The experience of palliative patients and their families of a family meeting utilised as an instrument for spiritual and psychosocial care: A qualitative study

BMC Palliative Care

Volumn 10, Issue , 2011, Pages

  Tan, Heather M ^a   Wilson, Anne ^b   Olver, Ian ^c   Barton, Christopher ^d  

^a MONASH UNIVERSITY   (Australia)

^b UNIVERSITY OF ADELAIDE   (Australia)

^c Cancer Council Australia   (Australia)

^d FLINDERS UNIVERSITY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; DATA ANALYSIS; FAMILY; FAMILY INTERACTION; HEALTH CARE UTILIZATION; HUMAN; INTERVIEW; MEDICAL STAFF; OUTCOME ASSESSMENT; PALLIATIVE THERAPY; PATIENT CARE; PERSONAL EXPERIENCE; PHENOMENOLOGY; PSYCHOLOGICAL WELL BEING; PSYCHOSOCIAL CARE; QUALITATIVE RESEARCH; RELIGION; SPIRITUAL CARE;

EID: 79953079539     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/1472-684X-10-7     Document Type: Article

References (49)

1. Perceptions of spiritual care among nurses undertaking post registration education. S Milligan, Int J Palliat Nurs 2004 10 4 162 171 15150450
2. Assumptions and principle of spiritual care. Spiritual Care Work Group of International Work Group on Death Dying and Bereavement, Death Stud 1990 14 75 81 10.1080/07481189008252346
3. The place of spiritual well-being in hospice patients' overall quality of life. JE Thomson, Hosp J 2000 15 2 13 27 10.1300/J011v15n02-02 11271157
4. Educational needs of hospice social workers: Spiritual assessment and interventions with diverse populations. C Wesley K Tunney E Duncan, Am J Hosp Palliat Care 2004 21 1 40 46 10.1177/104990910402100110 14748522 (Pubitemid 39420558)
5. Perspectives on spirituality at the end of life: A meta-summary. AL Williams, Palliat Support Care 2006 4 4 407 417 10.1017/S1478951506060500 17133899
6. Australia's future in palliative care research. A collaborative approach. Palliative Care Australia, Palliative Care Australia 2000
7. Definitions. HG Koenig M McCullough DB Larson, Handbook of Religion and Health Oxford University Press: New York 2001
8. Spirituality in palliative care: Opportunity or burden? T Walter, Palliat Med 2002 16 2 133 139 10.1191/0269216302pm516oa 11969144 (Pubitemid 34326517)
9. The essence of spiritual care: A phenomenological enquiry. MC Wright, Palliat Med 2002 16 2 125 132 10.1191/0269216302pm518oa 11969143 (Pubitemid 34406410)
10. A critical view of how nursing has defined spirituality. J Clarke, J Clin Nurs 2009 18 12 1666 1673 10.1111/j.1365-2702.2008.02707.x 19646113
11. Deconstructing spiritual well-being: Existential well-being and HRQOL in cancer survivors. D Edmondson C Park T Blank J Fenster M Mills, Psycho-Oncol 2008 17 2 161 169 10.1002/pon.1197 (Pubitemid 351279867)
12. Is there a correlation between spirituality and anxiety and depression in patients with advanced cancer? RC McCoubrie AN Davies, Support Care Cancer 2006 14 4 379 385 10.1007/s00520-005-0892-6 16283208
13. A thematic review of the spirituality literature within palliative care. S Sinclair J Pereira S Raffin, J Palliat Med 2006 9 2 464 479 10.1089/jpm.2006.9.464 16629575
14. A 3-factor model for the FACIT-Sp. A Canada P Murphy G Fitchett A Peterman L Schover, Psycho-Oncology 2008 17 908 916 10.1002/pon.1307 18095260
15. Spirituality as a core domain in the assessment of quality of life in oncology. H Whitford I Olver M Peterson, Psych-Oncology 2008 17 11 1121 8 10.1002/pon.1322
16. Religion, spirituality and cancer: Current status and methodological challenges. M Stefanek P MCDonald S Hess, Psycho-Oncology 2005 14 450 463 10.1002/pon.861 15376283 (Pubitemid 40883417)
17. Caring for the spirit: lessons from working with the dying. BD Rumbold, Medical Journal of Australia 2003 179 6 Suppl 11 13 12964927
18. E Lartey, In living colour: an intercultural approach to pastoral care and counselling London: Cassell 1997
19. The experience of spirituality in the lives of hospice patients. P Stephenson C Draucker D Martsolf, Journal of Hospice and Palliative Nursing 2003 5 1 51 58 10.1097/00129191-200301000-00020
20. The association between perceived spirituality, religiosity and life satisfaction: The mediating role of self-rated health. K Zullig R Ward T Horn, Social Indicators Research 2006 79 255 274 10.1007/s11205-005-4127-5 (Pubitemid 44594187)
21. Retaining the meaning of words religiousness and spirituality: A commentary on the WHOQOL SRPB group's "A cross-cultural study of spirituality, religion and personal beliefs as components of quality of life". A Moreira-Almeida H Koenig, Social Science and Medicine 2006 63 843 845 10.1016/j.socscimed.2006.03.001 16650515
22. NCHSPCS, Feeling better: psychosocial care in specialist palliative care London: National Council for Hospice and Specialist Palliative Care Services 1997 13
23. D Kissane S Bloch, Family Focused Grief Therapy: A model of family-centred care during palliative care and bereavement Buckingham, Philadelphia: Open University Press 2002
24. J Nadeau, Families making sense of death Thousand Oakes: Sage Publications 1998
25. Understanding family responses to life-limiting illness: In-depth interviews with hospice patients and their family members. DP Waldrop RA Milch JA Skretny, J Palliat Care 2005 21 2 88 96 16114807 (Pubitemid 40992257)
26. L Hoffman, Foundations of family therapy New York: Basic Books 1981
27. C Kemp, Terminal Illness: A guide to nursing care Toronto: JB Lippincott 1995
28. Palliative care for families: Remembering the hidden patients. LJ Kristjanson S Aoun, Can J Psychiatry 2004 49 6 359 365 15283530 (Pubitemid 38878666)
29. Working with families in palliative care: One size does not fit all. DA King T Quill, J Palliat Med 2006 9 3 704 715 10.1089/jpm.2006.9.704 16752976 (Pubitemid 43938847)
30. Family Meetings in Palliative Care: Are they effective? P Hudson T Thomas K Quinn S Aranda, Pall Med 2009 23 150 157 10.1177/0269216308099960
31. Conducting family meetings in palliative care: Themes, techniques and preliminary evaluation of a communication skills module. J Gueguen C Bylund R Brown T Levin D Kissane, Palliative and Supportive Care 2009 7 171 179 10.1017/S1478951509000224 19538799
32. NM Murphy, The wisdom of dying: Practices for living Boston: Element Books Limited 1999
33. Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. HM Chochinov T Hack T Hassard LJ Kristjanson S McClement M Harlos, J Clin Oncol 2005 23 24 5520 5525 10.1200/JCO.2005.08.391 16110012
34. Living stories, telling stories, changing stories: Experiential use of the relationship in narrative therapy. AJ Richert, J Psychother Integ 2003 13 2 188 210 10.1037/1053-0479.13.2.188 (Pubitemid 36769729)
35. H-G Gadamer, Truth and method New York NY: Crossroad 2 1989
36. M Heidegger, Being and time Oxford: Basil Blackwell 1962
37. P Ricoeur, Paul Ricoeur hermaneutics and the human sciences New York: Cambridge University Press 1981
38. A quantitative analysis of qualitative studies in clinical journals for the 2000 publishing year. K McKibbon C Gadd, BMC Medical Informatics and Decision Making 2004 4 1 11 10.1186/1472-6947-4-11 15271221
39. P Rice D Ezzy, Qualitative Research Methods: A health focus South Melbourne: Oxford University Press 1999
40. M Crotty, the Foundations of Social Research: Meaning and perspective in the research process Sydney: Allen & Unwin 1998
41. E Husserl, Ideas: General Introduction to pure phenomenology London: Allen & Unwin, Boyce WR, 1931
42. Ricoeur's Theory of Interpretation: an instrument for data interpretation in Hermeneutic Phenomenology. H Tan A Wilson I Olver, International Journal of qualitative Methods 2009 8 4 1 15
43. Analyzing talk and text. D Silverman, Handbook of qualitative analysis Thousand Oakes: Sage Publications, Denzin N, Lincoln Y, 2 2000 821 834
44. In search of a good death: Observations of patients, families, and providers. KE Steinhauser EC Clipp M McNeilly NA Christakis LM McIntyre JA Tulsky, Ann Intern Med 2000 132 10 825 832 10819707 (Pubitemid 30317799)
45. Exploring Ricoeur's hermeneutic theory of interpretation as a method of analysing research texts. R Geanellos, Nurs Inq 2000 7 2 112 119 10.1046/j.1440-1800.2000.00062.x 11075108
46. Recruiting palliative patients for a large qualitative study: some ethical considerations and staff dilemmas. H Tan A Wilson I Olver C Barton, EXPLORE: The Journal of Science and Healing 2010 6 3 159 165 10.1016/j.explore.2010.03.008
47. At the confluence of memory and meaning - life review with older adults and families: Using narrative therapy and the expressive arts to re-member and re-author stories of resilience. RL Caldwell, Family Journal: Counseling and Therapy for Couples and Families 2005 13 2 172 175 (Pubitemid 40938036)
48. Self-presentation and impression management. H Michener J DeLamater D Myers, Social psychology United States: Thompson/Wadsworth 5 2004 222 244
49. Recruitment and retention in a longitudinal palliative care study. DW Sherman CB McSherry V Parkas XY Ye M Calabrese M Gatto, Appl Nurs Res 2005 18 3 167 177 10.1016/j.apnr.2005.04.003 16106335 (Pubitemid 40994941)