Tracing the use and source of racial terminology in representations of genetic research

Genetics in Medicine

Volumn 13, Issue 4, 2011, Pages 314-319

  Rachul, Christen ^a   Ouellette, Colin ^a   Caulfield, Timothy ^a  

^a UNIVERSITY OF ALBERTA   (Canada)

Author keywords

ethnicity; genetics; media; peer reviewed journals; press releases; race

Indexed keywords

ARTICLE; GENETIC ANALYSIS; LINGUISTICS; MASS MEDIUM; NOMENCLATURE; POPULATION RESEARCH; QUALITATIVE ANALYSIS; QUANTITATIVE ANALYSIS; RACE DIFFERENCE; SCIENTIFIC LITERATURE;

DATA COLLECTION; ETHNIC GROUPS; GENETIC RESEARCH; HUMANS; PUBLICATIONS; TERMINOLOGY AS TOPIC;

EID: 79955002684     PISSN: 10983600     EISSN: None     Source Type: Journal    
DOI: 10.1097/GIM.0b013e3181f5cf9a     Document Type: Article

References (29)

1. Malinowski MJ. Dealing with the realities of race and ethnicity: a bioethics-centered argument in favor of race-based genetics research. Hous L Rev 2009;45:1415-1473.
2. Koenig BA, Lee SS, Richardson SS, editors. Revisiting race in a genomic age. New Jersey: Rutgers University Press, 2008.
3. Lynch J, Condit CM. Genes and race in the news: a test of competing theories of news coverage. Am J Health Behav 2006;30:125-135. (Pubitemid 43471833)
4. Lynch J, Bevan J, Achter P, Harris T, Condit CM. A preliminary study of how multiple exposures to messages about genetics impact on lay attitudes towards racial and genetic discrimination. New Genet Soc 2008;27:43-51.
5. Caulfield T, Fullerton SM, Ali-Khan SE, et al. Race and ancestry in biomedical research: exploring the challenges. Genome Med 2009;1: 8.1-8.8.
6. Schwitzer G. How do US journalists cover treatments, tests, products, and procedures? An evaluation of 500 stories. PLoS Med 2008;5:700-704.
7. Woloshin S, Schwartz LM, Casella SL, Kennedy AT, Larson RJ. Press releases by academic medical centers: not so academic? Ann Intern Med 2009;150:613-619.
8. Caulfield T, Harry S. Popular representations of race: the news coverage of BiDil. J Law Med Ethics 2008;36:485.
9. Bubela TM, Caulfield T. Do the print media "hype" genetic research? A comparison of newspaper stories and peer-reviewed research papers. Can Med Assoc J 2004;170:1399-1407. (Pubitemid 38594632)
10. Cho M. Racial and ethnic categories in biomedical research: there is no baby in the bathwater. J Law Med Ethics 2006;34:497-499. (Pubitemid 44505509)
11. Kahn J. Genes, race and population: avoiding a collision of categories. Am J Public Health 2007;96:1965-1970. (Pubitemid 44655921)
12. Lee SS. Racializing drug design: implications of pharmacogenomics for health disparities. Am J Public Health 2005;95:2133-2138. (Pubitemid 41740242)
13. Fullwiley D. Race and genetics: attempts to define the relationship. BioSocieties 2007;2:221-237.
14. Bazerman C. Intertextuality: how texts rely on other texts. In: Bazerman C, Prior P, editors. What writing does and how it does it: an introduction to analyzing texts and textual practices. Mahwah, NJ: Lawrence Erlbaum Associates, 2004:83-96.
15. Hyland K. Academic attribution: citation and the construction of disciplinary knowledge. Appl Linguist 1999;20:341-367.
16. Ellison G, Smart A, Tutton A, Outram S, Ashcroft R. Racial categories in medicine: a failure of evidence-based practice? PLOS Med 2007;4:1434-1436. (Pubitemid 47503032)
17. Shanawani H, Dame L, Schwartz DA, Cook-Deegan R. Non-reporting and inconsistent reporting of race and ethnicity in articles that claim association among genotype, outcome and race or ethnicity. J Med Ethics 2006;32:724.
18. Myers G. Lexical cohesion and specialized knowledge in science and popular science texts. Discourse Processes 1991;14:1-26.
19. Condit CM. How geneticists can help reporters to get their story right. Nat Rev Genet 2007;8:815-820. (Pubitemid 47432550)
20. Surratt HL, Inciardi JA. Unraveling the concept of race in Brazil: issues for the Rio de Janiero Cooperative Agreement site. J Psychoactive Drugs 1998;30:255-260. (Pubitemid 28467631)
21. Eschbach K, Supple K, Snipp CM. Changes in racial identification and the educational attainment of American Indians. Demography 1998;35:35-43. (Pubitemid 128452356)
22. Hitlin S, Scott JB, Elder GHJ. Racial self-categorization in adolescence: multiracial development and social pathways. Child Dev 2006;77:1298-1308. (Pubitemid 44453648)
23. Outram S, Ellison G. Improving the use of race and ethnicity in genetic research: a survey of instructions to authors in genetics journals. Sci Ed 2006;29:78.
24. Condit CM, Parrott R, Bates BR, Bevan J, Achter PJ. Exploration of the impact of messages about genes and race on lay attitudes. Clin Genet 2004;66:402-408. (Pubitemid 39429736)
25. Sankar P, Cho MK, Mountain J. Race and ethnicity in genetic research. Am J Med Genet 2007;143:961-970. (Pubitemid 46700902)
26. Ma IW, Khan NA, Kang A, Zalunardo N, Palepu A. Systematic review identified suboptimal reporting and use of race/ethnicity in general medical journals. J Clin Epidemiol 2007;60:572-578. (Pubitemid 46691338)
27. Hunt LM, Megyesi MS. The ambiguous meanings of the racial/ethnic categories routinely used in human genetics research. Soc Sci Med 2008;66: 349-361. (Pubitemid 350236471)
28. Sankar P, Cho MK. Genetics: toward a new vocabulary of human genetic variation. Science 2002;298:1337-1338. (Pubitemid 35346117)
29. Lee S, Mountain J, Koenig B. The ethics of characterizing difference: guiding principles on using racial categories in human genetics. Genome Biol 2008;9:404.