메뉴 건너뛰기




Volumn 79, Issue 5, 2011, Pages 413-424

The Genetic Counseling Outcome Scale: A new patient-reported outcome measure for clinical genetics services

Author keywords

Empowerment; Evaluation; Outcome measures; PROM; Psychometrics; Scale development

Indexed keywords

ADOLESCENT; ADULT; AGED; ANALYSIS OF VARIANCE; ANXIETY; ARTICLE; CONCURRENT VALIDITY; DEPRESSION; EFFECT SIZE; FEMALE; GENETIC COUNSELING; GENETIC COUNSELING OUTCOME SCALE; HUMAN; INTERNAL CONSISTENCY; LIFE SATISFACTION; LOCUS OF CONTROL; MAJOR CLINICAL STUDY; OUTCOME ASSESSMENT; PRIORITY JOURNAL; QUESTIONNAIRE; RATING SCALE; TEST RETEST RELIABILITY; VALIDITY;

EID: 79953760489     PISSN: 00099163     EISSN: 13990004     Source Type: Journal    
DOI: 10.1111/j.1399-0004.2011.01636.x     Document Type: Article
Times cited : (142)

References (38)
  • 1
    • 0842305120 scopus 로고    scopus 로고
    • Assessment of genetic testing and related counselling services: current research and future directions.
    • Wang C, Gonzalez R, Merajver SD. Assessment of genetic testing and related counselling services: current research and future directions. Soc Sci Med 2004: 58: 1427-1442.
    • (2004) Soc Sci Med , vol.58 , pp. 1427-1442
    • Wang, C.1    Gonzalez, R.2    Merajver, S.D.3
  • 2
    • 44049091729 scopus 로고    scopus 로고
    • Outcome measurement in clinical genetics services: a systematic review of validated measures.
    • Payne K, Nicholls S, McAllister M, MacLeod R, Donnai D, Davies L. Outcome measurement in clinical genetics services: a systematic review of validated measures. Value Health 2008: 11 (3): 497-508.
    • (2008) Value Health , vol.11 , Issue.3 , pp. 497-508
    • Payne, K.1    Nicholls, S.2    McAllister, M.3    MacLeod, R.4    Donnai, D.5    Davies, L.6
  • 3
    • 67651250363 scopus 로고    scopus 로고
    • Quality in clinical genetics.
    • Williams MS. Quality in clinical genetics. Am J Med Genet 2009: 151C: 175-178.
    • (2009) Am J Med Genet , vol.151 C , pp. 175-178
    • Williams, M.S.1
  • 6
    • 34848894537 scopus 로고    scopus 로고
    • Outcome measures for clinical genetics services: a comparison of genetics healthcare professionals and patients' views.
    • Payne K, Nicholls SG, McAllister M et al. Outcome measures for clinical genetics services: a comparison of genetics healthcare professionals and patients' views. Health Policy 2007: 84 (1): 112-122.
    • (2007) Health Policy , vol.84 , Issue.1 , pp. 112-122
    • Payne, K.1    Nicholls, S.G.2    McAllister, M.3
  • 7
    • 67651245405 scopus 로고    scopus 로고
    • Health-related quality of life measures in genetic disorders: an outcome variable for consideration in clinical trials.
    • Stevenson DA, Carey JC. Health-related quality of life measures in genetic disorders: an outcome variable for consideration in clinical trials. AM J Med Genet 2009 :151C: 255-260.
    • (2009) AM J Med Genet , vol.151 C , pp. 255-260
    • Stevenson, D.A.1    Carey, J.C.2
  • 8
    • 54849416321 scopus 로고    scopus 로고
    • Patient reported outcome measures: a model-based classification system for research and clinical practice.
    • Valderas J, Alonso J. Patient reported outcome measures: a model-based classification system for research and clinical practice. Qual Life Res 2008: 17 (9): 1125-1135.
    • (2008) Qual Life Res , vol.17 , Issue.9 , pp. 1125-1135
    • Valderas, J.1    Alonso, J.2
  • 10
    • 78651411855 scopus 로고    scopus 로고
    • Empowerment: a new patient reported outcome for clinical genetics services?
    • DOI: 10.1038/ejhg.2010.160.
    • McAllister M, Dunn G, Todd C. Empowerment: a new patient reported outcome for clinical genetics services? Eur J Hum Genet 2010. DOI: 10.1038/ejhg.2010.160.
    • (2010) Eur J Hum Genet
    • McAllister, M.1    Dunn, G.2    Todd, C.3
  • 11
    • 34250660561 scopus 로고    scopus 로고
    • Empowerment: a goal or a means for health promotion?
    • Tengland P-A. Empowerment: a goal or a means for health promotion? Med Health Care Philos 2007: 10: 197-207.
    • (2007) Med Health Care Philos , vol.10 , pp. 197-207
    • Tengland, P.-A.1
  • 14
    • 0004125042 scopus 로고
    • 2nd edn. Hillsdale, NJ: Erlbaum
    • Gorsuch RL. Factor analysis, 2nd edn. Hillsdale, NJ: Erlbaum, 1983.
    • (1983) Factor analysis
    • Gorsuch, R.L.1
  • 16
    • 0017941653 scopus 로고
    • Development of the multidimensional health locus of control scales.
    • Wallston KA, Wallston BS, DeVellis R. Development of the multidimensional health locus of control scales. Health Educ Monogr 1978: 6: 160-170.
    • (1978) Health Educ Monogr , vol.6 , pp. 160-170
    • Wallston, K.A.1    Wallston, B.S.2    DeVellis, R.3
  • 17
    • 0026781061 scopus 로고
    • The development of a six-item short-form of the state scale of the Spielberger State-Trait Anxiety Inventory (STAI).
    • Marteau TM, Bekker H. The development of a six-item short-form of the state scale of the Spielberger State-Trait Anxiety Inventory (STAI). Br J Clin Psychol 1992: 31: 301-316.
    • (1992) Br J Clin Psychol , vol.31 , pp. 301-316
    • Marteau, T.M.1    Bekker, H.2
  • 18
    • 34547793088 scopus 로고    scopus 로고
    • Diagnosing depression in primary care using self-completion instruments: UK validation of PHQ-9 and CORE-OM.
    • Gilbody S, Richards D, Barkham M. Diagnosing depression in primary care using self-completion instruments: UK validation of PHQ-9 and CORE-OM. Br J Gen Pract 2007: 57: 650-652.
    • (2007) Br J Gen Pract , vol.57 , pp. 650-652
    • Gilbody, S.1    Richards, D.2    Barkham, M.3
  • 19
    • 0001442908 scopus 로고
    • Review of the Satisfaction with Life Scale.
    • Pavot W, Diener E. Review of the Satisfaction with Life Scale. Psychol Assess 1993: 5 (2): 164-172.
    • (1993) Psychol Assess , vol.5 , Issue.2 , pp. 164-172
    • Pavot, W.1    Diener, E.2
  • 20
    • 47749114529 scopus 로고    scopus 로고
    • The authentic personality: a theoretical and empirical conceptualization and the development of the authenticity scale.
    • Wood AM, Linley PA, Maltby J, Baliousis M, Joseph S. The authentic personality: a theoretical and empirical conceptualization and the development of the authenticity scale. J Counsel Psychol 2008: 55 (3): 385-399.
    • (2008) J Counsel Psychol , vol.55 , Issue.3 , pp. 385-399
    • Wood, A.M.1    Linley, P.A.2    Maltby, J.3    Baliousis, M.4    Joseph, S.5
  • 21
    • 0039620968 scopus 로고    scopus 로고
    • Evaluating the use of exploratory factor analysis in psychological research.
    • Fabrigar LR, Wegener DT, MacCallum RC, Strahan EJ. Evaluating the use of exploratory factor analysis in psychological research. Psychol Methods 1999: 4 (3): 272-299.
    • (1999) Psychol Methods , vol.4 , Issue.3 , pp. 272-299
    • Fabrigar, L.R.1    Wegener, D.T.2    MacCallum, R.C.3    Strahan, E.J.4
  • 22
    • 0029134625 scopus 로고
    • Factor analysis in the development and refinement of clinical assessment instruments.
    • Floyd FJ, Widaman KF. Factor analysis in the development and refinement of clinical assessment instruments. Psychol Assess 1995: 7 (3): 286-299.
    • (1995) Psychol Assess , vol.7 , Issue.3 , pp. 286-299
    • Floyd, F.J.1    Widaman, K.F.2
  • 23
    • 58149371489 scopus 로고
    • Uses of factor analysis in counseling psychology research.
    • Tinsley HEA, Tinsley DJ. Uses of factor analysis in counseling psychology research. J Counsel Psychol 1987: 34 (4): 414-424.
    • (1987) J Counsel Psychol , vol.34 , Issue.4 , pp. 414-424
    • Tinsley, H.E.A.1    Tinsley, D.J.2
  • 25
    • 34250493668 scopus 로고
    • A second generation little jiffy.
    • Kaiser HF. A second generation little jiffy. Psychometrika 1970: 35: 401-415.
    • (1970) Psychometrika , vol.35 , pp. 401-415
    • Kaiser, H.F.1
  • 26
    • 0034242321 scopus 로고    scopus 로고
    • SPSS and SAS programs for determining the number of components using parallel analysis and Velicer's MAP test.
    • O'Conner BP. SPSS and SAS programs for determining the number of components using parallel analysis and Velicer's MAP test. Behav Res Methods 2000: 32 (3): 396-402.
    • (2000) Behav Res Methods , vol.32 , Issue.3 , pp. 396-402
    • O'Conner, B.P.1
  • 27
    • 33847682868 scopus 로고    scopus 로고
    • Improving service evaluation in clinical genetics: identifying effects of genetic diseases on individuals and families.
    • McAllister M, Payne K, Nicholls S, MacLeod R, Donnai D, Davies LM. Improving service evaluation in clinical genetics: identifying effects of genetic diseases on individuals and families. J Genetic Counsel 2007: 16 (1): 71-83.
    • (2007) J Genetic Counsel , vol.16 , Issue.1 , pp. 71-83
    • McAllister, M.1    Payne, K.2    Nicholls, S.3    MacLeod, R.4    Donnai, D.5    Davies, L.M.6
  • 28
    • 35949002406 scopus 로고    scopus 로고
    • The emotional effects of genetic diseases: implications for clinical genetics.
    • McAllister M, Davies L, Payne K, Nicholls S, Donnai D, MacLeod R. The emotional effects of genetic diseases: implications for clinical genetics. Am J Med Genet 2007: 143A (22): 2651-2661.
    • (2007) Am J Med Genet , vol.143 A , Issue.22 , pp. 2651-2661
    • McAllister, M.1    Davies, L.2    Payne, K.3    Nicholls, S.4    Donnai, D.5    MacLeod, R.6
  • 29
    • 56749153148 scopus 로고    scopus 로고
    • What process attributes of clinical genetics services could maximise patient benefits?
    • McAllister M, Payne K, MacLeod R, Nicholls S, Donnai D, Davies L. What process attributes of clinical genetics services could maximise patient benefits? Eur J Hum Genet 2008: 16: 1467-1476.
    • (2008) Eur J Hum Genet , vol.16 , pp. 1467-1476
    • McAllister, M.1    Payne, K.2    MacLeod, R.3    Nicholls, S.4    Donnai, D.5    Davies, L.6
  • 30
    • 0028795768 scopus 로고
    • Validation of a decisional conflict scale.
    • O'Conner AM. Validation of a decisional conflict scale. Med Decision Making 1995: 15 (1): 25-30.
    • (1995) Med Decision Making , vol.15 , Issue.1 , pp. 25-30
    • O'Conner, A.M.1
  • 31
  • 32
    • 0030747955 scopus 로고    scopus 로고
    • A consumer-constructed scale to measure empowerment among users of mental health services.
    • Rogers ES, Chamberlain J, Ellison ML, Crean T. A consumer-constructed scale to measure empowerment among users of mental health services. Psych Services 1997: 48 (8): 1042-1047.
    • (1997) Psych Services , vol.48 , Issue.8 , pp. 1042-1047
    • Rogers, E.S.1    Chamberlain, J.2    Ellison, M.L.3    Crean, T.4
  • 33
    • 0034088040 scopus 로고    scopus 로고
    • The Diabetes Empowerment Scale: a measure of psychosocial self efficacy.
    • Anderson RM, Funnell MM, Fitzgerald JT, Marrero DG. The Diabetes Empowerment Scale: a measure of psychosocial self efficacy. Diab Care 2000: 23 (6): 739-743.
    • (2000) Diab Care , vol.23 , Issue.6 , pp. 739-743
    • Anderson, R.M.1    Funnell, M.M.2    Fitzgerald, J.T.3    Marrero, D.G.4
  • 34
    • 33749582773 scopus 로고    scopus 로고
    • The psychometrics of developing the patient empowerment scale.
    • Bulsara C, Styles I, Ward AM, Bulsara M. The psychometrics of developing the patient empowerment scale. J Psychosoc Oncol 2006: 24 (2): 1-16.
    • (2006) J Psychosoc Oncol , vol.24 , Issue.2 , pp. 1-16
    • Bulsara, C.1    Styles, I.2    Ward, A.M.3    Bulsara, M.4
  • 35
    • 79953730827 scopus 로고    scopus 로고
    • High quality care for all: NHS next stage review final report Available at: Accessed on July 1, 2009.
    • Darzi A. High quality care for all: NHS next stage review final report 2008. Available at: Accessed on July 1, 2009.
    • (2008)
    • Darzi, A.1
  • 36
    • 79953757891 scopus 로고    scopus 로고
    • UK Department of Health Guidance on the routine collection of Patient Reported Outcome Measures (PROMs). Available at: Accessed on July 1, 2009.
    • UK Department of Health 2008. Guidance on the routine collection of Patient Reported Outcome Measures (PROMs). Available at: Accessed on July 1, 2009.
    • (2008)
  • 37
    • 84920042279 scopus 로고    scopus 로고
    • Outcome measures in clinical genetics services.
    • Kristoffersson U, Schmidtke J, Cassiman J-J, eds. London: Springer
    • McAllister M. Outcome measures in clinical genetics services. In: Kristoffersson U, Schmidtke J, Cassiman J-J, eds. Quality issues in clinical genetics services. London: Springer, 2010.
    • (2010) Quality issues in clinical genetics services.
    • McAllister, M.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.