Perceived participation and autonomy: Aspects of functioning and contextual factors predicting participation after stroke

Journal of Rehabilitation Medicine

Volumn 43, Issue 5, 2011, Pages 388-397

  Fallahpour, Mandana ^a,b   Tham, Kerstin ^a   Joghataei, Mohammad Taghi ^c   Jonsson, Hans ^a  

^a KAROLINSKA INSTITUTE   (Sweden)

^b Department of Occupational Therapy   (Sweden)

^c TEHRAN UNIVERSITY OF MEDICAL SCIENCES   (Iran)

Author keywords

Activities of daily living; ICF; Occupational therapy; Participation; Rehabilitation; Stroke

Indexed keywords

ADULT; AGED; ARTICLE; CROSS-SECTIONAL STUDY; FEMALE; HUMAN; HUMAN ACTIVITIES; INTERNATIONAL CLASSIFICATION OF DISEASES; IRAN; MALE; MIDDLE AGED; OCCUPATIONAL THERAPY; PERSONAL AUTONOMY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SELF CONCEPT; SOCIOECONOMICS; STROKE;

ADULT; AGED; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; INTERNATIONAL CLASSIFICATION OF DISEASES; IRAN; MALE; MIDDLE AGED; OCCUPATIONAL THERAPY; PERSONAL AUTONOMY; QUESTIONNAIRES; SELF CONCEPT; SOCIAL PARTICIPATION; SOCIOECONOMIC FACTORS; STROKE;

EID: 79955938740     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-0789     Document Type: Article

References (44)

1. Frommelt P, Omar Z, et al. ICF Core Sets for stroke. J Rehabil Med 2004; 44 Suppl: 135-141. (Pubitemid 39307123)
2. Johnston SC, Mendis S, Mathers CD. Global variation in stroke burden and mortality: estimates from monitoring, surveillance, and modelling. Lancet Neurol 2009; 8: 345-354.
3. Desrosiers J, Noreau L, Rochette A, Bourbonnais D, Bravo G, Bourget A. Predictors of long-term participation after stroke. Disabil Rehabil 2006; 28: 221-230. (Pubitemid 43250493)
4. Desrosiers J, Noreau L, Rochette A, Bravo G, Boutin C. Predictors of handicap situations following post-stroke rehabilitation. Disabil Rehabil 2002; 24: 774-785. (Pubitemid 35345518)
5. Desrosiers J, Demers L, Robichaud L, Vincent C, Belleville S, Ska B. Short-term changes in and predictors of participation of older adults after stroke following acute care or rehabilitation. Neurorehabil Neural Repair 2008; 22: 288-297. (Pubitemid 351561672)
6. Sturm JW, Donnan GA, Dewey HM, Macdonell RAL, Gilligan AK, Thrift AG. Determinants of handicap after stroke: the North East Melbourne Stroke Incidence Study (NEMESIS). Stroke 2004; 35: 715-720. (Pubitemid 38280847)
7. Clarke PJ, Black SE, Badley EM, Lawrence JM, Williams JI. Handicap in stroke survivors. Disabil Rehabil 1999; 21: 116-123. (Pubitemid 29099735)
8. World Health Organization. International Classification of Functioning, Disability and Health (ICF). Geneva: WHO; 2001.
9. Chau JP, Thompson DR, Twinn S, Chang AM, Woo J. Determinants of participation restriction among community dwelling stroke survivors: a path analysis. BMC Neurol 2009; 9: 49.
10. Mayer R, Reid D. Changes in autonomy and participation in seniors after stroke: a pilot study. Activities, Adaptation & Aging 2004; 28: 49-70.
11. Lo RS, Kwok TC, Cheng JO, Yang H, Yuan HJ, Harwood R, et al. Cross-cultural validation of the London Handicap Scale and comparison of handicap perception between Chinese and UK populations. Age Ageing 2007; 36: 544-548. (Pubitemid 47554945)
12. Hamzat TK, Peters GO. Motor function and participation among Nigerian stroke survivors: 6-month follow-up study. NeuroRehabilitation 2009; 25: 137-142.
13. Hammel J, Magasi S, Heinemann A, Whiteneck G, Bogner J, Rodriguez E. What does participation mean? An insider perspective from people with disabilities. Disabil Rehabil 2008; 30: 1445-1460.
14. Cardol M, De Jong BA, Ward CD. On autonomy and participation in rehabilitation. Disabil Rehabil 2002; 24: 970-974. (Pubitemid 36032860)
15. Haggstrom A, Lund ML. The complexity of participation in daily life: a qualitative study of the experiences of persons with acquired brain injury. J Rehabil Med 2008; 40: 89-95. (Pubitemid 351403992)
16. Dijkers MP. Issues in the conceptualization and measurement of participation: an overview. Arch Phys Med Rehabil 2010; 91: S5-S16.
17. Whiteneck G, Dijkers MP. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil 2009; 90: S22-S35.
18. Perenboom RJ, Chorus AM. Measuring participation according to the International Classification of Functioning, Disability and Health (ICF). Disabil Rehabil 2003; 25: 577-587. (Pubitemid 36806191)
19. Fallahpour M, Jonsson H, Joghataei MT, Kottorp A. Impact on Participation and Autonomy (IPA): psychometric evaluation of the Persian version to use for persons with stroke. Scand J Occup Ther 2011; 18: 59-71.
20. Cardol M, de Jong BA, van den Bos GA, Beelem A, de Groot IJ, de Haan RJ. Beyond disability: perceived participation in people with a chronic disabling condition. Clin Rehabil 2002; 16: 27-35. (Pubitemid 34100548)
21. Cardol M, de Haan RJ, van den Bos GA, de Jong BA, de Groot IJ. The development of a handicap assessment questionnaire: the Impact on Participation and Autonomy (IPA). Clin Rehabil 1999; 13: 411-419. (Pubitemid 29425636)
22. Cardol M, de Haan RJ, de Jong BA, van den Bos GA, de Groot IJ. Psychometric properties of the Impact on Participation and Autonomy Questionnaire. Arch Phys Med Rehabil 2001; 82: 210-216. (Pubitemid 32147890)
23. Cardol M, Beelen A, van den Bos GA, de Jong BA, de Groot IJ, de Haan RJ. Responsiveness of the Impact on Participation and Autonomy questionnaire. Arch Phys Med Rehabil 2002; 83: 1524-1529. (Pubitemid 35304127)
24. Folstein MF, Folstein SE, McHugh PR. "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975; 12: 189-198.
25. Kersten P. Impact on Participation and Autonomy (IPA), Manual to English version: IPA. Utrecht: Netherlands Institute for Health Services Research; 2007 [cited 2007 Sep 27]. Available from: http://www.nivel.nl.
26. Lund ML, Fisher AG, Lexell J, Bernspang B. Impact on participation and autonomy questionnaire: internal scale validity of the Swedish version for use in people with spinal cord injury. J Rehabil Med 2007; 39: 156-162.
27. Sibley A, Kersten P, Ward CD, White B, Mehta R, George S. Measuring autonomy in disabled people: validation of a new scale in a UK population. Clin Rehabil 2006; 20: 793-803. (Pubitemid 46940504)
28. Kersten P, Cardol M, George S, Ward C, Sibley A, White B. Validity of the impact on participation and autonomy questionnaire: a comparison between 2 countries. Disabil Rehabil 2007; 29: 1502-1509. (Pubitemid 47456956)
29. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983; 67: 361-370. (Pubitemid 13098606)
30. Bjelland I, Dahl AA, Haug TT, Neckelmann D. The validity of the Hospital Anxiety and Depression Scale. An updated literature review. J Psychosom Res 2002; 52: 69-77. (Pubitemid 34192886)
31. Fugl-Meyer AR, Jaasko L, Leyman I, Olsson S, Steglind S. The post-stroke hemiplegic patient. 1. A method for evaluation of physical performance. Scand J Rehabil Med 1975; 7: 13-31.
32. Fugl-Meyer AR. Post-stroke hemiplegia assessment of physical properties. Scand J Rehabil Med Suppl 1980; 7: 85-93. (Pubitemid 10064413)
33. Gladstone DJ, Danells CJ, Black SE. The Fugl-Meyer assessment of motor recovery after stroke: a critical review of its measurement properties. Neurorehabil Neural Repair 2002; 16: 232-240. (Pubitemid 34984898)
34. Duncan PW, Lai SM, Bode RK, Perera S, DeRosa J. Stroke Impact Scale-16: a brief assessment of physical function. Neurology 2003; 60: 291-296. (Pubitemid 36152025)
35. Mahoney FI, Barthel DW. Functional evaluation: the Barthel Index. Md State Med J 1965; 14: 61-65.
36. Jonsson AC, Lindgren I, Hallstrom B, Norrving B, Lindgren A. Determinants of quality of life in stroke survivors and their informal caregivers. Stroke 2005; 36: 803-808.
37. Norman GR, Streiner DL. Biostatistics: the bare essentials. 3rd ed. Hamilton: BC Decker Inc; 2008.
38. Franchignoni F, Ferriero G, Giordano A, Guglielmi V, Picco D. Rasch psychometric validation of the Impact on Participation and Autonomy questionnaire in people with Parkinson's disease. Eura Medicophys 2007; 43: 451-461.
39. Bastani S. Family comes first: men's and women's personal networks in Tehran. Social Networks 2007; 29: 357-374.
40. Haak M, Fange A, Iwarsson S, Ivanoff SD. Home as a signification of independence and autonomy: experiences among very old Swedish people. Scand J Occup Ther 2007; 14: 16-24. (Pubitemid 46404290)
41. Haak M, Fange A, Horstmann V, Iwarsson S. Two dimensions of participation in very old age and their relations to home and neighborhood environments. Am J Occup Ther 2008; 62: 77-86.
42. Beckley MN. Community participation following cerebrovascular accident: impact of the buffering model of social support. Am J Occup Ther 2006; 60: 129-135. (Pubitemid 43516113)
43. von Koch L, Holmqvist LW, Wottrich AW, Tham K, de Pedro-Cuesta J. Rehabilitation at home after stroke: a descriptive study of an individualized intervention. Clin Rehabil 2000; 14: 574-583.
44. The World Factbook. Iran: Central Intelligence Agency. [cited 2010 06/01]; Available from: https://www.cia.gov/library/publications/the-world- factbook/geos/ir.html.