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Volumn 109, Issue 4, 2009, Pages 65-69

Disclosure of genetic information within families

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; AGE; CHILD; CONFIDENTIALITY; FAMILY; GENETIC DISORDER; GENETIC SCREENING; GENETICS; HEALTH INSURANCE; HUMAN; INTERPERSONAL COMMUNICATION; LEGAL ASPECT; NURSE ATTITUDE; ORGANIZATION AND MANAGEMENT; PRACTICE GUIDELINE; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; REVIEW; RISK ASSESSMENT; RISK FACTOR; UNITED STATES;

EID: 64049116484     PISSN: 0002936X     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.NAJ.0000348607.31983.6e     Document Type: Article
Times cited : (51)

References (24)
  • 1
    • 68349156216 scopus 로고    scopus 로고
    • Frequently asked questions about genetic and genomic science
    • National Institutes of Health
    • National Human Genome Research Institute. Frequently asked questions about genetic and genomic science. What is genetics and genomics? National Institutes of Health. 2009. http://www.genome.gov/19016904#1.
    • (2009) What is genetics and genomics
  • 2
    • 0141921347 scopus 로고    scopus 로고
    • To tell or not to tell: Barriers and facilitators in family communication about genetic risk
    • Forrest K, et al. To tell or not to tell: barriers and facilitators in family communication about genetic risk. Clin Genet 2003;64(4):317-26.
    • (2003) Clin Genet , vol.64 , Issue.4 , pp. 317-326
    • Forrest, K.1
  • 3
    • 18244409105 scopus 로고    scopus 로고
    • Disclosing genetic test results to family members
    • Hamilton RJ, et al. Disclosing genetic test results to family members. J Nurs Scholarsh 2005;37(1):18-24.
    • (2005) J Nurs Scholarsh , vol.37 , Issue.1 , pp. 18-24
    • Hamilton, R.J.1
  • 4
    • 0037100079 scopus 로고    scopus 로고
    • Personal experiences of cystic fibrosis (CF) carrier couples prospectively identified in CF families
    • Henneman L, et al. Personal experiences of cystic fibrosis (CF) carrier couples prospectively identified in CF families. Am J Med Genet 2002; 110(4):324-31.
    • (2002) Am J Med Genet , vol.110 , Issue.4 , pp. 324-331
    • Henneman, L.1
  • 5
    • 0042820275 scopus 로고    scopus 로고
    • Effect of family history on disclosure patterns of cystic fibrosis carrier status
    • Ormond KE, et al. Effect of family history on disclosure patterns of cystic fibrosis carrier status. Am J Med Genet C Semin Med Genet 2003; 119C(1):70-7.
    • (2003) Am J Med Genet C Semin Med Genet , vol.119 C , Issue.1 , pp. 70-77
    • Ormond, K.E.1
  • 6
    • 33646348978 scopus 로고    scopus 로고
    • The best experts: The narratives of those who have a genetic condition
    • Petersen A. The best experts: the narratives of those who have a genetic condition. Soc Sci Med 2006;63(1):32-42.
    • (2006) Soc Sci Med , vol.63 , Issue.1 , pp. 32-42
    • Petersen, A.1
  • 7
    • 0041818205 scopus 로고    scopus 로고
    • Communication about carrier testing within hemophilia A families
    • Sorenson JR, et al. Communication about carrier testing within hemophilia A families. Am J Med Genet C Semin Med Genet 2003;119C(1):3-10.
    • (2003) Am J Med Genet C Semin Med Genet , vol.119 C , Issue.1 , pp. 3-10
    • Sorenson, J.R.1
  • 8
    • 0037216727 scopus 로고    scopus 로고
    • Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients
    • Claes E, et al. Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients. Am J Med Genet A 2003; 116A(1):11-9.
    • (2003) Am J Med Genet A , vol.116 A , Issue.1 , pp. 11-19
    • Claes, E.1
  • 9
    • 0036591548 scopus 로고    scopus 로고
    • Voluntary disclosure of BRCA1 mutation test results
    • Smith KR, et al. Voluntary disclosure of BRCA1 mutation test results. Genet Test 2002;6(2):89-92.
    • (2002) Genet Test , vol.6 , Issue.2 , pp. 89-92
    • Smith, K.R.1
  • 10
    • 0042319194 scopus 로고    scopus 로고
    • Communication of BRCA1 and BRCA2 results to at-risk relatives: A cancer risk assessment program's experience
    • Wagner Costalas J, et al. Communication of BRCA1 and BRCA2 results to at-risk relatives: a cancer risk assessment program's experience. Am J Med Genet C Semin Med Genet 2003;119C(1):11-8.
    • (2003) Am J Med Genet C Semin Med Genet , vol.119 C , Issue.1 , pp. 11-18
    • Wagner Costalas, J.1
  • 11
    • 18244374810 scopus 로고    scopus 로고
    • All in the family: Evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results
    • Hughes C, et al. All in the family: evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results. Am J Med Genet 2002;107(2):143-50.
    • (2002) Am J Med Genet , vol.107 , Issue.2 , pp. 143-150
    • Hughes, C.1
  • 12
    • 27144458112 scopus 로고    scopus 로고
    • Disclosure of personal medical information: Differences among parents and affected adults for genetic and nongenetic conditions
    • Johnson S, et al. Disclosure of personal medical information: differences among parents and affected adults for genetic and nongenetic conditions. Genet Test 2005;9(3):269-80.
    • (2005) Genet Test , vol.9 , Issue.3 , pp. 269-280
    • Johnson, S.1
  • 13
    • 0036283684 scopus 로고    scopus 로고
    • Parent- child factors and their effect on communicating BRCA1/2 test results to children
    • Tercyak K P, et al. Parent- child factors and their effect on communicating BRCA1/2 test results to children. Patient Educ Couns 2002;47(2): 145-53.
    • (2002) Patient Educ Couns , vol.47 , Issue.2 , pp. 145-153
    • Tercyak, K.P.1
  • 14
    • 3543146182 scopus 로고    scopus 로고
    • Family matters: A conceptual framework for genetic testing in children
    • McConkie-Rosell A, Spiridigliozzi GA. "Family matters": a conceptual framework for genetic testing in children. J Genet Couns 2004;13(1):9-29.
    • (2004) J Genet Couns , vol.13 , Issue.1 , pp. 9-29
    • McConkie-Rosell, A.1    Spiridigliozzi, G.A.2
  • 15
    • 0041818170 scopus 로고    scopus 로고
    • Breast cancer survivors' attitudes about communication of breast cancer risk to their children
    • Miesfeldt S, et al. Breast cancer survivors' attitudes about communication of breast cancer risk to their children. Am J Med Genet C Semin Med Genet 2003;119C(1):45-50.
    • (2003) Am J Med Genet C Semin Med Genet , vol.119 C , Issue.1 , pp. 45-50
    • Miesfeldt, S.1
  • 17
    • 26244441578 scopus 로고    scopus 로고
    • Parents sharing information with their children about genetic conditions
    • Gallo AM, et al. Parents sharing information with their children about genetic conditions. J Pediatr Health Care 2005;19(5):267-75.
    • (2005) J Pediatr Health Care , vol.19 , Issue.5 , pp. 267-275
    • Gallo, A.M.1
  • 18
    • 0038624107 scopus 로고    scopus 로고
    • Ethical issues with genetic testing in pediatrics
    • Nelson RM, et al. Ethical issues with genetic testing in pediatrics. Pediatrics 2001;107(6):1451-5.
    • (2001) Pediatrics , vol.107 , Issue.6 , pp. 1451-1455
    • Nelson, R.M.1
  • 19
    • 0028872836 scopus 로고
    • Points to consider: Ethical, legal, and psychosocial implications of genetic testing in children and adolescents
    • American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors
    • American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors. Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. Am J Hum Genet 1995; 57(5):1233-41.
    • (1995) Am J Hum Genet , vol.57 , Issue.5 , pp. 1233-1241
  • 20
    • 68349145100 scopus 로고    scopus 로고
    • Cancer.Net. Sharing genetic test results with your family. American Society of Clinical Oncology. 2006. http://www.cancer.net/patient/ Learning+ About+Cancer/Genetics/Sharing+ Genetic+Test+Results+With+Your+ Family.
    • Cancer.Net. Sharing genetic test results with your family. American Society of Clinical Oncology. 2006. http://www.cancer.net/patient/ Learning+ About+Cancer/Genetics/Sharing+ Genetic+Test+Results+With+Your+ Family.
  • 21
    • 0036651352 scopus 로고    scopus 로고
    • Genetic testing and screening
    • Lea DH, Williams JK. Genetic testing and screening. Am J Nurs 2002; 102(7):36-43.
    • (2002) Am J Nurs , vol.102 , Issue.7 , pp. 36-43
    • Lea, D.H.1    Williams, J.K.2
  • 23
    • 33847175921 scopus 로고    scopus 로고
    • Establishing the essential nursing competencies for genetics and genomics
    • Jenkins J, Calzone KA. Establishing the essential nursing competencies for genetics and genomics. J Nurs Scholarsh 2007;39(1):10-6.
    • (2007) J Nurs Scholarsh , vol.39 , Issue.1 , pp. 10-16
    • Jenkins, J.1    Calzone, K.A.2
  • 24
    • 67650087123 scopus 로고    scopus 로고
    • International Society of Nurses in Genetics, Silver Spring, MD: American Nurses Association;
    • International Society of Nurses in Genetics. Genetics/genomics nursing: scope and standards of practice. Silver Spring, MD: American Nurses Association; 2006.
    • (2006) Genetics/genomics nursing: Scope and standards of practice


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.