-
1
-
-
0033926161
-
Perspectives of haemophilia carriers
-
Ross J. Perspectives of haemophilia carriers. Haemophilia 2000; 1: 41-5.
-
(2000)
Haemophilia
, vol.1
, pp. 41-45
-
-
Ross, J.1
-
3
-
-
26244441578
-
Parents sharing information with their children abou genetic conditions
-
Gallo AM, Angst D, Knafl KA, Hadley E, Smith C. Parents sharing information with their children abou genetic conditions. J Pediatr Healthcare 2005; 19: 267-75.
-
(2005)
J Pediatr Healthcare
, vol.19
, pp. 267-275
-
-
Gallo, A.M.1
Angst, D.2
Knafl, K.A.3
Hadley, E.4
Smith, C.5
-
4
-
-
53249117184
-
Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research
-
Metcalfe A, Coad J, Plumridge GM, Gill P, Farndon P. Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research. Eur J Hum Genet 2008; 16: 1193-200.
-
(2008)
Eur J Hum Genet
, vol.16
, pp. 1193-1200
-
-
Metcalfe, A.1
Coad, J.2
Plumridge, G.M.3
Gill, P.4
Farndon, P.5
-
5
-
-
0026815023
-
Children's knowledge of illness and treatment experiences in haemophilia
-
Spitzer A. Children's knowledge of illness and treatment experiences in haemophilia. J Pediatr Nurs 1992; 7: 43-51.
-
(1992)
J Pediatr Nurs
, vol.7
, pp. 43-51
-
-
Spitzer, A.1
-
6
-
-
20144387063
-
A framework for genetic service provision for haemophilia and other inherited bleeding disorders
-
Ludlam C, Pasi KJ, Bolton-Maggs P et al. A framework for genetic service provision for haemophilia and other inherited bleeding disorders. Haemophilia 2005; 11: 145-63.
-
(2005)
Haemophilia
, vol.11
, pp. 145-163
-
-
Ludlam, C.1
Pasi, K.J.2
Bolton-Maggs, P.3
-
8
-
-
70349653142
-
A systematic review of literature about the genetic testing of adolescents
-
Rew L, Mackert M, Bonevac D. A systematic review of literature about the genetic testing of adolescents. J Spec Pediatr Nurs 2009; 14: 284-94.
-
(2009)
J Spec Pediatr Nurs
, vol.14
, pp. 284-294
-
-
Rew, L.1
Mackert, M.2
Bonevac, D.3
-
9
-
-
79955165889
-
-
The National Curriculum for England. Available at Accessed January 20
-
The National Curriculum for England. Available at Accessed January 20, 2010.
-
(2010)
-
-
-
10
-
-
64049116484
-
Disclosure of genetic information within families: how nurses can facilitate family communication
-
Gallo AM, Angst DB, Knafl KA. Disclosure of genetic information within families: how nurses can facilitate family communication. Am J Nurs 2009; 109: 65-9.
-
(2009)
Am J Nurs
, vol.109
, pp. 65-69
-
-
Gallo, A.M.1
Angst, D.B.2
Knafl, K.A.3
-
11
-
-
0032009804
-
Patients rights or family responsibilities? Two approaches to genetic testing
-
Skene L. Patients rights or family responsibilities? Two approaches to genetic testing. Med Law Review 1998; 6: 1-41.
-
(1998)
Med Law Review
, vol.6
, pp. 1-41
-
-
Skene, L.1
-
12
-
-
27744534654
-
'It's their blood not mine': Who's responsible for (not) telling relatives about genetic risk?
-
Forrest Keenan K, Simpson S, Wilson B et al. 'It's their blood not mine': Who's responsible for (not) telling relatives about genetic risk? Health Risk Soc 2005; 7: 209-26.
-
(2005)
Health Risk Soc
, vol.7
, pp. 209-226
-
-
Forrest Keenan, K.1
Simpson, S.2
Wilson, B.3
-
13
-
-
79955136789
-
The internet as an information source for parents yalking to children about genetic conditions
-
Plumridge G, Metcalfe A, Coad J. The internet as an information source for parents yalking to children about genetic conditions. J Child Young Peoples Nurs 2007; 5: 225-30.
-
(2007)
J Child Young Peoples Nurs
, vol.5
, pp. 225-230
-
-
Plumridge, G.1
Metcalfe, A.2
Coad, J.3
-
14
-
-
34548316171
-
Attitudes towards and beliefs about genetic testing in the haemophilia community: a qualitative study
-
Thomas S, Herbert D, Street A, Barnes C, Boal J, Komesaroff P. Attitudes towards and beliefs about genetic testing in the haemophilia community: a qualitative study. Haemophilia 2007; 13: 633-41.
-
(2007)
Haemophilia
, vol.13
, pp. 633-641
-
-
Thomas, S.1
Herbert, D.2
Street, A.3
Barnes, C.4
Boal, J.5
Komesaroff, P.6
-
15
-
-
0032939336
-
Counselling about diagnosis and inheritance of genetic bleeding disorders: haemophilia A and B
-
Miller R. Counselling about diagnosis and inheritance of genetic bleeding disorders: haemophilia A and B. Haemophilia 1999; 5: 77-83.
-
(1999)
Haemophilia
, vol.5
, pp. 77-83
-
-
Miller, R.1
-
16
-
-
33646348978
-
The best experts: the narratives of those who have a genetic condition
-
Petersen A. The best experts: the narratives of those who have a genetic condition. Soc Sci Med 2006; 63: 32-42.
-
(2006)
Soc Sci Med
, vol.63
, pp. 32-42
-
-
Petersen, A.1
-
18
-
-
33846914256
-
Communicating about haemophilia within the family: the importance of context and of experience
-
Gregory M, Boddington P, Dimond R, Atkinson P, Clarke A, Collins P. Communicating about haemophilia within the family: the importance of context and of experience. Haemophilia 2007; 13: 189-98.
-
(2007)
Haemophilia
, vol.13
, pp. 189-198
-
-
Gregory, M.1
Boddington, P.2
Dimond, R.3
Atkinson, P.4
Clarke, A.5
Collins, P.6
-
19
-
-
68149169889
-
Genetic risk communication: experiences of adolescent girls and young women from families with fragile X syndrome
-
McConkie-Rossell A, Heise EM, Spiridigliozzi GA. Genetic risk communication: experiences of adolescent girls and young women from families with fragile X syndrome. J Genet Couns 2009; 18: 313-25.
-
(2009)
J Genet Couns
, vol.18
, pp. 313-325
-
-
McConkie-Rossell, A.1
Heise, E.M.2
Spiridigliozzi, G.A.3
-
20
-
-
77951735890
-
Family communication about genetic risk information: particular issues for Duchenne Muscular Dystrophy
-
Plumridge G, Metcalfe A, Coad J, Gill P. Family communication about genetic risk information: particular issues for Duchenne Muscular Dystrophy. Am J Med Genet A 2010; 152A: 1225-32.
-
(2010)
Am J Med Genet A
, vol.152 A
, pp. 1225-1232
-
-
Plumridge, G.1
Metcalfe, A.2
Coad, J.3
Gill, P.4
-
21
-
-
33646003882
-
Complinace with treatment and understanding of own disease in patients with severe and moderate haemophilia
-
Lindvall K, Colstrup L, Wollter I-M et al. Complinace with treatment and understanding of own disease in patients with severe and moderate haemophilia. Haemophilia 2006; 12: 47-51.
-
(2006)
Haemophilia
, vol.12
, pp. 47-51
-
-
Lindvall, K.1
Colstrup, L.2
Wollter, I.-M.3
-
22
-
-
77954857223
-
Knowledge of disease and adherence in adult patients with haemophilia
-
Lindvall K, Colstrup L, Loogna K, Wollter I-M, Gronhuag S. Knowledge of disease and adherence in adult patients with haemophilia. Haemophilia 2010; 4: 592-6.
-
(2010)
Haemophilia
, vol.4
, pp. 592-596
-
-
Lindvall, K.1
Colstrup, L.2
Loogna, K.3
Wollter, I.-M.4
Gronhuag, S.5
-
23
-
-
63049110750
-
Haemophilia A: patients knowledge level of treatment and sources of treatment-related information
-
Miller K, Guelcher C, Taylor A. Haemophilia A: patients knowledge level of treatment and sources of treatment-related information. Haemophilia 2009; 15: 73-7.
-
(2009)
Haemophilia
, vol.15
, pp. 73-77
-
-
Miller, K.1
Guelcher, C.2
Taylor, A.3
-
24
-
-
33645526437
-
A legacy for the children - attitudes of older adults in the United Kingdom to genetic testing
-
Skirton H, Frazier L, Calvin O, Cohen M. A legacy for the children - attitudes of older adults in the United Kingdom to genetic testing. J Clin Nurs 2006; 15: 565-73.
-
(2006)
J Clin Nurs
, vol.15
, pp. 565-573
-
-
Skirton, H.1
Frazier, L.2
Calvin, O.3
Cohen, M.4
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