Assessment of palliative care cancer patients' most important concerns

Supportive Care in Cancer

Volumn 19, Issue 4, 2011, Pages 475-481

  Baile, Walter F ^a   Palmer, J Lynn ^a   Bruera, Eduardo ^a   Parker, Patricia A ^a  

^a UNIVERSITY OF TEXAS   (United States)

Author keywords

Assessment; Concerns; Palliative care

Indexed keywords

ADULT; ANXIETY; ARTICLE; CANCER BEHAVIOR INVENTORY; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CHECKLIST; CONCERNS CHECKLIST; DEPRESSION; DISTRESS SYNDROME; FEMALE; HOSPITAL ANXIETY AND DEPRESSION SCALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MOOD DISORDER; PHYSICIAN; PRIORITY JOURNAL; RATING SCALE; SELF CARE; SELF CONCEPT;

ADULT; AGED; AGED, 80 AND OVER; ANXIETY; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; DEPRESSION; FEMALE; HUMANS; MALE; MIDDLE AGED; MOOD DISORDERS; NEOPLASMS; PALLIATIVE CARE; SELF EFFICACY; YOUNG ADULT;

EID: 79953300939     PISSN: 09414355     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00520-010-0839-4     Document Type: Article

References (53)

1. [No authors listed] (1998) Approaching death: improving care at the end of life - a report of the Institute of Medicine. Health Serv Res 33:1-3
2. [No authors listed] (1998) Cancer care during the last phase of life. J Clin Oncol 16:1986-1996
3. [No authors listed] (2004) NIH State-of-the-Science Conference Statement on improving end-of-life care. NIH Consens State Sci Statements 21:1-26
4. Allenby A, Matthews J, Beresford J, McLachlan SA (2002) The application of computer touch-screen technology in screening for psychosocial distress in an ambulatory oncology setting. Eur J Cancer Care (Engl) 11:245-253
5. Barczak P, Kane N, Andrews S, Congdon AM, Clay JC, Betts T (1988) Patterns of psychiatric morbidity in a genito-urinary clinic. A validation of the Hospital Anxiety Depression scale (HAD). Br J Psychiatry 152:698-700
6. Boberg EW, Gustafson DH, Hawkins RP, Offord KP, Koch C, Wen KY, Kreutz K, Salner A (2003) Assessing the unmet information, support and care delivery needs of men with prostate cancer. Patient Educ Couns 49:233-242 (Pubitemid 36294236)
7. Brown R, Butow PN, Boyer MJ, Tattersall MH (1999) Promoting patient participation in the cancer consultation: evaluation of a prompt sheet and coaching in question-asking. Br J Cancer 80:242-248 (Pubitemid 29210113)
8. Bruera E, Michaud M, Vigano A, Neumann CM, Watanabe S, Hanson J (2001)Multidisciplinary symptomcontrol clinic in a cancer center: a retrospective study. Support Care Cancer 9:162-168 (Pubitemid 32435807)
9. Bruera E, Sweeney C, Calder K, Palmer L, Benisch-Tolley S (2001) Patient preferences versus physician perceptions of treatment decisions in cancer care. J Clin Oncol 19:2883-2885
10. Bruera E, Willey JS, Palmer JL, Rosales M (2002) Treatment decisions for breast carcinoma: patient preferences and physician perceptions. Cancer 94:2076-2080 (Pubitemid 34270063)
11. Cella D (1998) Factors influencing quality of life in cancer patients: anemia and fatigue. Semin Oncol 25:43-46
12. Cull A, Fry A, Rush R, Steel CM (2001) Cancer risk perceptions and distress among women attending a familial ovarian cancer clinic. Br J Cancer 84:594-599 (Pubitemid 32241806)
13. Detmar SB, Aaronson NK (1998) Quality of life assessment in daily clinical oncology practice: a feasibility study. Eur J Cancer 34:1181-1186 (Pubitemid 28342106)
14. Detmar SB, Muller MJ, Schornagel JH, Wever LD, Aaronson NK (2002) Health-related quality-of-life assessments and patient- physician communication: a randomized controlled trial. JAMA 288:3027-3034 (Pubitemid 35471165)
15. Foley KM (2005) Improving palliative care for cancer: a national and international perspective. Gynecol Oncol 99:S213-214
16. Greisinger AJ, Lorimor RJ, Aday LA, Winn RJ, Baile WF (1997) Terminally ill cancer patients. Their most important concerns. Cancer Pract 5:147-154
17. Hancock K, Clayton JM, Parker SM, Walder S, Butow PN, Carrick S, Currow D, Ghersi D, Glare P, Hagerty R, Tattersall MH (2007) Discrepant perceptions about end-of-life communication: a systematic review. J Pain Symptom Manage 34:190-200 (Pubitemid 47096782)
18. Harrison J, Maguire P, Pitceathly C (1995) Confiding in crisis: gender differences in pattern of confiding among cancer patients. Soc Sci Med 41:1255-1260
19. Heaven CM, Maguire P (1998) The relationship between patients' concerns and psychological distress in a hospice setting. Psychooncology 7:502-507 (Pubitemid 29012722)
20. Heyland DK, Dodek P, Rocker G, Groll D, Gafni A, Pichora D, Shortt S, Tranmer J, Lazar N, Kutsogiannis J, Lam M (2006) What matters most in end-of-life care: perceptions of seriously ill patients and their family members. CMAJ 174:627-633 (Pubitemid 43341872)
21. Johnston M, Pollard B, Hennessey P (2000) Construct validation of the hospital anxiety and depression scale with clinical populations. J Psychosom Res 48:579-584
22. Kahn SB, Houts PS, Harding SP (1992) Quality of life and patients with cancer: a comparative study of patient versus physician perceptions and its implications for cancer education. J Cancer Educ 7:241-249
23. Kerr J, Engel J, Schlesinger-Raab A, Sauer H, Holzel D (2003) Communciation, quality of life and age: results of a 5-year prospective study in breast cancer patients. Ann Oncol 14:421-427 (Pubitemid 36367420)
24. Knobel H, Loge JH, Brenne E, Fayers P, Hjermstad MJ, Kaasa S (2003) The validity of EORTC QLQ-C30 fatigue scale in advanced cancer patients and cancer survivors. Palliat Med 17:664-672 (Pubitemid 37508950)
25. Kutner JS, Steiner JF, Corbett KK, Jahnigen DW, Barton PL (1999) Information needs in terminal illness. Soc Sci Med 48:1341-1352 (Pubitemid 29197336)
26. Landis JR, Koch GG (1977) The measurement of observer agreement for categorical data. Biometrics 33:159-174 (Pubitemid 8054849)
27. Le T, Leis A, Pahwa P, Wright K, Ali K, Reeder B (2003) Quality-of- life issues in patients with ovarian cancer and their caregivers: a review. Obstet Gynecol Surv 58:749-758 (Pubitemid 37352169)
28. Lidstone V, Butters E, Seed PT, Sinnott C, Beynon T, Richards M (2003) Symptoms and concerns amongst cancer outpatients: identifying the need for specialist palliative care. Palliat Med 17:588-595 (Pubitemid 37279339)
29. Maguire P (2002) Improving the recognition of concerns and affective disorders in cancer patients. Ann Oncol 13(Suppl 4):177-181
30. Merluzzi TV, Martinez Sanchez MA (1997) Assessment of self-efficacy and coping with cancer: development and validation of the cancer behavior inventory. Health Psychol 16:163-170 (Pubitemid 127465976)
31. Merluzzi TV, Nairn RC, Hegde K, Martinez Sanchez MA, Dunn L (2001) Self-efficacy for coping with cancer: revision of the Cancer Behavior Inventory (version 2.0). Psychooncology 10:206-217 (Pubitemid 32466046)
32. Moorey S, Greer S, Watson M, Gorman C, Rowden L, Tunmore R, Robertson B, Bliss J (1991) The factor structure and factor stability of the hospital anxiety and depression scale in patients with cancer [see comments]. Comment in:Br J Psychiatry. 1991 Aug; 159:298.
33. Br J Psychiatry 158:255-259
34. Nekolaichuk CL, Bruera E, Spachynski K, MacEachern T, Hanson J, Maguire TO (1999) A comparison of patient and proxy symptom assessments in advanced cancer patients. Palliat Med 13:311-323 (Pubitemid 29378209)
35. Osoba D (1999) What has been learned from measuring health-related quality of life in clinical oncology. Eur J Cancer 35:1565-1570
36. Parle M, Jones B, Maguire P (1996) Maladaptive coping and affective disorders among cancer patients. Psychol Med 26:735-744 (Pubitemid 26244110)
37. Passik SD, Kirsh KL, Donaghy K, Holtsclaw E, Theobald D, Cella D, Breitbart W (2002) Patient-related barriers to fatigue communication: initial validation of the fatigue management barriers questionnaire. J Pain Symptom Manage 24:481-493 (Pubitemid 36120424)
38. Penson DF, Litwin MS, Aaronson NK (2003) Health related quality of life in men with prostate cancer. J Urol 169:1653-1661 (Pubitemid 36443466)
39. Podmore EJ, Bingham LC, Roberts KM, Selby PJ, Wright P, Velikova G (2009) Routine assessment of social difficulties in cancer patients: are we opening Pandora's box? Support Care Cancer 17:1425-1432
40. Sharpe M, Strong V, Allen K, Rush R, Postma K, Tulloh A, Maguire P, House A, Ramirez A, Cull A (2004) Major depression in outpatients attending a regional cancer centre: screening and unmet treatment needs. Br J Cancer 90:314-320 (Pubitemid 38250622)
41. Smith AB, Selby PJ, Velikova G, Stark D, Wright EP, Gould A, Cull A (2002) Factor analysis of the Hospital Anxiety and Depression Scale from a large cancer population. Psychol Psychother: Theor Res Pract 75:165-176 (Pubitemid 35404156)
42. Snyder CF, Dy SM, Hendricks DE, Brahmer JR, Carducci MA, Wolff AC, Wu AW (2007) Asking the right questions: investigating needs assessments and health-related quality-of-life questionnaires for use in oncology clinical practice. Support Care Cancer 15:1075-1085 (Pubitemid 47340970)
43. Soothill K, Morris SM, Harman J, Francis B, Thomas C, McIllmurray MB (2001) The significant unmet needs of cancer patients: probing psychosocial concerns. Support Care Cancer 9:597-605 (Pubitemid 33063720)
44. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA (2000) Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 284:2476-2482
45. Strasser F, Sweeney C, Willey J, Benisch-Tolley S, Palmer JL, Bruera E (2004) Impact of a half-day multidisciplinary symptom control and palliative care outpatient clinic in a comprehensive cancer center on recommendations, symptom intensity, and patient satisfaction: a retrospective descriptive study. J Pain Symptom Manage 27:481-491
46. Velikova G, Awad N, Coles-Gale R, Wright EP, Brown JM, Selby PJ (2008) The clinical value of quality of life assessment in oncology practice - a qualitative study of patient and physician views. Psychooncology 17:690-698
47. Velikova G, Booth L, Smith AB, Brown PM, Lynch P, Brown JM, Selby PJ (2004) Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. J Clin Oncol 22:714-724 (Pubitemid 41095076)
48. Velikova G, Brown JM, Smith AB, Selby PJ (2002) Computer-based quality of life questionnaires may contribute to doctor- patient interactions in oncology. Br J Cancer 86:51-59 (Pubitemid 34146340)
49. Vickery CW, Blazeby JM, Conroy T, Johnson CD, Alderson D (2000) Development of an EORTC module to improve quality of life assessment in patients with gastric cancer. Br J Surg 87:362-373
50. Wright EP, Selby PJ, Crawford M, Gillibrand A, Johnston C, Perren TJ, Rush R, Smith A, Velikova G, Watson K, Gould A, Cull A (2003) Feasibility and compliance of automated measurement of quality of life in oncology practice. J Clin Oncol 21:374-382 (Pubitemid 46606168)
51. Zabora J, BrintzenhofeSzoc K, Curbow B, Hooker C, Piantadosi S (2001) The prevalence of psychological distress by cancer site. Psychooncology 10:19-28 (Pubitemid 32106774)
52. Zabora J, BrintzenhofeSzoc K, Jacobsen P, Curbow B, Piantadosi S, Hooker C, Owens A, Derogatis L (2001) A new psychosocial screening instrument for use with cancer patients. Psychosomatics 42:241-246 (Pubitemid 32410976)
53. Zigmond A, Snaith R (1983) The hospital anxiety and depression scale. Acta Psychiatr Scand 67:361-370 (Pubitemid 13098606)