Measures in Rheumatology. Lupus 2000; 9: 322-327. (Pubitemid 30389032)
7. van der Heijde D, Calin A, Dougados M, Khan MA, van der Linden S, Bellamy N. Selection of instruments in the core set for DC-ART, SMARD, physical therapy, and clinical record keeping in ankylosing spondylitis. Progress report of the ASAS Working Group. Assessments in ankylosing spondylitis. J Rheumatol 1999; 26: 951-954. (Pubitemid 29195692)
8. Cieza A, Brockow T, Ewert T, Amman E, Kollerits B, Chatterji S, et al. Linking health-status measurements to the international classification of functioning, disability and health. J Rehabil Med 2002; 34: 205-210.
9. Weigl M, Cieza A, Andersen C, Kollerits B, Amann E, Stucki G. Identification of relevant ICF categories in patients with chronic health conditions: a Delphi exercise. J Rehabil Med 2004; Suppl 44: 12-21. (Pubitemid 39307106)
10. Hagel S, Lindqvist E, Bremander A, Petersson IF. Team-based rehabilitation improves long-term aerobic capacity and healthrelated quality of life in patients with chronic inflammatory arthritis. Disabil Rehabil 2010; 32: 1686-1696.
11. Boonen A, Braun J, van der Horst Bruinsma IE, Huang F, Maksymowych W, Kostanjsek N, et al. ASAS/WHO ICF Core Sets for ankylosing spondylitis (AS): how to classify the impact of AS on functioning and health. Ann Rheum Dis 2010; 69: 102-107.
12. Tugwell P, Boers M, Strand V, Simon LS, Brooks P, Tugwell P, et al. OMERACT 9-9th International Consensus Conference on outcome measures in rheumatology clinical trials. J Rheumatol 2009; 36: 1765-1768.
13. Zochling J. Assessment and treatment of ankylosing spondylitis: current status and future directions. Curr Opin Rheumatol 2008; 20: 398-403.
14. Ekdahl C, Eberhardt K, Andersson SI, Svensson B. Assessing disability in patients with rheumatoid arthritis. Use of a Swedish version of the Stanford Health Assessment Questionnaire. Scand J Rheumatol 1988; 17: 263-271.
15. Fries JF, Spitz P, Kraines RG, Holman HR. Measurement of patient outcome in arthritis. Arthritis Rheum 1980; 23: 137-145. (Pubitemid 10164318)
16. Garrett S, Jenkinson T, Kennedy LG, Whitelock H, Gaisford P, Calin A. A new approach to defining disease status in ankylosing spondylitis: the Bath Ankylosing Spondylitis Disease Activity Index. J Rheumatol 1994; 21: 2286-2291.
17. Waldner A, Cronstedt H, Stenstrom CH. The Swedish version of the Bath ankylosing spondylitis disease activity index. Reliability and validity. Scand J Rheumatol Suppl 1999; 111: 10-16.
18. Calin A, Garrett S, Whitelock H, Kennedy LG, O'Hea J, Mallorie P, et al. A new approach to defining functional ability in ankylosing spondylitis: the development of the Bath Ankylosing Spondylitis Functional Index. J Rheumatol 1994; 21: 2281-2285.
19. Cronstedt H, Waldner A, Stenstrom CH. The Swedish version of the Bath ankylosing spondylitis functional index. Reliability and validity. Scand J Rheumatol Suppl 1999; 111: 1-9. (Pubitemid 29419526)
20. Joos E, Peretz A, Beguin S, Famaey JP. Reliability and reproducibility of visual analogue scale and numeric rating scale for therapeutic evaluation of pain in rheumatic patients. J Rheumatol 1991; 18: 1269-1270.
21. Jones SD, Calin A, Steiner A. An update on the Bath Ankylosing Spondylitis Disease Activity and Functional Indices (BASDAI, BASFI): excellent Cronbach's alpha scores. J Rheumatol 1996; 23: 407.
22. Houssien DA, McKenna SP, Scott DL. The Nottingham Health Profile as a measure of disease activity and outcome in rheumatoid arthritis. Br J Rheumatol 1997; 36: 69-73.
23. Wiklund I, Dimenas E. [The Swedish version of the Nottingham Health Profile. A questionnaire for the measurement of healthrelated quality of life]. Lakartidningen 1990; 87: 1575-1576 (in Swedish).
24. Wiklund I, Romanus B, Hunt SM. Self-assessed disability in patients with arthrosis of the hip joint. Reliability of the Swedish version of the Nottingham Health Profile. Int Disabil Stud 1988; 10: 159-163. (Pubitemid 19028025)
25. Ware JE Jr., Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30: 473-483.
26. Hurst NP, Kind P, Ruta D, Hunter M, Stubbings A. Measuring health-related quality of life in rheumatoid arthritis: validity, responsiveness and reliability of EuroQol (EQ-5D). Br J Rheumatol 1997; 36: 551-559.
27. Ebbeling CB, Ward A, Puleo EM, Widrick J, Rippe JM. Development of a single-stage submaximal treadmill walking test. Med Sci Sports Exerc 1991; 23: 966-973.
28. Minor MA, Johnson JC. Reliability and validity of a submaximal treadmill test to estimate aerobic capacity in women with rheumatic disease. J Rheumatol 1996; 23: 1517-1523. (Pubitemid 26290575)
29. Nordenskiold UM, Grimby G. Grip force in patients with rheumatoid arthritis and fibromyalgia and in healthy subjects. A study with the Grippit instrument. Scand J Rheumatol 1993; 22: 14-19. (Pubitemid 23064767)
30. Lagerstrom C, Nordgren B. On the reliability and usefulness of methods for grip strength measurement. Scand J Rehabil Med 1998; 30: 113-119. (Pubitemid 28206980)
31. Bostrom C, Harms-Ringdahl K, Nordemar R. Clinical reliability of shoulder function assessment in patients with rheumatoid arthritis. Scand J Rheumatol 1991; 20: 36-48.
32. Eberhardt KB , Svensson B, Mortiz U. Functional assessment of early rheumatoid arthritis. Br J Rheumatol 1988; 27: 364-371.
33. Jones SD, Porter J, Garrett SL, Kennedy LG, Whitelock H, Calin A. A new scoring system for the Bath Ankylosing Spondylitis Metrology Index (BASMI). J Rheumatol 1995; 22: 1609.
34. Prodinger B, Cieza A, Williams DA, Mease P, Boonen A, Kerschan-Schindl K, et al. Measuring health in patients with fibromyalgia: content comparison of questionnaires based on the International Classification of Functioning, Disability and Health. Arthritis Rheum 2008; 59: 650-658. (Pubitemid 351679539)
35. Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol 2007; 60: 34-42. (Pubitemid 44856236)
36. Mokkink LB, Terwee CB, Knol DL, Stratford PW, Alonso J, Patrick DL, et al. The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its content. BMC Med Res Methodol 2010; 10: 22.
37. Cohen J, editor. Statistical power analysis for the behavioral sciences. 2:nd edn. Lawrence Erlbaum Associates: New Jersey; 1988.
38. Cieza A, Stucki G. Content comparison of health-related quality of life (HRQOL) instruments based on the international classification of functioning, disability and health (ICF). Qual Life Res 2005; 14: 1225-1237. (Pubitemid 40895746)
39. Linde L, Sorensen J, Ostergaard M, Horslev-Petersen K, Hetland ML. Health-related quality of life: validity, reliability, and responsiveness of SF-36, 15D, EQ-5D [corrected] RAQoL, and HAQ in patients with rheumatoid arthritis. J Rheumatol 2008; 35: 1528-1537.
40. Landewe R, Dougados M, Mielants H, van der Tempel H, van der Heijde D. Physical function in ankylosing spondylitis is independently determined by both disease activity and radiographic damage of the spine. Ann Rheum Dis 2009; 68: 863-867.
41. Veehof MM, ten Klooster PM, Taal E, van Riel PL, van de Laar MA. Comparison of internal and external responsiveness of the generic Medical Outcome Study Short Form-36 (SF-36) with disease-specific measures in rheumatoid arthritis. J Rheumatol 2008; 35: 610-617. (Pubitemid 351500055)
42. Adams J, Mullee M, Burridge J, Hammond A, Cooper C. Responsiveness of self-report and therapist-rated upper extremity structural impairment and functional outcome measures in early rheumatoid arthritis. Arthritis Care Res (Hoboken) 2010; 62: 274-278.
43. Kirwan JR, Newman S, Tugwell PS, Wells GA, Hewlett S, Idzera L, et al. Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9. J Rheumatol 2009; 36: 2071-2076.
44. Boonen A, Stucki G, Maksymowych W, Rat AC, Escorpizo R, Boers M. The OMERACT-ICF Reference Group: integrating the ICF into the OMERACT process: opportunities and challenges. J Rheumatol 2009; 36: 2057-2060.
45. World Health Organization (WHO). International Classification of Functioning, Disability and Health. [cited 2001 March 9]. Geneva: WHO. Available from: www.who.int/icidh.
46. Cieza A, Stucki G, Weigl M, Disler P, Jackel W, van der Linden S, et al. ICF Core Sets for low back pain. J Rehabil Med 2004 Suppl 44: 69-74. (Pubitemid 39307114)
47. Hakkinen A, Arkela-Kautiainen M, Sokka T, Hannonen P, Kautiainen H. Self-report functioning according to the ICF model in elderly patients with rheumatoid arthritis and in population controls using the multidimensional health assessment questionnaire. J Rheumatol 2009; 36: 246-253.